Seeing that word come up here really shook me. My best friend just lost her son due to having an "Omphaloceles"..not sure if you know the difference but basically your child just has the organs outside, her was in a sac. From all we learned this whole process, I know this is scary but we HOPED he had gastro vs "o" because we were always told gastro had less complications. So although it's scary, gastro babies under most circumstances do just fine!
Babies with these issues are born small...like 4-5 lbs max and are usually born early. 32 weeks ect....my best friends little boy had SO much wrong and had one of the largest lesions they've ever seen so his outcome was never guartenteed.
Which of the organs are out? How far along are you? Do they know the size of the hole yet?
I'm so sorry you have to go through this. I know it's scary as a mom...have faith your baby will have a rocky start but these babies are strong!!!
I sat and went through the whole 9 months with my best friend so I probably know too much. If I can answer anything else, I'll sure try