Pregnant after MTHFR diagnosis

[TTC#1Amanda]

Is it ok I'd I follow you? I just got diagnosed today with homozygous MTHFR but have yet to see the doctor. I'm also allergic to aspirin

Hey, that makes it hard being allergic to asprin, have they got something else you could take?

 

[amjon]

I've been fine most of the time. That's pretty much how I was with Taylor though. Last night we went to a dinner/ dance and I ate some Mac and cheese with spam. My stomach did not like the spam.

 

[amjon]

Has anyone heard that diabetes along with a blood clotting disorder ups your risk of a clot? At the TEARS walk this morning they had an imaging group with some brochures. They had one on DVT screening. I asked about possibly having it done because of FVL and was told most people don't ever have an episode unless they are also diabetic. I do think I developed GD with my daughter right before she died (and actually had the GTT just a few days before, which I have never been told the results of). I had issues with much higher than normal for me BS readings postpartum. The endo was concerned about my GTT they did at 6 weeks into my second pregnancy and put me on Glumetza. Is is possible I only got a clot because of GD along with the FVL gene (I have one copy)?

 

[TTC#1Amanda]

Sorry amjon i wouldnt know about that

 

[MackMomma8]

Hi ladies! :wave:

Mind if I stalk this thread until I get my ? I was diagnosed with one-copy MTHFR back in August, and had a m/c in Feb at 5 weeks. My doctor didn't seem to think the MTHFR mutation was a big deal, but after doing my own reseach I realize that it is kind of a big deal and most likely contributed to my m/c. I'm on the right types of folate vitamins now, and I'm hoping that the next time I do get pregnant it'll stick!

 

[Emily7287]

Hey girls! Sorry I have been MIA, it was a busy weekend.

Welcome Crystal! Congrats on your BFP!

Amanda - I actually just got my doppler in the mail on Friday. I was able to find the heartbeat with a lot of practice!! Finally got a reading of 149 bpm. I actually scared myself a little because afterwards, my cyst starting aching a little and I thought maybe I had pushed too hard and hurt the baby!! Geez. I worry about everything!!!

MackMomma - I have two mutations and am so thankful my doctor is treating me. My first two pregnancies had no fetal development at all. With this pregnancy, I've been on Lovenox, baby aspirin, Deplin (l-methylfolate), and progesterone. Now we have a healthy embryo with a strong heart beat. I was skeptical about the medicine beforehand, but not now!

 

[Emily7287]

Has anyone heard that diabetes along with a blood clotting disorder ups your risk of a clot? At the TEARS walk this morning they had an imaging group with some brochures. They had one on DVT screening. I asked about possibly having it done because of FVL and was told most people don't ever have an episode unless they are also diabetic. I do think I developed GD with my daughter right before she died (and actually had the GTT just a few days before, which I have never been told the results of). I had issues with much higher than normal for me BS readings postpartum. The endo was concerned about my GTT they did at 6 weeks into my second pregnancy and put me on Glumetza. Is is possible I only got a clot because of GD along with the FVL gene (I have one copy)?

Sorry Amjon, I don't have any input for this one. Have you asked your doctor about it?

 

[MackMomma8]

I take an organic prenatal with plant-derived folate, extra L-methylfolate, Omega-3 + DHA, and a baby aspirin everyday. I plan on making whatever doctor I choose as my OB monitor my progesterone from the day I get that positive HPT... I'm wondering if I shouldn't harass my current doctor for a progesterone supplement just in case?

 

[TTC#1Amanda]

I so far belive me taking progesterone this time has got me now this far, im now 8w2d and checking babys hb everday, am also praying heaps to as ya do

 

[amjon]

I take an organic prenatal with plant-derived folate, extra L-methylfolate, Omega-3 + DHA, and a baby aspirin everyday. I plan on making whatever doctor I choose as my OB monitor my progesterone from the day I get that positive HPT... I'm wondering if I shouldn't harass my current doctor for a progesterone supplement just in case?

Mine discussed putting me on progesterone from BFP. My temp started to drop and was where it normally is the day before AF before I could get into the doctor, so I think it was very low. I got OTC cream until I got in to get the script. They didn't check my levels as he said that's not very accurate and taking it won't hurt anything either way (and will help if it's low).

 

[amjon]

Today when we did my shot I bled for awhile afterwards (and now have a purple bruise). At first I didn't even bruise, then this weekend I started bleeding a bit when DH gave me the shot and today it bled so much some dripped on my pants. As you take more shots does your blood get thinner and thinner or is there some other reason I'm bleeding more all of a sudden. I have an appointment with a new OB tomorrow and they will probably do my bloods. I'll have to see how much I bleed after that as I usually don't even need a bandaid.

 

[amjon]

Thought I would post a picture of how the bruises are forming now. Does everyone have the same?

 

[Crystal5483]

Hi again ladies and thank you for the warm welcomes!

I'm not pregnant yet, but we had been trying once again after our three losses.

I know that since I cannot take aspirin that they typically put me on prednisone or prednisolone. Not sure what else they would put me on. I am suppose to see my doctor on the 21st. But We did try this cycle before I found out my diagnosis on Friday and I'm not on anything higher for supplements.

I had emailed my doctor regarding extra supplements but his nurse has yet to get back to me. I think I pretty much bombarded her last week with all my questions.

Is there anything that you ladies recommend? I heard that b6, b12 and folic acid need to be supplemented in high levels. So I did pick up extra of those three.

I was already on 1mg of Folic acid, taking a b-complex that had another 400mcg and a multi-vitamin (I'm allergic to prenatals... I break out in hives... go figure!!) and that has 400mcg... so I was on 1800mcg of folic acid. But I've read you need to be on 4mg+ ! So I added another two 400mcg pills of the OTC folic acid which makes it 2600mcg --- I don't want to take too much before the doctor tells me what to take!

Are you all with high risk OB doctors? I was really hoping to go back to my regular OB - but I'm guessing I won't be able to.

Thanks again for the help!

 

[amjon]

Hi again ladies and thank you for the warm welcomes!

I'm not pregnant yet, but we had been trying once again after our three losses.

I know that since I cannot take aspirin that they typically put me on prednisone or prednisolone. Not sure what else they would put me on. I am suppose to see my doctor on the 21st. But We did try this cycle before I found out my diagnosis on Friday and I'm not on anything higher for supplements.

I had emailed my doctor regarding extra supplements but his nurse has yet to get back to me. I think I pretty much bombarded her last week with all my questions.

Is there anything that you ladies recommend? I heard that b6, b12 and folic acid need to be supplemented in high levels. So I did pick up extra of those three.

I was already on 1mg of Folic acid, taking a b-complex that had another 400mcg and a multi-vitamin (I'm allergic to prenatals... I break out in hives... go figure!!) and that has 400mcg... so I was on 1800mcg of folic acid. But I've read you need to be on 4mg+ ! So I added another two 400mcg pills of the OTC folic acid which makes it 2600mcg --- I don't want to take too much before the doctor tells me what to take!

Are you all with high risk OB doctors? I was really hoping to go back to my regular OB - but I'm guessing I won't be able to.

Thanks again for the help!

You can't really overdoes on folic acid. If you don't need it your pee will be bright yellow. If you want to try to get more I drink a smoothie/ fruit juice for breaks called Blue Goodness that has an extra 880mcg in it as folate (which i think is what you're supposed to have with MTHFR). They gave me Folgard during my second pregnancy because he said it's been show to help with MTHFR (though I tested negative for it- he said it would hurt in case I had a false negative). I've since been diagnosed with FVL, which is similar, but without the folic acid issues. Can they just give you extra Lovenox to compensate for the aspirin maybe?

 

[Crystal5483]

Is Folgard Folic Acid or Folate? I'm getting so very confused by this all.

I have to talk to him to see if he'll even give me the injections. Honestly I think they should. My mother even had to do heparin shots when pregnant with me. There had to be a reason why! I just wish she was here so I could ask her

Did you fertility specialist prescribe the lovenox or was it an OB?

 

[TTC#1Amanda]

Amjon ive had same problem with heparin, since last week everytime i injected myself i had to hold tissue over it for 20mins after as was bleeding, and i been getting bruise like yours to, so i personally cut my dose to once daily instead twice and so far ive been beter but havnt comfired with doctor yet if it was ok to cut dose back...i personaly felt like i was going to bleed out if i kept it up...id talk to your doctor to check if your dose is to high

 

[TTC#1Amanda]

Hi again ladies and thank you for the warm welcomes!

I'm not pregnant yet, but we had been trying once again after our three losses.

I know that since I cannot take aspirin that they typically put me on prednisone or prednisolone. Not sure what else they would put me on. I am suppose to see my doctor on the 21st. But We did try this cycle before I found out my diagnosis on Friday and I'm not on anything higher for supplements.

I had emailed my doctor regarding extra supplements but his nurse has yet to get back to me. I think I pretty much bombarded her last week with all my questions.

Is there anything that you ladies recommend? I heard that b6, b12 and folic acid need to be supplemented in high levels. So I did pick up extra of those three.

I was already on 1mg of Folic acid, taking a b-complex that had another 400mcg and a multi-vitamin (I'm allergic to prenatals... I break out in hives... go figure!!) and that has 400mcg... so I was on 1800mcg of folic acid. But I've read you need to be on 4mg+ ! So I added another two 400mcg pills of the OTC folic acid which makes it 2600mcg --- I don't want to take too much before the doctor tells me what to take!

Are you all with high risk OB doctors? I was really hoping to go back to my regular OB - but I'm guessing I won't be able to.

Thanks again for the help!

Im on 5mg folic acid, and i go private to a fertility spec, aswell as keep my doctor imformed with my file,..id go to whoever you feel is treating you beter, and giving you help and answers when you need it

 

[amjon]

Is Folgard Folic Acid or Folate? I'm getting so very confused by this all.

I have to talk to him to see if he'll even give me the injections. Honestly I think they should. My mother even had to do heparin shots when pregnant with me. There had to be a reason why! I just wish she was here so I could ask her

Did you fertility specialist prescribe the lovenox or was it an OB?

My OB is also my FS. They started me from BFP (but you may need earlier since you can't do the aspirin, I did loose a pregnancy at about 2 days after BFP when I wasn't on aspirin). I'm going to a hematologist that specializes in anti-coagulation on Thursday to make sure they have my dosing correct. You could maybe try to consult one. Folgard is folic acid (and B6 and B12).

 

[amjon]

Amjon ive had same problem with heparin, since last week everytime i injected myself i had to hold tissue over it for 20mins after as was bleeding, and i been getting bruise like yours to, so i personally cut my dose to once daily instead twice and so far ive been beter but havnt comfired with doctor yet if it was ok to cut dose back...i personaly felt like i was going to bleed out if i kept it up...id talk to your doctor to check if your dose is to high

I'm going to a hematologist on Thursday, so I'm sure he'll check and adjust as needed. I'm only on 30mg once a day.

 

[TTC#1Amanda]

I thought folate is folic acid?

My bottle says folate but the prescription is for 5mg folic acid..maybe folate's the name when its a higher dose?