CMPI advice

[hayz_baby]

We have just been told it's possible that ds3 has CMPI. We have been told to keep him diary free for 2 weeks in the hope his symptoms improve. If this is the case then we will be referred to a dietician. His symptoms were difficulty passing stools, they were hard and he would be in a lot of pain from it. When he did finally go they were a mustard colour with blood as well.
We are on our first day diary free and tbh finding it difficult. It's an adjustment to say the least. What cana none recommend for meals and snacks. Are there any yoghurts he can have as did love them. As well as biscuits. (Obviously this wasn't all he ate but were favs that he now can't have) we have been given formula substitute which he is refusing right now. Any tips on getting him to take more ( he is fully weaned but has milk before nap and bedtime.) as this is obviously his substitute for the dairy. From what I have seen on here in the past children grow out of this. Generally speaking when do they grow out? (Obviously I'm not expecting for a while)

 

[SucreK]

When we weren't sure if my nursing infant daughter had CMPI, I got hooked on this: https://www.food.com/recipe/moist-banana-bread-dairy-free-98910

I'd think that Vegan meals would be a good go-to for you. And maybe Paleo? My girl wasn't CMPI after all, so I didn't have to keep up with it for too long. (Sorry I can't be of more help in that way!)

 

[Jenny1702]

Our daughter is 2years 8 months and has been completely dairy free since 11 months it had taken since her birth to diagnose cmpi. We were weekly at the GP as she was constantly in what seemed like colic pain excess gas, acid reflux, being really sick from the acid difficulty with stools constipated and pain from gas which all started from around 6 weeks and gradually got worse. She screamed all night every night for 7 months.

We found it so hard at first but it's second nature now. I've found tesco has the best for choice they do everything in soya from milk to cheese spread to yoghurt to hard cheese that look & smell like yoghurt/cheese most dont I've found. Even jaffa cakes my daughter loves them on a Saturday but Asda stock alot more than most too. She also had ice cream over Xmas after only ever being able to have sorbet for so long was a lovely treat for her.

Unfortunately it's just reading every label to start our dietician said and cooking more from scratch which I already did alot before but it's still hard.
Snacks have been hard as there is so much hidden milk in things even some E numbers derive from the milk process. She loved cheese and yoghurt at snack now she has crackers, soya milk/yoghurt and fresh fruit with the odd biscuit or dairy free choc buttons

I make lots of things she couldnt otherwise have like Yorkshire pudding and cupcakes so she doesn't miss out especially at parties & when we have things, there are lots of biscuits without milk added and my daughter has soya growing up drink 1-3 with added vitamins as advised by our dietician depending how old he is that may be worth a try as its much more like ordinary milk

It's been a long road but we were told alot of children will grow out of it by 3 we are now trying the reintroduction using the milk ladder it allows slow introduction of milk starting at smallest amount of baked milk right up to trying fresh milk again thankfully she's been ok with these so far but it's a slow process
Message me anytime about it if you want a chat

 

[Rainbow82]

Alprosoya yoghurts and violife cheese were lifesavers for us. DS has grown out of it now at 20 months thank goodness. To be honest we just replaced his milk with a dairy free one and used it for things like mash with the pure spread. If you can find a spare hour just make a huge batch of homemade biscuits it's a lot cheaper than buying them I'm afraid. Just replace the butter with dairy free spread.

Think I have our dairy free diary somewhere, am happy to give some examples of what he ate per day if you need some ideas?

 

[hayz_baby]

Thanks for all your replies. Yes please to any diary entries you have for ideas.
We went to Asda yesterday and picked up some bits. We found some biscuits that he likes but will probably make some to save money so thank you.
We grabbed some yoghurts but we won't be able to give them to him everyday like we used to (he loved a yoghurt with lunch but the soya ones only come in a 4 pack and much more expensive)
He's still refusing the formula but seems to love soya milk, would you say that's ok to use instead of the formula, he will be 2 at the end of April so it's not like he needs it as much as he did when he was a baby.
Jenny where do you get the soya growing up milk? I never saw any but it's poss I missed it. That might be better for him as it has the extra vitamins.
We're going for wheat breakfasts, the bread doesn't seem to have any milk, I have some diary free butter, no cheese so far.
The boys had lasagna for dinner but we just gave him tomato pasta instead. (Lasagna is a fav in our house and I don't want the older 2 to miss too much so just trying to alter as we go)
We got those yobear fruit snacks as they are just fruit and he likes them.

What do you use in the way of vitamins?

 

[Rainbow82]

I'll look out th diary and post some ideas for you later but vitamins wise we just used the free ones from the HV.
I would have thought soya milk would be fine at almost 2, look for coconut milk and nut milks that don't have the extra sugar added, some of them are fortified with extra vitamins. As soya milk was so cheap I used to use it for cooking for the whole family so we could all eat the same so I'd use it for mash, white sauce for lasagne etc. It gets easier the more you do it, a few supermarket visits and you will soon learn which items have dairy hidden in them and which are safe items too. For yoghurts we used to buy the big tubs and decant into small fromage frais size tubs so he could have done every day, we used to buy the plain flavour and purée soft fruit to go in it to stretch it further. He used to eat things like poached egg on toast for breakfast, sandwich with violife cheese slice or ham for lunch with alpro yoghurt and fruit, carrot sticks and maybe a homemade biscuit, dinner would be usual things like cottage pie, lasagne, pasta, creamy chicken and tarragon (soya milk in white sauce with spoon alpro yoghurt to make creamy) with rice.

What sort of meals was your DS eating before bring dairy free?

 

[Babybump87]

DD2 seems to have a tolerance to cows milk . She is fine with yogurts etc. Just a major issue when giving it as a drink. We have switched her to soya milk which she loves and has been fine. We got Alpro Growing Up Soya milk in ASDA and Tesco its got a giraffe on the front. Also ALDI do a litre bottle of Soya milk for 49p (I think it is). My GP said all these are fine long as they are enriched with vitmins etc. Its usually by the long life milks in stores. I think ALDI might be doing Soya yoghurts too which will probably be much cheaper to try .

I hope you find adjusting easier!. DD2 still cries after DD1s breakfast cereal. Think thats the worst part telling them no to certain foods!!.

Thanks for the food suggestions Rainbow!.

Good luck with your little boy! x

 

[WelshOneEmma]

My son was diagnosed as CMPA at about 7 months (once we got allergy UK involved). I remember going into the shops and just bursting into tears as it was so overwhelming. We then found out he also reacted to soya (very common with CMPA/I kids). I found the CMPA support for weaning group on FB a life saver (still is).

Its hard to start with as its so overwhelming, but you will get there. I double check everything I buy, just in case they have changed the recipe, so that maybe adds 30 mins to a shopping trip.

Tesco is really good for free from stuff. Currently my son reacts to dairy, soya, egg, banana, tomato, kiwi and sulphites whilst my daughter reacts to wheat and gluten. You'll be amazed at what they can have. We split our shops across Tesco (fish fingers, sausages, garlic bread, violife, pasta), Asda (pasta, cereals and df/sf pesto), Sainsbury's (GF bread, snacks etc) and Lidl (fresh fruit and veg), plus we buy our main bread from morrisons or waitrose.

There are also plenty of normal foods that are safe. If you dont have to worry about soya it really opens it up - would you believe oreos are DF?? Tesco bourbon biscuits are fine too!

If you have the time to cook everything from scratch, it is easier to watch what goes in the food, and its pretty easy to make DF alternatives of your usual meal.

DS has his formula prior to nap and bedtime, but other times of the day he just has almond milk on his cereals or to drink. It is doable. I tend to follow vegan recipes where possible and then add meat.

Good luck!!

 

[Jenny1702]

I also get alpro soya growing up drink from the supermarket all the big ones stock it in the uht milk section we also buy the single cartons to take to pre school our dietician advised using this instead of plain soya it has alot more vitamins added and double calories. I use soya for all cooking and dairy free spread. Alot of dairy free products add coconut or can be made from coconut oil we found out our daughter was unable to have this aswell after further sleepless nights we also went wheat free/minimum wheat for a while in case that was the issue.
I used to have large tubs of yoghurt add fruit but now buy tesco own £1.25 for 4 it looks the same as any other yoghurt pot my daughter is now very aware as shes got older that things look different which was never an issue before. But she can also tell you what she's not to have which helps when out etc.
I've always used vitabiotics well baby vitamin liquid it's orange flavour and is just added to milk or juice we get it from boots.

Good luck with your son even though its daunting now you will soon be a pro not needing to look at any labels

 

[hayz_baby]

Feeling confident this is the way we need to go. Ds3 had a poo today that wasn't a solid lump, he did it without screaming and wasn't a mustard colour, more like a light brown so it's making a difference.

It's weird as these symptoms only came up a few months ago.i BF him for 6 months part time for a further 2, had formula till 1 year and moved to milk at that point and was fine till a few months ago. But I know from my experience with allergies they can just turn on. ( I develop hay fever at about 8 and was always playing outside in long grass etc)

Thank you for your comments. We will end up in Asda again soon so will look in the long life section as we didn't look there last time. We haven't tried the formula as he is just refusing it but ok with soya so far.
Tescos Vborbouns are ok? That's great as we won't have to separate biscuits from the boys.

 

[hayz_baby]

Last night was a bad night an I'm stuck as to what to do. He woke up in the middle of the night screaming. He did 3 dirty nappies in a short space of time and was very uncomfortable.

He didn't seem to have issues passing the stools but he obviously had tummy problems.

He could just have a bug (the boys have had this) it could be his body flushing everything out or his body getting used to a new diet. Maybe it is the soya?

 

[WelshOneEmma]

Last night was a bad night an I'm stuck as to what to do. He woke up in the middle of the night screaming. He did 3 dirty nappies in a short space of time and was very uncomfortable.

He didn't seem to have issues passing the stools but he obviously had tummy problems.

He could just have a bug (the boys have had this) it could be his body flushing everything out or his body getting used to a new diet. Maybe it is the soya?

It could be a bug, it could be the soya. The best thing to do at this stage is keep a food diary, that way you can see if anything flares up with certain foods. Its time consuming and hard to start with, but does pay off in the long run. For example we couldn't figure out why Tal would react some days when I know he hadn't eaten any dairy/soya and then it twigged - tomato! How does your son react? we have varies reactions. With dairy, soya, tomato, kiwi and sulphites its gas, upset tummy that strips the skin when he poos, so his bum is red raw. However with egg and banana he also comes out in a rash as well as the upset tummy. All of them also cause his eczema to flare up. Even now we have the odd blip. He was reacting yesterday and no idea what to. We once went to a group where although he didn't eat anything, the other kids had buttery crumpets and he reacted by playing with the same toys.

 

[Babybump87]

Sorry to restart this thread. Ive previously posted here! . Just wondering if your son had any tests done to confirm an allergy.?

We thought DD2 only had an issue with having cows milk as a drink but seems to be with yoghurts now too.

Any information appreciated .

How are you getting on with food shopping etc. Hope he has settled down now xx

 

[DebbieF]

I'm not sure if you have almond milk or coconut milk products where you live, but my daughter loves them. (She was diagnosed with a dairy allergy when she was an infant (she is now 3) There is a brand called So Delicious and they make yogurts, milk etc. Also there is a dairy free butter brand called Smart Balance. Also Daiya makes dairy free cheeses and other products.

 

[babyjan]

My 5 year old was diagnosed with CMPA at 6/7 months old and is still very allergic till this day! We recently had a skin prick test just to review it and his still very sensitive. We hoped he'd outgrow it by now but unfortunately not. He drinks koko dairy free milk, I've recenrly seen they now do a koko yogurt (my son won't even try them) he has vitalet dairy free butter. Flora also do dairy free butter and there's lots in the supermarkets. https://cowsmilkproteinallergysupport.webs.com/free-from-foods I found this page helpful.

 

[Babybump87]

Thanks Debbie . We have already been giving her Soya milk for some time as the GP was of the opinion it was only a reaction when drinking cows milk.. appears its not the case.

Haven't give her anything with milk in last few days normal brown coloured stools. Today she took some of DD1s milky buttons and behold she had a runny mustard poop few hours later. .. think there's gonna be a trip to the GP for some advice.

Thanks baby Jan. will have a look at the link. Hopefully your son is still young enough to grow out of it.