The steroid junkies' perfectly unscientific medical trial

[filipenko32]

Yes that's true, he may alter the dose next time or know something now that he didn't before, you'll definitely get there and soon! When I mc, one thing that makes me 'feel better' is that it was sooner rather than later and you can make room for the one that's going to be successful. I know it's a very personal thing and everyone copes with mc's differently but maybe that helps a little because it really helps me. Still it's just not fair that you should have to go through all of this to eventually get your baby but it will happen for you. x

 

[Lawa]

Lambs I am so sorry hun

 

[filipenko32]

Did anyone ever get severe headaches from the steroids? I felt like my head was about to fall off for about 8 hours in total last night? Also really bad indigestion? I'm only on 10mg a day.

 

[Doodar]

I have bad indigestion, heartburn, excess wind, bloating! I'm on such a concoction of meds though that I can't really pinpoint it to the steroids. Only thing I can pinpoint to steroids is the face flushing when I first started taking them.

Lambs I just want you to know I am thinking of you! It's just so bloody unfair!

 

[Lawa]

I had no issues with the steriods at all no side affects! Apart from no symptoms at all!

 

[beachlover1]

Indigestion is a big side effect....they should I've given you a proton pump inhibitor to prevent acid being made, that you take at the same time!! Ask for it if they didn't give you it.

Headaches, no not that one. But at 6 weeks into my medication I now have a fatter face

I have my biopsy for the killer cells this week.....not sure how accurate it'll be whilst I'm on steroids!!

 

[petitpas]

beachlover, you'd hope that whilst on the steroids your nkcells would be low, right? What's the reason they are testing while on the meds? To see if you need a higher dose?

Filipenko, I had the worst headaches when I came off the steroids (8 days at 25mg, then cold turkey)...

 

[Lawa]

Yes Beachlover Your NK cells will hopefully now be non!

 

[beachlover1]

Yeah I asked why she was testing while I was on the steroids, basically she will be able to tell if they were high in the first place depending on what they are with treatment! Not sure how that works but I'll try any treatment I'm guessig if they are normal now then they would have been high before. I kinda hope she just says let's keep on them each month but we shall see

 

[padbrat]

Friday is steriods day.... been to the gym in order to try and combat the weight gain.... gawn I am gonna look awful by the time I get to Cyprus!

 

[filipenko32]

Hi all,

Just an update which might add a little hope to this thread. I know I was not taking steroids from then beginning but just a reminder that when my doctor saw a slow heartrate he prescribed 10mg prednisolone / day. Just been for a scan and the heartbeat has gone straight up to 145 and the baby is now 7.5mm which is now in range for my dates. Quite a turn around. Not out of the woods yet though... Hope that's helpful. I'll keep you posted x x

 

[beachlover1]

hang in there little one...thats great news ;-) sounds really positive. what happened to you is exactly what happens to me each time....good HB at one scan then a few days later a slow HB!! this gives me lots of hope! thanks x

 

[filipenko32]

hang in there little one...thats great news ;-) sounds really positive. what happened to you is exactly what happens to me each time....good HB at one scan then a few days later a slow HB!! this gives me lots of hope! thanks x

Thanks! i'm glad it gives you hope, i'll let you know if it starts to fluctuate, for the moment it just seems to have zoomed - from 100 - 145 in 4/5 days?? It's like it's on steroids!! But i'll watch out for the fluctuation. x

 

[petitpas]

Wow, that's an incredible turnaround! Well done little filipenko bean

I have a new symptom to add. Apart from getting an even flabbier belly my bbs have become super soft and flabby. Not their usual preggo fullness. I actually, for the first time in years, think I need to go DOWN a bra size!
Now, I could be worried that it is the pregnancy and it is not progressing, but the tests that I took progressed nicely. I think I have to chalk it up to the steroids. I have no other explanation and it is a HUGE difference to my normal pregnant body shape

 

[filipenko32]

Wow, that's an incredible turnaround! Well done little filipenko bean

I have a new symptom to add. Apart from getting an even flabbier belly my bbs have become super soft and flabby. Not their usual preggo fullness. I actually, for the first time in years, think I need to go DOWN a bra size!
Now, I could be worried that it is the pregnancy and it is not progressing, but the tests that I took progressed nicely. I think I have to chalk it up to the steroids. I have no other explanation and it is a HUGE difference to my normal pregnant body shape

Thanks! Just to let you know that I have noticed that my boobs have actually become misshapen with odd puffy indentations and i've never had that before, I also think they're smaller and this is since taking the steroids - my bra was a tight squeeze anyway so might just fit now!!! x

 

[Lawa]

I wouldnt have known I was pregnant on the steriods! I was constantly worried as I had not one symptom at all x

 

[beachlover1]

Thanks! Just to let you know that I have noticed that my boobs have actually become misshapen with odd puffy indentations and i've never had that before, I also think they're smaller and this is since taking the steroids - my bra was a tight squeeze anyway so might just fit now!!! x

right, im glad its not just me then....im not pregnant in all fairness, but YES this puffiness and indentations, its like my belly, boobs and even arms just got a weird cellulite i reckon its water retention from steroids

 

[filipenko32]

Yes it's like celluite and it has recently appeared x

 

[beachlover1]

WELL I HAD MY UTERINE BIOPSY....OUCH!!!!!!!! sorry caps lock!! yep it hurt! but all is done, she is going to have a l;ook at the sample and see if the steroids have hammered the liniing, it looked quite a bloody chunk, and she thinks steroids may have killed it too much!! I may go into a progesterone trial instead. She is doing two trials, steroids and progesterone.

I will know in 4 - 5 weeks, she wont put me on steroids if thats the route we choose...until I get a BFP. I her trials accross the country, so far the steroids have HINDERED people getting preggers, and screwed up cycles, so she waits til the BFP arrives, then you start at 4 weeks preg.

If i go into a trial at least ill be handheld for early scans etc!!
WE shall see in a few week.....its all about the endometrium apparently ;-)

Mine was only 7mm, which is pretty thin, if i was an IVF person it would be the thinnesst they would like....anyone know how to thicken it up naturally??


Anyway, i have the go ahead to TTC now!!!!! as for the grapefruit sized cysts, it looks like they shrank...but she pooo pooed them anyway and said they will come n go!!

 

[beachlover1]

Yes it's like celluite and it has recently appeared x

glad im not the only one!! my tummy has gone gross

....all fluid me thinks!!