Hypothyroidism.... Help :( :UPDATE PG 6:

[greats]

Hi ladies, just found this thread now! I am relieved to have found this since I have Hashimoto's and am 9.5 weeks pregnant now and have no one to relate to. I guess a little background story if that's okay?

My levels are always all over the place, I think they've only ever been in the normal range twice in the 2.5 years I've been on medicine for it. I had blood work done 5 weeks ago and my doctor said my levels were on the higher side (but she wouldn't tell me what they were at, which is frustrating!) so she upped my Levothyroxine from 88mcg to 100mcg. I go for bloodwork again tomorrow, and am hoping all goes well! I've been spotting pink the last 2 days so I am worried sick since I've had 2 early miscarriages due to high thyroid levels. I go for an emergency scan tomorrow and am terrified

Anyone have any light spotting around this time in pregnancy and all turned out ok? Just hoping it's not my thyroid, again.

 

[aimee-lou]

Hi everyone - very quiet in here. How are we all doing?

I have my last lot of tests this week. Hoping for a sweeping all clear (we will have to see) so I can go Midwife Led again, but if not then labour ward will have to suffice, I'll just stay at home longer lol.

I've got to say I've been feeling really good the past week or 2 (apart from a nasty ear infection which saw me going to A&E on Easter Monday Baby is growing fast and I'm busy nesting making sure all the necessary provisions are in order.

Hope we're all in the same boat and doing well

 

[Krippy]

Glad you are doing well Aimee-Lou! You are getting so close my dear! I am so excited for you! Do you know what you are having or are you staying team yellow? I am now expecting again after my loss in February and we are ecstatic!

I have been feeling good besides the MS and loss of appetite! I have been welcoming all of it with wide open arms! lol

I am off my meds as I am slighty hyper right now, I was only on 25 mcg and I wasn't feeling too hot. I am getting my levels checked every 4 weeks and I am hoping that it will steady itself but I have a great Dr. keeping an eye on me and I am in high hopes! He also thinks that I might not have Hashi's and thinking maybe post partum thyroiditis but who the heck knows? With all of this pregnancy stuff I don't think we will find out anytime soon...lol

Hope you all are good as well!

 

[LeighAnne]

My levels are staying steady. Starting to feel baby Move around. Quite reassuring. Glad to hear all is well and hope to see baby pics soon!!!

 

[Thyroxy]

Krippy such great news! Aimee-Lou awful news about your ear infection hopefully this was preparing you for labour pain coping mechanisms

I have been quiet lately as although TSH levels have risen due to moving into second trimester (but still in range - have gone from 1.7 to 2.6) and am still being tested every 2 weeks which is great, I have now been told from my 12 week scan and Papp A blood tests, I am at very high risk of all 3 main chromosomal disorders (trisomies 21, 18 and 3) - so have the Amniocentesis next Tuesday morning and will get FISH results in the following 48 hours - it's been another rollercoaster ride emotionally and just trying to stay positive and keep up my normal healthy routines (although did binge on a packet of Twisties yesterday!) - this waiting is just awful but wow, what a test this is for emotional strength and intelligence. There is nothing I can do to change anything between now and next week so absolutelyno point worrying and stressing out. Right? Easier said than done I guess.

 

[Thyroxy]

My levels are staying steady. Starting to feel baby Move around. Quite reassuring. Glad to hear all is well and hope to see baby pics soon!!!

Great news from you too LeighAnne, and a boy to - fabulous

 

[aimee-lou]

Thyroxy - never thought of it that way. I was only at the hospital as it was bank holiday, otherwise would have gone to GP. It was horrible. Soul destroying pain, I've never felt anything like it (and I managed on just G&A with Earl) so yes, I suppose it was preparation lol. We still don't know what we're having. Everything we own is neutral so it doesn't really matter....we'll be happy to have them with us now. Pregnancy wearing a little thin. Just over a week 'til full term though - midwife this afternoon and my last thyroid function test on Wednesday. I'm supposed to see the consultant again before baby is born but I can't ring for an appointment until Wednesday - they were supposed to send me one after my last appointment, which was on 8th Feb!

LeighAnne - Glad you're feeling movements and things are going well. Congrats on your Blue bump! x

Thyroxy (again) - you're right, there isn't any point in worrying yourself ill over the next week. A risk is a risk, it's not a guarantee, so I hope you get good news and you can continue with your pregnancy without issues. Good luck hun x

Krippy - I'm glad they're keeping on top of it for you. When I was first diagnosed they thought mine was PP, wasn't until they got my results back and saw just how bad I was (TSH was in the 40s!) that they thought maybe not lol. Congratulations on your BFP and good luck for a h&H 9 months xx

 

[LeighAnne]

I hope and pray we all have Happy & Healthy little ones. I never knew how stressful Hypothyroidism and Pregnancy could be!!

 

[Krippy]

Saw my bubs heartbeat yesterday! Was really great!

I was also off meds for 1.5 weeks bc of being hyper and now back on as my levels are going back to hypo...TSH 1.93 and T4 8.5. No matter how many times I get my levels done I am so confused. I know my TSH is normalish but what should my T4 be. I was TSH .09 and T4 14.3 last time! Can you ladies enlighten me?

Here is a pic of my rainbow bubs!

 

[aimee-lou]

TSH should be less than 4 for normal levels, less than 2 for pregnancy.

T4 should ideally be less than 10 but higher than 5.

When I was diagnosed my TSH was 55 and my T4 was around 4! lol Not sure what T4 in pregnancy should be, but I know I'm 'stable' now. Really should look on my last set of tests.

 

[Thyroxy]

Great pic of your littlun Krippy! According to my Endocrinologist, when you're NOT pregnant your reference ranges are:

TSH 0.5 - 4.5
FT4 10 - 20
FT3 3.5 - 6.0
Vit D 51 - 200

When you're pregnant your reference ranges are:

TSH 0.1 - 2.5 (1st trimester); 0.2 - 3.0 (2nd trimester) and 0.3 -3.0 (3rd trimester)
FT4 10 - 20 (all trimesters)
FT3 3.5 - 6.0 (all trimesters)
Vit D 51 - 200 (all trimesters)

Hope this helps?

We got our amniocentesis results today, and the baby is perfect and has no chromosomal disorders such a HUGE relief after 2 weeks of waiting to know and we then found out we're having another girl

Also got latest TSH and FT4 results this afternoon and again all where it should be with TSH 1.1 and FT4 of 15. Am so glad al that waiting is over, I think tonight I'll sleep properly for the first night in a long time!

 

[Krippy]

Thank you Ladies! That helps out a lot...I get so confused sometimes!

 

[Krippy]

Congrats on the little girl Thyroxy!

 

[charlie15]

Hi I just want to pick some brains from those with experience of hypothyroidism!

At my appt with MW at 9 weeks i requested that she check my thyroid levels due to a family history which she did. i never heard anything back so thought all was OK.

However today I received a letter in the post saying that I had missed my appointment on the 1st May, which i knew nothing about and have been re booked for the 22nd May. i called to see what this was about and it turns out that my TSH is slightly raised so they want me to see a consultant. I am now worried that all of this is been picked up very late and by 22nd May I will be 16+5. I am pretty bummed that I did not receive the original letter about the appointment on the 1st. From talking to the MW my TSH is only slightly raised and my T3 and T4 are normal.

Any advice, experiences would be greatly welcomed from a worried gal!!

 

[LeighAnne]

Can you call them and ask what your level was?

 

[charlie15]

Can you call them and ask what your level was?

Hi Leigh Anne, thanks,

i did call them back after posting as wanted to see if i could get an earlier appointment. I can't, but the MW was lovely and has arranged for me to get another blood test done next week. She told me my TSH was 6.8 and free thyroxine normal.

 

[LeighAnne]

I would insist on a script being called out. You have to understand baby does not make its own thyroid until 12-14 weeks. An untreated thyroid is why my twins brains didn't develop and they died at 23 weeks. I don't mean to scare you. I just want you to real

 

[LeighAnne]

RealIze how serious an untreated hypothyroid can be. If your doctor won't prescribe you anything... I would be on the phone until I found someone who will. The meds take about 4 weeks to take full affect anyway. Keep us posted...

 

[ablf]

hi ladies

trying not to stress here but was dx with hypothyroidism today.

My TSH is 8.4 and T4 (might be FT4?) is 11.6

GP has put me on 25mcg thyroxine - does this seem enough to those experienced in hypothryroidism with those levels???? am panicking that it's too low and risking m/c or fetal brain problems.

I did question level with GP and she said they would test again in 4 weeks - I'd be 12 weeks by then and it may be too late???

sorry for panicking - all advice gratefully recieved!!!

Lxx

 

[LeighAnne]

Mine was 8.4 at 4 weeks and my specialists put me on 100 mcg of levothyroxine. And it was leveled out by 8 weeks. All you can do is follow orders. Get a second opinion maybe.