Long Post - Spina Bifida found

[skycastles]

I'm so sorry you are going through this.. i hope your next appt gives you all the answers and reassurances you need.. sending positive thoughts

 

[Conundrum]

Thinking of you and your boy! Lots of love and for you both.

 

[Cazran25]

Thinking of you, hope your next scan brings some positive news x x

 

[Blessedbaby]

so sorry you going through this ... you in my prayers

 

[c beary83]

I'm so sorry to hear this

 

[campn]

I'm so so sorry hun, to go in for a regular scan and have this bomb dropped on you. I hope you get more answers and the doctors can reassurse you somehow. You and your little man are in my prayers!

 

[Hope16]

sending lots of hugs to you I can't imagine how you feel right now, I'm choked up and emotional for you. I hope everything turns out better than it seems.

 

[Jox]

Thinking of u xx

 

[lilesMom]

Huge hugs honey xxx
I don't know much about spina bifida
But my son had a stroke while being born
He has epilepsy, cerebral palsy, intellectual disability and poss autism
But he is briilant, amazing, loving and the light of my life.
When we were first told I was numb
In total shock.
But ur baby is still urs and perfect xx
And hopefully will not be hugely affected.
giant hugs hon xxx

 

[mummof1]

I'm sorry you're going through such an emotional / stressful time .. I hope you get answers at your next scan. I will keep you and baby in my prayers

 

[Wombat]

Hi,

I also replied on your thread in gestational complications.
Re posting it here. Sorry you have to go through this.

Hi there.

I just saw this post and also saw a post on Facebook.

There is a pioneering operation for babies with SB inside the womb.

https://en.wikipedia.org/wiki/Samuel_Armas

Read this.

Maybe it helps.

Big hugs!

 

[FayDanielle]

Thinking of you today x

 

[MeganS0326]

Sending up prayers for you and your family today !

 

[MummaBear16]

Thank you so much everyone for the kind words.

Our appointment went well, considering everything. We have found out he has myelomeningocele (most severe type with nerves in the lesion) and also where the lesion is, which is L5-S1. So far he doesn't have any fluid on his brain or clubbed feet. So we have been told he possibly could walk assisted, but no one will have any more idea until he is born and his functions are checked.

It is a scary jump into the unknown and it will certainly be testing. I am enjoying feeling his kicks, which are nice and strong, so that gives me hope

 

[MummaBear16]

Hi,

I also replied on your thread in gestational complications.
Re posting it here. Sorry you have to go through this.

Hi there.

I just saw this post and also saw a post on Facebook.

There is a pioneering operation for babies with SB inside the womb.

https://en.wikipedia.org/wiki/Samuel_Armas

Read this.

Maybe it helps.

Big hugs!

Hi Wombat, thank you for the link. Unfortunately the surgery in the womb isn't performed in Australia currently, so I don't think it is an option for me. It would be amazing though, for those that have the option!

 

[mummof1]

Good news about the no fluid in the brain and no clubbed feet, I will continue to keep him in my prayers

 

[medic76097]

*hugs*

 

[mum140381]

 

[ssarahh]

I will be thinking of you and your precious boy. Good news re fluid and clubbed feet xx

 

[lilesMom]

Hugs hon.
Huge shock to get but glad it sounds like he will walk xxx
Hope things continue to look up for ye