Recurrent Miscarriage Thread

[kelly1973]

hope it makes me so angry to the way things happened and the way you was treated I really hope you get some answers soon xxxxxxxxxxxxxxxxxxx

 

[petitpas]

Hope it's the uncertainties that make this so much more difficult. I'm sure that somehow all the jigsaw pieces will fit together in the end and suddenly you will have a clearer picture with one or two big issues standing out for you to pursue. I wish it didn't have to be this way but you really are doing a very good job in following every line up. Fingers crossed you get those notes soon!

 

[Squig34]

Hope, good luck getting to the bottom of this and finding out why Isaac wasn't born sooner. I think of you often

 

[poppy]

Hi girls!

I'm Poppy aka Paula. I've been on this forum a long time now, since September 2007 when I began ttc my first son. I have two boys aged 5 and 3 and am 37 tomorrow (eek!).

I have been ttc baby number 3 since November last year and have fallen pregnant twice and miscarried both times: once in March (blighted ovum at 7 weeks) and once in July (miscarried at 9 weeks, baby stopped growing at just over 8 weeks). The only time I have miscarried before was a chemical pregnancy (4 weeks) just before I conceived my eldest son.

We have had a break ttc for a few months, giving my hormones time to regulate etc but am now thinking of ttc again soon...I am so scared though. The thought of undertaking this journey again; the hormonal ups and downs, the fears, the underwear checking, the false hopes etc for it to all possibly end in miscarriage terrifies me.

I have been to the doctor to discuss my fears but she just said that it was just 'bad luck' (I know many of you have had this response as well) and that many people have had two miscarriages in a row blah blah. I just feel a bit fobbed off. I have had two healthy boys born at term, so I know my body can handle pregnancy but I worry that something might gave changed hormonally or egg quality since I was 33/34. I do get very mild psoriasis on my ankles and now worry that I have developed some auto immune problem with pregnancy (I have read the Dr Beer book and have worried myself). So far, I have conceived relatively easily: first pregnancy (3rd cycle; first son (first cycle after chemical pregnancy): second son (first cycle): fourth pregnancy ( 4th cycle); fifth pregnancy (first cycle after blighted ovum)....I read about some women's bodies not being able to tell egg quality.

Sorry for the ramblings, just feeling nervous!

...Sorry, I know you are only supposed to post in here after three consecutive miscarriages but as I have had a chemical pregnancy before, I thought you would be ok with me posting here - hope it's ok xxx

 

[dan-o]

Hi poppy, I know it's different everywhere, but here you can have some tests after two consecutive miscarriages or TTC for 6 months if you are over 35. our EPU runs the miscarriage clinic and the fertility clinic. May be worth asking?

 

[kelly1973]

dano what sort of tests do they do if you have been trying for more then 6 months?

 

[dan-o]

Usual cd3/21 hormone tests, sperm analysis, pelvic scan and hsg/hycosy if required. Xx

 

[ginny83]

For me out of those tests I only have had the pelvic scan and day 21 hormone levels checked... Otherwise mine was ruling out clotting and autoimmune disorders

 

[Tasha]

I've had none of them

 

[dan-o]

Those are the tests they do here if ttc is taking too long. I went for fertility testing, instead of RMC, after my first 3 losses as I had big gaps between pregnancies.

RMC is clotting etc and karyotyping as far as I know, im yet to have it tho, my first RMC appt is on Friday. I'm definitely having gentic stuff done as something came up with the last baby I lost. I've had no issues falling pregnant this time, just staying pregnant past 1st tri.

I think it must vary on which trust you are under. You'd think it would be standard tho!

 

[Hope39]

Hope it's the uncertainties that make this so much more difficult. I'm sure that somehow all the jigsaw pieces will fit together in the end and suddenly you will have a clearer picture with one or two big issues standing out for you to pursue. I wish it didn't have to be this way but you really are doing a very good job in following every line up. Fingers crossed you get those notes soon!

I do have them, that was what my rant was about. They just took ages to do everything, I think a massive gap was left in my notes and completed later, well it says written after!! They haven't wrote in everything she did, I.e speculum. That is a pretty important bit because I lost loads of blood at that point and I think she alerted peadiatric team at that point, it's all missing, a whole half an hour of info not documented

Short staff and busy theatre was the problem I think because she couldn't have been that stupid considering she is one of their top obstetrician

I'm sure there is an underlying reason to some of it

Xx

Xx

 

[Tasha]

I've seen Hope's notes and completely agree. Nothing was documented well, correctly and sometimes (IMO) it seems they've tried to fill in the gaps.

Hope I need to get ink. I will do that asap x

 

[Hope39]

thank you tasha . don't know what i would do without you in my life xx

 

[Squig34]

Tasha, how come after all you've been through, you haven't had any of the testing?

 

[Tasha]

Me and you both hope love ya

Squig, I've had testing but just not any mentioned. After Honey I was diagnosed with clotting disorders and so it was assumed it was that. They just continued to assume it was the clotting disorders despite seven miscarriages (at the time) and then Riley Rae so I paid for private testing (full clotting, thyroid, mthfr, teg, karotyping) at st Mary's, when I continued to miscarry on their care plan and they told me to stop getting pregnant I paid for the biopsy at Coventry and then I continued to miscarry on their care plan so went to Epsom and found the bloods there more thorough. But ye

 

[petitpas]

Well, to be fair, some of those tests, for example the day 3/day 21 tests are mainly used to determine why a woman isn't getting pregnant.
Tasha, surely you've had a pelvic ultrasound, though? St Mary's did one with me as part of their standard workup. Even though I had similar issues to you having been labelled a clotter even before my first pregnancy. It is a major cause for miscarriage but it wasn't MY cause. Or at least not the only cause. So frustrating
Tasha, I'm still keeping everything crossed for you that Mr S will find the right combination for you. He seems to think a bit more out of the box than most places.

 

[petitpas]

Hope, well done on finally getting the notes although I'm sorry to hear that they don't provide all the answers. Is the hospital offering a formal investigation or some kind of meeting about this as a first step? Have you taken legal advice yet? This must be so tough on you and your OH as I'm sure you just want to know what happened and why Isaac should have had a chance at life and hopefully through your actions this will never happen again.

 

[Tasha]

Well, to be fair, some of those tests, for example the day 3/day 21 tests are mainly used to determine why a woman isn't getting pregnant.
Tasha, surely you've had a pelvic ultrasound, though? St Mary's did one with me as part of their standard workup. Even though I had similar issues to you having been labelled a clotter even before my first pregnancy. It is a major cause for miscarriage but it wasn't MY cause. Or at least not the only cause. So frustrating
Tasha, I'm still keeping everything crossed for you that Mr S will find the right combination for you. He seems to think a bit more out of the box than most places.

I've had a pelvic ultrasound when pregnant but never outside of it and never to look for abnormalities. By the time I went to at Mary's I had four full term pregnancies (or almost term) and 24+3 with RR so they probably assumed that it meant no issues.

He does. That reminds me I need to email Lissa x

 

[ginny83]

I had a pelvic scan in my RM investigations - although they did it as a matter of following their protocol as they thought it would be highly unusual that that would be the reason since I had carried to term before. Also, I had had lots of scans during my pregnancies (that ended) so you would have thought something major would have been picked up then too

It did end up picking up that I had a funny looking lining for one cycle, but it was pretty soon after my last miscarriage and they thought maybe I didn't O that cycle causing hormones to be out of whack. I got booked in for a follow up scan and everything looked fine.

 

[Hope39]

Well, to be fair, some of those tests, for example the day 3/day 21 tests are mainly used to determine why a woman isn't getting pregnant.
Tasha, surely you've had a pelvic ultrasound, though? St Mary's did one with me as part of their standard workup. Even though I had similar issues to you having been labelled a clotter even before my first pregnancy. It is a major cause for miscarriage but it wasn't MY cause. Or at least not the only cause. So frustrating
Tasha, I'm still keeping everything crossed for you that Mr S will find the right combination for you. He seems to think a bit more out of the box than most places.

I've had a pelvic ultrasound when pregnant but never outside of it and never to look for abnormalities. By the time I went to at Mary's I had four full term pregnancies (or almost term) and 24+3 with RR so they probably assumed that it meant no issues.

He does. That reminds me I need to email Lissa x

Lissa away for a long time......... Another midwife is doing her job for time being xx