hyperemesis sufferers unite!

[Aaisrie]

Simmy they wouldn't give it to me until I'd tried alllll the other meds first and kept landing in hospital. My GP refused to prescribe zofran too, it was the hospital gave it to me on my.... 4th admission? The last time. The only reason I got it straight away this time is because I was able to tell them my history last time. My GP will be well pissed because its so expensive but I don't care. I actually ATE DINNER last night!! I was refluxy after, like vomit in my mouth but it wasn't strong enough to make me hurl I was able to reswallow... That sounds so gross l

 

[mummySS]

Lol quite gross Eve but only a fellow HG sufferer will get it lol! What did you eat for dinner out of interest?

Yes I think that's why they're not giving me zofran, because I tried various types of meds and the metoclopramide works relatively well for me, well at least it stops me throwing up as much. Still feel sick 24/7 though

 

[Micha2]

Im in Australia not US. My Dr never told me about B6+unisom combo but like i said i did a lot (years) of research on hg before getting pregnant again & so parts of my hg care i took into my own hands. I also did lots of preventative things before i got pregnant, but none of that worked.
As for zofran, I got myself a great GP & got a prescription before even trying to conceive. Its very expensive here & I spent a LOT of money on it. Later in my hg journey i found out i could get it much cheaper through the hospital but the stupid hospital i was with would only let you have 2days worth. I then changed hospitals & was getting I think 20days worth at a time much cheaper! But by that time it wasnt long till i was improving.
My point is...you really do have to 'shop around' to get the best care you need. Which isnt easy when just getting in the car is a major hurdle! But its worth it.

We can only dream of the day the medical profession finally understand this horrible illness and support us hg girls with the care & compassion we need!

For those of you worried about toddlers, please dont feel guilty. They wont even remember this short time in their lives where mummy wasnt herself & i promise they wont be scarred from watching extra tv etc. My son was 2 when i went through hg with my Second & he's now 12.

 

[mummySS]

Thanks micha, words well said. You did the right thing to shop around. It's true, when you're in your deepest darkest HG you just feel like the world could swallow you up and you wouldn't care. But it makes sense to try to get the best care.

 

[CarliCareBear]

aw, all of you ladies- i am so sorry for you! zofran is extremely expensive here as well, but nothing like what you all pay and doctors prescribe it constantly for "morning sickness" and HG. it's so not fair to you guys.
zofran was the only medicine prescribed by a doctor that kept me from throwing up all day (40mg going 24/7 through my port)- but i was even still debilitated, so it is far from a cure.

i'm just gonna be straight up and say BY FAR the best medication i found was medical marijuana. it's the only thing that stopped be from losing weight. doctors had been pushing TPN on me for months until i tried mmj and it worked. i know it's nontraditional but if that is an option for any of you i recommend it. i could never have gotten through my pregnancy without it.

i never thought i would say that but those who have HG understand how dark and awful it can get. it's a desperate place. i would lick a toad if it worked!

micha- does your son remember much of it? i've always wanted more than one but my HG seriously played games with my life- i worry about the effect it could have on me and my LO. that must be hard, you all are brave!

hugsXx

 

[missy1]

Is medical marijuana in tablet form? I have heard of other people using it. It's no different to any other drug when it is used for medical purposes. I doubt my doc would prescribe that though.
I feel as though HG is playing tricks on me now. Yesterday I felt pretty good from about 12 noon and I even had half a sandwich! So I got overly ambitious and drove to the supermarket - big mistake! I felt dreadful by the time I got out the car and had to drive straight home and straight into bed. It wasn't like this with my daughter. My HG then was intense but once it was gone it didn't creep back up on me.
Christmas isn't going to be much fun this year ladies eh? What are you all going to do? My mum & dad are coming over and my mum will do Christmas dinner for them and my DH and LO. At least they will have a nice time, well I suppose it's not huge fun for them when I'm lying in the other room. I'm sure my two year old will be fine, enjoying her toys and seeing her gran & grandpa x

 

[Aaisrie]

Lol quite gross Eve but only a fellow HG sufferer will get it lol! What did you eat for dinner out of interest?

Yes I think that's why they're not giving me zofran, because I tried various types of meds and the metoclopramide works relatively well for me, well at least it stops me throwing up as much. Still feel sick 24/7 though

I can only stomach "proper" food ATM like vege, potatoes etc.
The zofran won't stop the nausea either so if the metrochlorpramide works for you the zofran probably won't make any difference other than having up take lax to stop the constipation that you get with zofran?

 

[Aaisrie]

My daughter was 18mo ish and was just over 2 when Atticus was born. She walked round with a sick bowl for a few months after he was born and want to lay on the sofa like mama but I don't think she remembers it now, she's nearly 4.

 

[girlinyork]

Sorry to interrupt, but can anyone help this lady? I wasn't sure what to suggest

https://babyandbump.momtastic.com/gestational-complications/1595271-please-somebody-help-me.html

 

[Micha2]

Thanks for passing this on girlinyork. I hope we can help this poor lady. Sometimes it helps just knowing youre not alone, as HG can be a very lonely place.

PLEASE do not feel guilty for taking the medication. Your body needs it right now more than it doesnt need it, if that makes sense.
I know it sux being n hospital but you need to accept that right now it might be the best place for you. You can be closely monitored & they can give you ondansetron through a drip. The main thing right now is to be able to keep hydrated, and it sounds like thats not possible on your own at home at he moment.
I dont want to give you false hope, but ive had hg several times now (yep im crazy!) and with all the hg did ease up significantly around 14-16weeks. I hope & pray youll get some relief too.
I cant suggest different drugs etc cause it sounds like theyre doing everything they can. For me there was no cure for the nausea. But this pregnancy i took ondansetron during the day and at night vitamin B6+unisom (aka restavit). It reduced my vomiting compared to my other pregnancies, to the point that i was able to stay out of hospital.
We are certainly all here for you on this site, any time you need us, even just to complain. We are all either where you are or have been there, so we completely understand.
Big (((hugs)))!!!

 

[mummySS]

Christmas isn't going to be much fun this year ladies eh? What are you all going to do? My mum & dad are coming over and my mum will do Christmas dinner for them and my DH and LO. At least they will have a nice time, well I suppose it's not huge fun for them when I'm lying in the other room. I'm sure my two year old will be fine, enjoying her toys and seeing her gran & grandpa x

We're going round to my sister's who lives around the corner. She has 2 year old twins who Leo loves playing with. Will be great fun for the kids but I will probably be holed up in a room upstairs trying to avoid cooking smells - similar to you! I had a rubbish Xmas two years ago when pregnant with Leo too. But at least this year I get to see the look on his little face

 

[shocker]

Had 5 days of just nausea, no vomiting, it was so lovely, i felt so much healthier than i have this entire pregnancy and everyone kept telling me how much better i looked. Then today i fought soooo hard against the nausea, staying totally still afraid to move, ended up spending 2 hours on the bathroom floor and felt like my insides were being torn apart Have to be at the hospital first thing for an appointment with my consultant and dont know if im gonna be able to keep it together, im going to ask them about induction once hes full term, i know its terrible and babies should come when theyre ready but i just cant do it, i dont care if people think im horrible and selfish im just not strong enough i cant do this for any longer than i need to and i need to know theres an end in sight, something to focus on They probably wont do it but i need to ask because i really cant face getting so dehydrated again

 

[mummySS]

Had 5 days of just nausea, no vomiting, it was so lovely, i felt so much healthier than i have this entire pregnancy and everyone kept telling me how much better i looked. Then today i fought soooo hard against the nausea, staying totally still afraid to move, ended up spending 2 hours on the bathroom floor and felt like my insides were being torn apart Have to be at the hospital first thing for an appointment with my consultant and dont know if im gonna be able to keep it together, im going to ask them about induction once hes full term, i know its terrible and babies should come when theyre ready but i just cant do it, i dont care if people think im horrible and selfish im just not strong enough i cant do this for any longer than i need to and i need to know theres an end in sight, something to focus on They probably wont do it but i need to ask because i really cant face getting so dehydrated again

Honey, you are amazing to have got to where you are, you're by no means horrible and selfish, I completely understand you wanting this to end sooner rather than later! My LO was 16 days late and I wouldn't want anyone to go through that. Must have been lovely to have the 5 vomit free days... Just try to sip whatever fizzy drink you can muster, lucozade whatever, i know it's hard... You are SO SO close hun, you've been through the hardest times and you're so nearly there... Big hugs to you, hang in there. I wish I could help more. XXX

 

[mummySS]

Hmmm... does the duchess really have hyperemesis...?? How the hell is she presenting an award at Sports Personality of the Year? ISn't she worried she'll barf on stage? Or is she on some wonderdrug that we dont know about?? LOL

 

[missy1]

Hmmm... does the duchess really have hyperemesis...?? How the hell is she presenting an award at Sports Personality of the Year? ISn't she worried she'll barf on stage? Or is she on some wonderdrug that we dont know about?? LOL

I couldn't believe my eyes when I saw her presenting at those awards! I said there is no way you can get over hyperemesis that quickly, she must only be about 10 weeks. How could you get up on a stage in front of all those people and be bothered to have your hair and makeup done if you feel the way we do? X

 

[mummySS]

Exactly! Erm, she's meant to be raising awareness of how difficult HG is!!

 

[Squishy1982]

Morning ladies, hope you are all coping today.
Did anyone find that anti sickness tablets made them feel worse? I am on my 3rd lot of tablets and am still being sick but the nausea is so so much worse.

I am trying not to moan too much, this baby can throw what it likes at me, one of my birth group friends had her twins at 23 weeks. 1lb 6 and 1lb 3. they are doing as well as possible.

 

[shocker]

Thank you so much, i didnt even get a chance to discuss induction with my consultant im dehydrated again so she admitted me and i cried my eyes out, my consultant came and had a chat with me and i explained why i was crying andthat im just so exhausted i dont lnow how im going to have any energy left for labor. Shes going to discuss it with the other consultants and we'll discuss options tomorrow

 

[mummySS]

Aww shocker was the consultant sypmathetic? I really hope so! During my last preg I was so exhausted from the sickness i ended up having a c section (well there were other reasons for that too) but perhaps for you it would be no bad thing?

Are you back on the IV then? Hopefully that'll give you a bit of energy my love. xx

Squishy hope your friend's twins are ok. they can work miracles these days. Some anti sickness meds did make the nausea worse for me, yes. But i dont know if that's cos they just didn't work and it was just normal nausea if that makes sense.

 

[CarliCareBear]

i was wondering the same thing about kate... it does seem a little odd- but then again she is getting probably the best treatment available and also could have a more mild case.

as far as the medical mj goes- i live in a state that is mmj friendly (actually we just recently legalized it here for recreational use for the first time in the US and will tax it like alcohol). so after absolutely nothing else worked my OB just said to do whatever worked and what i was comfortable with. you can get it in pill form but i mostly got it in the form of oil so i could put it in my ensures. it was the ONLY drug that stopped me from losing so much weight and i know of lots of other ladies who have said the same thing and used it without an RX.

shocker- don't feel bad about getting an induction!! i was so conflicted about inducing my daughter at 38 weeks because everyone kept telling me about how babies need to cook longer- but i couldn't take it anymore and my doctors 100% agreed it was the safest thing for both of us. It was 100% the right decision. don't guilt yourself- you've been sick for almost a year!!!! it's amazing that we don't cut them out of ourselves sooner.