TTC and endometriosis :(

[Coolstar]

Thanks a lot INMT. The RE advised me against lap. It is all very confusing for me. She did told me if I go for IVF I should take lupron shots for 3 months before starting. I was not sure what it is used for although I read that you cannot get PG while taking lupron. Did your endo shrink after taking zoladex ?
Yes she did told me if I go for lap the next 6 months I have more chance of conceiving but if I don't within that time I have a high chance of endo coming back.

Endo and infertility is so depressing

 

[itsnowmyturn]

I'm still on the zoladex last shot in September wears off in October but iv Bern completely pain free since starting it in April n for me that's an amazing result because the pain has be hugging the toilet seat thinking I'm going to be sick, its very much described as end labour pains n I always feel the intense bearing down feelin, I go all clammy n sweaty n literally cannot hold a convo because the pain is too much I end up in tears n feeling like my uterus has gone 10 rounds with mike Tyson, which leads me to believe I also have adenomyosis which is endo inside ur uterus wall n makes it cramp up which can lead to difficulties in carrying to term as ur uterus gets to a point where its so damaged that when getting to a point in pregnancy it cannot stretch anymore and u miscarry or go into vet early labour. But there is no way of diagnosing this until u have a hysterectomy.

My endo came straight bk infact neither laps helped in the slightest n my pain came right in time. I don't no what I can do after the zoladex because after all these years its clear no surgery or pills help my pain which got me to a point where I was like I just cannot take this pain anymore, I was living my life waitin for the next lot to come which is why I feel so much that the zoladex has given me my life bk.

Endo takes so many things away from u n it nearly got me to a point where I was like ok let's get having kids done and I then want a hysterectomy n I'm only 24, my life revolved around it.

The lap isn't bad, I had two weeks off work but the pain really subsided after a few days its just sore, its one if them things that's worth a shot, I never recovered after my second tho and developed fibromyalgia which also flared up joint hypermobililty syndrome so my second was prob a mistake but I don't regret trying I wud have developed these other things in time anyway.

I hope u get things sorted soon, I sympathize with u so much xx

 

[Coolstar]

INMT , I just wish we all get pregnant soon. We all deserve happiness after all the pain we have endured .

 

[itsnowmyturn]

Absolutely. Has ur Dr mentioned anything about increasing progesterone levels because then obviously oestrogen is lower n it might shrink the endo, I'm not really sure whether it possible when TTC as I haven't looked into it but if I was in ur situation, I wud try any simple remedies first I.e. pills n herbal stuff, anything suggested really, then consider surgery then last resort IVF. I can't even imagine how u feel I wud feel very lost and very angry but I'm not in that situation (yet). I do no a lot of ppl who have got pregnant when they decided to stop trying. There is a lovely thread in the pregnancy club about ppl who thought they wud never get pregnant.

One thing I will say is a lap will tell u how severe the endo is, that can also give u an indication of what might help, again not looked into it but I no ppl who had very severe endo with organs stuck to each other n the surgeon did their best but cudnt free some bits which meant it wud only be possible ic baby was planted in uterus instead of meeting sperm then goin into uterus. It killed her but she always said that she was glad she found out because she cud deal with it better and it took some strain off her relationship.

 

[Coolstar]

My doc did told me that ladies with endo do tend to have high level of estrogen. They are related somehow. I did try pills like vitex and all but it did not help me
My doc also told me I might have failed IVF cycle. Since those who have endo have poor quality of egg . My family has a history of early menopause around 44 and I am 31+ , I am scared that I will hit menopause soon.
It is like everyday I pray to God for a miracle. Sometime I feel angry that others are getting PG without even trying....... here I am trying so long and hard. but slowly I have started accepting the facts of life. I know some ladies in bnb who have tried far more long then I have. I do pray for everyone and I am keeping Fxed for you that you don't travel down the path we are in.

 

[itsnowmyturn]

Bless u. Il keep my fingers crossed for u, sounds like u have a knowledgeable doctor
I wish u every luck

 

[Coolstar]

I would be going to one more RE and then take the final call. Thank you so much. It feels nice to connect with ladies who really understands my situation.

 

[Goldfish]

Pbl - oh dear! Did you end up starting the injections yet?

Itsnowmyturn - I've been on zoladex too! I was on a single 3-month depot though (it's not as well researched as the 1-month depot like the one you're on), so I had effects for 9 long months after my lap. I used to have pain as well, but I haven't had pain like that since my lap so I really sympathise with you!! We started TTC immediately after I got AF back after the zoladex, but that was because we were planning to start TTC around the time my pain started anyway (yep, talk about timing!). Unfortunately since I haven't had any luck with TTC, my suggestion to you would be to see someone if no luck after 6 months. At least if there's any other issues you will get help sooner rather than later.

Can you ask your dr about other things apart from zoladex? My friend had painful endo when she was young and got put on an implant, she said that helped?

Coolstar - I've read that some doctors put women on lupron just before IVF as it's like the downregulation step of the long IVF protocol. It might be to help calm the endo down a bit.

 

[itsnowmyturn]

I'm TTC after my zoladex is done so don't want anything hormonal, I'm dreading coming off it because my pain is goin to come straight back I no it is, it makes u live in fear it really messes with ur life.
I'm hoping that with where my endo is it will not affect my fertility. But yeah will be going for help if not pregnant by march provided af comes bk straight away. How long did it take urs after ur injection wore off??

 

[Goldfish]

my zoladex was a 3-month dose but it lasted for 9 months! I found it awful mainly because the last 6 months I got really anxious waiting for my cycle to come back so we could start TTC properly! also didn't enjoy the 9 months of hot flushes! I've read that the dose you're on is way more reliable so hopefully your cycle will come back much sooner (like within 1-2 months).

 

[pbl_ge]

Hi ladies!

You've totally lost me on all the meds. I've always been anti-meds ... but now I say bring them on! I was just on some BCP, so I hope I get some benefit from that.

I've been doing injectables since the 2nd, and they lowered my dose from 150 to 75, so I guess I'm responding okay. Another endo woman here got her bfp with the same meds, so I'm very hopeful!

Big hugs to everyone.

 

[itsnowmyturn]

Eugh the hot sweats suck but I'm glad that's all I get it cud be much worse. I think I will try to be as relaxed as I can about cycle although I have my last injection 13th Sept n wears off 11th October n I really want to start straight away but obviously no harm in practicing lol

 

[bebeh]

Hi,

I have been trying to conceive for 5 months. I had a lap in 2009 and diagnosed with endo. Dr put me on the pill.

Anyway, I went for a routine check and they couldnt find my ovary or uterus on ultrasound so had HSG and one ovary was present. Obviously I had 2 in 2009.

I am extremely worried as I have been given no advice. Drs don't seem to care or know what they are doing.

Has anyone heard of anything like this before?

Any tips?

 

[pbl_ge]

Sorry, Bebeh. This is a total guess, but do your doctors want you to try longer before they intervene? Five months is really not that long to TTC, although I know it feels like a long time.

You obviously have the full set of equipment, but it sounds like a bad ultrasound technician. Could you get a second opinion?

Hope your sticky bfp comes soon.

 

[itsnowmyturn]

Is it possible ur other ovary is stuck down with adhesions?
I wud ask them for another lap if ur still struggling in a few months. Are ur cycles regular or do u only ovulate every other month? Every other month I wud go bk to person who did lap n ask if they saw two ovaries in there or only one

 

[Coolstar]

Hi,

I have been trying to conceive for 5 months. I had a lap in 2009 and diagnosed with endo. Dr put me on the pill.

Anyway, I went for a routine check and they couldnt find my ovary or uterus on ultrasound so had HSG and one ovary was present. Obviously I had 2 in 2009.

I am extremely worried as I have been given no advice. Drs don't seem to care or know what they are doing.

Has anyone heard of anything like this before?

Any tips?

Oh I am so sorry , Endo has a tendency to return so it might be that it came back after lap and effected your ovaries. I am sure it is still there if it was there when you had your 1st lap. Its better to ask your 2009 doc about it or better take your old reports to your new doc and ask him/her what your next step should be. Also ladies do conceive with 1 ovary so don't feel disappointed.
I know what you mean by Drs don't seem to care or know what they are doing.. I personally feel that they don't have much understanding about endo yet

 

[Coolstar]

Hi ladies!

You've totally lost me on all the meds. I've always been anti-meds ... but now I say bring them on! I was just on some BCP, so I hope I get some benefit from that.

I've been doing injectables since the 2nd, and they lowered my dose from 150 to 75, so I guess I'm responding okay. Another endo woman here got her bfp with the same meds, so I'm very hopeful!

Big hugs to everyone.

FXed for you , it brings smile to my face when endo ladies get BFP

 

[Coolstar]

Pbl - oh dear! Did you end up starting the injections yet?

Itsnowmyturn - I've been on zoladex too! I was on a single 3-month depot though (it's not as well researched as the 1-month depot like the one you're on), so I had effects for 9 long months after my lap. I used to have pain as well, but I haven't had pain like that since my lap so I really sympathise with you!! We started TTC immediately after I got AF back after the zoladex, but that was because we were planning to start TTC around the time my pain started anyway (yep, talk about timing!). Unfortunately since I haven't had any luck with TTC, my suggestion to you would be to see someone if no luck after 6 months. At least if there's any other issues you will get help sooner rather than later.

Can you ask your dr about other things apart from zoladex? My friend had painful endo when she was young and got put on an implant, she said that helped?

Coolstar - I've read that some doctors put women on lupron just before IVF as it's like the downregulation step of the long IVF protocol. It might be to help calm the endo down a bit.

Gold if you don't mind me asking , was your IVF long or short protocol. And on what basis do they decide which to follow (long/short) any idea.

 

[Goldfish]

Gold if you don't mind me asking , was your IVF long or short protocol. And on what basis do they decide which to follow (long/short) any idea.

Coolstar - I was on long protocol (downreg on buserelin and stim on Gonal-F). I was told that long protocol allows for better control of eggs growing at similar rate and has similar success to short protocol. I plan on doing IVF #2 at a different clinic to the first one and they recommended long protocol as well (due to my endo, as they want to dampen it a bit first).

 

[pbl_ge]

Ladies:

Spoiler

I overresponded. I have about 15 follies that are > 10 mm. Another 30 or so in the 9-10 range. I was given two options: cancel the cycle or convert to IVF.

If I do cancel, then these stim drugs are not an option for me, unless it's an IVF cycle.

I have to decide how I want to proceed by tomorrow at the latest, as they have to start me on meds to prevent early ovulation.

I am not even a little bit emotionally prepared for IVF.