Anyone doing FET/IVF in Jan 2013 till everyone's BFP (Everyone Welcome)

[Sandy83]

Great news phantom fx'd. Hoping you will be the first of our many to come xx

 

[Phantom710]

It might be a little early to ask, but for those on estrogen already...

Anyone have itchy nipples?

I feel like I'm about to start lactating again. OMG.

 

[time2deal]

Hi Phantom,

Is this your first surrogate? It's an amazing thing to do. We may end up needing a surrogate in the future, and it's pretty unknown here in the UK. It would be really good to know if we could use that option, as it would make decisions about my treatment easier.

If I knew we could 'easily' find a surrogate, then I would be ok with the risks of radiation and/or hysterectomy. But as we can't really know, I have to try and juggle retaining some fertility with ensuring the cancer is treated effectively.

Not really asking anything, just thinking aloud! I'm just very thankful there are some people like you who will do surrogacy, it may be an option I have to think about.

 

[Mells54]

Good luck on Friday Phantom! What you are doing is such a wonderful thing.

 

[alicatt]

Hi Phantom,

Is this your first surrogate? It's an amazing thing to do. We may end up needing a surrogate in the future, and it's pretty unknown here in the UK. It would be really good to know if we could use that option, as it would make decisions about my treatment easier.

If I knew we could 'easily' find a surrogate, then I would be ok with the risks of radiation and/or hysterectomy. But as we can't really know, I have to try and juggle retaining some fertility with ensuring the cancer is treated effectively.

Not really asking anything, just thinking aloud! I'm just very thankful there are some people like you who will do surrogacy, it may be an option I have to think about.

Have you thought about having your surrogate in the US? I know it is far away, but it is possible to use an American surrogate I think. Or maybe there is another European country that makes it easy to have surrogates? I know of a couple from Canada that used a surrogate in Texas (this was years ago, the child is probably 18 now!). Or I have a friend in the Bahamas that is using a surrogate in Florida. Ironically enough I had a conversation with my co-worker Friday about surrogacy. He is from India and mentioned that there has been an up turn in surrogacy in his province in India as well as IVF. He said that even with the costs of airfare and so on, IVF is 1/2 the cost of what it is here. I guess it is an up and coming type of economy there, called medical tourism? So there are lots of options for surrogacy, should you need to go that way, they just may not be as easy as finding a woman down the street!

 

[Mbrink]

Good luck on Friday, Phantom! FX.

I'm feeling a little bummed, ladies. I was supposed to be starting IVF this week but it was cancelled because a lab that I used close to home messed up my test for cystic fibrosis. My DH is a carrier so this was a must before our IVF started. I guess they didn't do the genotype/full analysis and did a different test instead. I'm feeling a little rocked right now. We have been waiting since November to start IVF and were so sure that January was good to go. We found out last Thursday. For those who had to do genetic testing, how long did it take to receive your results? We're not doing the screen, they are analyzing the whole strand of DNA and we were told Quest labs were taking 30-40 days to get them done.

 

[MoBaby]

Hi Mbrink! Sorry for the delay It does take a long time for the genetic testing to come back... I think my DH (he didnt test for CF but for other genetic issues where they analyzed DNA, karyotype, and other things) and it took at least a month. The f/u was 4-6 weeks after they took the samples. For my most recent MC my doctor said the testing would take 30 days to come back and they analyze the whole strand of DNA if they have enough tissue to make a determination on what happened. I hope they get it in soon!! Can you stay on BCP for a little longer until it comes in?

 

[Mbrink]

Hi Mbrink! Sorry for the delay It does take a long time for the genetic testing to come back... I think my DH (he didnt test for CF but for other genetic issues where they analyzed DNA, karyotype, and other things) and it took at least a month. The f/u was 4-6 weeks after they took the samples. For my most recent MC my doctor said the testing would take 30 days to come back and they analyze the whole strand of DNA if they have enough tissue to make a determination on what happened. I hope they get it in soon!! Can you stay on BCP for a little longer until it comes in?

Thanks for replying! Unfortunately I'm doing a lupron flare cycle without BCP's, so basically I'm now just waiting and praying for this test to come back quickly. Very frustrating! They said as soon as they have the results we could start, but I'm trying not to get my hopes up for February although I would be SO grateful.

 

[alicatt]

Good luck on Friday, Phantom! FX.

I'm feeling a little bummed, ladies. I was supposed to be starting IVF this week but it was cancelled because a lab that I used close to home messed up my test for cystic fibrosis. My DH is a carrier so this was a must before our IVF started. I guess they didn't do the genotype/full analysis and did a different test instead. I'm feeling a little rocked right now. We have been waiting since November to start IVF and were so sure that January was good to go. We found out last Thursday. For those who had to do genetic testing, how long did it take to receive your results? We're not doing the screen, they are analyzing the whole strand of DNA and we were told Quest labs were taking 30-40 days to get them done.

Hi Mbrink - I had the CF test done but it didn't take that long. Maybe a week? My lab is quest too, maybe they are doing a more in depth test and it takes longer for that one? I really don't know? With your husband being a carrier it sounds like they need to do a more detailed test on you to make sure you aren't a carrier as well. I hope they are mistaken and it doesn't take that long!

 

[alicatt]

I will add that they are doing chromosomal analysis to make sure I don't have any funky DNA, but this is different than the CF test I believe. My FS said that it only took 2 weeks for the chromosomal analysis, and the clotting and auto-immune testing, oh and the NK testing too. I had my blood drawn on 1/3/2013 and my follow up appointment is on 1/18/2013. Maybe they are being overly optimistic about it? IDK? Maybe I should call on the 17th to make sure they have all the results before I go in on the 18th.

Mbrink - as I said I hope it comes back sooner than 30-40 days, if not I bet mine will be delayed too!

 

[MoBaby]

Mbrink: I did a flare cycle last time and it was great! BUT my Dr had me on BCP... IF I end up doing another full cycle I am going to request NO BCP because my estrogen is too low to start with and I think its affecting egg quality. I really liked the flare protocol though! I did long lupron first 2. I made more eggs with the flare and better quality (50% blast rate). I dont have high FSH or am a poor responder or DOR but we needed a change.

When will you start? when AF comes next now?

 

[Mbrink]

Mbrink: I did a flare cycle last time and it was great! BUT my Dr had me on BCP... IF I end up doing another full cycle I am going to request NO BCP because my estrogen is too low to start with and I think its affecting egg quality. I really liked the flare protocol though! I did long lupron first 2. I made more eggs with the flare and better quality (50% blast rate). I dont have high FSH or am a poor responder or DOR but we needed a change.

When will you start? when AF comes next now?

They are hoping I'll be able to start in February, but thats only if my test for genetic test for cystic fibrosis comes back. They are apparently doing a full test and not just a screen. My CF screen came back okay but they wanted the full panel. I'm little irritated to say the least. They estimated the test being back within 30-40 days and the test was sent off 35 days before my February cycle start date (I'm very regular). So I'm praying for a miracle- otherwise we will be looking at March.

 

[MoBaby]

sooo sorry. the wait stinks, not gonna lie. I was supossed to do my 3rd cycle last july, start in june but I went in for a baseline ultrasound at end of may and my "small" fibroid had grown to over 10cm and I had been having some pain and my saline ultrasound wasnt normal so the dr said I couldnt cycle until surgery...surgery 2 weeks later THEN he tells me I have to wait 3 months to start cycling! I was very irritated because RE said it wasnt an issue then it was.... I can see how you are annoyed.. Hopefully Quest gets their act together and gets it in sooner. Dont they know anxious ladies are waiting??

 

[cali_kt]

Eda- Welcome to the board!!

Phantom- Very exciting!! Good luck with your ER!

Time- Sorry to hear about your cervical cancer diagnosis. As far as infertility, I have very very low AMH. My RE has me on DHEA for egg quality. They sent me a couple articles on the recent success with low AMH & taking DHEA. I take 75mg a day. My DH also has sperm issues. Hoping they improved by our ER (sometime this week or next). Wanted to wish you bunches of luck!

MBrink- Sorry for all the waiting! I can imagine how frustrating this all is for you.

 

[Sandy83]

Mbrink so sorry for the delay issues you have as the other ladies have said its so frustrating dealing with any delays within this whole process. Im keeping my Fx'd that they have over estimated on timescales and will be in sooner for you to start in Feb

Hope all you other ladies are doing well

AFM - Nothing much to update, 3rd injection this morning so at least things are starting to move along now and fx'd everything will go to plan and have ET on 28th Jan. Think I'm preparing myself for a delay of some sort but who knows. Did any of you UK ladies see that programme about IVF on BBC 4 last night, what did you think? xx

 

[everhopeful]

Sandy - I didn't see it! Was it any good?

I'm stalking you all. Nothing to report here. Have an apt on the 21st and hoping to go for my FET in march.

I'm thinking about asking for a uterine biopsy. Anyone had one before? It's really supposed to improve chances of implantation also which is where I have my problems.

Xx

 

[Sandy83]

It was very emotional, think its a good insight for people to see what us Ladies have to go through. I actually missed the end so didn't get to see the outcome. I know i couldn't have done what those women done by letting the cameras in every step during the whole process. xx

 

[Boofle]

Mbrink so sorry about your delay I know only too well how it feels to have set backs. How come u ladies have all these tests - I haven't had any of these tests done!! How do u know ur dh is a carrier for cf?

Sandy I didn't see it either was too busy watching Miranda wish I'd of known it was on though. Routing for you that everything goes to plan - the 28th will be here before you know it

Ever I had the biopsy but that was November and since then my clinic have turned me down twice for treatment. I had researched and also believe chances are improved after but my fs has other ideas

 

[everhopeful]

Will try and see if I can get it on the iplayer.

Thanks xx

 

[Sandy83]

Im sure it will be on Iplayer I'm hoping so then i can watch the end.

Boofle - I think the USA do a lot more in depth test that the UK are you under the NHS or private? xx