The steroid junkies' perfectly unscientific medical trial

[leylak]

hi jackie,
I don't know about intralipids but can I ask you what specific thyroid problems do you have? I have hashimoto's.

 

[jackie132]

The docs have never said...just that I have hypothyroidism! X

 

[Amber3]

A question for those of you with thyroid problems;

I had 4 blood tests done over some months. One showed a tsh over 3, one 2,6, one 2,1 and one 1,8

With 5 years of infertility and a few biochemical pregnancies would you say that these numbers are so high that I should try and talk to an endocrinologist about getting medication (in order to help conception).
I hope you can give me an advise,
Amber

 

[Amber3]

Dear Jackie,
On yahoo there is a group for reproductive immunolgy and a lot of women who goes to the best specialists there are. They know a lot in there about everything to do with immunology intralipid etc
Amber

 

[Tasha]

I think they like them to be below 2 otherwise it will affect conception hun, or so I have read. I think at your stage, anything is worth a shot as it may just be the answer

 

[filipenko32]

Amber mine were very similar to yours and I get pregnant within 2 months of trying each time. For my last pregnancy tho the doc put me on 50 mmg of thyroxine because he is a mc specialist and as Tasha said they want it under 2. Never affected my chances of conception previous to that tho.

 

[Amber3]

Thanx guys...

 

[Bumpblues82]

Hi I have an under active thyroid and have been on thyroxine for just over a year and in that time still miscarried 3 times with my thyroid levels being perfect for preg the best option is to get ur gp to refer you o a specialist I'm lucky here I have a specialist who deals with obstetrics and endocrinology, I actually believed that was my answer to the miscarraiges but I was wrong at it's worst my levels were 11.7 my doc told me the ideal level for your thyroid is between 2 and 4 when preg and below 10 normally x

 

[Bumpblues82]

Question- how long did it take u after ur biopsies to conceive?? Xx

 

[lexi374]

4 months, then that was a chemical, next month no luck, then month after this pregnancy.

 

[Bumpblues82]

hi girls i have a huge favour to ask of u all!!
i contacted my local radio station regarding the trouble i have had having a baby and the tests that i have found that may help alot of women and how they should be more readily available on the nhs... anyway they got back to me and are going to make a story out of it and it would be great if you coula all go on my fb page about it and like the page and comment.. ty xxxx
heres the link
https://www.facebook.com/TESTSNK

 

[Hope39]

Hi Bump

I've liked your facebook page Hun but can I make a little suggestion....

B&B girls will find the link from this thread but If someone was on facebook searching for recurrent miscarriages they wouldn't find it as you have spelt recurrent wrong

I don't want to be picky but I agree people need to be made aware o this testing

Xx

 

[petitpas]

Bump, I like your page (just can't like it formally from my phone - will do so when I get on the laptop next). Did you know that Mr Shehata tests for nkcells on the NHS?

In my opinion it's actually not so much the tests that need to be available (as they are still somewhat controversial - uterine biopsy vs blood test) but the steroid treatment.
I love that you are raising awareness! I have my steroid baby and I hope many other women get theirs, too!

 

[Bumpblues82]

He will only do it with a referral :/ and my gp said that I'd need a out of area referral team to decide if I'd be allowed and he said they are notorious for saying no any way thanks for ur like I got my test results back today..

My team and I have studied your endometrium very thoroughly.
*
We have found that the following changes have occurred: your glands have developed normally, your stromal cells appear to be developing normally, blood vessels are appearing normally and the epithelial surface looks normal. These changes mean that ovulation occurred, as did the post ovulation rise in oestrogen and progesterone and that these hormones had the desired effect on your endometrium.
*
Your NK count was 3.8% of your stromal cells. *
The upper limit of normal is 5%.
*
This result was normal
*

 

[jackie132]

My thyroid levels tsh always well below 1...currently 0.1 which is super low. My t4 is 19 which is top end average but I'm 6 months pregnant and specialists have said they want t4 at this top end of normal.

I've been told tsh should be below 2 to prevent antithyriod antibodies. I can't say if these cause my miscarriages as I've covered all aspects empirically to try to keep this baby sticky.

X

 

[Bumpblues82]

ok just thought id share the joy

 

[leylak]

congrats!

 

[Bumpblues82]

thanks
i got my results from nk tests ns all is normal my level was 3.8% so she is putting me on prgesterone and im gonna ne scanned at 6 weeks and every 2 weeks after that xx

 

[petitpas]

Ooh, congrats! I hope the progesterone does the trick and this is your sticky one!

 

[Bumpblues82]

better pic