hyperemesis sufferers unite!

[Aaisrie]

Andrea I just got out of hospital after 4 days finally getting down to 2+ ketones, they were 4+ plus the other days

 

[mummySS]

I never got told what level mine were at, just that they were at high levels. But my healthcare professionals have generally not been that good.

 

[missy1]

Hey girls,

Shocker
that's great you're out of hospital! I hope youre feeling better. At least youre in your own house. And thanks for your reassurance regarding the meds. You are absolutely right and I hope no one is upset that I said I was worried. As you say the risks are much greater if you're dehydrated.

Andrea
I think you definitely have HG. As someone else said there are different levels of it. I've not been in hospital as I've tolerated some fluids but it has still been one of the darkest and most difficult times of my life. As you say it's lovely to come on here and share you're experience with others who are going through the same thing. It makes me feel less alone in all this.

MummySS
I live in Glasgow but I do travel to London a lot with my job (well not recently obviously :-/

Today I have actually had quite a good day. Managed to have a bit more to eat without gagging and even did a jigsaw puzzle with my daughter this evening. I've been feeling like a crap mummy recently, I'm sure you all know what I mean. I feel like she's befn really neglected so it was nice to see her smiling and happy this evening while playing with her

 

[shocker]

Squishy your friend sounds like an idiot! Ive had a good few people do the whole "oh i was so sick and i still managed to do all this" but its just bollox, if theyre that sick and still able to do stuff then good for them, it took a while before i was able to not take it as a personal attack, people just dont get it and thats fine if they want to be childish leave them off! My ketones have varied Ive only been told what they are a few times, most appointments i have now theyre at trace levels or 2, they were 3 when i was first diagnosed and 4 when i was admitted last week, i find it more annoying when they stay at 2 for ages as i have eczema which dries out my skin already and coupled with dehydration it makes my skin crack and bleed and can be really really painful when it doesnt change any bit over the weeks, i have to sit and cover myself in oil to try and keep moisture in

Missy that is fantastic that you got to have some time with your daughter, I cant imagine how difficult it must be having another child to look after when your so ill, she must be delighted getting a new brother or sister!

 

[Squishy1982]

Thanks again. Shocker you have hit the nail on the head when you say it feels like a personal attack. I am just letting them get on with it now.

The only reason I asked about the ketones is that mine were 2+ at my last check and the nurse who did them didn't tell me if that was high or not.

Glad those of you who have been in hospital have escaped and hope you are enjoying the comfort of your own homes xx

 

[Squishy1982]

Missy I just wanted to say that I know exactly what you mean about feeling like your child is neglected, I am like this with my son and hate not being able to play with him the way he wants xx

 

[missy1]

Missy that is fantastic that you got to have some time with your daughter, I cant imagine how difficult it must be having another child to look after when your so ill, she must be delighted getting a new brother or sister!

I've been lucky Shocker that my mum is retired and has been taking care of her when my husband's at work. She is such a good little thing though. She is a wee ray of sunshine in these dark days. She comes in for a cuddle every morning and says 'you not feel well mummy?' I just say 'no but I'll be ok soon' She'll say 'I'll kiss you better' and proceeds to kiss my tummy. She's only 2 bless her but she's so sweet. In some ways HG is easier to deal with psychologically this time round because now I can see the end result if that makes sense. Is this your first Shocker? Xx

 

[shocker]

Aww thats great that your mum is looking after her and so so sweet that she was kissing your tummy! I had a mc but never had HG with that pregnancy, OH originally wanted us to try immediately after for another but ive told him theres no way! We've agreed that we will think it over for a while and consider adoption first as i am genuinely terrified of falling pregnant after this baby is here. I have so much respect and admiration for people who can do it a second time, im hoping that with a bit of time i will get a rose tinted memory of everything and it wont be such a big fear

 

[missy1]

Shocker I'm sorry you had a mc. I can understand you not wanting to go through pregnancy again, especially as you have had it really bad what with being hospitalised and I've just seen on your ticker that your 32 weeks so that is a very long time to suffer. With my daughter I was well again by 18 weeks but even so I was scared to get pregnant again but after a few years had passed I definitely forgot how bad it actually was and I believed that maybe I wouldn't get it twice :-/ The desire for another child became so strong that I think I convinced myself that my HG hadn't really been that bad. I know now that I'm done at 2. I'll never go through this again and a few weeks ago I had some bleeding and thought I might have been having a mc and I had made my mind up that that was it. If I was losing this baby then my daughter would be an only child. Everything turned out ok and we got to see the heartbeat in a scan but I totally know where you're coming from. Can you imagine if every woman suffered from HG? There would be a huge decline in the population lol x

 

[Micha2]

Hi again girls

Andrea I was only off work 9 weeks & mine was still hg. Admittedly i wasnt ALL better by the time i went back when about 15wks but gradually got better & better & got through the days.

Have u ladies tried zofran (aka ondansetron)? Thats what i was on and yes i still felt crap but it did keep me out of hospital this time. Also, and sorry if ive said this before, but a combination of 25mg vitamin B6 + 1/2 a restavit (unisom) before bed allowed me decent nights sleep. As opposed to waking up vomitting!
I know it sux having to pump yourself full of drugs in pregnancy, but we just have to do what we have to do.

I too had quite an unsympathetic dr with my first 2 hg pregnancies. Him & the mudwife would just kind of laugh & say welcome to pregnancy. I did literally years of research before i dared go for no.3! Sadly no.3 & 4 didnt work out so this is technically no. 5 for me!

Thinking of you all. Stay strong xo

 

[missy1]

Hi Micha I asked my doc about vitamin B6 as I had read so much about it helping but she said she had never heard of it being used for pregnancy related sickness and told me not to take it. I think it's more widely used in the US and not so much in the UK. I would still like to try it though as I know so many women have had good results with it.
How many do you take a day?

 

[mummySS]

They dont tend to prescribe zofran here as it's so expensive, plus they haven't done enough medical studies on it here (which is crap because of course it's fine as so many US ladies take it). Bet Kate got her hands on some zofran!

Missy and others i know exactly what you mean about feeling guilty about your other kids. I feel terrible for Leo and he's watched so much TV lately i worry what's happening to his brain. I usually work full time (when i'm not signed off) so he actually has paid-for childcare 4 days a week (and my mum watches him the other day) so he's taken care of during the day. Mornings, evenings and weekends are hard though.

I said the same thing to my DH last week - if heaven forbid something were to happen to this baby, Leo will be an only child. i cannot go through this again... For me too the desire to have a second baby was so strong. But I could come to terms with Leo being an only child. He has cousins close in age so he'd be close to them.

 

[Aaisrie]

I'm on zofran 3x a day, same as I was on the whole of my last pg...

Are you not on it Simmy??

 

[mummySS]

Nope, I asked for it and they said no! you're lucky eve.

 

[shocker]

Go back and ask for it again hun!!! I have been on it for a few weeks and its made a massive difference for me, the main reason i was so ill last week was because my zofran prescription ran out while i was in hospital for an infection and the hospital didnt have any as it is so expensive and very rarely given to pregnant women in the uk and ireland so there was a delay in getting it while they rang my own doctors and also sorted out funding. I've gotten a lot of comments from doctors,consultants,midwives and pharmacists about how there arent enough studies and basically that i shouldnt take it, but in fairness its the most common treatment for HG in america and surely if even one woman had a bad reaction it would be all over the net! I feel better now than i have my entire pregnancy, people have been telling me all week how much healthier i look after my latest lot of fluids and the zofran!

 

[mummySS]

Willdo thanks for the advice! I couldn't get a docs appt until 28th Dec so I will ask then!

 

[Squishy1982]

I would be getting an emergency appt. I moaned that I couldn't get an appt so they did a phone consultation instead. xx

 

[Cetarari]

The docs won't give me any more Cyclazine (I was on 3 a day) since I'm 'close' now (^ wks if I go to term) so I am ekeing out what

 

[shocker]

The docs won't give me any more Cyclazine (I was on 3 a day) since I'm 'close' now (^ wks if I go to term) so I am ekeing out what

Wtf??! Im so sorry docs can be such morons!! Mine tried to take me off tablets aswell as she said since i was further along i should be fine so i went and delayed my morning tablet and spent an hour being sick in a bucket in her waiting room and office. She soon changed her tune! I'd go back if i were you, your going to need to build your strength up for labour so being without them now is total madness, how are you supposed to do the most physically challenging thing of your life when your feeling sick and weak!

 

[Squishy1982]

I think it is awful that they have refused you more meds! It doesn't matter if you are 14 or 34 weeks, if you need them you need them! Hope they sort you out x