Hypothyroidism.... Help :( :UPDATE PG 6:

[ablf]

Hi Leighanne - thanks for letting me know. I too lost twins (at 20 weeks they had TTTS) and medics misdiagnosed and fobbed me off back then so am just a bit oversensitive to taking what they say at face value!
I'm in UK and gp's are really just general practitioners (no offence intended!) so am trying to get a second opinion/consultant appointment today.


best of luck with your pregnancy and thanks again
Lxx

 

[aimee-lou]

Hello ladies,

Just wanted to put a quick update. Still no sign of baby making an appearance, but I had my last appointment with the endo consultant yesterday. She gave me the go-ahead for MLBU too and also a run through of my results throughout my pregnancy. Apparently my levels have once again started to creep up (3.03 TSH on 30th April test) but because I'm so close to the end, and on iron tablets which are a thyroid's worst enemy, she's happy for me to continue to the end then drop my dose to 150mcg 1 week after birth.

According to what she told me, I'm 'unusual' to have needed such a big increase to my thyroxine dose. I was on 125mcg prior to pregnancy, and she increased me a standard 25mcg at my first appointment. She has been in her field for 20 years and hasn't ever seen a patient that has needed such a big overall increase. She thinks it may be related to my anaemia, which I only get in pregnancy. She was also interested to talk to me about my diagnosis, as she said that normally post-partum hypo would have died down by 6 months afterwards, and she said my levels were really bad so she thinks I may have actually been hypo during my 3rd tri last time (when I was on iron supplements - you see the pattern lol). Really interesting actually, and the first time I've actually felt like I got some information out of them.

I now don't have to see her again, am discharged, and will have a repeat blood at my 6 week pp check. Hopefully will be back to somewhere near normal.

Due next week, baby is doing well, and has officially run out of space. I've had a couple of practise labours (each lasting about half an hour) but nothing that has turned into anything. Hoping for an arrival over the weekend - will certainly start 'eviction' as of tomorrow lol). Will update once we are home again afterwards or if I have any updates.

Hope we're all doing well ladies xxx

 

[Krippy]

Exciting Aimee! Can't wait to see pics of LO!

 

[LeighAnne]

Yay!!! The end is in sight!! Keep us posted!!

 

[BoBo14]

Hi can anyone help?
Seeing endocrinologist for borderline hypothyroidism. Level dropped during pregnancy. Was 2.7 in first trimester and now 3. From what iv read on Internet this is only borderline but then read some women getting treatment to keep it under 2. Do u think it's ok to be monitored or should I have any medicine?
Thanks x

 

[Thyroxy]

Hi BoBo14, you're at the top end of the range for your trimester and so if it were me, I would be getting treated as well as having TSH, FT4, Vit D and Vit B12 levels monitored every 2-3 weeks - I know my Endo always aims to keep me between 1 and 2. Hope this helps

 

[BoBo14]

Thanks for replying. Do u reckon they would treat me
Considering I have never had any meds before? I think they might just keep saying it's borderline- dont worry! Iv had early miscarriage before and pre eclampsia and also poor milk production which iv read can be related to thyroid. Worried it will happen again if they just leave it.

 

[Thyroxy]

Hi BoBo, I think the question is do YOU want to be treated? If so, then that's what your Endocrinologist should be doing Remember that thyroid drugs are perfectly safe during pregnancy so no harm to littlun if you go ahead with meds. Apologies for late reply - life sure gets int he way sometimes!

 

[aimee-lou]

Hi all - sorry I've not updated as promised.

Edward was born on the 27th May after a very short and painful labour weighing an enormous (and very healthy) 10lb 14oz. In the end he was 10 days late and I was totally fed up lol.

He's had all his prick tests etc and his thyroid function is normal

He's a very big baby and is keeping me on my toes feeding every 3 hours like clockwork. My main task at the moment is sleep training as he like to play at 3am - yawn lol - but other than that I seriously cannot complain. I even have a potty trained toddler now as Earl has gone a week in pants with only a handful of accidents.

Hope everyone is ok and that you're all progressing nicely

 

[LeighAnne]

Aww!! What a big baby! Love it!

Glad all is well with you and baby.

I am making it. Thyroid has been acting right. Lol. Baby has been measuring 3 weeks ahead on my last three ultrasounds. I have big babies and OH was a big baby. I was a big baby and my mother has big babies. So I may be in the same boat as you.

Thanks for the update!!!

 

[Dani Rose]

Hi

I have auto immune thyroid probs that are causing my thyroid to be underactive, both discovered after recurrent miscarriages

I would get it tested every 4 weeks rather than 6 weeks, your thyroid can fluctuate quite quickly sometimes. My TSH was 1.3 in december, perfect for ttc when i get the all clear from the consultant, 4 weeks later it is 41.3 so no ttc for me until it is below 2

I have just found out the same thing today, I have RA.

I have so many questions if anyone can help

 

[Hope39]

Ask away and hopefully I can help x

 

[Dani Rose]

Well since I posted my next bloods were neg. So I had it now I don't? That is even more confusing.

I get a redraw in 2 weeks but I am reading levels can fluctuate?? x

 

[Hope39]

Yes levels can fluctuate, my tsh was 9.27 when first diagnosed, a few months later it had dropped to 1.3 (on medication now) then following month it went up to 41.3 and 42.3 month after that then it took 4 months to get it down again to below 2

It took 8 months to stabilise my tsh with thyroxine

It might be worth while getting your thyroid antibody (tpo) checked. With you having an auto immune disease already, there is often another auto immune disease lurking. That's what I have read anyway, I only have the 1 auto immune prob at moment

 

[Dani Rose]

I am awaiting the antibody results. Is it likely they might still show something up? I was devastated to think I had something else but now I feel like atleast they can treat it but to be told im ok has me worried again. Grrr

 

[Hope39]

The antibody test will tell you what your antibody level is

I think normal is classed as 30, in November my antibody blood result was 417, in Feb it was 600

I think the more antibodies i have, the more it attacks my thyroid making it more underactive

They treat auto immune thyroid disease with thyroxine. My nhs endo told me that two patients of hers had successful pregnancies, they were recurrent miscarriage girls with auto immune thyroid disease

xx

 

[Thyroxy]

Congratulations Aimee-Lou !!!!!

 

[Thyroxy]

How is everyone? Any updates?

 

[aimee-lou]

Awful lol - My dose hasn't been right since I had Eddy and I've failed misearbly to turn up to any blood tests I've had booked! My own fault really lol. Other than that great. Eddy is now 4 months old and weighs over 22lb! My arms hurt (hardly surprising) and I'm currently in the process of making preparations for a certain big boy's 3rd birthday!

How are we all? Any more babies yet? xx

 

[Krippy]

I am still cooking my rainbow here...Anxiously awaiting the week of December 3rd where I will meet him/her! Levels have been amazing all through out the pregnancy so far (Knock on wood pls)!