Recurrent Miscarriage Thread

[Hope39]

Hope, well done on finally getting the notes although I'm sorry to hear that they don't provide all the answers. Is the hospital offering a formal investigation or some kind of meeting about this as a first step? Have you taken legal advice yet? This must be so tough on you and your OH as I'm sure you just want to know what happened and why Isaac should have had a chance at life and hopefully through your actions this will never happen again.

We have a meeting with the obstetrician on 15th Oct, baby loss awareness day, she couldn't have Chose a more suitable day if she tried

My Formal Complaint will be sent in by end of September, I've got to write it up and I have 8 different complaints to put into words (I hate writing letters)

I'm ringing Ambulance Service today as they want a chat over the phone, ringing a solicitor too, I need someone to take it all out of my head as its driving me bonkers

I'm going docs today too, I want some sleeping tablets so I can have a decent night sleep

Xx

 

[petitpas]

Perhaps your solicitor can help you put it all in writing?

I got sleeping pills after I struggled with one of my losses. They really helped! I only took them for a short time but it broke the cycle of restless nights and then I could sleep normally again.
Big and truckloads of strength coming your way Xxx

 

[Hope39]

Oh dear me.... Why O why do they not look at your bloody record before they call us in......

So I plonk myself down on a chair and tell her I'm struggling to sleep and not coping, she asks me what am I not coping with.... Epic fail there which resulted in me crying uncontrollably. After talking for half hour she asked me to fill out a depression and anxiety questionnaire. Top Marks from me and i was offered antidepressants, I declined, don't want them whatsoever

just having a cuppa and then I'm off to ring the ambulance service, i wish I had a PA that could do all this ringing, I have to relive the ordeal everytime I speak to someone

Xx

 

[Hope39]

7 day supply of sleepers, zopiclone, they are heavy so will only be taking half pill anyway.

X

 

[petitpas]

That's what I took, too. I was so scared to take them but it was ok when I did.
What a rubbish doctor you went to! way to make you feel worse than when you went in... I hope your call with the ambulance service was more gentle

 

[Squig34]

Good luck with your letter Hope.

That makes more sense, Tasha - I was sure you'd had testing as I recalled you were seeing Dr S, just confused then by your comment! Anyway, I hope Dr S finds a way to crack this for you.

 

[Tasha]

Really hope? She was meant to organise an appointment for me ages ago as they told me last minute dr s wouldn't be there. Not heard anything since!

I'm sorry today has been traumatic for you sweets. If I can help in any way with any of it just say xx

 

[Hope39]

Really hope? She was meant to organise an appointment for me ages ago as they told me last minute dr s wouldn't be there. Not heard anything since!

I'm sorry today has been traumatic for you sweets. If I can help in any way with any of it just say xx

Yep really . I spoke to another midwife that was doing her job

I would give his secretary a call, her name is Chris wood . I will call them today too as she didn't ring me back last week

Xx

 

[loeylo]

Hope - that is awful, I hope you get the answers you need!

I'm having a tough time of it too. My bhcg levels are hovering just above 5, coming down but quite slowly so I have to keep going up weekly, so it is hanging over me. Physically I have healed and just want it over with now!

Last night I had a dream we had a baby, and we were both lying on the couch taking in every single tiny detail of our new baby, it was a little boy and he was the spitting image of his daddy. I felt this overwhelming feeling - can't really explain it - then I woke up feeling crap.

Came into work and I have to attend a formal meeting about my absence, this is the first time I have had time off in my career so it is hardly like I have poor attendance!

 

[kelly1973]

hope I really hope you manage to get some sleep I cant believe the doctor im just shocked unbelievable. I just feel for you so much you have so much on your shoulders at the moment massive cyber hugs from this end xxxxxxxxxxxx

 

[sportysgirl]

Hope I really am thinking of you a lot. You are being so strong. The gp should prescribe you something to help with sleep, things are harder when you can't sleep.
Do you have supportive family nearby? X

 

[Hope39]

All my family are about 150 miles away

We are actually heading down their way Thursday, we have a caravan at the coast, however, my OH is being a pain in the ass, has a bit of an issue with my sister wanting to visit me, he thinks its to benefit her and it hasn't entered his head that I've lost a baby and she probably just wants to see me because she cares. My sis and i are very close, talk most days on phone . I've probably spoke to her less since Isaac because i can't be arsed to talk to anyone

Tricky situation and I'm stuck in the middle as per usual

Anyway, I wrote out our formal complaint today, it took me and OH all day so that's one less thing to think about, 9 individual complaints over a three year period. Hope to talk to a solicitor tomoz and send them a copy before we post it next week

Ambulance service had their formal complaint yesterday so by next week all complaints should be in and I can try and forget about it for A few weeks. I should imagine they will want to meet with us

Off to see mr shehata 7th nov, he wants a copy of my medical records too

Xx

 

[LPF]

Hello again,

Don't know if anyone can even help with answering this but I thought I'd ask.

After 3 MCs I've had all the standard tests done. I had to have anti thrombin 3 test redone as it was low first time but on second test it was normal so that's ruled out. The only other iffy result was a FSH of 9 on CD4.

My gynae wasn't fussed but dr.google seems to suggest it might result in some iffy eggs - sounds plausible as I've had 1 blighted ovum and 2 5-6 weeks MCs.

So....I've been taking an egg healthy supplement diet - but...... I know you're supposed to take it for 3 months to improve eggs but if I wait that long, I'll only have 1-2 cycles before dh is working away and we have to stop for the foreseeable.

My question.....do the supplements help a bit as you go along but best for 3 months or does it only benefit at the 3 month mark when that egg is released and prior to that it is as if you've not taken them.

I've taken coq10 for about 3 months but not at the correct dosage to start, full 600mg for last 1-2 months. Then I've been taking: royal jelly, l'arginine, omega fish oil, vitamin d, vitamin b, high dose folic acid, wheatgrass and vitamin c for about 50-55 days (just ovulated and TTC on this cycle)

I'm sort of hoping I'm not pregnant this cycle which leaves me with 3 cycles where I've been taking the supplements for nearly 3 months but I'm just hoping that the supplements are helping, even if it's not 3 months yet.

My cycle has dramatically improved since taking them - this month I ovulated on day 14, previous month I had a 14 day lp and cycle length is under 30 days for last 3 months when prior to all this I would have 2 weeks of horrific ewcm, late ovulation, cycle length of up to 40 days and a 10-11 day lp.....so I'm really happy about that.

Sorry for the ramble.....any thoughts ? Xx

 

[Ourlucky7]

Hello, just wanted to introduce myself since I've been reading here for a bit.

I am 37 and I have 4 healthy children. So I can't say I'm not blessed. However, I've had many losses.

My story starts 18 years ago with my first loss at 9 weeks. I was young and not trying so it didn't seem that great of a deal. Then 2 years later I became pregnant again only to have a missed miscarriage at 8 weeks. Baby never grew past 5-6 week range.

My then husband and I tried for 18 months without success. At that time I was diagnosed with a luteal phase defect and placed in clomid with progesterone. I became pregnant first cycle. 8 weeks later we found out it was twins! They were born July 2000 after a difficult pregnancy.

On the first birthday of my twins I discovered I was pregnant again! Big surprise! We had some early on problems but overall the pregnancy was easier than the twins. Daughter #3 was born in March 2002.

And just because my singleton was so easy I agreed to having #4. My son, the easiest pregnancy of them all, was born January 2004.

After his birth I had the mirena inserted. A year later I became pregnant! We lost the pregnancy and discovered the IUD was perforated and embedded. 2 surgeries later it was removed. We didn't try for another baby.

8 years after my son was born I remarried to a wonderful man who has two children of his own (the same ages as my own). We decided to try for our own together baby in 2013. For 6 months nothing. And then finally a BFP! That pregnancy ended at 5 weeks. We did not become pregnant the following cycle but we did the 3 cycles after. All 3 were chemical pregnancies. I finally went to my dr for testing.

HSG was clear, aside from uterine scarring which did not contribute to my RPL.
Positive for MTHFR (super low homocysteine, and folic acid levels)
anticardiolipin antibodies and antinuclear antibodies
And my thyroid was way off.

So the treatment plan was to start baby aspirin, and a vitamin b complex to help with the MTHFR. Progesterone suppositories starting 1dpo and lovenox injections to start as soon as pregnancy confirmed in uterus.

Month 6 I became pregnant for the 5th time and the baby actually stuck! We started lovenox as soon as we saw baby in uterus. At 6weeks we saw the heartbeat. At my 8-9 week ultrasound we learned that the baby stopped growing and heart had stopped. I had a d&c the following day (minimal scraping) with hysterscope to get a better view of the uterine scar tissue shown on HSG. My uterus looks great (only good news we've received! So I'll take it).

So here we are. Loss #5 this year but this one actually had a heartbeat. My doctor believes it's genetic or poor egg quality from this cycle. So we are going over some options for next cycle we can TTC. If someone would have every told me I would have had 8 pregnancy losses I wouldn't have believed someone could be that unlucky. But here I am.

 

[ginny83]

Thinking of you today hope xx

 

[dan-o]

Sending Today hope xxx

 

[dan-o]

Hi LPF and ourlucky, sorry to read about your painful losses. I can't help as I'm not far along enough with investigations myself (despite losing 9!) but I didn't want to read and run. Lots of ladies here are very experinced with all the tests etc and I'm sure somene will be able to help xx

Ourlucky I am also 37 and thinking egg quality is one of my major factors xx

 

[petitpas]

to you, Hope

 

[dan-o]

LPF if it's of any use, my FSH was over 9 on cd3 when I was 32. I've managed two successful pregnancies since then. Both clomid but then so are half of my mc's, so I have no idea if it improves my egg qual or not!
I'm not having my FSH tested again now, at 37 I really don't want to know how bad it is lol!

 

[Squig34]

Hope, I hope you got through Friday ok - I didn't get to post here but was thinking of you. I take it your new avatar is your wee Isaac? He looks perfect.

Sorry LPF, can't help.

Welcome Ourlucky, sorry to hear of your losses.