Premature Babies Group

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Mumof42009

Mum Of 4 Preemie's
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I thought i'd start this group as ive had 3 premature babies due to placenta abruption, Ellesse was born at 32 weeks and weighed 4lbs 3oz i started bleeding very heavy from 30 weeks and then had full abruption she was born via emergency c-section, was on cpap and then in oxgen. She came home after 3 weeks. Aaliyah was born at 28 weeks after i went for growth scan they found the placenta had detached and she was growing before they got me to the theatre i had a major abruption, Aaliyah was clinging onto life for 1st 2 weeks and finally pulled through, she was on a ventilator for 1st 2 weeks she had collapsed lungs, bleed on the brain. After 2 weeks went onto cpap then oxgen she finally came home after 8 weeks. Simran was born at 32 weeks after i started bleeding, I had been admittied to hospital 3 days before with suspected meningitis after i had a headache i couldnt get rid of and had a rash found out my placenta had abrupted and i had a major infection she was delivered by emergency c-section, she was very poorly for the 1st few days we even had her blessed as they thought she wouldnt pull through. She was ventilated for a week then she was put onto cpap then oxgen, she had a small bleed on the brain and collapsed lungs. She was in hospital for 4 weeks.
All my children are all now healthy apart from aaliyah being small for her age and them all having lung problems, allergies so i was very lucky. Ive been told to prepare for another premature baby as already having signs that my placenta isnt good. This is my last baby as im being sterlised, I thought be good to set up a group for people who have been through the same.
 
The neonatal intensive care unit (NICU) contains many machines and other types of equipment used to care for sick babies with many different problems. These machines seem less intimidating when you understand how they can help your baby.

This article introduces you to some of the equipment you'll see. Your baby may also be treated with other specialized machines during her NICU stay.
Bililights

The bright blue fluorescent lights placed over a baby's incubator are used to treat jaundice (yellowing of the skin and eyes). Babies with jaundice usually receive this phototherapy treatment for three to seven days.
Blood pressure monitor

A machine connected to a small blood pressure cuff wrapped around your baby's arm or leg. The cuff automatically takes your baby's blood pressure at regular times and displays the numbers on a screen.
Cardiopulmonary monitor

A machine that tracks your baby's heart and breathing rates. It's connected to your baby by small adhesive monitoring pads placed on her chest. The monitor displays information on the screen, which can be printed onto paper. An alarm will sound if your baby's heart or breathing rate becomes too fast or too slow.

Central line

An intravenous line inserted into a vein, often in the arm, and threaded from there into a larger vein in the body close to the heart. The line delivers medicines or nutritional solutions that would irritate smaller veins.

A PICC (peripherally inserted central catheter) line is a type of central line, which is placed in one of the major blood vessels. HICKMAN® catheters and BROVIAC® catheters are common types of central lines inserted into the jugular (neck) vein. HICKMAN® and BROVIAC® are registered trademarks of C.R. Bard, Inc., and its related company, BCR, Inc.
C-PAP (continuous positive airway pressure)

Air is delivered to a baby's lungs either through small tubes in the baby's nose or through a tube that's been inserted into her windpipe. The tubes are attached to a ventilator (respirator), which helps the baby breathe but does not breathe for her.
Endotracheal tube

A small plastic tube, which is inserted through a baby's nose or mouth down into the trachea (windpipe). The tube is attached to a ventilator (respirator), which can either help a baby breathe (as in C-PAP) or breathe for her.
Incubator

Babies are placed in this clear plastic box, which keeps them warm and protects them from germs and noise.

Intravenous line

Most premature and sick babies cannot be fed immediately, so they must receive nutrients and fluids intravenously (through a vein).

A doctor or nurse will insert a very small needle or tube into a tiny vein in the baby's hand, foot, arm, leg, or scalp. The needle is taped in place, and attached to a thin plastic tube (IV line).

The tube goes to an IV pump connected to a pole next to your baby's bed. Your baby also can receive medications and blood through the IV line.
Nasal cannula or nasal prongs

Small plastic tubes that fit into your baby's nostrils and deliver oxygen. They often are used with a treatment called continuous positive airway pressure (C-PAP), which uses a ventilator to deliver pressurized air to a baby's lungs.
Oxygen hood

A clear plastic box that fits over the baby's head and supplies her with oxygen. This is used for babies who can breathe on their own but still need some extra oxygen.
Pulse oximeter

A small U-shaped device that's wrapped around a baby's foot or hand and secured with a stretchy bandage. It uses a light sensor to help determine whether the baby has enough oxygen in her blood. This sensor doesn't hurt your baby at all. It helps doctors and nurses determine whether your baby needs more or less oxygen, while reducing the need for painful blood tests.
Radiant warmer

An open bed with an overhead heating source that provides heat to a baby. A warmer may be used instead of an incubator if a baby needs to be handled frequently.

Respirator

See ventilator.
Umbilical catheter

Your baby's umbilical cord has two arteries and one vein, which end in her belly button. A thin tube (catheter) can be inserted into one of these vessels and threaded to the aorta, the largest artery supplying oxygen to the body.

Through this catheter, doctors and nurses can painlessly draw blood, so they don't have to repeatedly stick the baby with needles. They can give her fluids, blood, nutrients, and medications through this tube. A small device can be attached to the catheter to continuously monitor a baby's blood pressure.
Ventilator

A ventilator (also called a respirator) is a mechanical breathing machine that delivers warmed and humidified air to a baby's lungs. The sickest babies receive mechanical ventilation, meaning that the ventilator temporarily breathes for them while their lungs recover.

The air is delivered to the baby's lungs through an endotracheal tube (a small plastic tube that's inserted through a baby's nose or mouth down into the windpipe). The amount of oxygen, air pressure, and number of breaths per minute can be regulated to meet each baby's needs.
 
Neonatal or 'special care'

Neonatal units in hospitals specialise in the care of babies born early, with low weight or who have a medical condition that requires specialised treatment. Literally neonatal means 'new born'.

The largest group of babies in the neonatal unit are there because they were born some weeks before their due date, and they can often be very small. Another group of babies will be born close to their due date, but still not be at their full weight (the average birth weight is about 7.5 pounds). Other babies will have specific medical conditions.

Care is provided in four different levels. Your baby will be in the level of care that is the most appropriate to their needs at the time.
Intensive Care

This is the highest level of care, for babies who require continuous support of their organ function and close observation. This level of care provides the whole range of medical care for babies such as ventilation (breathing) support. The Bliss booklet on Ventilation and chronic lung disease answers many of the questions that parents may need to know.
High Dependency care

This level of care involves the continuation of some breathing support such as CPAP (continuous positive pressure ventilation) and intravenous nutrition. Your baby will remain under continuous observation during this time.
Special care

This area of care is normally the final stage in preparing babies to go home; this may include weaning from tube-feeding to bottles or breast. Some oxygen support may still be required and light therapy (phototherapy) may be required for babies with mild jaundice.
Transitional care

This usually takes place within a postnatal ward and is designed to prepare a baby and family prior to going home. Bliss has information on Going home and Going home on oxygen that you may find useful.
 
Can I join? I have 2 slightly prem babies, both at 35 weeks, dd due to severe pre- eclampsia and ds due to same + pprom.
This time I have a complete placenta previa which is already bleeding, im booked in for steroids on thurs at 26 weeks and its looking likely this one will be a lot earlier.

Is there any reason for having so many apruptions? You must be so worried knowing your placenta is already showing signs already:hugs:

Thankyou so much for all the special care info too!
 
Hiya

Of course you can join, i have a blood clotting disorder which they think causes it, ive also had an sch a bleed on placenta which i had at 13 weeks and is getting bigger thats why they think will go into premature labour again, i also have low placenta so odds stacked against me. Were you babies ok after being born early? How much did they weigh? xx
 
First 2 were pretty massive for 35 weeks, 6 pound 1 and 6 pound 10. This 1 is 2 weeks behind tho. Is there anything the doctors can give you to help your clotting, it must be really hard to deal with facing this each time you are pregnant:hugs:
 
Can I join please? Sounds like you've had a tough time of it, what an army of little fighters you have there :hugs:. Molly was born at 29 weeks due to severe preeclampsia. She was ventilated at birth but went onto cpap after 7 hours. She was on CPAP for 4 days then went on to o2. She came home on a small amount of o2 and we weaned her of at home. She was in hospital for 7 weeks all together. She is doing amazingly well :cloud9:
 
Hi everyone. Poppy was born at 34 weeks +2, no idea why she came so early, my waters just broke and I was in labour.

I was on Tinzaparin (anti blood clotting medication) throughout my pregnancy but they don't think the prem birth was linked to that. I just hope any further pregnancies we have go full term as I found it so hard being away from Poppy while she was in SCBU.

Thanks for setting the group up, will be interesting to read all your stories xx
 
Hi ladies :)
I had my DS at 33 weeks weighing in at 4lb3oz he received oxygen straight after birth but only for a couply of minutes,was in scbu for just under 2 weeks.
I have no idea why he came early my waters just broke and he was here 3 days later,perfectly happy and healthy little one now :)
I am so worried Im going to have this one early too!
Although they gave me no reason for having DS early,I experienced bleeding in early pregnancy with him, and the sames happening this time round,but worse!
I really really hope thi sisnt a sign of another premmie :(
FX for a term baby!
 
Fab Idea for a group!

Im Donna, I had Brooke on January 30th due to severe pre eclampsia that had gone undetected.

Brooke spent 5 weeks in SCBU about 50 minutes away from us. hardest thing ever was leaving her there at night!! :cry:

Hope your pregnancy progresses well mumof42009
 
:hi: newbies

Lovely to hear all your stories, Its so frighting when they come early but they grow so fast before you know it they are off to school and indepdent so enjoy it while they are small :happydance:.
I used to hate it when people come upto you saying oh arnt they small? are you sure they should be outside? i think people think you should lock them away until there big bouncing babies.
Im on asprin for my blood they wouldnt give me anything else while im pregnant doesnt seem to be helping though, as already got massive blood clot on placenta and they are preparing me for pre-term delivery. :hugs:
 
:hi: newbies

I used to hate it when people come upto you saying oh arnt they small?

Ohhhhhhhh I get this all the time . . .Brooke is 18 weeks old and weighs 7lb 14oz. . .people look at me like a complete nutjob when I tell them her age. Every now and again I get a bit sick of feeling like a freak show every time I go out somewhere. :dohh: I absolutly ADORE her bein small though. . .so I get over it pretty quick when someone admires her instead. . .then I get all like this . . .:smug: :muaha:

Good Luck with your pre-term labour mumof4. . . sounds like you're getting yourself well prepared-its nice that you know what to expect at least. x x
 
Hiya girlies!

My son, Maxson, was born via C-Section at 34 (nearly 35) weeks after my OB/GYN noticed I had verrryyy little amniotic fluid. Which was weird to me, because I went to fetal monitoring appointments once a week where the ladies there (not associated with my ob/gyn in any way) told me my amniotic fluid was a-ok. In fact, one day I went in for my appointment, they told me it was fine and that same night I had a growth scan with my ob/gyn and was told my amniotic fluid was dangerously low. I had no leaking or anything...so idk what happened.

Anyways, lol. He was born at nearly 35 weeks weighing 4 lbs 10 oz and 18 in long. On June 1st (the last time I had his weight/height checked) he was 11 lbs 2 oz and 22 in long :happydance: He will be 3 months this saturday :cloud9: He got his first set of vaccines today and screamed really loud, but he's had some baby tylenol and he seems okay now. Poor thing :cry:
 
Glad Maxson is doing so well all these premmies are little fighters, you wouldnt believe the size of my 3 premmies now, cant believe my youngest starts nursery sept and middle ones going into juniors, oldest seniors dont seem 5 mins i was in nicu with them.xx
 
Great idea in setting this group up! Can I join?

I had Archie at 27 weeks exactly due to my cervix opening. No one will admit it but I had treatment on them 10 yrs ago for abnormal cells which could have weakened them. Whilst in hospital before the birth, every midwife made the comment that they have had lots of women in having early births due to the same thing...

Archie was in the Neonatal Unit for 95 days and we have had him home now for 5 weeks. He was born at 2lb 6oz and now weighs in at 10lb 7oz!

One question thought.....his feet are so small. When do they start to grow and I can get shoes on him??

You can read my journal which I updated every day whilst Archie was in hospital. The link is in my signature.
xxxxx
 
Its takes ages for there feet to grow and when they do they grow fast lol! My youngest is a size 10 and shes 2, does anybody know where i can get some prem hats from where postage isnt too high? Mothercare do them but there massive i need to get prepared again xxx
 
Its takes ages for there feet to grow and when they do they grow fast lol! My youngest is a size 10 and shes 2, does anybody know where i can get some prem hats from where postage isnt too high? Mothercare do them but there massive i need to get prepared again xxx


https://www.babyprem.com/AccessoriesHatsBibsMittsPantsEquipment.html

ETA: I'm not sure what the postage is like, but the hats and stuff are pretty cheap :) They also make all sorts of baby clothes size. :)
 
I had Archie at 27 weeks exactly due to my cervix opening. No one will admit it but I had treatment on them 10 yrs ago for abnormal cells which could have weakened them. Whilst in hospital before the birth, every midwife made the comment that they have had lots of women in having early births due to the same thing...

I had treatment too and I can't help feeling that there may be a link....
 
I had Archie at 27 weeks exactly due to my cervix opening. No one will admit it but I had treatment on them 10 yrs ago for abnormal cells which could have weakened them. Whilst in hospital before the birth, every midwife made the comment that they have had lots of women in having early births due to the same thing...

I had treatment too and I can't help feeling that there may be a link....

Hey Bec, think back to your very first appointment with the midwife and you had to complete a rather large form. In that appointment did they ask you if you ever had treatment on your cervix and the type? I got asked and I asked why she was asking. The midwife informed me that they need to know as when in labour one min you could be 2cm dilated and the next 10cm dilated. I then asked her if this meant that my cervix were weak....she quickly changed the subject. Then the midwifes in hospital said that I should have been made aware when I was getting the treatment that this could lead to implications in pregnancy....NO ONE said that to me! There has to be a link! What does everyone else think?

Question for you all.....my Archie has started teething and he is only 6 weeks corrected but 19 weeks actual...so weird! Did this happen to your little ones?
 
Hi Dona

I don't remember having that conversation when filling in the form, but I had definitely written on that I had had the procedure done. It was never referred to by anyone throughout my pregnancy.

I remember asking the nurse who removed the cells if it would affect my chances of having children or cause any complications and she said definitely not....

I have a friend who had pre cancerous cells removed (wrongly, but that's another story...) and she was told that as a result it may take her a long time to get pregnant and she would be unlikely to go full term. (She got pregnant the first month she tried and went 11 days over!!)

That's funny about the teething - bless him. Poppy is still a gummy little monkey :cloud9:
 
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