Any Cerebral Palsy parents out there :)

[essie0828]

Oh and yes mam I'm still getting my butt kicked by MS. Nausea everyday but not throwing up much thankfully. Most evenings it hits like a ton of bricks and I struggle through the night time routine. Getting supper cooked, cleaned up and DD in the bath usually wipes me out. I keep lemons and ice pops on hand and that helps. Nibbling lemon slices or eating cold stuff is my only relief.

 

[Foogirl]

Looook what Abby did! (click on the pic for video)

https://i690.photobucket.com/albums/vv268/original_foogirl/th_IMG_3413_zpse4ecf246.jpg

 

[lilesMom]

Aw congrats xxx go Abby

 

[lilesMom]

Essie hope ms has let up a lil xxx

 

[lilesMom]

Nearly there and ava.
If u still read this hugs and xx

 

[essie0828]

Awww, bless her she's standing!!!!! WTG Abby!!!!! Foogirl I bet you are one proud mama.

How's lil Simon doing??

DD is doing pretty good, she's talking and using her signs more but still struggles with motor planning. She will move her mouth a few times before she can actually manage the sounds. Same with her walking. But she's still making progress and I am very thankful. We started kinesiotaping her trunk to provide her with some proprioreceptive feedback about her abdominal muscles. Her tummy is weak and her back is compensating so we are working on sit ups and anything to strengthen her belly. The tape is helping. The first night I could tell she was picking her legs up higher and she was playing with her feet a lot. She usually has trouble getting her feet up close to her face to play with them. I haven't been feeling well lately and I have a scan tomorrow. Pretty worried as I have had a decrease in pregnancy symptoms and I an expecting to find out I've had another MMC. I'll know for sure in 20hrs. Time is dragging!

 

[Foogirl]

Oh yes indeed! Couldn't be more proud.

Wait....click on it.....its a video.....

 

[essie0828]

I'm having trouble getting it to load but I'm on my stinking phone, grrrr. Just a min........

 

[essie0828]

OMG!!!!!! I got it finally!! That's WONDERFUL, and she's so happy about walking! Love it. Made my day! I showed DH and he got all whimpery. He cried rivers at DDs first steps! But then again so did I.

 

[Foogirl]

She loves to do it!

 

[essie0828]

That's great! Just a little more practice and you will be chasing her. What a beautiful thing!

 

[Foogirl]

we can but hope!

 

[essie0828]

DD is very similar in her walking. Almost exactly the same gait but she prefers to walk on her knees. So keeping her up and motivated is tough.

Btw, Abby is sooo freaking adorable! Love love love those curls and big smile.

 

[Foogirl]

DD is very similar in her walking. Almost exactly the same gait but she prefers to walk on her knees. So keeping her up and motivated is tough.

Btw, Abby is sooo freaking adorable! Love love love those curls and big smile.

Oh thanks, she definitely has her moments. The curls and the smile come from her daddy. It's only the attitude she gets from me

We do knee walking too. It is great for the balance.

 

[lilesMom]

Awww, bless her she's standing!!!!! WTG Abby!!!!! Foogirl I bet you are one proud mama.

How's lil Simon doing??

DD is doing pretty good, she's talking and using her signs more but still struggles with motor planning. She will move her mouth a few times before she can actually manage the sounds. Same with her walking. But she's still making progress and I am very thankful. We started kinesiotaping her trunk to provide her with some proprioreceptive feedback about her abdominal muscles. Her tummy is weak and her back is compensating so we are working on sit ups and anything to strengthen her belly. The tape is helping. The first night I could tell she was picking her legs up higher and she was playing with her feet a lot. She usually has trouble getting her feet up close to her face to play with them. I haven't been feeling well lately and I have a scan tomorrow. Pretty worried as I have had a decrease in pregnancy symptoms and I an expecting to find out I've had another MMC. I'll know for sure in 20hrs. Time is dragging!

oh no hon,
i hope alls ok, xx
please update us if u can xx
hugs hope its not xxx

glad she is doin well with tape and talking xx
simon has started saying words, he shapes his mouth for um before he will say it too,
thought it was normal for bubs to do that?
kinda shitty day here, another long seizure , he is sleeping off rescue meds beside me as i type .
meds dont seem to be working or agreeing with him
his tummy is in bits ffrom um and he cant eat, also teething mad
no therapy today cos he cant .
feels like lack of progress,
all i can do is cuddle him and keep him comfy as possible.
it sucks,
im so sick of epilepsy,
let alone poor simon .
arggh rant over , kind of
is good to let some out but i wont be rant free till they get a drug that works properly on his epilepsy.
he is coming on really well when he gets a break from seizures,
but he has had them every day for months now again.
oh well,
f all i cna do except wait and hope drugs start working.

relaly hope ur ok hon xxx

 

[essie0828]

Poor lil Simon! It has to be terribly hard to deal with the seizures and the meds for them. Its awesome he's starting to say words!! At his age that's great. DD would have lapses in development when she felt bad but would then do well when she felt better. I really hope they find a medication to control the seizures. Epilepsy is so scary. Rant away mama, life is hard sometimes and you deserve to get it off your chest.

Foogirl that's funny! DD has my temper and bull headedness and her daddys looks as well. If she don't want to do something that's that. I gotta get some videos uploaded to share of her. Its wierd how much she walks like Abby!

In docs office waiting.....and waiting.... he's running late today and this is tough on the nerves. Grrr. Will have news soon enough I suppose. Ill update when I get out.

 

[essie0828]

Good news in the OB office today. Saw a wiggly lil babe in there with a strong heartbeat. Lil thing was moving all over the place. Wish I could feel it but seeing it was good enough.

 

[lilesMom]

hurray I'm griinning. Here for ur great news xx
So happy for u. Xxx congrats

 

[essie0828]

Thanks hun It still hasn't sunk in that we will have 2!

How's lil man doing? Seizures still bad?

 

[lilesMom]

ur making me seriously broody again ha ha
great news xxxx

we ended up in hosp.
we were only in for a night
i had to give him rescue meds twice in a day, he has only had um twice ever before.
i rang hosp and they said bring him up, they admitted him to be safe.
but seemed like a freaky day , he is much better again.
he had very little sleep the nt before so could have been that.
tiredness brings um on.
they often do sleep deprivation for eeg tests to bring on fits on purpose.
i also gave him strawberry again , thinking back on it ,
it could be a food trigger for him cos last time he had it , i thought he was funny too.
no more strawberry until he can talk just in case
had another med increase in hosp, slight but might just do it.
and some blood tests and stuff so he is fine.
im fine too,
delighted to sleep in my bed and not on the floor
he just went nearly 24 hrs without one and even then only had extremly mild one, so maybe its working at last.
appetite is still crappy but not as bad.
might be a bit from teeth as well,
then when he doesnt eat, lack of food to weight down milk drives reflux bananas.
he might be just startin to get used to new med as well.
they do say it has an 'adjustment period'
nice words for screws ur baby up for a bit
he is good today anyway , bit sleepy but good so,
heres hoping

love to all xxx