hyperemesis sufferers unite!

[Guppy051708]

Hi all,

hope you are all well.
Update on me, I am finally turning a corner, still being sick most days (on the 5 days that I haven't been since sept the nausea cripples me) but find that if I can be sick first thing then I don't feel too bad.
I finally feel like I am coming out the other side now xx

Im glad things are improving for you hon. This gives me hope!

 

[Guppy051708]

AFM, im still so sick. Last week i lost 3-4lbs because my insurance would only cover so many Zofran (generic verision) pills. So i ran out 10 days early. That was brutal. Basically threw up EVERYTHING and had major aversions. How horrible. I finally was able to get a refill. Im still throwing up a couple times per day on the pill but much much better than without it. My stomach is literally in pain constantly. Also, does anyone else feel like there is food stuck in your chest? I chew my food as i should, but ever since the HG started its almost like my food is sitting in my esophagus, like it's not getting into my stomach properly. I feel like thats part of the reason my gag reflux is in overdrive. I def have reflux as well, and oddly enough the Zofran makes it worse. Anyone else experience that? But this feeling isn't the same as reflux. It's almost like the flap that lets food into my stomach is malfunctioning. ....ugh. I can't wait for this to go away. It's been horrible since 9DPOs. Im now in the 2nd tri, but i can tell it wont be letting up anytime soon.


i never ever want to be pregnant again! After this im either getting sterilized or getting the IUD. I never want to deal with HG again.

 

[CarliCareBear]

guppy i am so sorry you are struggling so bad! i remember when i was 13 weeks and things just seemed to get even worse/escalate while doctors told me i should be "better" by then.

i had a similar feeling of being choked up/pressure on my chest- my OB told me that this is probably due to reflux as it magnifies during pregnancy and even more so with hyperemesis. she put me on nexium and IV reflux meds and it helped immensely with this.

also this feeling could be digestion slowing down, another wonderful thing that happens during pregnancy and is not good for HG. i would look over all of your meds overall and decide if you need a higher level of care (hospital, hydration ect.)

AFM, my boobs have been hurting lately and i've been getting fat. i have an IUD but am worried! augh... i'm never having sex again!

 

[Firef1y72]

Hey everyone, can I join you?
I'm currently 4 weeks gone with number 6 and the dreaded HG is showing it's ugly head. The nausea literally lasts from the minute I wake up until I fall asleep at night and I'm vomitting 2-3x a day. My poor partner is suffering from my heightened sense of smell/aversions/general ickiness too. I made him go out of the room to eat last night because it was just making me feel too ill.

Much as I hate how HG makes me feel, after a MC last year where it didn't even get to me feeling this sick, I'm trying to see the nausea and vomitting as a blessing (although I may not be saying that in a couple weeks).

 

[Sthubbard]

Hi, I am new to this site but have found this HG thread and am hoping it will help.
I am currently 9wks and have been suffering with HG since week 5, I have been hospitalised 4 times now and that is the only time I feel slightly better. This is my third pregnancy and suffered with HG with my second son which did finish at 14 weeks (although it only started at 9wks then!) I feel awful, if I am not being il I constantly feel nauseous and have a headache all the time. I do find myself wondering why we decided to try for a 3rd which I know is a terrible thing to think as we are blessed. I think I will be back in hospital in the next day or two as can feel myself getting more and more dehydrated. Any advice or support would be gratefully received.

 

[Squishy1982]

Hi girls,

how are we all? I am still being ill, been bad again the past few days. Just 7 weeks to go for me xx

 

[DLA]

Hi all. I'm glad I found this thread. I've had HG for my entire pregnancy so far and am feeling a bit hopeless of lasting the rest of the pregnancy. That sounds dramatic but it's just been really tough. I have a 16month old and work FT and am SO sick of puking at work and feeling dizzy half the day. I have good days and bad days but it's so daunting to think I have another 19 weeks of this.

 

[Firef1y72]

Hi all. I'm glad I found this thread. I've had HG for my entire pregnancy so far and am feeling a bit hopeless of lasting the rest of the pregnancy. That sounds dramatic but it's just been really tough. I have a 16month old and work FT and am SO sick of puking at work and feeling dizzy half the day. I have good days and bad days but it's so daunting to think I have another 19 weeks of this.

I know how you feel, I don't work but have an almost 3yo with learning difficulties at home and am struggling with even the most simple task, such as picking him up from pre-school. It's only a 10min walk but I still had to find somewhere on the way where I could throw up. I have to say with my other 5, the HG did last all the way through, but it also improved after 25 or so weeks, so that with medication I was only actually being sick a couple of times a day.

Right now I'm not even 6 weeks yet and throwing up between 6-10 times a day, knowing that it'll probably get worse before it gets better. I'm dehydrated as atm I tolerate solid food better than fluids, but hopefully am ketone free as I try to eat energy rich foods (peanut butter is great). I've also lost 4lb since Friday, although I do have a lot of spare weight. Seeing my gp this evening and hoping he can give me something to ease the sickness.

 

[DLA]

Hi all. I'm glad I found this thread. I've had HG for my entire pregnancy so far and am feeling a bit hopeless of lasting the rest of the pregnancy. That sounds dramatic but it's just been really tough. I have a 16month old and work FT and am SO sick of puking at work and feeling dizzy half the day. I have good days and bad days but it's so daunting to think I have another 19 weeks of this.

I know how you feel, I don't work but have an almost 3yo with learning difficulties at home and am struggling with even the most simple task, such as picking him up from pre-school. It's only a 10min walk but I still had to find somewhere on the way where I could throw up. I have to say with my other 5, the HG did last all the way through, but it also improved after 25 or so weeks, so that with medication I was only actually being sick a couple of times a day.

Right now I'm not even 6 weeks yet and throwing up between 6-10 times a day, knowing that it'll probably get worse before it gets better. I'm dehydrated as atm I tolerate solid food better than fluids, but hopefully am ketone free as I try to eat energy rich foods (peanut butter is great). I've also lost 4lb since Friday, although I do have a lot of spare weight. Seeing my gp this evening and hoping he can give me something to ease the sickness.

Aw that's tough! Right now I'm going back and forth from zofran to phenergan. Sometimes they help, sometimes not so much. Hope your doctor gives you something that will help!

 

[Firef1y72]

Aw that's tough! Right now I'm going back and forth from zofran to phenergan. Sometimes they help, sometimes not so much. Hope your doctor gives you something that will help!

Not sure what zofran would be called over here, but I'm asking for either buccastem (which you disolve between the gum and lip) or stemetil to start with and possibly some b6, which did seem to give minimal help last time.

 

[jessshakespea]

Not sure what zofran would be called over here, but I'm asking for either buccastem (which you disolve between the gum and lip) or stemetil to start with and possibly some b6, which did seem to give minimal help last time.

Hi, its odansetron here. You can get it. Cyclizine is first line in the UK I think, worked OK for me. Did you try that? Doesn't work for everyone tho! Have you been on the pregnancy sickness support website? Lots of info on treatment, worth trying for something else if one drug isn't working that well. There's also a Facebook group, what the combined knowledge of HG ladies on there don't know is not worth knowing! Also very supportive, like on here but not just a thread. Hope you all feel better soon, no fun I know.

 

[Squishy1982]

Not sure what zofran would be called over here, but I'm asking for either buccastem (which you disolve between the gum and lip) or stemetil to start with and possibly some b6, which did seem to give minimal help last time.

Hi, its odansetron here. You can get it. Cyclizine is first line in the UK I think, worked OK for me. Did you try that? Doesn't work for everyone tho! Have you been on the pregnancy sickness support website? Lots of info on treatment, worth trying for something else if one drug isn't working that well. There's also a Facebook group, what the combined knowledge of HG ladies on there don't know is not worth knowing! Also very supportive, like on here but not just a thread. Hope you all feel better soon, no fun I know.

Yes it is ondansetron but I was only prescribed it after being admitted to hospital for fluids. They told me they don't normally prescribe it as it is so expensive.

I had tried (excuse the spellings) Cyclozine, promethazine, and 1 other begining with P. None of them worked completely. The ondansetron stopped me being sick so much but the nausea was crippling. It also constipated me awfully. xx

 

[DLA]

omg that's so wrong! It is expensive but it works pretty good a lot of the time. I've taken it everyday since I was 6 weeks. That's horrible, I can't believe they are allowed to not prescribe something based on price. I'm sorry. Yeah it will constipate you but I've been ok as long as I take a stool softener everyday.

 

[Firef1y72]

Not sure what zofran would be called over here, but I'm asking for either buccastem (which you disolve between the gum and lip) or stemetil to start with and possibly some b6, which did seem to give minimal help last time.

Hi, its odansetron here. You can get it. Cyclizine is first line in the UK I think, worked OK for me. Did you try that? Doesn't work for everyone tho! Have you been on the pregnancy sickness support website? Lots of info on treatment, worth trying for something else if one drug isn't working that well. There's also a Facebook group, what the combined knowledge of HG ladies on there don't know is not worth knowing! Also very supportive, like on here but not just a thread. Hope you all feel better soon, no fun I know.

Cyclizine by itself did absolutely nothing for me last time, but did help as one of a cocktail I was given whenever admitted. What I remember most about the cyclizine is how much it hurt when injected, seriously there was no way I was asking for a top up unless I couldn't cope anymore.

I must say that both the recognition and treatment of HG has improved significantly over the last 20 odd years. When I had my eldest in all likelihood you would be thought to be over-egging things until you became seriously ill and then would have to spend a week in hospital at a time before being sent home with no medication or if you were lucky some Stemetil (I was such a regular they would keep my bed free). Now it's easier to get help earlier and there are far more drugs available, which reduces hospital stays to a couple of days at a time.

 

[Firef1y72]

Just got back from the dr with some buccastem, one was in my mouth before I even left the surgery. Feeling so much more human now.

 

[JViti]

This was 7 years ago for me, as my son is 6 1/2, but I was a horrible case of HG (is there not a horrible case of it?). I was hospitalized twice, it started on the DAY I turned 8 weeks and lasted through childbirth. I was 18 at the time and I was sooooo done with my pregnancy after 10 weeks lol. I was given compazine (aka prochlorperazine), Phenergan (aka promethazine), and Zofran (aka ondansetron). Zofran was the only one that worked. But I had to have the ODT because if I tried to swallow a tablet, i would puke it up. I couldnt sip water, i couldnt lick a popsicle, nothing!!! At 4 months pregnant, I had to go to the hospital because of how sick I was, they thought I miscarried. I lost 17 lbs by the time I was 13 weeks and I was already underweight to begin with. They didnt expect my baby to survive, but when I went to the ER, and they found his heartbeat, they put my booty right on the zofran. I ws begging for it in labor, but they wouldnt let me have it . I was not a happy camper...the nurse knew it too...I would get kicked off the forum if I told u some of the names I called her lol.

As crazy as it sounds, I am trying for baby #2, and because of how bad I was for the first pregnancy, they will be putting me on zofran the SECOND i get a positive pregnancy test.

The weakness, the fatigue, the pain of your muscles being strained from puking so much, the lack of being able to pee from being dehydrated, the constant puking (unless im on zofran, in which case, im just constipated, but id rather that than nonstop puking!!!!)

Glad to know its more common than i thought and I wish I knew about this website when I was pregnant so I knew I wasnt alone!! I will definitely be here for my next one!!!

 

[Firef1y72]

After feeling so hopeful with the buccastem last night, now feeling dreadful. Not even 9am and so far I've chucked up 3 times including one so violent that I not only didn't quite get to the toilet in time, but I've also burst blood vessels round my eyes. I hate HG with a vengence!!!!!!!!!!!!!!!

 

[Squishy1982]

its so hard isn't it, I would love another but just honestly don't know if I can go through this again.

I was sick with my son until 23 weeks on and off but this time it has been constant.

What kind of preventative measures are there?

 

[HGsurvivor05]

After feeling so hopeful with the buccastem last night, now feeling dreadful. Not even 9am and so far I've chucked up 3 times including one so violent that I not only didn't quite get to the toilet in time, but I've also burst blood vessels round my eyes. I hate HG with a vengence!!!!!!!!!!!!!!!

I feel for you ladies I was proscribed buccastem and it had not effect with me although nothing did. I am currently WTT and very nervous but excited it has been 7 years since I last said goodbye to HG and has taken this long to find the strength to go back. I am disgusted with NHS over here in the UK as it goes down to money not your health and needs. Ok they want to try you on cheapest as it may work but with HG very rarely does. I was so lucky to have met with my old community midwife to discuss my worries last week and although she kind of bypassed the HG worries and discussing with me healthy eating, vitamins etc I stopped her to say that I was aware of all the things I need to put in place for 'normal' pregnancy but my main worries is the care I will receive if I do get HG what changes have been made since 7 years ago when I was treated what I feel shockingly. Sadly I don't think my counties protocol has changed like others but she is going to be involved with me from early stage and will have it on my notes ready for doctors to see I suffered severe HG previously in the hope they don't leave me to suffer so long this time. My midwife to be has also recommended acupuncture, Not sure if any of you ladies have tried this but there are certain acupuncture points to help minimize sickness or nausea.

Hope your journeys improve xxx

 

[Firef1y72]

I'm now on another drug, metaclorapromide (?sp), which isn't working either. Only keeping out of ketosis by eating something every hour, but am dehydrated with no go appointments available today.