Lily-Mae is here!!!!!

Early_Bump

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Hi all well its been a long 3 weeks let me tell you. On Monday 25th feb i was having a lot of pains so went to delivery suite was kept in they settled over nite. Then on Tuesday morning i didnt feel at all right.. by lunch time i was having pains again id also spiked a couple of temps and they stopped nephdapine as they thought i might have an infection. all bloods came back but just at top end of normal. At 12-1pm i noticed my waters were a yelloy colour told them they doen exam said it was fine, i perosnally didnt think it was it spelt a bit off putting to say the least.

I asked about scbu and was assured their was a cot for Lily-Mae should she arrive. By 3pm my pains were quite uncomftable i had some painkillers and i was leaking huge amiunts of fluid and awaiting a scan. Then at 4pm after my 3rd bath as it was only thing that eased the pain i noticed some green slime on my pad and i told them striaght away, at this point i was really upset and crying as the situation was jsut getting worse and very much like when i had Ella Last April. I waited 3hrs to see a doctor which i was disgusted at not once did someone come and listen in or anything. Eventually my husband and sister in law demanded i be seen. Then my own consultant appeared she checked me over and said Lily-Mae would have to be delivered ASAP.

NEXT..... I was informed that scbu didnt want to take Lily as she was 2 days off 26wks. So i was sat for half an hour while they arranged transefere. At this point i was very distressed as u can only imagine and i had temp. So at 8pm off i went in ambulance to Blackburn as hour away from home. I got their at just gone 9om the done a quick exam and took swabs at this point my temp was 39.8 and i was shivering and frezzing cold i felt so ill. After the exam they exlained i had chromnioamnitis a sever infection of the womb and that Lily-Mae had infact pooed inside me, the took bloods and i was told my little girl was going to born.

I was in theata and the bloods came back and i was 4.5 temp now lay on the table and i was ment to be having a spinal but i was so ill they put me to sleep.

Lily-Mae came at 10.37pm @740g. I was informed after i woke that my bloods had come back in theata and CRP had gone from 15 to 188 in space off 4 hours. Iwas hooked up to all sorts and i had to ahve a classical cut c-section. i was really ill adn kept in delivery overnite. whilst on antibitics.

SO UPTO DATE UPDATE. TUESDAY 18TH MARCH 2008.

Lily has had a very hard 3 weeks. She had bactiral meningistis at brith, which made her speptic. she suffered a grade 4 IVH. Severe SBR levels. weight up adn down. she also has a huge PDA. PDA has been treated and it has closed by over half but not totally she failed extuabtion twice due to the PDA but after treatment she has now been on cpap for 8 days in air. She's been scanned twice aweek for her head as she's developing cysts were the damaged brain tissue is and is at risk of hydrocelpcus. she currently has 7 small cysts on right side of her brain.

Her weight has been up and down at its highest 780g and at its lowest 700g but she is on the rise, she had dropped to 725g adn yesterday she was back up to 761g. She cant be transefered back to blackpool til she's gaining good weight and off cpap for 3 hrs. She has manged time off for 35mins last nite but they wont push her. Her crp did creap back up over weekend and she had LP doen but nothing grew and CRP is normal again now. Thou she's still on antibitics till tomoro or fri they havnt desided yet.

She's in HDU now has been for 5 days. She's on full EBM feeds of 6ml per hour with fortifier. Here's some pics.


https://i30.tinypic.com/2m6spwk.jpg
Lily-Mae 20mins old

https://i31.tinypic.com/2vneuqd.jpg
day 2

https://i32.tinypic.com/n5sppx.jpg
My brother hand next to Lily-Mae on day 8

https://i27.tinypic.com/ff4jgw.jpg
day 13

https://i26.tinypic.com/2j1a93d.jpg
First cuddle at 16days old

https://i29.tinypic.com/29xx46v.jpg
Day 19 looking cute

https://i29.tinypic.com/10h5ax0.jpg
Off cpap on day 20 for 35mins.

https://i29.tinypic.com/v0xv.jpg
Lily-Mae 1st time in a vest on day 20. after going back on cpap.
 
What a touch little one you have there.

Im so sorry you had to go through all this, I really don't know what to say!

Just the best of luck to you all and congrats on your beautiful little girl.

xxx
 
She's beautiful!

I wish you all the very best of luck and strength. :hugs:
 
:hugs: She's very sweet. I really hope she continues to improve. :hugs:
 
All my prayers are with you and Lilly, she is so beautiful. congrats to you.
 
What a gorgeous little girl you have.

She is obviously a little fighter.

Congratulations :hugs::hugs::hugs::hugs:
 
ooooooooohhhhhhhhh she is soooooooo dinky. i would be so scared to touch her. get better soon lily-mae so you can go home with mummy. good luck hun.:hugs:
 
Lily has had a very hard 3 weeks. She had bactiral meningistis at brith, which made her speptic. she suffered a grade 4 IVH. she also has a huge PDA. PDA has been treated and it has closed by over half but not totally she failed extuabtion twice due to the PDA but after treatment she has now been on cpap for 8 days in air. She's been scanned twice aweek for her head as she's developing cysts were the damaged brain tissue is and is at risk of hydrocelpcus. she currently has 7 small cysts on right side of her brain.


Hiya, she looks really beautiful, in fact just like Charlotte last July, so be positive, she will be home before you know it.

We know what you are going through as charlotte was born with fungal meningitis which infected her brain and she developed two clusters of Csyst's on the right side. She also had a large PDA and they wanted to operate but could not due to the meningitis. She was on strong antibiotics for 8 weeks before she was clear of it and then the PDA just closed of its own accord after 11/12 weeks.

She did develop Hydrocephalus (water on the brain) as a result, after coming home, and was rushed to London for an emergency CT scan as her head had become very swollen but it was not bad enough to warrant a shunt being inserted at that point , so the Doctors decided to monitor her and like over 50% of cases it just cleared itself up and she is now 8 months old and acting very healthy and very normal and is so far meeting all her milestones albeit a little late.

keep us updated
 
I cant begin to imagine how traumatic it all must have been for you having to transfer hospitals etc.

Congratulations all the same, such a little fighter. Wishing her all the strength in the world.

x
 
ah she is beautiful so pleased everything is ok and u and baby are doing well x
 
aww hun, i'm so sorry you've had to go through this, she is beautiful and she looks like a real fighter hun, you all in my thoughts
 
omg honey, shes soo beautiful, I wish you all the luck in the world with your gorgeous little girl
 
Congrats she is gorgeous.
Good luck for the future but by the looks of it your little girl is a fighter.
 
Congratulations for your little girl, I hope she gets better really soon
 
Congrats she's absolutely gorgeous!!!! :hugs: You'll be in my thoughts so everything goes well
 
Congrats on your little girl and I will keep my fingers crossed!
 
Friday 21st March 2008 UPDATE

Ok well Lily got weighed this morning andf she'd lost 5g so she's now sat at 805g. Fed up of being told different things at hopsital, 1 consultant says one thing and then the next says something totally different. Last friday she just had to be gaining weight over the week now she has to be 1kg again. so as it stands were still on cpap in air not coming off for anytime. and wont be till she's a kg. They hav uped her feeds so hopefully she'll gain some weight come mondays weigh day.

As you can tell im a little deflated at moment. Fed up off being told diff things. Also been told that now she would have to come off cpap for 4HOURS... NOT 2-3 as i was told last week. Jus feeling really annoyed. Cant even speak to LILY'S OWN CONSUTLANT FOR 10DAYS AS SHE'S OFF AT BURNLEY AT MOMENT.

So i'll shut up for now. and leave u all in peace with this lovely pic xxx


https://i28.tinypic.com/33to56q.jpg

https://i32.tinypic.com/k3oihc.jpg
 
she is adorable...

I wish you all the luck for the future hun.. keep pressing the doctors for answers and dont let them fob you off...

you're really strong to be going through all of this... your girl is gorgeous.

Take care hun

xxx
 

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