blighted ovum diagnosed on Fri

[Tysia]

hello girls...

i've been reading a lot of your stories, and crying because of how much pain you're going through... i am not really able to offer much support to anybody, and thought I wouldn't even be able to write, but I'll try, maybe it'll give me some peace...

i had a missed miscarriage in March 2011...
at 8 weeks i saw a perfect baby and a perfect heartbeat... a bit more than three weeks later there was no heartbeat and the baby was smaller than at that 8 weeks sonogram.... during the time that the baby was already dead i still suffered from horrible morning sickness...


then i got the news from two doctors that i'll never get pregnant again with my FSH of 18.2
this verdict was maybe even more devastating than the miscarriage itself....

then i got pregnant - a miracle, an absolute joy, and so much new hope...
i managed to find a new awesome doctor who was going to monitor me closely, give me progesterone injections, etc.

i went for my first sonogram
there was a sac there, and nothing else
i was exactly 7 weeks pregnant, no possibility at all for wrong dates...
no spotting, all pregnancy symptoms, perfect Hcg, quite good progesterone level - and nothing, no baby...

the doctor, with over 30 years of practice, didn't dare to tell me it was over;
he told me to wait
so i'm waiting
my next sonogram is on December 9th, when i would be 9 weeks pregnant...
my Hcg now is over 60,000, so i don't think i'll miscarry naturally....

this is the worst torture imaginable.. why can't my body just miscarry?
why do I still feel nauseous all the time?

i do not have any hope, i am waiting 'just because' - to be sure i didn't give up too soon, but this waiting while being a grave to my dead baby - it just hurts so much....

i can't really describe what's going on with me
feel so cheated
i don't think there is anything worse than a bligthed ovum missed misarriage...
(well, i know it's a stupid thing to say... i'm sure it can be worse, of course...)

anyway, i just wanted to talk about it to someone
am unable to talk to my family, and they are too scared to talk to me...

 

[Rumpskin]

My word, I am absolutely dumb struck and so so very sorry to hear your story.

Is there any chance that the sonographer has asked you to come back to see if the pregnancy will develop between scans ?

If not, surely this is negligence on the doctors part leaving you without an explanation as to what is going on.

I dont have any words that can make this any easier for you.

Thinking of you.

Be strong x

 

[sapphire1]

I'm so sorry. I'm going through a similar thing. I got my bfp on 31st Oct, and had some bleeding at 6 weeks. I went for a scan at 6+2 which showed a completely empty uterus. I had my hcg levels checked, and although low, they were increasing as they should. I had a scan at 7+4 which showed a small sac measuring 4 weeks and nothing else. I have to have another scan tomorrow, when I'll be 8+4, and TBH I'm fearing the worst. Most people see a heartbeat at 7 weeks, not a tiny empty sac. They haven't mentioned blighted ovum to me, but I know that's the likely diagnosis.

I suppose I just wanted you to know you're not alone. Take care and stay strong. x x

 

[Rumpskin]

I'm so sorry. I'm going through a similar thing. I got my bfp on 31st Oct, and had some bleeding at 6 weeks. I went for a scan at 6+2 which showed a completely empty uterus. I had my hcg levels checked, and although low, they were increasing as they should. I had a scan at 7+4 which showed a small sac measuring 4 weeks and nothing else. I have to have another scan tomorrow, when I'll be 8+4, and TBH I'm fearing the worst. Most people see a heartbeat at 7 weeks, not a tiny empty sac. They haven't mentioned blighted ovum to me, but I know that's the likely diagnosis.

I suppose I just wanted you to know you're not alone. Take care and stay strong. x x

Good luck tomorrow Sapphire xxxx

 

[Tysia]

Thank you so much, Rumpskin and Sapphire....
I didn't know why I wrote, but your answers actually helped a lot.
Thank you!

Sapphire... I am so sorry you're going through the same thing...
I'll be thinking of you tomorrow...
Is there a chance for you that your dates are wrong?

For me, unfortunately, even the sac measured around 7 weeks...
Anyway, I don't even know what else to say...

My doctor also didn't use the words 'bligthed ovum' - i did, i read so much about it, i knew immediately ....

Rumpskin, the ob/gyn that did the sonogram did say that miracles sometimes happen and a baby shows up... but i read about it, and it's either when the dates were off, or the woman has a seriously retroverted uterus.... i also read about 'miracles' when the baby does show up, but much smaller and without the heartbeat... i guess i'd take even that over this horrible blighted ovum diagnosis, i'd give a lot just to see my child for a few seconds...

thanks, girls, for just talking to me... i very much appreciate it...

 

[sapphire1]

I'm pretty certain my dates are right as my DH works away every other week. I've been getting positive hpts for a month, so there's no way I should only have a sac that measures 4 weeks.

I also found stories where a blighted ovum was misdiagnosed, and a baby suddenly appeared at 9 weeks plus. I think it's the waiting that's the hardest part, knowing deep down that there's something wrong.

 

[Rumpskin]

I'm pretty certain my dates are right as my DH works away every other week. I've been getting positive hpts for a month, so there's no way I should only have a sac that measures 4 weeks.

I also found stories where a blighted ovum was misdiagnosed, and a baby suddenly appeared at 9 weeks plus. I think it's the waiting that's the hardest part, knowing deep down that there's something wrong.

There is an amazing website somewhere about misdiagnosis's - absolutely frightening xxx

 

[sapphire1]

I'm pretty certain my dates are right as my DH works away every other week. I've been getting positive hpts for a month, so there's no way I should only have a sac that measures 4 weeks.

I also found stories where a blighted ovum was misdiagnosed, and a baby suddenly appeared at 9 weeks plus. I think it's the waiting that's the hardest part, knowing deep down that there's something wrong.

There is an amazing website somewhere about misdiagnosis's - absolutely frightening xxx

Yeah, that's the one I found. It's scary to think it can happen, I guess that's why a lot of doctors prefer to wait, just to make sure. x x

 

[Rumpskin]

I'm pretty certain my dates are right as my DH works away every other week. I've been getting positive hpts for a month, so there's no way I should only have a sac that measures 4 weeks.

I also found stories where a blighted ovum was misdiagnosed, and a baby suddenly appeared at 9 weeks plus. I think it's the waiting that's the hardest part, knowing deep down that there's something wrong.

There is an amazing website somewhere about misdiagnosis's - absolutely frightening xxx

Yeah, that's the one I found. It's scary to think it can happen, I guess that's why a lot of doctors prefer to wait, just to make sure. x x

I hope and pray for good news for you ladies xxxxx

 

[sapphire1]

Hi Tysia

They're not doing any more hcg tests because they said they could be misleading. They did check my levels when I was 6 weeks preggo, mainly to rule out an ectopic. They rose in line with an early pregnancy, but they were quite low - they went from 200ish to 400ish in 48 hours

I have to go back for another ultrasound next Thursday, I would be 9+4 then. The notes they gave me mention blighted ovum, but the dr didn't want to make a proper diagnosis yet. I think the problem is that the sac is so small that they want to make absolutely sure there is no baby before taking the next step.

I would have opted for a d&c, as it seems to be going on so long without any real signs of good news. I think for a true diagnosis for BO to be made, the following needs to apply; Failure to identify an embryo in a sac that measures 18mm or more by transvaginal US, or no yolk sac present in a sac that measures 13mm or more. Because my sac only measures 7mm, I'm a long way off that.

I haven't had many symptoms, only sore boobs. But apparently with a BO you still get symptoms.

How are you feeling today? x x

 

[Tysia]

Thank you so much, Sapphire... this is very informative...
I think my sac already on that last Friday at 7 weeks was quite big, not sure the exact size, but hopefully by next Friday I'll have a final verdict...

i am feeling quite nauseous all day everyday, that's why I'm even more in a hurry to have the d & c so that life could get back to 'normal' faster....
not even the slightest sign of an approaching miscarriage.... i wish it started naturally... oh well...

it still feels so much easier than my first m/c in March...

 

[sapphire1]

I hope you have your answer soon, I do think waiting is the hardest part. I feel a bit like that, just want to move on. So sorry that you already have an angel baby. If you want to talk I'm happy to listen x x

 

[Tysia]

thanks, Sapphire... it does help to talk, and to hear other people's story...

for me it's so hard to have any hope at all anymore...
this was supposed to be my last chance, a miracle baby, when doctors told me i was out with my high FSH... the doc on Friday told me that indeed high FSH = higher chances of miscarriage... so even if another miracle happen and i get pregnant, most likely i'll miscarry...

i'm 37
my oldest sister is 43 and in January will give birth to her 6th child...
her number #5 is only 1 year and a half old...
this was supposed to be my turn, but i guess it won't be...
it's very painful...

 

[sapphire1]

I'm so sorry. It makes it even harder when people around you are pregnant, and seem to fall pregnant so easily. I hope and pray that you have a healthy baby soon. Miracles do happen sometimes. x x

 

[Tysia]

you know, women who just had a miscarriage are the only people that i can listen to when they talk about miracles ...

when other people talk about it, it's not good...

although i did learn to just ignore lots of people say...
just yesterday i heard a nice comment: 'maybe you were just not ready to be a mom', what a sweet thing to say to someone who lost two babies... but yesterday i didn't even blink when i heard it

so you're in the UK?
shouldn't you be asleep yet?

 

[sapphire1]

I know what you mean. There are a few people telling me to stay positive, but I know that my baby is gone, and it doesn't necessarily help.

People can be so insensitive sometimes, I think they struggle with what to say to someone who's just had a loss. For me, a sorry and a hug is enough. Even my mum changed the subject, to talk about the fact she'd seen Victoria Beckham and her baby

Yep, I'm in the UK. I did go to bed after my last post. Eventually! My husband had to go back to Scotland last night (he works there), at least he was able to come to the scan this time. I had to go alone to the other two.

I hope you are ok today

 

[Mammatotwo]

sapphire1 and Tysia I am so sorry you are going through this. I had a suspected blighted ovum in May. I went to my dr appointment happy at 10 weeks and they did a surprise scan. I was so excited I would get a sneak peak. I kept waiting for here to say her is the heartbeat and nothing. She kept asking me about dates and I was certain. I could not believe it that there is no baby. I then went for a better scan and this person said they could see a baby measuring 6 weeks 1 day and my heart leaped and then she said with NO heartbeat. Then my dr said maybe it was too early and my heart leaped with hope again. I knew though my dates were certain and yet I thought maybe it was possible. I got another HCG and my numbers were dropping. Even then I could not believe. I had a d and c a few days after that, I made them do more scans before though just to be sure.
I fell pregnant 2 months later(very surprised and happy as we do not fall pregnant easily) and then m/c again. We have now been TTC number 3 for nearly 2 years and I feel like my miracle has to be coming soon.
I hope you have a better outcome than me. I know the pain of waiting and hoping and just wanting a answer.
My thoughts are with you and here if you want to chat.
Oh and what a horrible thing to say about not being ready to be a mum. That is terrible. I have been really hurt by what some women do when another has a m/c.

 

[sapphire1]

Mammatotwo, I'm so sorry for your losses. x x

 

[Mummy2Asher]

I had to reply as this only jut happened to me...my post may still be on this page...anyway my dates were 3 weeks out! Finally at nearly 9 weeks and a final scan before a d & c they found a 5.5 week baby! Heartbeat as well so there is hope. There is new guidelines that your sack needs to be bigger then 29mm to be confirmed.

 

[Tysia]

29mm? i wonder how long i'll have to wait for this.... i am getting so tired of all this.... it's been only one week since i found out about the diagnosis, now one more week of waiting for the scan... and i am getting more and more depressed and tired... not looking forward to what comes after the d&c... i don't want to go back to trying, this was absolutely horrible these last few months.... my doctor suggests a really crazy observation of the cycle and i think 8-10 blood draws throught it to be able to help me better, but where do i get any energy for that....

did any of you hear about NaPro technology? some things about their method make me angry, but the observations and monitoring of the cycle seems quite impressive

...
Mommy2Asher: i'm not sure I understand.. so you found out at almost 9 weeks that your baby measures 5.5 and they say it's a viable pregnancy? i guess your dates must have been off?
this is a beautiful story, and i am very happy for you, and wish you and the LO all the best!!!

i know this will not be the case with me, my ovulation date is absolutely certain... so it's over for us, unless we conceived our child without BD, which i don't think is very likely...