i know it sounds silly....

[mummyosborne]

my LO was born at 29 weeks and spend 7 weeks in NICU and SCBU, i know that she had it easier than a lot of poor babies on here and frankly i think their parents are amazing as i struggled so much with it. Now my LO is ill again, they arent really sure whats wrong with her but they think it might be Cerebral Palsy, or a brain bleed. shes needs to have an MRI and some other tests, i know i sound a little like a child but im so worried about her having to go into hospital again, i worried about her health more obviously but i just dont know how id cope if i had to leave her again, i just feel like such an idiot

 

[25weeker]

Sorry your lo is unwell.

If she does go into hospital then she will probably go to paediatrics and not neonatal. All the paediatric wards I know off have somewhere for a parent to sleep because they expect you to be the main career when they are in hospital.

My lo was in hospital in dec and it was so different from neonatal because they don't have the patient staff ratio neonatal does so they rely on parents.

Good luck xx

 

[PleaseBaby]

You dont sound silly at all hun, its scary when your baby is ill and knowing exactly how hard it is to leave her your bound to be scared. Amelia has to have an op soon to fix some damage to her nose but I have to stay with her as in paeds they dont have the time to feed/change nappies etc. Its more just the medical side of things x

 

[Foogirl]

Hopefully you got my PM and are feeling a little better.

Abby's MRI scan was a day appointment and we were with her all day. As has been said, children's ward is generally more parent friendly than NNICU.

Other thing is, don't feel you are silly for feeling this way, nor that your NNICU stay was somehow "better" because others had it worse. Sure, looking back it seems easy and hearing what others went through makes it seem easier still, but 7 weeks in neonatal is no walk in the park, and you'd have had to have had strength to see you through it.

If you ever need to talk about any of it, PM me or come through on facebook. Our stories are so similar, hopefully I can offer some support.

 

[dizz]

You're not silly at all - my greatest fear is her ever having to go back to that hospital. Granted, part of mine is as a consequence of stuff that went on there - but I was a gibbering wreck when her jaundice went to levels they were muttering about rehospitalisation at the idea of her being back in the clutches of the NHS.

However, as I say - we were appallingly treated by our hospital... actually assumed I was being irrrational until I read your post and realised I'm not the only one who fears another hospital stay.

 

[mummyosborne]

Thank you everyone for your really kind words and dizz its nice to know im not alone in this thought. My local hospital is all just a disaster really, i still blame them for ella being born so early, they told me it was braxton hicks with out even examining me and then sent me home! the next day ella put her foot through my cervix from the stress and she was born 18 hours later. I just dont trust their judgement, the missed an infection from my EMCS and i nearly died then they thought they had lost my blood test results and it actually turns out they lost my blood samples and they were never tested! i just worry about her going back there, her neonatologist is at medway, can i request that she be treated at a different hospital? x

 

[Foogirl]

Yes, you do have the right to choose which hospital you go to, as long as you choose one which has the appropriate specialisms. You can also request to be seen by a different consultant. Abby's CP consultant was very poor so we requested to be seen by a different one and are much happier with him.

 

[mummyosborne]

thank you, i am going to request that ella is treated at different hospital amd foogirl i shall add you on facebook in the morning xx

 

[dizz]

My doctor knows I have very strong feelings about Erin or me NEVER having to go back to the hospital she was born at unless it's completely unavoidable (sadly it's the big teaching hospital locally) - if needs be I'd ask to be referred to the neighbouring PCT (we live pretty much on the border so this wouldn't be a 100% unreasonable request) if she needed treatment, and my own midwife's told me that no ifs or buts, if she sees me pregnant again she AIN'T booking me into the same place!

I know when we were facing readmission for jaundice (dodged that one - but it WAS nice for them to send someone out to monitor the progress who'd never seen her before so couldn't judge if she was more/less yellow!) the health visitor knew how terrified I was of the hospital so looked into it and found out exactly which wards we'd be admitted to - and it was nowhere she'd been before, but into the proper children's hospital section rather than anything to do with birthy/small baby stuff... knowing that part helped a bit.

And there are certain doctors within that hospital I wouldn't consent to treating my cat let alone my child now - not so much for how they treated her, but for how they treated US... the yummy one who looked like a young Richard Gere can come and prod and probe me all he wants though! (Gawd he was gorgeous)