Just found out I have PCOS...What now?

[lilysmum2]

Hello ladies. (i hope you dont mind me posting in here...This seems the part of the forum to talk about pcos....)

Well after weeks of different tests etc i got my scan results back yesterday and the doctor said that I have at least 12 cysts in both ovaires, each cyst measuring between 2mm - 9mm.

I am ever so fed up now but also clueless. I mean i suspected that I already had it hence why i went to the doctors, but having it comfirmed just destroyed me.

I know its not the end of the world, (as alot of people have been stating) but it just so hard to come to terms with. We were hoping to TTC after our wedding in april 2012 but i am so scared incase it just doesnt happen!

We havent been very careful with our contreception for quite a few months (7+) and nothing as ever happened so it gets me worrying incase its going to take at least another year.

I know that there are ladies out there that have been TTC for 1,2,3 or more years. I just feel so scared and in a way useless.

I personally feel like my body is just braking down bit by bit. I really want to lose weight but i just cant seem to shift it, and now i know why!

My question is, what do i do now?? in terms of, losing the weight, preparing for another baby etc. I know that doctors dont help you unless you have been trying for a year, so is there anything to help with getting my ovaires kicked in for trying??

Sorry for blabbing on,,,im just at a dead end that i feel i will never get out of!

 

[lilysmum2]

anybody

 

[Sammylou2905]

Hi lillysmum

Right, although I don't claim to be the expert on this matter I also have pcos and have been on different forums for a while so know a bit!

To start with the bad news, me and DH have been trying to concieve naturally for gone 3 years now so my advice, don't wait to get help! We tried to think positive and that it would happen but are now ready to give in and ask the doctors for the good drugs lol!

PCOS is not a dead end, just a little hurdle. Found out my counsin (she is far more overweight than i am bless her) only her two boys because she was on clomid. Would never have known she had problems till I got diagonised!

Weight loss is HARD, very hard. A low GI diet is recommended if you are good at sticking to it, I'll be honest, I'm not!

You don't have to wait a year to be looked at with fertility problems, especially not with pcos, that is one good thing now on your side. You may have to push for it but push away. Get your doctors to refer you to your hospital for fertility testing (yes they may still do all that even though you have a baby) and push push push for clomid.

In the meantime, look up agnus cactus, H & B have it and usually on offer. It is working wonders for me in the period department (3 in 3 months, go me! ) though not sure on the ovulation bit.

PM me for any details and will be more than happy to share.
xx

 

[Sammylou2905]

Oh yeah, and good luck Keep positive and we'll both have a sticky bean soon!
xx

 

[dodgercpkl]

I was so bummed out when I found out I had PCOS, but I have to say that it put the fight back in me. I'm not about to let this silly thing beat me! Not to mention, now I have other goals to work on - things that I KNOW can have a positive affect on my fertility. I'm working very hard on losing weight and since June 2011, I've lost 46 pounds by switching to a low GI diet and taking metformin.

There are great things about finding out about PCOS. First of all PCOS causes insulin resistance which will eventually lead to diabetes at some point down the road. You now know you have it, so you can do something now to prevent worse things from happening down the road ya know? I also found out that so many little things that I noticed but ignored were all connected to PCOS. What a relief to see all these little dots connecting together you know? I feel like now I've been given a new chance at a better healthier me.

I'm still relatively new to the game having just found out in August that I have it, but even so, the change in lifestyle and weight loss has already had a pretty nice impact in my cycles. You see, after I got off the pill in June of 2010 to start ttc, my period just plain stopped. I've not had a natural period since then. My OB prescribed prometrium to kick start my periods (since the build up of lining is not good for the body) and that's the only reason I have had any periods. But last cycle I had some actually heavy spotting for a day and a half on my own! And this cycle it's looking very very much like I've actually ovulated for the first time in well over a year!

So take heart. It's not an easy road, but there are some great benefits for knowing that you have a problem and especially one that is fixable!

 

[detlic]

lilysmum, pleas read other themes here concerning PCOS. You will find some good advises. First, it's diet change, eating low carb diet and exercise. Also, you can ask your doctor for metformin.

 

[Tracy80]

Hi there

I have also just been diagnosed with PCOS after over 3 years of trying for a baby. My partner and I are lucky enough to have a little girl who is nearly four and conceived her straight away. We haven't used contraception since her birth.

I was only told I have PCOS a week ago (I'm not over weight - size 12) but have irregular periods which are very light, I get horrendously sore boobs for the two weeks before my period (which I suppose is down to the crazy hormone levels). I now have to wait until 20th December to see my consultant and hope that he will prescribe me clomid (please, please, please).

I have read lots of things on the internet about PCOS but really want to see my consultant so he hopefully can put my mind at rest.

Good luck to everyone, it would be nice to keep in touch with our progress xx

 

[Justwantababy]

Hiya hon :wave: I was diagnosed in May this year. I agree with the post above about not waiting to get help. Although if you've already had a scan I guess your doc is on board. Have you asked him whether he would prescribe clomid? Some GPs will, others will only refer you to a fertility specialist to get it. If it's going to be a long wait for a referral you might need to get the ball rolling soonish.

And have you thought about starting to track your basal body temp? You need a thermometer that meadures to 2 decimal places, then just take your temp the same time every day before you get out of bed. Fertility friend and other websites make it nice and easy to keep a record of it. It's a really reliable way to see whether you're ovulating or not, and pin pointing when you (hopefully) do ov will mean you know when you're fertile when you do come to try.

It's not the best news, I know, but you've done the best thing in getting it checked out now. Good luck chick! And happy wedding planning....how exciting! xx

 

[Kimiw]

Hello ladies. (i hope you dont mind me posting in here...This seems the part of the forum to talk about pcos....)

Well after weeks of different tests etc i got my scan results back yesterday and the doctor said that I have at least 12 cysts in both ovaires, each cyst measuring between 2mm - 9mm.

I am ever so fed up now but also clueless. I mean i suspected that I already had it hence why i went to the doctors, but having it comfirmed just destroyed me.

I know its not the end of the world, (as alot of people have been stating) but it just so hard to come to terms with. We were hoping to TTC after our wedding in april 2012 but i am so scared incase it just doesnt happen!

We havent been very careful with our contreception for quite a few months (7+) and nothing as ever happened so it gets me worrying incase its going to take at least another year.

I know that there are ladies out there that have been TTC for 1,2,3 or more years. I just feel so scared and in a way useless.

I personally feel like my body is just braking down bit by bit. I really want to lose weight but i just cant seem to shift it, and now i know why!

My question is, what do i do now?? in terms of, losing the weight, preparing for another baby etc. I know that doctors dont help you unless you have been trying for a year, so is there anything to help with getting my ovaires kicked in for trying??

Sorry for blabbing on,,,im just at a dead end that i feel i will never get out of!

Hi there, first of all *hugs*

I too have PCOS and DH and I have been ttc for over 5 years so I completely understand how you are feeling. We TTC for 2 years before we finally broke down to see the doctor and sure enough....I have PCOS. Losing weight is very hard to do with this type of condition and it is not your fault. There are a few things you can try. PCOS is related to glucose and for some reason our bodies are glucose resistant. Because you have PCOS, you do not have to wait a year to get help from a doctor. The only time you have to wait is if there is if you do not have any diagnoses of a condition that may prevent pregnancy. Just because you have PCOS doesn't mean you cannot get pregnant and it certanily doesn't mean it will take years. PCOS is a medical condition therefore it is something that has to be treated, and the treatment for PCOS is either birth contorl (if you are not wanting to get pregnant) or taking a diabetic drug called Metformin if you are indeed trying to get pregnant. Some women with PCOS start ovulating on their own with just Metformin alone and thats something you need to talk to your doctor about. Then after taking the Metformin for a couple of months the doctor can check to see if you are ovulating and if so measure the size of your folicals to deturmin if you are producing mature eggs. If not, then the doctor may want to get you started on Clomid or Femera to induce ovulation in combonation to the Metformin. With that said don't wait. Talk to your doctor because us women who have this condition need help to achieve pregnancy. Metformin is very inexpensive and same with Clomid. You may want to request your partner get a Semen anylasis as well because although there is a small chance its both of you, you want to make sure your not going to need to have him treated for something too. Take it from me. We did metformin, 6 rounds of clomid, and 6 rounds of femera and nothing induced ovulation for me. So the doctor was going to add a second diabetes medication which he thought would do the trick. Before he decided to do it we got my husband checked as well before he moved forward and turned out my poor DH has a low sperm count and his sperm that were living were having problems with mobility. After we got that news DH and I gave up. its been 2 years since we gave up and still nothing. But we have reached a point where we are still hoping God will have different plans but until then infertility has become a part of who we are. Don't give up hope, PCOS is very treatable and many women go on to have successful pregnancies. 2 of my cousins who suffer from the same condition each have 2 children. One of my other cousins with the condition never achieved pregnancy and she and her husband gave up and just moved on but 12 years later she went to the doctor because she thought she had the flu, imagine the suprise of her life when the doctor came back into the room and told her that she was pregnant. A very, very much welcomed suprise. Sorry to babble but I just know what its like and I just wanted to asure you that its not the end of the world. My story didn't end up with a happy ending, but I wanted you to know that it doesn't mean yours will end this way too. My situation is due to a combonation of infertility on my part as well as my DH. Good luck to you and please, don't wait to ask for help. It is not your fault you cannot lose weight and it is not your fault that you cannot achieve pregnancy on your own. You don't have to wait. Lots of hugs and baby dust to you.

 

[MollyMalone]

I'm living abroad eventhough we have a public health system, I have insurance and going private for everything so it might not apply, I don't know.

Stopped taking the pill in May, but wasnt trying...just to see how my periods went after that. Only got my period back in August, and nothing since then. Didnt think much of it, didn't care. Started TTC in october but couldnt go to my obgyn because it was after our wedding and was away on honeymoon for 6 weeks.

The day after I got back went to see her and she said I probably had PCOS. She prescribed me ovusitol and asked me and OH to get some tests done. Mine were to confirm PCOS and his to make sure eveything was ok, no point taking medication if he has problems too. That was 2 weeks ago.

Had my scan on friday, polycistic ovaries where confirmed. Got my blood work done yesterday, results back today (to confirm I have the syndrome, not just cysts). DH was seen by an urologist yesterday, said everything looked fine but he is getting a seminogram done just to make sure. He is travelling today, so getting it done tomorrow.

Once we get his results back there are 2 options. 1. his semi is ok, then my period will be provoked and will start taking clomid. 2. his semi is bad and will have to go straight to the fertility clinic.


I don't know what is gonna happen, BUT we did not have to wait a year, probably because of the suspected PCOS. I was a bit down last week too. One thing is to suspect something, and another KNOW IT. But seeing how quickly everything is moving makes me feel hopeful because I thought I'd have to wait a year too...

My advice is, don't stress before hand! Maybe you should go to your Dr to put your mind at ease.

 

[Northeastttc]

PCOS is more common that what some ladies think, ur doc can help with regulatong her periods and ttc GL