Anatomy scan anomaly support

[Letsgo]

Hi!
I know many of us have had potential negative news at scans, so this thread isn't meant to be specific to one diagnosis but a place for any who want to share concerns as we go through the rest of pregnancy together. Please share as much as you are comfortable with here.

My story: It's been a long time since anyone posted here about the potential diagnosis I received, so I don't expect anyone to have heard of it. Last week we had a level 2 US at 18 weeks. All looked good, except for a tiny measurement in baby's brain. There are spaces for cerebrospinal fluid in the head, called ventricles. Baby's ventricles were measuring 11.2 and 10.4 mm. Anything above 10 mm is considered mild ventriculomegaly.

Could be nothing, could correct, could be baby will have a big head. Also could be terrible in that they keep growing, resulting in various degrees of developmental disability and in worse case baby won't make it. How's that for a range?

We have another scan set for end of April to check sizing. The percentages are in our favor that this means nothing. It is just heart wrenching to balance as we were prepared to share our news beyond our closest family. I'm trying to make plans so my worry doesn't overshadows my toddler's birthday. I feel more balanced now that I've had a few days away from work to think more deeply.

Hoping for healthy pregnancies and babies for us all.

 

[Meditteranean]

Praying that everything is ok with baby on your next scan I too am waiting on news of my own from testing we had and should know the results next week.

 

[Letsgo]

Thank you! Waiting is the worst. I hope your results provide reassurance and comfort. Yesterday's scan was a big relief. Although we didn't get exact numbers, the tech and Doctor reassured us that this issue with the brain had resolved. Now it is the heart we get to worry about....that's new. But we didn't have a crowd of support people come in to talk with us about that like we did last time, no genetic counselor to meet with and lots of extra people to provide support, so it seems pretty minor and is more related to they couldn't get the correct angle to see all blood flow, but we know it's flowing. Fascinating and annoying to live in a time of information overload.

 

[xanzaba]

Hi Letsgo- If my math is correct, you should be expecting any time now- congrats!

I'm sorry that you had to deal with these worries, and glad the brain ventricles normalized. I had my 20 week scan today and the tech measured the baby's ventricles at 10.6. The doctor looked at the scan and felt that the ventricles were not oversized, so he measured again. His measurements were 8.6 and 9.1, and said that it was likely the tech didn't measure at the right angle. We have to follow up in 2 weeks time and then go from there.

If you don't mind me asking, is everything going okay with the baby? Do they continue to measure the ventricles? I was crushed at the appointment this morning.

 

[lmarie7]

Hi 👋
I had my first scan and the lady scanning me told me that she was worried as there was fluid on the baby’s brain and it didn’t look as what she expected it to I burst out crying and didn’t know how to take it, 2 weeks later I went for another scan this time with a consultant to be told everything is looking just as it should? When I first found out I was pregnant with this one I also came across a lump had a biopsy and again everything was ok, there was someone testing me but also had an angel looking after me! I can hopefully now relax and enjoy the rest of my pregnancy, hope everything goes all well with you 😊