2 failed hearing tests=mild-moderate hearing loss

Ps is it worth going to a shop where they have a fabric/sewing department and see if they can suggest any type of tape? The audiologist did say they get easier to fit as they grow, if that's of any comfort!
 
Thanks, HB--I actually used a longer strip of tape today, and that worked fairly well. (I ran the tape the entire length of the hearing aid today, instead of the small piece the audiologist suggested.) He got a little sweaty playing this afternoon, and it came off, but stuck right back on without having to change the tape.

That's interesting about the different type of tube--I will have to ask about that! Thank you! : )
 
Well, our 5 year old was going through the screenings for kindergarten in the fall, and he can't pass the hearing test. He's fully functional, does well in pre-school, etc. So, obviously whatever loss he has would be more toward the mild end of the spectrum. But, we have a follow up appointment at the same hospital where the baby got his hearing aids. We will see the extent, and see if he has to have intervention. I'm really expecting them to say he will need hearing aids, at least during the school day. He's developmentally right on track right now, but he could really start to struggle next year in a noisy classroom if we don't get him the right help. I'm very thankful we have ways to identify and intervene. But, it does make me sad that this is probably something he's going to deal with the rest of his life. The baby will never know anything different. But I'm worried the 5 year old might have a hard time adjusting if he needs something. He's such a sweet, smart kid, and I just want him to do well and be successful. It is what it is! I know God sees the big picture, and will work everything out. But it is nerve-wracking being a mom lol.
 
SoBlessed - I hope your 5 year old passes with flying colors at the hospital! If not, it's another thing for the brothers to bond over as they get older. Good luck, mama :hugs:

DD has an appointment with Vanderbilt Children's on Thursday for a CT scan and a softband BAHA eval. The CT scan requires oral sedation (she has to be completely still to see the tiny little things they're looking for in the inner ear), so I'm a mess over that! At least my Mom was able to take the day off from work to go with me so I have support. Just wish my husband could have been home for it!

Good luck to you other mamas going through the different processes with hearing/aids as well. I'm almost two years in, and love my little one to pieces! Even when she doesn't properly hear me go at her. :haha:
 
Thank you, Kitteh : ) I really feel in my gut he's not going to pass. But you made me smile with the point about it being something for them to bond over. : ) I love that. It's a hard thing to deal with--who wouldn't want a brother who understood?

I hope your BAHA eval goes well!! I would be a mess over sedation, too. It's so routine that we know everything will be fine. But it's scary when it's your baby. Big hugs!!!!!!
 
Exactly! He'll be able to stand watch over his little brother if needed - always easier when your older sibling is on your side! :haha:

It is such a mess, I don't know how parents deal with more serious issues! At least it's just an oral dose since she was full term with no other health issues, so I'm hoping it's like Benadryl or something where you just drift off. The eval is after the CT, so maybe the "nap" will mean she's in a good mood! (I can dream)

If he's already doing well in school, they might just monitor him and let him do his thing, like they did with DD for the first year and a half. Hopefully there's ways of improving hearing in school without aids/etc! :hugs:
 
For sure, Kitteh--it would be terrifying to see your baby go through general anesthesia and a surgery! I'm sure whatever they give her is very much like you described. I hope you both have an easy time of it. : )

My little guy is doing very well in school right now--but it is only a part time pre-school. His class only has 8 kids, so he gets lots of 1-1 time. I think the worry is how he will adjust to being in a noisy classroom full of 20 other 5 year olds lol! I'm sure he will do fine, with or without the aids--the important thing is that IF there is an issue, it is being identified now and not halfway through the school year as he's struggling.

I really appreciate your support--it makes me feel so much better to see someone with a little one who is successful with these issues. I feel like you're kind of my light at the end of the tunnel. : )
 
I am deaf in my left ear and only have 80% in my right ear...I had meningitis at 3 weeks old and it's always been presumed that the meningitis caused my hearing loss until I had my daughter who is deaf in her right ear! They wanted to put her to sleep and investigate which I was completely against. I didn't care weather it was hereditary or not, our hearing loss cannot be helped with hearing aids or gromits. I had my son in Feb 14 and he has no hearing loss what so ever!
 
Jonesy, I feel the same way about the genetic testing. We have talked about it, and aren't 100% sure, but the way I look at it is the loss is there--why does the why matter? The only benefit would be to know if it was degenerative or not, and I'm not really sure I even want to know that. I'm an enormous worrier, and if I knew it was degenerative, I'm afraid I would be WAY too obsessed with a timeline.
 
Judging by my own hearing loss it's not a worry I would have with my daughter. I'm not really sure how I would feel either! I agree completely about the whys etc x
 
Just a quick update--our 5 year old DID get hearing aids, and he absolutely LOVES them. He immediately took to them, and now it is as simple as putting on a pair of glasses. We put them in first thing in the morning, and take them out last thing at night. The difference it makes for him is HUGE. (Plus, there is a Marvel character called The Blue Ear who wears hearing aids, so of course he thinks that is awesome.) ; )

The baby is also doing very well with his. He still tries to eat them lol, but we are down to one or two times a day as opposed to fifteen times a day. A few months ago, this all seemed like such a looming, ominous thing, and now I honestly hardly think about it. I'm so thankful we have such amazing technology today!!! I hope you're all doing well, and that your LO's are also. : )
 
SoBlessedMama - that's lovely to hear that your littles ones are doing great.

Update from my side - my 5 month old wears her aids daily and is making vowel sounds and a few consonants too. Which is great as she is on a par with hearing children

Recently had a MRI which showed enlarged vestibular aqueducts. Trying to get my head round this. Means her hearing loss could get worse which as she is already severe is worrying. But her doctor was very reassuring and said the future for deaf children is much brighter as technology is so advanced. So we have mixed feelings. Will be glad when all the initial tests are over and we know what we are dealing with.

Still she is beautiful, noisy and full of it and we are blessed in lots of ways
 
HB, that is great your little girl is doing so well! : )

I'm sorry about the MRI results, and I understand the worry about degeneration. I can't even make up my mind if I want to know or not. We have a clinic event at the boys' hospital in a couple of weeks, and we will meet with several specialists. We will have the option of having their blood drawn to see if the cause is genetic (I assume it is) and see if their losses are likely to be progressive.

At this point, they're doing so well that we have basically decided to take it as it comes. And like you said, HB, technology is so amazing right now, even if their losses ARE progressive, who knows what advancements will be made in the next several years?

Your attitude is wonderful and spot on--we are blessed in many ways. : )
 
I was thinking of this thread, and just thought I'd pop on--I hope you ladies and your LOs are all doing well! I'd love to hear updates! : )
 

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