I definitely hear myself in you too. It makes me sad as I know how awful it is and hate to think there is someone else out there struggling at the beginning of this rather terrifying journey called motherhood.
Your son will walk, of course - then hopefully you'll be able to let CP 'go'. Unfortunately, though, if you are a naturally anxious person like me you will probably always find something to be worried about. It's so frustrating!
Your neuro's analysis sounds great. She's coming at it both as a professional with (presumably) plenty of experience AND as someone who isn't personally attached to, or anxious about, your son. So while you might see his funny hand movement and think
OH MY GOD, MY BABY, WHY IS HE DOING THIS??? WHAT DOES IT MEAN???? she is able to rationalise it into 'Yes, he's doing something a little unusual sometimes, but as a whole he manipulates objects well, uses both hands equally (unlike Meep's daughter who still turned out to be totally typical!) and with ease, and therefore this little movement is irrelevant'.
I think you have to trust her! Easier said than done though, I know.
West syndrome and the grim prognosis associated with it is truly awful - it's no wonder we have both been scared. At about 3/4 months, my second daughter had a really weird episode where she was lying on her back and she suddenly did a massive, prolonged startle/Moro thing with a grimace on her face, then burst into screams. I was terrified. That was when I found out what infantile spasms were and over the next few weeks I became convinced that every tiny twitch or jerk was a spasm and ended up (like you) paying for a private paed to have a look at her. She got a clean bill of health, but it obviously didn't stop me worrying, as she then started up the shaking thing she did, which I thought was spasms as well!
Yes, you're right - he would make little or no progress with his hand without intervention from PT, OT, etc. There was a mum on here a few years ago whose son had a stroke when he was a few weeks old and he had hemi. He was mild and did very well with his gross motor skills - I believe he walked earlier than a lot of 'typical' babies. He also had a lot of remaining function in his hemi hand compared to many other children with the condition, but he still needed a lot of therapy and a thumb splint and so on. I did reach out to this mum when I was worried about my daughter and she told me her son, despite being on the mild end, would have struggled to even get his hemi thumb into his mouth, to cross that hand over his body, to pick up larger objects and smaller ones well, etc.
Honestly, I think you'd know.
It makes perfect sense - he's your son. You want him to be healthy and have a good life where everything goes well for him, and so you're afraid to let your vigilance slip in case you miss something that you could have prevented or helped with. Forgive me if I am wrong here - I can only make assumptions based on how I felt ... and I certainly still feel like this to some degree, though my early worries have dissipated (and been replaced with new ones - it's all part of my habitual thought process!).
I've been anxious all my life and have had a few different types of therapy - CBT, EFT, life coaching, etc. but I believe my anxiety is so deeply rooted now I am an adult that I will always have it, and nothing really helps that much. All I can do is try to rationalise my thoughts and manage my reactions as far as I can. I've never known anxiety so intense as that which I feel about my children - but I've found as I get older (and so do they) that it stings less and that an 'episode' is neither as all-consuming nor as long-lasting as it would have been when they were really little. I'm not sure why this is, but I think it might be something to do with the fact that literally nothing (apart from their tongue ties) I have worried about has ever come to anything or been proven to be real. The fact that I am a highly anxious person doesn't make it any more likely that they will have anything wrong with them.
It's me, not them.
And thanks - I do try my best, but as I always say, everything you say, do or decide as a parent comes with a big fat packet of guilt - so if there ever was anything wrong, I'd automatically find the reason why it was my fault.