Hi JJ - the other ladies have said it so well in offering their support, and I echo their sentiments entirely hun
This is an awful time for you both. The lack of certainty you are enduring must be soul destroying JJ. It's a daily battle in which you have no idea of the outcome, nor if it's worth the fight.
I experienced those exact same emotions with Evie, tho much of our torment happened after she was born since I didn't manage to stay pregnant for long after the stitch. The fleeting sense of relief I felt when she was delivered (I no longer was responsible for trying to hang on to a pregnancy I 'knew' was doomed to fail), gave way very quickly to an overwhelming sense of despair. How were we going to commit to month after month of fighting, when ultimately her survival was not within our control? I had no way of knowing what lay ahead. Would she live, if so would she have a half decent quality of life?
It was this not knowing in particular which crushed me. I wanted to give up, rewind and wash away the experience, have my chance to start again with another pregnancy, and this time not let my baby down in the worst possible way. Of course I could have those thoughts, (brief and rare though they were), but also have an almost pathological desperation for my Evie to make it, to survive no matter what the cost, outcome or how badly disabled she might be. I'd love her regardless, probably even more so if that were possible. I doubt that very few people have ever had to face those kinds of conflicting emotions JJ as I did and as you are facing right now. It is cruel, unfair and immensely stressful.
There is no easy way out of this for the time being, and that is tough in itself. I can't offer any pearls of wisdom about how to cope or get though this because I found no magic formula in managing my own nightmare, except to stagger blindly from day to day, praying that today would be at least the same as yesterday, and hoping that tomorrow might be better. It seldom was, but for 6mths remained the same, didn't get worse, and that was in fact all we could have ever hoped for as it turns out.
We were lucky that we came through the storm intact and with a relatively healthy baby. For that we are blessed. Your outcome is as yet unknown, and your nightmare ongoing hun, but I wanted to share all this with you in the hope that it might demonstrate that you are not alone and that when I say I understand, I really do get it. Your current uncertainty adds a particularly cruel twist of the knife, and for that I am so sorry.
There is no easy way through, but you will get through. You are bravely enduring this pregnancy for the possibility (no matter how small) that everything might one day be ok. Keep focusing on that fact - it is important now more than ever that you do
On a practical note, Is there a possibility that you might be able to continue the pregnancy at home now? Do they know how distressed you are feeling? There is an argument which says the stress of staying in far outweighs its benefits, and that you could maintain your health better at home - on the proviso of course that you will go immediately in if you detect any changes in your condition.
Medics cannot actually enforce your staying in, but it pays not to oppose medical advice too strongly. It might be worth putting the pros and cons to your team Hun, they are a rational bunch who can be persuaded to see the advantages of being in a more familiar, less stressful environment. Goodnight honey
