ENDO Club...
- Thread starter alilock
- Start date
Hi there
My endo is grade 4 and very aggressive, i was having surgery every 6 months to control the endo growth and endo cysts. So, DH and I were unable to TTC naturally. I was on zoladex. Ive had 2 ivf goes and here is the run down. Ive been only suffering endo for 2 yrs, as i had surgery for dermoid cysts, had no endo and then 6 months later another surgery and it was endo grade 4 and aggressive.
IVF 1, my age 27 = I was on menapur and think it was either 300 or 350iui, after day 6 scan it was upped to 450 iui. I had a good number of follies on both ovaries, on ec there was 10 follies and 5 eggs. 4 were immature
1 good egg, so they did ICSI. Dh has no issues. I did fall pregnant but it was a blighted ovum. Had d&c.
After IVF 1 i grew fibroid cysts, and 2 more dermoid cysts i think they were 5cm each and endo also grew. So a few months later had another surgery to remove everything. After d&c i was immediately back on zoladex.
IV2, age 28 = Went on gonal f 450 from day 1. Was a rollercoaster, right ovary was swollen and would not respond to drugs, no follies got above 10mm. Left ovary produced follies, was told only 3 were good enough at ec. Somehow managed to get 7 eggs. 1 was immature and 6 were done ICSI again. 4 embies, 1 was perfect grade and the other was had a little bit of fragmentation. ET 2 embies, from et was on prednisone and clexane plus the usual cyclogest and aspirin. Tested at 10dpo and it was a BFP, expecting a boy in 10 weeks
My endo gave me a few hassles in early pregnancy, like sharp stabbing pains that was around 5-6 weeks pregnant and ive had no hassles ever since.
Hope this helps everyone
BTW i was told i was a very rare case when it came to all my issues, esp with the aggressiveness. Even after the endo was controlled i then grew dermoid cysts. Its been an endless journey since a few months after we were married. Inshallah the endo wont return after the pregnancy.
My endo is grade 4 and very aggressive, i was having surgery every 6 months to control the endo growth and endo cysts. So, DH and I were unable to TTC naturally. I was on zoladex. Ive had 2 ivf goes and here is the run down. Ive been only suffering endo for 2 yrs, as i had surgery for dermoid cysts, had no endo and then 6 months later another surgery and it was endo grade 4 and aggressive.
IVF 1, my age 27 = I was on menapur and think it was either 300 or 350iui, after day 6 scan it was upped to 450 iui. I had a good number of follies on both ovaries, on ec there was 10 follies and 5 eggs. 4 were immature
1 good egg, so they did ICSI. Dh has no issues. I did fall pregnant but it was a blighted ovum. Had d&c.After IVF 1 i grew fibroid cysts, and 2 more dermoid cysts i think they were 5cm each and endo also grew. So a few months later had another surgery to remove everything. After d&c i was immediately back on zoladex.
IV2, age 28 = Went on gonal f 450 from day 1. Was a rollercoaster, right ovary was swollen and would not respond to drugs, no follies got above 10mm. Left ovary produced follies, was told only 3 were good enough at ec. Somehow managed to get 7 eggs. 1 was immature and 6 were done ICSI again. 4 embies, 1 was perfect grade and the other was had a little bit of fragmentation. ET 2 embies, from et was on prednisone and clexane plus the usual cyclogest and aspirin. Tested at 10dpo and it was a BFP, expecting a boy in 10 weeks
My endo gave me a few hassles in early pregnancy, like sharp stabbing pains that was around 5-6 weeks pregnant and ive had no hassles ever since.
Hope this helps everyone
BTW i was told i was a very rare case when it came to all my issues, esp with the aggressiveness. Even after the endo was controlled i then grew dermoid cysts. Its been an endless journey since a few months after we were married. Inshallah the endo wont return after the pregnancy.
Hey alilock,
We have a thread in the groups section you could join to talk to us if you want....
https://www.babyandbump.com/ttc-groups/372774-girls-endo.html
I have endo, and had a lap about 6/7 weeks ago to remove stage 3 endo.
It hasn't helped though and I'm in agony atm. I'm waiting to see a gyno in a couple of weeks. We've been ttc for 11 months now.
We have a thread in the groups section you could join to talk to us if you want....
https://www.babyandbump.com/ttc-groups/372774-girls-endo.html
I have endo, and had a lap about 6/7 weeks ago to remove stage 3 endo.
It hasn't helped though and I'm in agony atm. I'm waiting to see a gyno in a couple of weeks. We've been ttc for 11 months now.
alilock
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Hi Dilek - Wow what an amazing story ! Congrats on baby boy. The last Lap I had I was stage II. I dont know if this will affect my IVF outcomes- my RE seems to think I will be a poor stimulator . Is there anything I can do( food, natural remd. ect) to help keep endo in check ?
Foofymad - I will be sure to join u guys! thanks
Foofymad - I will be sure to join u guys! thanks
there is a few of us on here who have been successful with ivf/endo.
I really didnt change my diet, there is an endo diet and i think that other group must have those details for you. Sorry i just cant follow diets
Why does he think u will be a poor stimulator? Interesting enough mine must of has he had me on at 350 right from the start. And im young plus all my tests for egg count before hand came back great. even though ive had numerous cysts removed from my ovary. Which will inevitably take eggs with it.
I just went on zoladex, which shrinks the endo plus stops it from going while u are on it. So i was on that and went straight to stimms, u usually skip downregging drugs with it. Hope that helps.
please be asured that endo doesn't mean a bad responder. On my first cycle( short protocol) i was on a minimal dose of 150 iu gonal and had 8 eggs ( 5 mature), on sycle #2 on 225 i nearly over stimmed, had tonns of follies and ended up with 15 eggs.... good luck! X
spacegirl
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Hi,
You don't mention whether the endo. causes you problems or whether it was just found by accident when they were investigating.
If your endo. does not cause you pain or heavy periods (i.e. asymptomatic) then please don't assume it 's going to be a fertility issue. Here is a v interesting article about it:
https://humrep.oxfordjournals.org/content/11/suppl_3/103.full.pdf
I have severe endo. which causes me no pain or heavy periods (although I have a suspected endometrioma). I got pregnant reasonably quickly considering this and my age (35). Perhaps I was just lucky but my case seems to support the article.
With symptomatic endo. I often hear success stories after laser removal. I don't understand why or how it would affect IVF.
I hope everything works out for you xxx
You don't mention whether the endo. causes you problems or whether it was just found by accident when they were investigating.
If your endo. does not cause you pain or heavy periods (i.e. asymptomatic) then please don't assume it 's going to be a fertility issue. Here is a v interesting article about it:
https://humrep.oxfordjournals.org/content/11/suppl_3/103.full.pdf
I have severe endo. which causes me no pain or heavy periods (although I have a suspected endometrioma). I got pregnant reasonably quickly considering this and my age (35). Perhaps I was just lucky but my case seems to support the article.
With symptomatic endo. I often hear success stories after laser removal. I don't understand why or how it would affect IVF.
I hope everything works out for you xxx
looknomore
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Hi- I was diagnosed with Grade 3/4 Endo after a Lap in July. I had the Lap post a miscarriage where I conceived on an IUI. Having Endo does not mean that one will be a poor responder. High AMH/lFSH levels mean poor fertility and and that could be linked to a poor response to IVF drugs. Endo causes poor egg quality/hampers implantation ans can cause miscarriages. So thats where the effect comes in. My Doc does believe that Endo has an impact on IVF success rates as the live birth rates tend to fall in women with Endo. She has suggested a GnRh analogue treatment to me which suppresses Endo. I am still mulling over whether to go in for this hormone treatment or take my chances with an IVF straight away.
HockeyMom
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Your stories are both helpful and interesting. I am a mom however my DH and I are TTC for the first time. My DS is 13 so it has been some time since I was PG and I feel like I am all new to all of this-since everything is so different. I have Stage IV Endo have been battling it for years...cysts, surgeries etc. I we have yet to see what chances we have of getting PG...since we are just starting out. So I'll need all the luck we can get.
However...since my last surgery (8/09-removal of appendix, left tube, left ovary, 3 large cysts, etc) things just haven't been the same. I am in the process of trying to figure out if we are PG or if we are having other issues.
Neg Blood test, Neg HPT....still no period! Symptomatic but nada!?!?! This stinks! I have to wait until the 27th to figure out if I am PG or where the heck AF is??? Anyone have this happen?
LOTS OF LUCK!
However...since my last surgery (8/09-removal of appendix, left tube, left ovary, 3 large cysts, etc) things just haven't been the same. I am in the process of trying to figure out if we are PG or if we are having other issues.
Neg Blood test, Neg HPT....still no period! Symptomatic but nada!?!?! This stinks! I have to wait until the 27th to figure out if I am PG or where the heck AF is??? Anyone have this happen?
LOTS OF LUCK!
