Muscle biopsy next month!

[CarlyP]

This will tell me whether I have myosotis or muscular dystrophy!

I am so scared, if it's myosotis then I can start steroids and get better, dare not think of the other.

 

[Wish]

No advice but lots n lots of
All the very best Hun!

 

[Wish]

Keeping you in my prayers! Lots n lots of
All the very best Hun!
xxxxxxxxx

 

[SparklyButton]

Thinking of you

Everything crossed that it all goes ok for you!

 

[CarlyP]

Thank you, still no news as for when its happening, but hoping sooner rather than later

 

[Nev23]

Hi Hun. *Hugs*. I understand what you are going through....im going through a similar experience.

It is very very hard knowing that something is wrong, but not knowing how serious it is.

I have been told that I have weakness and spassticity in my limbs, its called spasstic paraplegia, im undergoing tests to find out what is causing it....at the moment its looking like I have a rare genetic disorder or a progressive form of ms. Im slowly losing normal use of my limbs,at the moment my symptoms are relatively mild but I fear for the future, im also beyond scared that I have passed a serious genetic disease to my daughter.

I really hope you get the result that you want. It is tough dealing with neurological conditions as it sometimes takes ages for a diagnosis.

 

[CarlyP]

Hi Hun. *Hugs*. I understand what you are going through....im going through a similar experience.

It is very very hard knowing that something is wrong, but not knowing how serious it is.

I have been told that I have weakness and spassticity in my limbs, its called spasstic paraplegia, im undergoing tests to find out what is causing it....at the moment its looking like I have a rare genetic disorder or a progressive form of ms. Im slowly losing normal use of my limbs,at the moment my symptoms are relatively mild but I fear for the future, im also beyond scared that I have passed a serious genetic disease to my daughter.

I really hope you get the result that you want. It is tough dealing with neurological conditions as it sometimes takes ages for a diagnosis.

Sorry your going through something similar, its awful not knowing isn't it, and really hard to stay positive when you know something negative is happening to your body!

It's also a worry that mine may be genetic also, fingers crossed for us both that it isn't passed on.