The steroid junkies' perfectly unscientific medical trial

[petitpas]

Amber, I have endo, too. There is a claim that women with endo are more likely to have nkcell issues.

I am on vitamin D and pregnacare plus, which adds omega 3 to the usual previt selection. This is on doctor's orders.
I also take extra folic acid. Just in case.

Sorry, I can't comment on vit c and zinc. Fili, you're more knowledgeable on the supplements, if I remember correctly. Can you help?

 

[lexi374]

My friend has endo and is now 13 weeks, no meds

 

[filipenko32]

Hmmm I'm not sure about the zinc or vit c. I know theyre good for fertility, vit c is an antioxidant and zinc... Hmmm I will have a think!

 

[Amber3]

Gosh, Thank you so much guys for giving me a bit of hope. So Petitpas, you were on all this when you conceived, as well as the prednisolon?
How much D vit do you take? (I have only ever conceived in the summer months so I thought maybe D-vit plays a role here too)
Amber

 

[filipenko32]

Amber yes to the pip question, she was. And re vit d I take 1000 of whatever unit it comes in x x

 

[Amber3]

Thank you guys.
Gosh. I just wish that this steroid stuff will finally make a difference for me and help me conceive.
...
I can´t imagine it actually. Well in any case I will start taking at least 1000 IU D3 every day from now on since it can't hurt.

All the best wishes,
Amber

 

[tansey]

I've decided to take progesterone and steroids from 7DPO this cycle. My IUI was canx again but I did the trigger and we had anyway.

Take a look at www.fertilitypoints.com and let me know what you think ladies, my DH wrote it. If you think it's any good please tell your friends. It's an info site not a forum like this one. THanks

 

[petitpas]

Amber, I am on the same dose of vitamin D3 as Fili: 1,000iu or 25microgram (not milligram/mg).
I don't know whether you can get Pregnacare Plus with the omega 3 in Austria. I couldn't find it in France and when I looked at their omega 3 pills they had a completely different dosage, which I was not sure was good for pregnancy. You can check the pregnacare dosages online for comparison.
I used the above, along with baby aspirin, every day before conceiving. Steroids I took from ovulation.

I ought to add that I have never had issues conceiving without all the above.

 

[filipenko32]

Pip, I'm enquiring for my friend: are steroids helpful for women who can't actually get pregnant when everything else has been ruled out? I think they are aren't they immunologically wise?

 

[petitpas]

Fili, some IVF clinics use them, especially for those who have failed two or three rounds already. Some fertility clinics use them all the time.
I suppose the steroids would have to be taken from ovulation.
Please don't ask me about evidence or research on the subject as I have no idea but it all falls under Dr Beer's subject field. Maybe recommend his book to your friend so she can have a read?

 

[hopeful23456]

I think if you have super high nk cells, you take before bfp and if your nk cells aren't too high, take at bfp.

 

[petitpas]

Hopeful, here in the UK it depends on the doctor. The Professor lady seems to start everyone at bfp, my Dr S starts at ovulation.

I would think that if someone is struggling to fall pregnant (no bfp rather than rpl) then ovulation might be a better time to start?

Did you have any testing before going on the roids or what did your doc do, hopeful?

 

[hopeful23456]

my blood nk was 11% (the lab test paperwork said that normal is 4% - 25% but 25% seems pretty high to be normal) and i've heard some docs treat with steriods at 12% or higher. my re just had me take them as empirical treatment to rule anything out (with lovenox) and I had also asked to be put on it at the same time (after 4 early m/cs). my re didn't think the 11% blood nk was anything to worry about.

here's an interesting post, but, don't know if it's blood nk or uterine nk they are talking about in the first post? must be about uterine. I didn't get uterine nk tested.

https://www.fertilityzone.co.uk/index.php?page=Thread&threadID=21833

 

[filipenko32]

The doc has given me clomid to jump start my period! So after I ov I am back on the Roids!

 

[leylak]

good luck!

 

[petitpas]

Wowee, fili! I hope it works a treat!

 

[tansey]

Good luck fili!

Girls I'm on day 3 of 20mg steroids and I felt really down today for no particular reason - do you think it is the steroids?

 

[petitpas]

Tansey, I couldn't say. They can mess with your emotions but at the same time this whole process can be harrowing and the odd low days are completely normal

 

[hopeful23456]

Tansey- I don't know if it would be the steroids either, maybe? But like pip said, could be just from going thru so much stuff too. Huge hugs!

 

[beachlover1]

Hi all

Tansey i would say it could well be the roids!! When i went on them, Prof Q said she warns partners that their Wives/GFs will/could be extremely emotional as the roids have that effect!

whether that quick i dont know...but i defo had bad down days and cried when someone stole my cheese and onion hula hoop crisps!!!! LOL

Good luck Filli.....fingers crossed for you. xx

Im now 15+ weeks...and all looking fine at the mo fingers crossed.

Hope all are well xxx