Recurrent Miscarriage Thread

[dairymomma]

Blu-interesting. I've never heard that but it may help explain some of my issues. If the ring test (and my instincts) are to be trusted, the majority of my losses have been boys. Something more for me to think about I guess.

AFM-going out of my mind with baby brain. Most of the ladies I hang out with in real life are from my religious community and we're experiencing a baby boom atm. Every time I turn around, I see a new baby or a burgeoning belly. FB is filled with baby news too so I'm still avoiding it. I just feel so down because not only am I slowly turned green-eyed with jealousy, I can't even THINK about ttc for the next few months. I have to be honest and admit that the biggest hurdle for me right now is the fact that we can't have sex. I'm DYING to be intimate and we can't. I'm so frustrated (in more ways than one iykwim) and jealous and hurt and just tired of it all...Why can't it be easier for us?

 

[Blu10]

Oh dairymomma i dont know hunni, its so crappy isnt it. Ive got lots of pregnant friends and some relatives too and am always being asked isnt it time for another now?!?😠 im trying my best.

 

[Panda18]

Hello, I'm new to all this. .. someone recommended this site to me and I can see why now. I have a beautiful nearly 4 year old DS, smooth problem free first pregancy, c section birth x Three days ago I suffered my third miscarriage in a year, I was just over twelve weeks and had just had my scan the week before and all was fine! Its been an emotional few days and can honestly say I'm feeling quite lost atm! I'll be referred to the specialist for tests..although not sure what to expect! I guess its a waiting game now! Thanks for posting this thread xx

 

[garfie]

Panda - Hugs there are a lot of knowledgable ladies on here who are also very kind and welcoming.

So sorry you find yourself here



X

 

[Tasha]

panda. I'm so sorry for your loses. The specialist will just run some blood tests and you'll get those results about six weeks later. What happens next will depend on if you get a reason or not. If there is one then they'll figure out a plan for you, if not then it will probably more tests like looking at your womb etc.

I will say that my loses started after a c-section and i was treated for a blood disorder I knew I had when that treatment didn't work we began to look at other areas, it was then discovered I have elevated natural killer cells. I believe (but cant prove, but given that I had four babies carried to 36+ weeks at that point (one was a stillbirth) and that since the section the section I've had many many miscarriages and another stillbirth I think my instincts are probably right) that it triggered an autoimmune thing that raised my natural killer cells.

That's not to say this has happened to you just sharing my experience and to say even if the first lot of blood tests come back as nothing wrong doesn't mean that it's the end of the road

 

[Panda18]

Thanks for your replies, and for the welcome, its nice to know theres a place to go at times like this. I'm so sorry to hear what you've been through Tasha.. I can't even imagine Xxxx

 

[dairymomma]

Panda-I second what Tasha has said. You'll like get some blood tests done to check on a few things and the dr will decide where to go from there once the results are in. Hopefully you'll find there's something easy to work with and you'll have your rainbow baby sooner rather than later.

As for my story, I had 3 losses before being diagnosed with progesterone deficiency. Supplements helped me get to term with my son and later my daughters. However, with my DD1, I had some issues delivering the placenta and since her birth, I've had more and more trouble sustaining a pregnancy. The current thought is that I've moved into a hyperfertility state and eggs that normally wouldn't have fertilized because something isn't right are doing so. I also have had implantation issues and my naturopath is thinking I may have the starts of endometriosis and if so, I fully believe it was triggered by DD1s birth.

 

[Panda18]

Hi Dairymomma,
I'm so sorry to hear what you've been and continue to go through! Its such a tough road, I'll have to google Endometriosis xx Thank you, I really hope they can find whats wrong. After my first loss my period started to change and they got heavier after the second, they only last about two days but i spend most of that running to the bathroom....even through the night! Has anyone else experienced this?

Feel like we're stuck in limbo for a while now...and surrounded by baby news, two annoucements on FB yesterday. . One being the Royal baby here in the UK. I do feel happy for them all as its always lovely news, and who knows what stuggles they may have faced..but it does give me a pang of pain esp within a few days of losing ours...I guess that's only natural though. I really hope this winding road straightens out for us all. Thanks for listening

 

[eabwhab]

Hello Ladies,

just stopping by to say hello! I do not post much, but I always read this thread.

NDH, best wisshes. I hope this bean is a sticky one. Are you doing anything different this time?

Nickle, sorry about your losses. I hope you are hanging in there.

2kids, I am so sorry for what you are going though. It must be really hard.

Blu, I agree witht he others, definitely push for testing. I did not and had my 3rd MC

DairyM, so sorry for how you are feeling. Sadly too many of us know what you are talking about I hope you are hanging in there.

Panda sorry about your losses. I had a lot of tests done by different doctors. They all have different opinions too. I was found to be deficient in proteins S and also have lower than normal protein S activity. This might cause clotting. My fiancee and I were also tested for DQalpha matching and we have partial match. That can trigger elevated NK activity. I was also found positive for a one antiphospolid antibody, but I am not sure that qualifies me for APS. The immunologist though felt strong about taking heparin for this last one. I hope you find some answers.

Sorry if I missed anybody.

Ladies, for those of you who were diagnosed with elevated NK activity, did you get tested only once your HCG level was back to non-pregnant level?
And for those of you diagnosed with APS, did you repeat the test 2-3 times every 6-8 weeks?

Hugs to everybody!

 

[Tasha]

I have elevated natural killer cells and yes needed to not be pregnant for six weeks. Was told that APS I would need two positives six weeks apart,

 

[Kvalli]

Hello.. I'm new here. So sorry to read about everyone's losses.

I've had three missed miscarriages - the first at 9 weeks, the second at 8 weeks, and the hardest, the latest, at 13.2 weeks. The baby was absolutely fine on the first scan (at 8 weeks), but the scan after 12 weeks revealed a cystic hygroma. When I went in for a repeat scan at 13 weeks, there was no heartbeat. I'm 43 years old - so I don't know what the chances are of having a baby now (I don't have any children.) I've got tested for APLA - which was negative, and was on progesterone and aspirin during the last pregnancy. I will try again, of course, but I miss this baby I've been having a weepy day today - not able to get much done.

 

[dairymomma]

Kvalli-welcome and sorry for your losses. None of us would wish to be here but here is where we are, right? I'm not sure what APLA testing is but have you had any other recurrent miscarriage testing done? As for age, yes it may factor in a little bit but I know plenty of women who have had babies in their 40s. One lady was due about a week before me when I was expecting LO and she delivered a healthy baby girl just 2.5 weeks after her 49th birthday. She didn't have IVF or any medical treatments to get pregnant either. Completely natural conception. (So natural she was shocked to find out she was expecting when she thought she was entering menopause...) So there is hope. There is almost always hope.

And weepy days are normal. I had my latest m/c a month and a half ago now and not only was it my 10th loss overall but it was naturally conceived twins to boot. 6 weeks past, and I'm still having wobbles about it. It doesn't get any easier to deal with the emotional aspect of a loss no matter how many I've had. My story is 10 losses (11 angels) that have been mostly unexplained, negative tests, and despite the odds, 3 amazing miraculous rainbow children in the last 7.5 years. It's hard but there are many women who have graduated from this thread when their rainbows have been born.

Whereabouts are you? I'm in the US and not every doctor approaches miscarriage, especially recurrent miscarriage, the same way. In the UK there are more options for testing and treatment as well as specialized doctors so if you are there, I know a few ladies who can point you in the right direction. If you are in the US though, I'd first ask who you are currently seeing as a doctor and if it's not a fertility specialist, then ask to be referred to one or at least an OB/GYN who deals with higher risk pregnancies as they would be more qualified than the average doctor to help figure out what's the next step here. If you haven't already had them done too, have some recurrent miscarriage testing done. This usually includes thyroid function, clotting disorder testing, and possibly some genetic testing too depending on the doctor. Hope this helps.

And again, I'm so sorry for your loss. Miscarriage is never easy and the more you have, it feels like the harder it is to process. Hang in there though.

 

[sportysgirl]

Hey ladies, I hope everyone is getting on ok.
Does anyone know anything about Balanced reciprocal translocation?

Thanks

 

[Hope39]

Sporty there use to be a couple of ladies on this thread years ago that had balanced translocations

One of them has had a little girl and boy and the other who always thought she would never be able to carry a boy, had a little boy two years ago x

That's all I can tell you I'm afraid , I don't know too much about them personally x

 

[dairymomma]

Sorry, I don't know much about it either. Are you thinking of going for testing or have you been tested and found out you have one?

 

[Kika7]

Hi, I was wondering if dr Braverman and Dr beer clinics are the only places that'll test and treat high NK cells. I'm in RI, USA and need to find a doctor who'd know what to do about me in terms of re-testing, intralipids, IVIG and steroids when pregnant. I was tested for NK cells before I moved to the USA and so far I haven't been able to find a obgyn who'd treat me. I even saw a specialist in Boston IVF but they said they didn't believe in high NK cells <--> recurrent miscarriage and so I was sent home to keep trying...

Anyone?

 

[dairymomma]

Your best bet is probably to just keep trying different drs. You might find one who may not believe in NK cells but is willing to at least give you access to the treatments. I know my dr is open to new things and has let me choose the path of testing/treatment I feel is best for me even if it's not what he is used to. (For example, if I want to try steroids, he'd willingly prescribe them to me.) But unfortunately, most drs in the US don't think there is a connection or believe in NK cells at all as you've found out and it's unlikely to change much any time soon. Good luck though and I hope you find a dr who is willing to listen.

 

[Camichelle]

Hi ladies, may I join you? (Wish it was under better circumstances) I'm sorry for all of your losses. Ive been on some other threads and was recommended to this one. I have one amazing 4 year old ds. My first pregnancy and other than delivering him via section because he was breech, it was a smooth pregnancy. Started trying for #2 3 years ago and have had 6 early losses. &#128546;
Have had tons of testing (all normal) before finally getting referred to a re. I was just diagnosed with mthfr gene mutation and mild pcos. I'm actually so relieved to finally have some answers!!! I meet with doc Wednesday to go over options. Any of you ladies have any experience with this? If so, what kinds of medications were you prescribed. I've gone Google crazy trying to read up on it but there's a lot of conflicting info.

Praying my next bfp will be a sticky one.

I'm going to try to read back a little more on this thread because I'm sure there's a lot of info!

Hoping everyone on this thread gets their rainbow very soon!!!

 

[dairymomma]

Welcome! I too wish it were in different circumstances but it is what it is, right? Anyway, I can't help much with your particular issues as my rmc diagnosis is currently 'unknown'. My story is 10 m/c (11 angels-my last m/c was twins) with 3 miracle babies in between. I was initially diagnosed with low progesterone levels and supplementing got me to term with my son and two daughters but my last two pgs, my progesterone levels were higher than they've ever been yet I still lost them so we're looking at hyperfertility (I'm catching bad eggs so to speak that normally wouldn't have fertilized) and there's probably something wrong with my left ovary because I've yet to carry a known left sided ovulation pregnancy to term since they typically are blighted ovums.

For the MTHFR gene mutation, I believe depending on what kind of mutation it is you may need a blood thinner during at least part of your pregnancy but I'm not all that informed on it so maybe someone else can help?

 

[Tasha]

Hi Cami, pretty sure you know my history (three babies with me, two stillbirths, 16 miscarriages and now 32+2). I have mthfr (also factor v Leiden, elevated natural killer cells so please don't think it's an indication of what will happen to you). For the mthfr it will depend on one or two mutations, if just the one then you need high dose folate, insist on it not being folic acid we can't process it and aspirin (baby), if two then you may be told you need blood thinning injections. For the pcos I think that will depend on your Dr but since you've had so many loses I would say push push for the metaformin even if it is 'just' mild.