even the doctor is confused...Update page 2, post #15

[croydongirl]

I had a blood draw just over 2 weeks ago, after a positive hpt only to get the sad news my hcg was only 9 and I should prepare for another loss, 2 days later the second blood test was at 6.2 and so I was told to stop taking my progesterone prescription and let the miscarriage happen naturally. Four days later I started to have a heavy bleed, just like my other early m/c. I didn't think much of it. My doctor always likes me to make sure I am back to no hcg before trying again so I use a home test as confirmation. I had forgotten to do that and on Christmas eve when i felt some strange pulling in my lower abdomen it reminded me. I thought I should test to make sure because something felt a little strange.

This was my first month on the progesterone prescription so I wanted to be sure it hadn't kept anything around, after all, it was almost 2 weeks after the test shoing only 6.2 hcg so it should be gone. Imagine my surprise when 2 line appeared again, faint second line but a line all the same.

Doctor was confused, and had me come in for a blood draw to double check, saying perhaps it was a faulty hpt. So when she claled me back saying my hcg was now 17 everyone was confused. It is still oo low to be a viable pregnancy but they have no idea why it is starting to rise, or if it rose and is now falling again or what in the world is happening. I have to go back n for another test and an ultra sound on Wednesday (we are supposed to be going out of town tomorrow and if we do she said it is ok to wait until Monday for the tests). She doesn't seem to think it is urgent, and there is no biological way it could be a new pregnancy so she sent my blood to other labs to test for a few other things so I guess we'll see.

Anyone heard of anything that remotely resembles what;s happening to me?

She said with numbers so low it is unlikely to be ectopic pregnancy and she also spoke with an GYN cancer doc who didn't seem to think it was anything to worry about in that area (relief) but no one can tell us what might be happening.

 

[sparkle]

I have no idea I'm afraid, I've never had bloods to confirm, just scans. But didn't want to read and run.

Thinking of you and hoping you get some answers soon x

 

[grandbleu]

So sorry you are going through this confusing time

I'm like Sparkle - I only had bloods done once at the hospital when I miscarried but after that it was just scans to make sure all the tissue had passed.

I know HCG can stay in your system for awhile but I don't know why it would go back up.

I would suggest an internal scan just to see what's going on in the uterus/ovaries/fallopian tubes.

 

[tryforbaby2]

Oh My Gosh,how tormenting this must be for you.
I have never heard or had any experience with this, so I can offer no advice, however I can offer ......I hope it all straightens out for you.

 

[Braven05]

Oh my goodness...how confusing...hope they can figure out what it is...thats very strange!

 

[Dazed]

Sorry for your loss
I have actually had this happen to me. My HcG at the beginning was around 100, went down a bit and then back up to around 300's. They don't know why, but it could be some retained tissue. I had a scan about a week later and all was clear.
Unfortunately these things happen and they do play mind games. Its horrible.

 

[LiSa2010]

kinda of sounds like vanishing twin symptoms. its where you are PG with twins but you miscarry one of them and that can cause a drop in your HCG levels. keeping Fxd for you sweety!!!

 

[girlygirl:)]

I've read of things like this happening and it being a viable pregnancy in the end, on www.misdiagnosedmiscarriage.com xxx

 

[shelleney]

Sorry for your loss.
It sounds like retained tissue.
Hope it all sorts itself out soon, and you can get some closure and start the grieving process, and perhaps try again if you wish

xx

 

[Mom23monkies]

I hate to be the bearer of terrible news, It really sounds like something I delt with that turned out to be a blighted ovum
I hope not and will remember you in prayers but it sounds ALOT like my situation.
Good luck

 

[croydongirl]

Wow ladies, thanks for all the kind thoughts and words.
At this point I would just like to know one way or the other. I have an ultra sound and second blood work on Monday, so I will update then.

 

[Feisty Fidget]

Oh chickadee I am so sorry

The loss is hard enough but then when you get hope dangled at you it makes it so much worse. I really hope it is vanishing twin syndrome but I would have thought your levels would have been slightly higher then what they are.

I really hope you get everything sorted, thinking of you xx

 

[puppycat]

Hi Croydongirl

Sounds very similar to what I have just gone through although I'm still not 100% sure where I am. I hope yours is good news though.

Let us know xx

 

[croydongirl]

I am not really considering the possibility that this will end with a baby, the numbers are just too low but I am just confused...and I do believe in the God of miracles so of course there is a teeny tiny piece of me wondering if this could be something good but the realist in me is keeping expectations and hopes low so it wouldn't be so devastating.

Supposed to be ovulating in the next couple of days but can't try this month because the doc wants my levels to be down to 0 before we do - which makes sense, it just means we are out this month for sure.

I am starting to get some cramping like my body is getting ready, and I am taking my temps so I have as much info as possible to give the doctor on Monday. Whirlwind week for sure.

Thanks for your support, I'll keep you posted. Best of luck to each of you on this journey x

 

[croydongirl]

So a week later, and my blood was shoing a level of 4 hcg. Under 5 is o=considered negative. The doctor has no idea what happened. She sent my results to specialist to make sure it was nothing bad. I guess there are some cancers linked to lingering or rising hcg without pregnancy - great. However it seems nothing bad is going on. My ultra sound showed a think lining in my uterus and one collapsed follicle indicating I had just ovulated. This would put me right on time, but I am waiting for my temps to really rise and confirm this. I always have a slow rise.

I wish my level had been 0 but a technical negative is good enough for our doctor to give us the all clear to try again. So now we wait and try again. I am going to start acupuncture this week to see if that can help us.

Good luck to you all ladies x

 

[grandbleu]

Anywhere from 0-5 is negative so I wouldn't worry too much about that. Yikes sorry they told you all that information I'm sure it's just a super slim chance but I don't think it was right of them to worry you so right after losing a baby.

My sister did acupuncture for fertility issues and she thinks it helped...has a wee one month old girl to prove it...hope it helps you as well.

 

[croydongirl]

I know, I am glad they tested to make sure nothing was more seriously wrong. But I felt like saying, you can test for whatever you want, but until you find something wrong don't tell me what you're doing. Who doesn't get freaked out by the cancer word? I really like our doctor but I didn't need to have that on my mind!
Hubby has low sperm morphology and the acupuncturist has seen good results in helping those levels to rise 0 but when i mentioned it to hubby he got a little pale. Later he old me that he wasn't sure he was comfortable with them sticking needles in his privates!! ha ha I told him that's not how it works,but we did have a good laugh at what he thought!

 

[grandbleu]

I know, I am glad they tested to make sure nothing was more seriously wrong. But I felt like saying, you can test for whatever you want, but until you find something wrong don't tell me what you're doing. Who doesn't get freaked out by the cancer word? I really like our doctor but I didn't need to have that on my mind!
Hubby has low sperm morphology and the acupuncturist has seen good results in helping those levels to rise 0 but when i mentioned it to hubby he got a little pale. Later he old me that he wasn't sure he was comfortable with them sticking needles in his privates!! ha ha I told him that's not how it works,but we did have a good laugh at what he thought!

no wonder he was so scared! Poor thing...glad he knows how it REALLY works.

 

[Braven05]

thats funny! Hope the acupuncture helps! I've got my fingers and toes crossed for you! Glad things are mostly back to normal and you can start trying again

 

[tweedy]

i am glad you have got the all clear and can start to try again, don't think your doc meant to scare you, but i am sure they were trying to rule out a molar pregnancy, which is quiet dangerous and has been linked to cancer due to the fast growing cells, shame they didn't give you all the facts though.

here's hoping a BFP in 2011.