hyperemesis sufferers unite!

[lola85]

Hi ladies glad I'm not alone! Diagnosed with hg at 6weeks been admitted 5times so far and barely worked in last 3months. Feel so fed up! Everyone seems to think I should 'be over it by now' like I can help it?! I'm (literally) sick if the 'its only ms' and 'I've been there' comments! I really want to scream no you haven't you had ms not hyperemesis!!!!!!!! Sorry rant I over!!! Luckily DH is very supportive but I guess he's only one who's seen how bad it is! I'm hoping it starts to improve now. Midwife has told me to ask GP to extend my sick note for another month but feel really cheeky asking for it?! X

dont feel that way hon. I know it's hard not to though. so many ppl misunderstand this Dx. Few ppl really get that it goes far beyond "normal" MS. Everyone just assumes it cant be *that* bad. And then we HG ladies get treated like we are wimps...if only they knew what we have been through! I honestly think we are some of the toughest mommies out there!

Big Glad you found us

Thanks it's good to vent to those who understand! Just abit grumpy and lonely at moment as friends/family live 4hrs away and work colleagues although understanding aren't very friendly
Has your hg improved at all as you've got further along? X

 

[sbl]

Hi girls I was thinking of setting up a fb page for us hg girls and to spread more awareness of the condition.
Would you guys be interested?
xx

 

[Guppy051708]

We no longer have a FB account, so it wouldn't work for us. Would be great for others on FB. I just hope that those only bnb members and not FB members would still have this thread as support tho. I notice a lot of bnb groups switch to FB and then never are heard from again on BNB and that can be tough for those w out FB

 

[Guppy051708]

Hi ladies glad I'm not alone! Diagnosed with hg at 6weeks been admitted 5times so far and barely worked in last 3months. Feel so fed up! Everyone seems to think I should 'be over it by now' like I can help it?! I'm (literally) sick if the 'its only ms' and 'I've been there' comments! I really want to scream no you haven't you had ms not hyperemesis!!!!!!!! Sorry rant I over!!! Luckily DH is very supportive but I guess he's only one who's seen how bad it is! I'm hoping it starts to improve now. Midwife has told me to ask GP to extend my sick note for another month but feel really cheeky asking for it?! X

dont feel that way hon. I know it's hard not to though. so many ppl misunderstand this Dx. Few ppl really get that it goes far beyond "normal" MS. Everyone just assumes it cant be *that* bad. And then we HG ladies get treated like we are wimps...if only they knew what we have been through! I honestly think we are some of the toughest mommies out there!

Big Glad you found us

Thanks it's good to vent to those who understand! Just abit grumpy and lonely at moment as friends/family live 4hrs away and work colleagues although understanding aren't very friendly
Has your hg improved at all as you've got further along? X

It did improve but I still have issues w it from time to time. I think somewhere around 24-28 weeks it started to decrease a lot. I'm middle of 32 weeks and havnt had to take anti vomiting meds for about two weeks now. But some days I feel it creeping back up in me again, especially if I don't eat every hr or so.
The HG was extreme for me. It started (badly) at 9DPOs. I had MS w my boys but nothing like this (tho I may have had mild HG w DS1 looking back. Was sick until 28 weeks w DS1 but that didn't start until 12 weeks w him. W DS2 it started at 6 weeks and didn't end until 20 weeks) I was throwing 15+x per day and food was so unspeaking thinking about it made me throw up. Even now I still have some issues w mustering up the mental attitude to eat certain things (bc of how sick I was). BUT things have improved a lot, finally. But it took a lot of time and sometimes it creeps back.

 

[eddjanuary10]

Just came by to check how we are all doing? Hi Lola, sorry to hear your feeling the wrath of hyperemesis too.

I'm almost at 13 weeks now (my ticker is 3 days ahead haven't changed it since I got new Edd). I am not throwing up everything I drink now I can take a few sips of something and it just makes me nauseous. I feel so thirsty but can't take more than a few sips so I try to eat more fruit to stay hydrated. Food stays down for longer, I haven't lost any more weight still exhausted from throwing up multiple times each day and head aches from feeling thirty but hoping now to manage this better and no more hospital visits.

Hugs to all x

 

[lola85]

I'm back in hospital my 6th admission so fed up! I seem to be in a pattern where my meds work for a few days then stop and I start vomiting every 20mins though out the day until I have IVs to stop it. Been admitted every week for last 5weeks due to this

 

[sbl]

Lola I feel for you.
Can I also just give you all a quick bit of info. Make sure your potassium levels are checked regularly. My potassium was so low I almost had a cardiac arrest at 16 weeks.
I recently read an article about an anorexic girl who died and her potassium levels were actually higher than mine.
I was lucky.

 

[eddjanuary10]

I'm back in hospital my 6th admission so fed up! I seem to be in a pattern where my meds work for a few days then stop and I start vomiting every 20mins though out the day until I have IVs to stop it. Been admitted every week for last 5weeks due to this

I feel your frustration and how incredibly horrible you must be feeling. No anti sickness meds worked for me or injections. Only the fluid drip helped and loads of rest I couldn't move even if I wanted to. It's utterly draining. I really hope it all eases of a bit for you soon. We are all here whenever you need to vent. Hope you have loads of support at home too it's very difficult to manage don't feel bad asking people for help x

 

[eddjanuary10]

Lola I feel for you.
Can I also just give you all a quick bit of info. Make sure your potassium levels are checked regularly. My potassium was so low I almost had a cardiac arrest at 16 weeks.
I recently read an article about an anorexic girl who died and her potassium levels were actually higher than mine.
I was lucky.

That's really scary who would check potassium levels? Glad your ok x

 

[sbl]

They should check them in hospital or your ob and gp can do them too.
Thank you lo and I are very lucky to be here. I will post the link to my blog story.
www.hgmum.blogspot.ie

xx

 

[eddjanuary10]

They should check them in hospital or your ob and gp can do them too.
Thank you lo and I are very lucky to be here. I will post the link to my blog story.
www.hgmum.blogspot.ie

xx

Reading your blog made me cry! So happy you made it through all that can't believe how uninformed the midwifes were at the hospital. I hope your experience helps to raise awareness it really can make such a huge difference to your health depending on what dr you see and how informed they are.The first 3 times I went to my doctor they sent me home telling me some people just have bad morning sickness and that I should go home and try sucking ice cubes! The 4th time I went in I was feeling so ill I couldn't drive, struggled to walk, hadnt held any fluids down for more than 2 days was shaky and had extremely dry lips my mouth was so dry I was thirsty but couldn't take even a sip of water. I needed help to care for my son becaue i couldnt get out if bed.That dr was the one that took the condition I was in seriously and did tests. I was very dehydrated with a high level of keyones and sent straight to hospital. It made me so mad that it got to that stage before anyone took me seriously. Luckily at the hospital they were way more understanding and very knowledgable with regards to hg. Before my 1st antenatal app I had to go through a doctor every time I felt really ill to be referred to hospital and they would t send me unless my ketone levels were 4. They would send me home and tell me to go only if I got 'worse'. Thankfully after my antenatal app the midwife told me not to bother with doc and just go straight to hospital if I felt I had to.

I'm shocked by your ordeal, I understand when you are told to stay away from hospital until you consider yourself serious enough to go in you feel like yiu are wasting their time and question yourself and it shouldn't be that way. Things can change so quickly and some people may get there too late. Thank goodness you and lo were ok.

Thank you for posting the link, your little girl is a cutie! X

 

[sbl]

Thank you hun
Looking back now I am disappointed in how I was treated but I was just so sick that I went along with it.
It's horrible to be made feel like your a nuisance. I had been in out of hospital so many times I hated the place. I still feel nauseous even driving past there.
Its ridiculous the way HG ladies get treated. I am so fed up of people saying "its just morning sickness, get over it"
I'm glad your midwife told you that. At one of my apps the midwife asked for some wee to test and then lost it and never tested it.
I was sitting in the clinic waiting room puking into the toilet for hours. Nobody even asked me if I was ok.
I have to say though I got an amazing response from my blog. People from all corners of the world had read it and that made me feel like I had been useful is some small way.
Thanks you for taking the time to read it hun. How are you feeling?
xxx

 

[Guppy051708]

Will have to read your blog! thanks for posting it!
HG women should not have to go through what they do to get the help that they need it's such a horrific and debilitating "disease".

Im almost 33 weeks and up 8lbs...not much, huh? My MWs dont seem concerned (probably bc of how much weight i lost the first 24 weeks), but sometimes i feel really bad and i hope that the baby hasn't suffered as a result of this

 

[Amy89]

Hi ladies, I'm so glad I found this thread! I came out of a 3 day stint in hospital last week with dehydration and Ketosis - only went because I collapsed at home.
Today, I feel just as bad as I did before, but I'm sure if I went they'd just send me away. I feel so dreadful, can't keep any water down, constantly being sick but it's just bile, and my head hurts so bad

Sorry to hijack your thread, I just needed to get it out somewhere I'm not gonna be told to deal with it because "it's just a side effect of being pregnant"!

 

[lola85]

Amy go to a&e that's what I had to keep doing (and midwife agreed) as GP wouldn't listen. I now have open access to the ward so I just ring them when I feel I need to be seen. Every time I've needed admission so just listen to your body you know best! X

 

[Amy89]

The ward gave me their number & told me to call them if I felt bad again, and I really do feel as if I should go, BUTTTTT I really can't take the time off work, I've only just started my job & I need to get through the next week & get my contract signed. I'm worried if I'm off again they'll just not give me a proper contract & I'll be stuck without a job again

 

[lola85]

I'd call the ward Amy work can't use pregnancy related sickness against you. The only way to feel better is to get treatment otherwise you will just feel worse and in this heat you get dehydrated so much quicker Can your GP not sign you off? I've only done 1full week at work since I was 6weeks and midwife wants me signed off till 20weeks or until I stop needing weekly admissions xxx

 

[Amy89]

Thing is, I don't want to be off...I already feel like I put them out enough being off before, and since I'm on probation they don't even need to give a reason to not give me a contract. Really struggling today, it's so hot and we haven't got air con or anything...felt myself get towards passing out a couple of times. If I go, they'll be screwed tonight, already a waitress down, and it's gonna be soooo busy. Just feel conflicted, I can't afford to lose my job

 

[HGsurvivor05]

WOW SBL

Just reading your blog, it frustrates me that health providers continue to have a lack of knowledge of HG. I suffered from 5 weeks and admitted at the end of that week. Like you was made to feel like I was over reacting at one point leaving hospital barely having energy to walk the Matron took my mum in to room left me outside and said 'it is all in her head she needs to stop thinking about being sick as she is making herself ill' she belittled me so much I was a grown woman not a child. I continued to be admitted and they would send me home after one day. At one point being forced to drink a protein shake even though I told them that since becoming pregnant I could not tolerate dairy the Matron made the auxiliary stand over me until I drank the whole jug, guess what I was violently sick and became worse, It was then they apologized. My doctors were awful and would not prescribe meds saying like you heard 'you have MS you will get over it' it continued and was eventually admitted for a week at the longest as my liver was in a bad way it was then they began to take more notice but yet made it clear they had no knowledge of HG they admitted I was one of the worst they had seen and started prescribing meds for when I was out but it was too late. I did slightly improved in late 2nd trimester bt was admitted for 2/3 days for fluids right up till two weeks before I delivered.
It was horrendous and my heart goes out to you all and if I can be of any support please ask.

We decided after DD we could never have anymore children but after 8 years we have taken a huge decision to TTC again. As you see by my ticker very soon! I am nervous, excited and very scared. It has taken 9 months of planning and made appointments with health professionals and my previous midwife. Sadly I feel their knowledge on HG is no further on. I have been made aware that another region within Scotland has its own HG protocol for treatment in patients yet this is not the case with us. The midwife told me my DR won't diagnose HG till after 12 weeks!!!! mmmmm bit late me thinks by then! What I do know now it that I am more knowledgeable and I will be pushing for the correct treatment and will not be walked over this time.

Also if you are on Facebook like another lady mentioned above there are 2 fantastic pages (which are private) that I joined one is HG support another about trying to prevent HG.

I have been on prenatal Vitamins for 6 months including milk thistle, and extra folic acid, I have also just started B-6. I don't know if any of the measures I have tried will help i HG returns but hopefully prepared myself a bit although in a way if I am honest all my preparation will be thrown out the window if it hits as, as you all know its as if you have an alien in you taking over your body and you have no control over it.

Good luck ladies and stick in there

 

[sbl]

WOW SBL

Just reading your blog, it frustrates me that health providers continue to have a lack of knowledge of HG. I suffered from 5 weeks and admitted at the end of that week. Like you was made to feel like I was over reacting at one point leaving hospital barely having energy to walk the Matron took my mum in to room left me outside and said 'it is all in her head she needs to stop thinking about being sick as she is making herself ill' she belittled me so much I was a grown woman not a child. I continued to be admitted and they would send me home after one day. At one point being forced to drink a protein shake even though I told them that since becoming pregnant I could not tolerate dairy the Matron made the auxiliary stand over me until I drank the whole jug, guess what I was violently sick and became worse, It was then they apologized. My doctors were awful and would not prescribe meds saying like you heard 'you have MS you will get over it' it continued and was eventually admitted for a week at the longest as my liver was in a bad way it was then they began to take more notice but yet made it clear they had no knowledge of HG they admitted I was one of the worst they had seen and started prescribing meds for when I was out but it was too late. I did slightly improved in late 2nd trimester bt was admitted for 2/3 days for fluids right up till two weeks before I delivered.
It was horrendous and my heart goes out to you all and if I can be of any support please ask.

We decided after DD we could never have anymore children but after 8 years we have taken a huge decision to TTC again. As you see by my ticker very soon! I am nervous, excited and very scared. It has taken 9 months of planning and made appointments with health professionals and my previous midwife. Sadly I feel their knowledge on HG is no further on. I have been made aware that another region within Scotland has its own HG protocol for treatment in patients yet this is not the case with us. The midwife told me my DR won't diagnose HG till after 12 weeks!!!! mmmmm bit late me thinks by then! What I do know now it that I am more knowledgeable and I will be pushing for the correct treatment and will not be walked over this time.

Also if you are on Facebook like another lady mentioned above there are 2 fantastic pages (which are private) that I joined one is HG support another about trying to prevent HG.

I have been on prenatal Vitamins for 6 months including milk thistle, and extra folic acid, I have also just started B-6. I don't know if any of the measures I have tried will help i HG returns but hopefully prepared myself a bit although in a way if I am honest all my preparation will be thrown out the window if it hits as, as you all know its as if you have an alien in you taking over your body and you have no control over it.

Good luck ladies and stick in there

Thank you hun.

Its terrible the way some HG ladies get treated. Absolutely no understanding of our condition in some hospitals.
It infuriates me now but when I was so sick I just was not able to fight.

I hope HG does not return for you this time when you do conceive.
We have decided to wait till 2015 to start ttc again. It took me 2.5 years to conceive dd so I reckon it will take awhile next time too.

I plan on going a pre HG diet to build myself up and so I will have little extra wait that I can afford to loose.

I am quite small, always have been but I looked like death when i was pregnant.

Could you send me links to the fb pages/groups?
xx