So good morning everyone! Sorry it's taken me a couple of days to get back to you all and thankyou so much for all the good thoughts and wishes.
Great to see some bump pics girls!! I'm loving how cute these pics are getting!!
So our epic trip to see the fetomaternal cardiac geneticist (who knew such a subspeciality existed??) went like this... We left Wednesday lunchtime, drove 6 hours to get there, went for an amazing Thai meal which I was sooo excited about but it was weirdly tense waiting to see this guy the next day and worrying about what he would say. On the Thursday we got ourselves to the unit and the got called through... to sit down with a first year resident. I will be honest I was a little gutted after hearing such great things about the place and the team not to see the actual doctor we had been referred to. I shouldn't have worried, she was basically the warm up act! Our appt was nearly 2 1/2 hours with the full team who had reviewed our daughters autopsy report, all of my prenatal bloods from last time, all of our family history and done a full literature search to go through with us.
They were able to tell us our daughter had definitely died suddenly and dramatically from an incredibly rare heart condition which they don't know why it happens, there are no risk factors, it's not genetic, it can just happen. They don't think there is any risk in a subsequent pregnancy because it's not something which tends to happen again. They were extremely reassuring and basically said, look whatever you guys need to stay sane through this pregnacy we will make it work. So we decided that our son who is 3, and me should have an echo (DH had one last year and it's fine) and then this baby will get fetal echos from 22 weeks onwards. But basically that's for our reassurance.
So, I'm not gonna lie it was, as this entire process has been, surreal to sit and wade through autopsy reports and case review studies, BUT I don't think we could have had a better outcome. We cannot change what has already gone before but it would certainly be nice not to happen again!
And then we got back in the car and drove 6 hours home again for the second time in 24 hours while I sat and contemplated my risks of dvt....
Gosh that was an essay but I know loads of you wanted to know, so you might as well get the full story! Thanks for the support and keeping me sane!!