Recurrent Miscarriage Thread

[Hope39]

Squig yes that's my little little man xx

 

[LPF]

LPF if it's of any use, my FSH was over 9 on cd3 when I was 32. I've managed two successful pregnancies since then. Both clomid but then so are half of my mc's, so I have no idea if it improves my egg qual or not!
I'm not having my FSH tested again now, at 37 I really don't want to know how bad it is lol!

That's really good to know, thank you. Is that the reason they've given you for your MCs? Sorry for your losses but thank you x

 

[NorthStar]

Hi all

LPF the evidence on COQ10 is a long way from medically convincing, it is based on a study ran on a control group of mice, it's effects have been studied in humans.

Probably won't do you any harm, but it's not by any means a proven method for improving egg quality so I wouldn't hold up TTC for a COQ10 dosage issue

AFM I should hear back from the RPL testing next week, already been told to expect no answers Need to decide if I play Russian roulette one last time or turn to science

 

[loeylo]

Hope your little man is gorgeous!

 

[Hope39]

Hope your little man is gorgeous!

I know

Xx

 

[mowat]

Beautiful photo Hope!

 

[dan-o]

LPF if it's of any use, my FSH was over 9 on cd3 when I was 32. I've managed two successful pregnancies since then. Both clomid but then so are half of my mc's, so I have no idea if it improves my egg qual or not!
I'm not having my FSH tested again now, at 37 I really don't want to know how bad it is lol!

That's really good to know, thank you. Is that the reason they've given you for your MCs? Sorry for your losses but thank you x

No answers as to why (waiting on blood panels for clotting etc but not suspected) but the last one we lost was genetically tested and turned out to be a girl with a chromosome defect. I suspect so were most, if not all, of the others. Makes me think egg quality in my case.

 

[LeeC]

Hey all

Dropping in to see how everyone is. I'm struggling with anxiety at the moment, made an appt with the doc who has given me a short course of Diazepam, declined the long term anti-depressants as I sort of know how my anxiety cycles work now, although this episode has come from nowhere. I'm a bit disappointed as I thought I was on top of it all now, maybe its the impending due dates or the hassle I've had from the in laws lately that's just catching up with me.

Either way I'm gutted to be back here again and just really needing to vent a little.

I have a due date on Friday and and a few more coming up later in the year. We are still on a TTC break as we try and sort out some of our issues, just because I'm a little crazy with all this I will be starting to track on FF again this cycle though.

How is everyone, I really should read back but my concentration span is shot atthe moment.

Where is everyone upto, I'm so out of touch.

oh and hello to everyone I don't know on here yet too xxx.

 

[loeylo]

I had my testing for rpl today. It went fairly well, she just asked the usual expected questions about family history, including heart attacks, strokes and dvts, miscarriages, stillborns and premature babies, on both my side and my partners side.

She doesn't consider my family history alarming - despite my aunt dying of a heart attack in her 50s, my papa having a heart attack in his 50s, and my mums cousin having a stroke in her 20s. She also doesn't consider my mum having multiple miscarriages or my aunt miscarrying to be worrisome as they both went on to have healthy children. I guess this is all reassuring!

She then went on to ask in detail about each pregnancy. She feels that my first pregnancy could be a miscarriage or ectopic, based on my notes - I didn't actually know it was diagnosed as a pregnancy of unknown location! She is therefore going to treat it as a miscarriage.

My second miscarriage was clear cut, she said she suspects it was chromosomal but can't be sure.

My third was definitely ectopic, she suggested I may have been further than 5+2 for something to have been picked up in the tube by ultrasound, but agreed that she thinks that I actually miscarried a tubal pregnancy rather than it being the methotrexate which brought my levels back down.

She then went on to tell me that she will test me for clotting disorders, but even after 3 losses only 15% of women test positive, and she has only had a handful of positives in women with two losses. Despite needing two positives 12 weeks apart for a confirmed diagnosis, she is happy to prescribe heparin and aspirin after 1.

My risk of miscarriage next time is apparently not raised above 1\4, however I have a 1/8-1/12 chance of another ectopic, and she suspects it will take me slightly longer to conceive than it has done in the past. If I do have a clotting disorder I have a 8/10 chance of miscarrying without treatment, but with treatment it comes back down to 1/4.

She was absolutely lovely but I do feel that they are not really doing much, I know she is doing everything available here but she told me they won't look at progesterone, uterine abnormalities, chromosomes, or nk cells.

If I have another loss they may do chromosome testing on me and oh, and the baby if it is possible, but they won't test my chromosomes after two miscarriages, even although I had an ectopic. It is so frustrating that treatment plans vary so much!

I should have my results in 2-4 weeks and can ttc again as of the end of November. Does this mean I can start having unprotected sex as of the end of November, or ttc the next cycle? Any ideas? I'm a bit confused and I forgot to ask.

Anyway, apologies for the long post but I had to get it all down so I don't forget, and also to see if anyone had any input.

 

[Tasha]

Lee I am so sorry your anxiety is high and that you're having such a tough time. Please message me for support hun.

Loeylo, it's so frustrating to have to wait for tests and possibly have more loses.

AFM I'm on cycle day seven. I've been feeling pretty abandoned by Dr Shehata and team. I was meant to have an appointment in July with them, it got cancelled because he couldn't make it. They said they would arrange one for soon after. I've tried, unsuccessfully, to contact them for another one. So I've contacted my old professor again (he was the one who got me out of first tri with Riley Rae and also did my biopsy etc), any way he has emailed back sad that I'm sti having loses and has cc in professor quenby, she is away until next week but they will let me know if there's anything they can do to help me. My gut says there won't be, so this is probably the end of the road for me.

 

[dan-o]

Tasha I'm so so sorry hun. Are there any other RMC specialists in other countries you could get a treatment plan from? I was reading a lady's story about CHI and recurrent mc the other day, has someone excluded that condition for you? Xxx

Sending massive xx

 

[dan-o]

LeeC I'm so sorry you are having anxiety hun, I hope it settles down with the diazepam to break the cycle short term for you xx

 

[Tasha]

It's okay dan-o. I've thought for a long time that we won't bring another baby home now, and whilst some days that makes me very sad, most days I've accepted it.

I don't think anything would give me a stronger care plan now.

I've just looked up CHI and rpl, I'd not heard of it before but my placentas were taken with Honey and Riley Rae when they went for their post-mortems so I do t think that could be our issue x

 

[Hope39]

Lee- I hope things get better for you soon,'you've been through so much lately

Tasha - I don't understand how they not getting back to you, I get through first time, never have left a message

Afm, I can't remember when I last updated....

Not too much has been happening, I questioned a few missing things from my med notes, my questioning resulted in the hospital wanting to visit me at home so I've had a visit from an SoM (supervisor of midwifes) and the bereavement midwife. Both very nice, never once corrected me on any of my lines of thought,I.e I said my scan showed my placenta was failing and Isaac should have been shortly after, not an hour later. Obviously they didn't say they agreed with me but they didn't say it meant something else . They did say, I was Asking all the right questions when I meet with the obstetrician next week

A few things they said made me think they know there some major balls ups along the way. They said I wouldn't have got taken to theatre until they were sure I was stable.... Hmmm, considering they only checked me once upon arrival there was no monitoring going on and I told them

They took on board that I said they should have a clock visible, not one behind. If I could have seen a clock I would have kicked off a bit more, I had no idea how long I had been there

What else... Ambulance complaint has been made and it's raised as a serious incident so i got to wait 45 days for a response

All 8 individual hospital complaints will be sent Monday, took me all day to write it and it's 7 pages long, lol

That's about it really... Off to see mr shehata on 21st nov

Also thinking about starting all the pills again, vit d etc as it has to be 3 months before ttc, still not sure when that will be , hopefully jan

Xx

 

[cutieq]

so sad to see so many pages in this thread, but I'm thankful for the support. I'm a few days out from passing my 3rd chemical. I've never made it to 5 weeks.

I start with a new doctor on the 21st for new tests and I'm praying it's something they can figure out. My previous doctor shunned progesterone testing and told me there's no direct correlation, but bnb has taught me otherwise.

We're NTNP this cycle until I can get some results from the doctor. Secretly praying it's progesterone related. They've checked everything else, even my uterine lining and can't find anything wrong.

 

[garfie]

Hello Ladies

Been stalking you all but not had a lot to say - although I do find a lot of your advice very helpful

Well I recently got my BFP only for it to be snatched away again - 7 m/cs now

My question is wise ladies my cycle was only 18 days (HCG 7) when I found out - I ovulated according to FF on day 8 (maybe to early?) - so although I didn't start bleeding until day 23 (today) is there anything I could maybe take that will lengthen my cycles (maybe this will help maybe it won't)???? maybe it's my age 43?? maybe it's the dnc/mc from the past????

One good thing to come out of this last m/c was me and hubby sat down and really talked - I don't mean shouted/grunted but we really talked and some of what he said surprised me - the upshot of it is that we are going to keep on trying until Christmas 2015 and then we are done!!!!

So I still have a while I cannot go to specialist - as I was taken off their books (hubby refused a sa) I've had basic NHS tests - all clear

Any ideas?



X

 

[petitpas]

Hello Garfie!

I don't see why you cannot see a specialist without an sa? My hubby never had to provide one and I've been to a couple of clinics. With seven losses under your belt I think you really do need medical help.
Have you been to see your local recurrent miscarriage clinic rather than a fertility specialist? Do you have the funds to go private?
I'm afraid I can't really advise on the early ovulation. I've ovulated between days 11 and 18 and my losses were due to an immune issue, not egg quality. Maybe you could look into Clomid (via GP/specialist) or soy (over the counter) to improve things?
Good luck!

 

[Hope39]

Hello Garfie!

I don't see why you cannot see a specialist without an sa? My hubby never had to provide one and I've been to a couple of clinics. With seven losses under your belt I think you really do need medical help.
Have you been to see your local recurrent miscarriage clinic rather than a fertility specialist? Do you have the funds to go private?
I'm afraid I can't really advise on the early ovulation. I've ovulated between days 11 and 18 and my losses were due to an immune issue, not egg quality. Maybe you could look into Clomid (via GP/specialist) or soy (over the counter) to improve things?
Good luck!

My OH has never done a SA either hun

Could you not ask your gp to refer you to Mr S, my gp did mine xx

 

[Tasha]

I'm so sorry Garfie

My hubby never had a SA either, maybe ask your GP for a referral else where x

 

[kelly1973]

that's why I never went to the fertility specialist as doctor said oh had to do this and he wasn't going to he refused