@hockeywife86 I know this thread is very old now, but I'm currently 24w3d pregnant with my first baby, and I am experiencing virtually the same symptoms you reported on both breasts, on the inside of them and beneath the nipples (onset was 10 days ago). My breasts are very tender, warm to the touch, and sometimes at night I even break out in a sweat on them. My nipples haven't inverted, and I've leaked a small amount of clear colostrum a few times out of my right breast. The redness and swelling seem to respond to cold compresses, which I was hopeful meant it was a milk issue, not a cancer one (until I made the mistake of googling whether IBC rashes could fluctuate, and now I don't know).
My OB treated me with a course of antibiotics, thinking it might be cellulitis or mastitis. But it hasn't cleared up, and so I have a breast ultrasound and possible biopsy on Monday. I am beyond terrified it's IBC. I can't stop crying, and I'm sure the hormones aren't helping with that. I know that bilateral simultaneous onset IBC, especially in a pregnant woman, would be extremely rare, but you know how the brain works... in my mind, I'm dying, and I'll need chemo while pregnant.
I can see you had your son and are four years on now (and TTC again- I wish you the best! This baby is my rainbow baby after 8 years of TTC and two rounds of IVF), so I'm assuming you're okay. But I was wondering if you ever went for that ultrasound and what the findings were.
I don't know if you or anyone else will see this, being such an old thread. And I'm so sorry for dredging up old ghosts. But I'm desperate for hope right now. I'm so terrified I will have bilateral IBC and of what that might mean.