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The steroid junkies' perfectly unscientific medical trial

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Lexi, that is so lucky that your hubby was able to get your script directly from Prof Q!

You're all on track now :D
 
How you doing lexi? Are you joining us on the recurrent mc thread the pal one!? By us I mean them ooops, got to keep reminding myself I'm NOT pregnant! :haha:
 
Thanks i know the 1 you mean i like to stalk it now and then. :haha:

I will def join when i feel a little more confident. :shrug: At the mo just dont really feel like this could be the 1... i think cos everything was so late and i dont have symptoms etc. Last time i knew before i took a test, this time....:wacko:

My gp was still being a pain today about getting the progesterone! Said this treatment is part of a trial and ill have to get it from hospital.... I was about to fly cos quenby said she had agreed to give it to me, but then she said she will give two weeks and refer me to hospital. Why do they have to be so bloody difficult?! :growlmad:

How everybody else doing? :hugs:
 
It looks like I will finally be joining your group.
I went to a fancy IVF clinic (although I am not doing IVF) the other day and the doctor agreed to let me try prednisone. However, he just gave me a prescription for 5 mg a day. That is too low right, so I plan to go to my new gyno and hopefully persuade him to up my dose a bit;)
So I guess I will be starting 100 mg of Aspirin and Prednisone on my next cycle day one.
Your list of people with succes here has given me hope. I really hope something will finally happen! :happydance:
Best wishes to all of you
Amber
 
Good luck Amber! Let me know if you have any questions. How many miscarriages have you had? Sorry you're going through this too :hugs:
 
Hi Amber! I'm glad you were finally able to discuss this with a doctor :thumbup:

I'm not sure about the dose of prednisone compared to prednisolone. I wonder whether it is the same as prednisolone (which is what I had - 25mg daily)?

I noticed that you plan on starting prednisone on cd1. Do you know why this is?
Most us UK girlies start from ovulation or bfp, depending on which doctor we follow. I think the idea is to minimise the use of steroids in the months we don't fall pregnant. I have no idea whether it is good or bad to start on cd1, just noticed that there is a difference so do you know why?

You've also reminded me to update the front page with another success! Go Lamburai!
 
Thanks Pip! I'm in the process of reducing my steroids now (down to 20mg now) and have my last intralipids on Friday!
 
For your warm welcome.

Filipenko, I have had 1 ectopic and 3 biochemical. I have been ttc for almost 5 years and have a bit of endometriosis.

Petitpas, I heard that the doses are the same for prednisone and prednisolone, they are just absorbed differently by the body. I honestly don't know why he prescribed such a low dose and why from day 1. It seems he did not know so much about this stuff but because he did not have a better idea he let me try it. I think I will take matters into my own hands and up the dose from ovulation to 10 mg.
Congratulations Lamburai and Petitpas on your pregnancies. Wow- you must be so relieved to be so far Petitpas.:cloud9:
Best wishes to you all,
Amber
 
I'll be more relieved when he comes out kicking and screaming, Amber :rofl:
But to be honest, once I passed my critical week (week 8 when most of my babies died) I felt much more relaxed.

Maybe you could suggest that your doctor get in touch with Professor Quenby? I hear that she is very good at responding to emails. As far as I know, her protocol is 20mg from bfp. Lawa had her baby under her supervision and she is the lady running the trial here in the UK.
 
Hi and welcome Amber, im with Prof Q 20 mg from bfp, just started them this week!

Congratulation Lamb ive seen you around, im really pleased for you! :hugs:
 
Amber another consultant *sigh* I saw the other day was harping on about lower doses being much more effective. This was not dr s and no one I know is on such a low dose. But there you go anyway! Personally I'm following dr s's plan on the higher dose.
 
Lambs- isn't it nice to be weaning off steroids? My last dose is on mon, a mere 2.5 mg prednisone

Amber- I did 20mg at bfp, do they have you increase the dose at bfp?

Fili- go with the higher dose i think too...

Pip- I'm so glad you started this forum!
 
I always thought the 2 pred spelling differences were just typos!!!
 
Hi there Hopeful,
Gosh you must be so happy to expect twins, gongratulations! Actually my doctor did not mention what happens in case of a pregnancy. He did not really seem to know so much about this stuff. I on the other hand also made it clear to him that I hardly ever get pregnant which is also a reason why I will be taking it before a positive test because I hope it can help with implantation as well.

Filipenko, who is Dr. S?

Had any of you pregnant girls tried to conceive for a long time before you were put on steroids and conceived or am I the only long-term-trying-to-conceive person here?
Amber
 
Ive been trying for number 1 for nearly 4 years, took 2 years to get pregnant the 1st time after coming off depo! :hugs:
 
Hi amber, when trying naturally, first time was 11 yrs ago, unplanned.

it took about 3 months each time trying to get preg naturally (preg twice) but I did iui's and got preg each time (3 iuis in 3.5 months resulting in 1 mc at 5 wks, 1 really early chemical- I don't count it as hcg tested only up to 5 which is borderline, and my I got my bfp now) I do ovu normally and have cycles like clockwork. 27 day cycles. Did iui and injectibles to control everything as they didn't know why I had mcs.
 
Tansey,
Gosh I know how you feel. It is really a long time to wait.


Lexi and now you are pregnant because of the prednisone?

Amber
 
No i only started the prednisolone when i got a bfp.

I did try progesterone 7 dpo this cycle though....

Other things i started in the last month or so were changing vits to pregnacare plus, also taking omega 3, vitamin d3, so not sure what worked. :shrug: :hugs:
 
Hi everyone :wave!

Amber, I hope it helps to get you pregnant :kiss:

Hopeful, so exciting that you finished the steroids! I remember being so glad to finish the treatment (although I am forever grateful that it worked) and so happy the next day NOT to have to take that pill :happydance: It was like a whole new era started for ducky.
 
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