Incompetent Cervix - stitch/cerclage - threatened labour

So ... Bugger.

There's me having spent the last week obsessing about amniotic fluid levels - and yes, it is definitely a serious condition with all sorts of nasties as potential cause, like neurological defects they won't even be able to pick up on til the third trimester & implications of amniocentesis if it gets too great - but I've ignored the old shrinking cervix, thinking it was secondary to the polyhydramnios. Well there y'go. Not so.

Down from 27mm last week to 18mm this week, with some funnelling. And I'm only 21 weeks. Am now instructed to go on modified bed rest with breaks allowed for loo/shower/meals. I'm defo back on the progesterone & there are mutterings of steroids at 24 weeks & a hospital stay if my condition deteriorates.

So this is where I need to draw on all the experience & expertise of the ladies on this thread.

HOW am I going to get through the next few weeks, what on earth do you do when you're not even allowed to move around the house? What is the best way to elevate the pelvic area? How do you cope with backache & bedsores & muscle fatigue? Do you stop drinking so much water to prevent such frequent trips to the loo? Do you ever pop out - like for coffee or dinner or anything, or is that it? And do you really stay in the SAME position ALL day?

I can do this, I know I can, I have to - but I could really use all your advice & tips for getting through. You've all been there so I know this is the best place for me to find support.

Curiously my amniotic fluid is stable this week - it even measures lower, down from 29 to 27.5 (but then that's by a different machine & the consultant said she wouldn't have been alarmed if it had gone up to 31). There's no guarantee it's going to stay stable, but at least it has this week ... And she said the baby is a good size.

I'm resigned to all this now, there is nothing more I can do other than my best. Stupid thing is: my mum died when I was 15 & before she did she always said 'make the most of now, don't wish it was then' & all I want to do is wish the next 7 weeks away :-(

I bet I end up spending my 40th birthday in hospital.

Help me girls, you've been through this ...

JimmyJam x
 
JimmyJam- don't lose hope. I'm going to post a quick one and get on here later as I've got a shed load of marking to do :wacko: but the stitch is there to stop the cervix opening fully, so as long as it holds it all together, it's doing it's job. My cervix was down to 13mm with funneling before my stitch went in.

As for bed rest, I stayed horizontal for weeks, drank loads, so I got up to pee about every hour, but basically only got up to keep my blood flowing. I lay on my side and swapped over, basically my body got used to it. I lost weight as the muscle wasted away. It was shit. But it was manageable and if a fool like me can do it, then you've got nothing to worry about :hugs: it's keeping your mind occupied that's the biggest challenge, which is where crappy daytime tv, box sets, cheesy soaps and books come in (although rather embarrassingly I didn't get more than 3 pages into any novel as I had the concentration span of a goldfish,except for Russell Brand's autobiography, which wasn't amazing, but made me giggle. Then I started to worry that laughing may burst my cervix open :wacko: so I stopped reading that too.....). You seem much more well-balanced than I am! Xxxx:hugs:
 
Oh you poor thing. Must feel like such a blow when you think you've got just one thing to worry about. But your measurements aren't that bad - i was around 1cm when i had my stitch placed, and have been around 2cm since then, so not much longer than yours. But it's all good, because bed rest really can help keep things stable, or even lengthen your cervical length!

I won't lie to you - bed rest is a toughie. I've only just come out of those difficult few weeks of bed rest, and did almost ten weeks in total. It is one of the hardest things i've had to do, mainly because i like being in control, and this was something i felt was out of my control, and a total head fuck that only you are living through, no matter how sympathetic those around you. And i'm lucky, i had a lot of support with my family near by, a handful of local friends who would run errands or pop by. You're right, you can do it, and you will do it. It's just a matter of keeping busy, and looking ahead and knowing that this is only a temporary blip in life, and that you will instantly forget it once you're up and about. Look ahead in time and picture yourself in the summer, sat in Chiswick Park, with a baby on your lap, having picnics, enjoying the sunshine....life will get back to normal. You just have to get through the next few weeks or so.

Okay, so here are my top tips, having done it twice now.

Ask for help. Sometimes its hard to actually let people know you're vulnerable or need it, especially if you like to be in control, or don't like people seeing that side of you. But when i was told to go on bedrest at 18 weeks, i sent an email out to all my close friends and family, basically explaining the situation and that i needed their help to get me through the coming weeks. SO i welcomed any visits, cakes, magazines, DVD's that were offered, and more importantly, made sure that i spread short visits from people throughout my week so that i wasn't left on my own for whole days. Even just someone coming in for half an hour for a cup of tea can really lift your mood and give a bit of perspective. And be clear that THEY need to be the ones making the tea / cutting the cake etc. Your job is to lie down - there's is to entertain you!

Find some good boxsets or classic films you've always meant to watch. I joined LOVEFILM when i was pregnant with Poppy and doing bedsit on my own. (This time round has been harder as i've had a toddler with me all day, so my hours catching up on old movies / Mad Men box sets etc just haven't gone to plan). But you can, so do. A bit of quality small screen escapism can really do the trick.

Try out a new hobby. As i mentioned, i randomly started knitting a scarf (which turned into a wonky blanket) just to give me something new to learn. I also did an on line Spanish language course.

Try not to google too much. Now, me saying this is hugely hypocritical, as i can spend entire days tirelessly searching the internet in search of things to worry me. I must have googled 'survival rates for babies at 24 weeks / 25 weeks / 26 weeks etc' at least twenty times a day, searching for the answers i wanted to see. But its good to limit your computer time, as its tempting to use it in a negative way. Having said that....

INTERNET SHOPPING!!! I had to do all of my Christmas shopping on line, but it was fun starting to sneakily look at nursery things, or buying myself new maternity clothes, even though no one else saw them but me! But it made me feel better. I also went through a phase of buying expensive make up to cheer me up. Nothing nicer than a Bobby Brown parcel of a morning to perk you up. Kind of pointless when you're stuck in doors, but i found it made me feel a bit better, on a nicely superficial level!

Get someone to come and stay. I had my MIL come for five days. It was kind of a mixed blessing, as she is what i'd call 'hard work' but she is very well meaning. And having company during the day, and someone to tidy and do my laundry and make my lunches was quite a welcome break after a few weeks of struggling on my own. OKay, so maybe not you MIL, but a good friend or family member can really help pass the time, plus give you something to look forward to.

Don't be afraid of hassling your doctors. From about 20 - 26 weeks i was probably at my hospital at least once a week, with a symptom i was worried about. Your hospital will have a Day Assessment Unit, or Triage, which you can call or pop in to when you need to see someone. Get their number - they are there 24 hours a day and will be very sympathetic because we're all classed as 'high risk' pregnancies. They were always able to check me and reassure me, otherwise i knew i would just stew at home and convince myself it was all going horribly wrong. So find a helpful doctor, and don't be afraid to tell them that days / weeks worry. They can usually make you feel a hundred times better, in a way google just can't....

Go easy on yourself. If you're anything like me, you will have highs and lows. I did a lot of crying on bad days, and my husband always bore the brunt. So keep talking to your partner and let him know you just need his tireless support, no matter how horrible you may act! It is hard, letting your OH look after you so for so long. Watching Andy doing the laundry, loading the dishes, cooking all the meals, really took its toll after a while. I just felt guilty that i couldn't do more. But then i'd think of the alternative (me doing those things and ending up in hospital) and it made me feel better.

And lastly - small goals. Just try and take it week by week. Get to 22 weeks, then 24. Then you're viable and have the steroid shots ( I had those too) and you start to feel like you're really progressing as each day means so much to your baby's growth and development. And the steroids, when planned, can accelerate your baby's lung growth by nearly two weeks, so they are amazingly reassuring when you get them as you feel like you're really able to do something for your LO.

Sorry - this has turned into an essay. But you will get there. YOu won't believe it when people say it, but you will. And i shall definitely be bringing you a bed rest parcel when i'm next in Chiswick, so there!

YOu have your stitch - they work. They really do, in women who have no cervix and have dilated too - so you're had yours nice and early and still have good length. Try and keep that in mind!

Keep positive - and be kind to yourself. XX
 
Oh, and i had a quick shower every day, got dressed in comfy clothes, then lay on my sofa (or bed for a change of scenery), normally on my left, but did swap to ease my hips. I got up for the loo, or to make drinks or snacks. Often my husband would leave me a sandwich or salad ready made, so i could just nip to the fridge.

I didn't really go out until i got to 27 weeks, and then started going out for coffee, the odd dinner. Doesn't mean you can't, but i just knew i would worry if i did. And little sits in the garden are a good idea. A bit of fresh air will do you the world of good!

And book a super dooper holiday for the end of the year. Something to look forward to...
 
Oh, and i had a quick shower every day, got dressed in comfy clothes, then lay on my sofa (or bed for a change of scenery), normally on my left, but did swap to ease my hips. I got up for the loo, or to make drinks or snacks. Often my husband would leave me a sandwich or salad ready made, so i could just nip to the fridge.

I didn't really go out until i got to 27 weeks, and then started going out for coffee, the odd dinner. Doesn't mean you can't, but i just knew i would worry if i did. And little sits in the garden are a good idea. A bit of fresh air will do you the world of good!

And book a super dooper holiday for the end of the year. Something to look forward to...
 
Lol, i ve been on bed rest for 9 weeks now and will probably be for the rest if this pregnancy but Kate just said it all...i couldnt have said it better!!! It s tough but we ve got to do what we ve got to do!
 
O ladies you are so amazing, I read your replies in tears. How the hell did you both do it?!

Helen, you reckon I'm well-balanced? You should've been witness to some of my 'episodes' over the last week ...

And Kate, however did you guess I'm a control freak too? O yes, TV Producer will do it. Hate appearing vulnerable, hate being idle, 'can't' isn't in my dictionary.

This is one hell of a life lesson ...

Thank you for your tips, am going to take them all on board & apply. I honestly don't know how you both managed it ... I have the utmost respect.

I just sat up at table to eat - & I'll move downstairs once a day to hit the sofa. My clinician seemed to think this was okay. It's so hard to figure out what to do - but at least I don't have other babies to look after. Just one hairy husband & a fluffy cat!

Thank you.

Gratefully, JimmyJam x
 
Thanks too, Christiana, I think we crossed over ... Nine weeks already! Jesus. X
 
Hi JJ - the other ladies have said it all so well really, but just to add my ten cents worth. An 18mm cervix is not a major issue when you have a stitch in place. Mine was around that below the stitch at 25wks, and had funneled to it. It is to be expected in an incompetent cervix, and is the reason for placing the stitch. You do however need to give your body and the stitch a helping hand and get off oyur feet hun.

I would have loved to be free to rest 24/7 with the twins if I hadn't had other kids to worry about, and you are in a prime position to do so. Despite the older two I took to the settee for most of the day, except to get up for loo breaks, help the kids into bed (if dh was away) and prepare the odd meal. I did that from 12 to 38wks. I didn't see it as doing nothing, because I was doing the most important job in the world - giving the babies a chance at a decent start to life :) With the greatest respect, you must shift your perspective hun and accept that this is a relatively short lived time period compared with the rest of your life, and it really will be worth it in the end.

I was too scared to move because I knew what the alternative of 6mths in the NICU meant, and I was determined my boys were not going to spend a single night in intensive care this time.

You can go to the loo frequently if need be, bed rest does not mean remaining constantly in a 'raised pelvis' position (unless you had dilated with membranes bulging, this is not necessary). You need to spend the majority of the day on your side, with occasional walks around the house/garden and then back to resting. At this stage its a case of cutting out strenuous activities, or prolonged time spent walking around. You must absolutely suspend your old life for the next 10wks and treat your body with care. Even consider walking upstairs on all fours - stair walking puts the greatest strain on your cervix. I took to doing that post-stitch because it felt just too difficult to walk upright.

Listen to your body chick, and imagine that with each hour of rest and inactivity you are giving your cervix a helping hand in supporting the pregnancy. At 17mm things are not catastrophic, and I would have been more surprised if it had suddenly lengthened to 4mms - it is doing exactly as expected, but if the stitch does it's job, it will hold a cervix which has shortened to .2mms and below! Some women walk around with no cervix and only the stitch holding in baby!!!

The next 10wks will be scary as every other woman here will tell you, BUT there is no reason for your stitch to fail - more often it doesn't and it is rare for it not to hold. There are other issues which cause a cervix to dilate though a stitch, usually seperate and associated with ptl and PROM. As far as we know, you have none of these so as frightening as the coming weeks will be, you have every chance of making it safely to 30wks and beyond.

Now go and get that bed rest started girl!! You can do this, and trust me, you'll be praying for the chance to sit with feet up for even one minute once lo is here lol :hugs:

Christiana - my sweet, lovely lady - I am definitely NOT a Doctor hun :) xxx
 
JJ, sweetheart, I cannot say it better than all the lovely ladies here. As Lizzie said, this is only for a short period. Am sure your cervix will be fine as you have a stitch. Take rest and take care. We are all moving towards the same goal, and one day at the end of this difficult time we will hold our little ones in our arms and bring them home with us. Everyday of suffering will be worth it. Sending love and best wishes your way. We are all with you in this and we will make it to our goal one day.
 
Hi ladies, just wanted to say congrats to the two ladies on the two newest additions to our miracle babies. Looking forward to hearing more good things with everyone. :hi: to the new ladies and I'm so sorry your in here but am glad you found this thread. It along with the ladies in here have been a blessing to me.

We had someone try to force his way in here so my husband and I are looking at either buying a home or renting a whole house. I'm slightly stressed out and am hoping for a miracle. We really need to get out of the city and into a town we are familiar with and can raise our darling girl and hopefully siblings.

I've been lurking and will continue to do so. Love to you all. :hug:
 
MA hun, how terrifying for you all! That must have been horrific :hugs: Hope the man in question has been apprehended and that you are all ok. So sorry this has happened, and sending love and hugs your way xxx
 
MA so sorry you had an intruder...even if they never make it in or never take a thing, i think many people feel violated. Hope you find your perfect home for your family very soon.xx
 
Thanks Lizzie, everything you say makes perfect sense.

I know I make light of it to try & get through it, but since my diagnosis I have totally altered the way I behave. Because I was only put on limited activity I might pop out for a coffee every other day, but I stopped most of my chores save folding laundry & helping with the dishwasher. Now, though, I understand I need to modify even further & keep my feet up most of the time - with no helping around the house at all. I have already been going upstairs on all fours & now have resolved only to make the journey once a day, around lunchtime, whence I won't go back up until bedtime.

My cervix is now only 18mm in total with about 6mm above the stitch. Lizzie do you really think it can hold? One of my key problems is that, with my manyfold appts, I usually end up walking a couple of miles on clinic days. Last week I walked more around the hospital for all my tests & scans than I had in the previous fortnight!

This is all so difficult, especially as I now have two serious conditions. Like I say, I have the utmost respect for you girls - I just don't know how you've done it.

Thanks, JimmyJam x
 
Bookfish thank you - it's crappy. How is the bleeding today?

MA that sounds like a nightmare. I hope you're all ok. X
 
Ps - Helen: one of those 'mucky' questions, sorry. Back on the cyclogest ... Inserting it rectally at night I'm finding I lose some with my morning bowel movement. I remember taking it vaginally during IVF cycles but having the same problem then. It never seems to fully absorb either way.

If it's not too graphic do you have any top tips?!

Thanking lovely.

JimmyJam xx
 
Pps - I am suffering at night with aching hips/outside of thighs & my glutes & hamstrings are killing me too. Any suggestions for added comfort? Keeping the right position & staying comfortsble feels like my biggest challenge ...

X
 
Hey JJ - I really do believe the stitch can hold. 6mm above the stitch is good at 21wks, and even though you might funnel entirely to the stitch, so did I but I never dilated beyond that nor did my stitch falter in any way under the pressure of two large babies. Expect now to see funnelling for the duration, with further shortening - anything better than this will be a bonus and it means you'll be full prepared for the news and less alarmed by it :) Coupled with my shortening and funnelling, I also had daily contractions, occasionally painful, which were regular and frequent. It still wasn't enough to affect my cervix or the stitch.

The walking to and from clinic appts is unavoidable, but is there any way you can get transport to the hospital, and then minimise the walking once there? How often are your appts going to be from now?

Comfort wise, it might be worth investing in a memory foam topper for your bed. It absorbs some of the pressure on your limbs when resting and eases the hip pain. I suffer very badly with pelvic/back pain since having the twins, and have found the warmth and padding of the topper has really helped. You are ok to get up and move around occasionally tho hun, it is prolonged strenuous exercise which is a no no.

Cyclogest is absorbed fine rectally btw. Some clinicians recommend it as a route. Don't worry about the minimal amount lost with a bowel movement.

Xxx
 

Users who are viewing this thread

Members online

Forum statistics

Threads
1,650,441
Messages
27,150,996
Members
255,859
Latest member
HAMNCHZ
Back
Top
monitoring_string = "c48fb0faa520c8dfff8c4deab485d3d2"