hyperemesis sufferers unite!

Hi Ladies,

Can I please join ye too? Pregnant for the second time. Had hyperemesis on my first pregnancy, sick up to 34 weeks & my daughter was born at 37 weeks. (but she is worth all the suffering :) )

I'm 22 weeks now and have been seriously sick since 5wks. Have been in hospital for days for rehyration and spent weeks up and down every second/third day for fluids. Vomited blood for days aswell and throat so raw I couldn't swollow anything :(

Tried so many meds during the first few weeks of sickness -
Valoid tablets - couldn't keep them down & they were vile coming back up.
Maxalon - didn't work
Zoton (an antacid) - didn't work
Stemetil - made me feel worse - chest pains, increased nausea etc.
There were a few more but I can't remember the names.
Zofran - Brillient drug :) best ever :) was getting it IV in the hospital and when I was in & out for fluids. Doc in hospital perscribed me zofron suppository's because I couldn't keep down tablets. And they are great. I get a few good hours a day out of them.

Had lost huge amount of weight (over 15% but stopped weighing myself). Since I've been on the zofran I haven't lost any more weigh (haven't gained anything either) so all bump at the moment :).

I noticed in some of the posts that some people have difficulty getting zofran from their doctors but I would suggest that asking again & again untill they give them to you. I know they are expensive but worth it.

Hope everyone else sees the light at the end of the tunnel soon.

Thanks

Tulipa
 
oh girls.. you all have my sympathies. i still havent forgotten how horrible it is!
i was sick every day (except one or two) from 6th november to 9th July, sometimes 50+times a day. its SO hard just to fuction isnt it!

kitty... are your tablets metclorpromide? or maxalon?

if your dr is helpful, ask about cyclazine (sometimes branded as valoid) they worked best for me, the didnt take it away, but eased it a little, worth a try

have any of you tried the sickness wristbands? i wore mine for months, not sure how much they helped, but again, worth a try!

I tried those wristbands but they really hurt my wrists!

Kitty- Sorry to hear you're suffering. Of what I've been prescribed so far I also liked cyclizine the best. Congrats on having triplets though! So exciting. My advice would be, get your doctor to sign you off work, there is nothing worse than trying to struggle through a work day whilst being sick constantly xx
 
yep zofran worked brill for me... they doc just WOULDNT give it no matter how much i begged as he said it was the least safe. the hosp gave me it each time on IV tho and it worked a treat!
 
oh girls.. you all have my sympathies. i still havent forgotten how horrible it is!
i was sick every day (except one or two) from 6th november to 9th July, sometimes 50+times a day. its SO hard just to fuction isnt it!

kitty... are your tablets metclorpromide? or maxalon?

if your dr is helpful, ask about cyclazine (sometimes branded as valoid) they worked best for me, the didnt take it away, but eased it a little, worth a try

have any of you tried the sickness wristbands? i wore mine for months, not sure how much they helped, but again, worth a try!


Thanks yup its metclorpromide, I'm phoning my GP today to ask for something different. Some days the sickness is so bad that my DH has to stay home to care for me, which isn't good for his job obviously.

I tried the wristbands and did bugger all lol.

What really pees me off is some of my family and the in laws who assume its " just bad morning sickness" and it will "pass after 12 weeks" rahhhh! I feel like showing them exactly what I go through from 3am to bed time every bloody day lol! I know they mean well but its so annoying when people down play how unbelievably horrendous you feel. God I'm grumpy lol!

The thing with being signed off sick is the money, I would only get SSP of £75 a week, meaning my poor Dh would have to put in overtime every weekend to make ends meet :( Why is nothing bloody easy!

So far today I havent been horrendous been sick 3 times this morning, had 3 spoonfuls of coco pops :) better than nothing eh?

How's everyone else been today? xxx
 
metclorpromide works by emptying your stomach of food quickly, so if you are worst on an empty tum as i was then its not going to help at all :-(
ugh i too hated the 'oh its just morning sickness' comments. i WISHED and prayed to only have normal morning sickness!!!
fatigue is big part of it hun, work isnt going to help at all, its the last place u need to be right now so if there is ANY way of making ends meet then its worth it

have u tried mashed potato? that sometimes stayed down for me if i ate it a spoonful every 30mins or so...
 
I was so sick when i was pregnant, more than twice a day and fouldnt eat right at all. I was sick up to the labour. Docs wouldnt give me anything, they kept saying it would go away by week this and that and it never did. I was chucking so much I lost teeth. At the end I was getting up in the night at the exact same time to throw up! very weird that was. 4am on the dot. It was always after my breakfast not before. So I had to change what i ate so as it wouldnt hurt on the way back up. all these poeple where coming up and giving things to try, old wives tales most of them as i threw them all up to. Poeple where saying I wasnt normal . Even my other half said once I was making myself sick! said i would do damage to my baby being sick, which is untrue! I was voilenty throwing up, most the time I didnt get to the loo. It was horrible. i lost weight at the start )put it all on and more now though)/
Absolulty nothing that wasnt medical helped :( not with me. I didnt even get any medical things I was just told to drink loads.

Knocked my fear of vomitting out of me anyway. I know I couldnt be more sick in throwing up than I was then so nothing is as bad. I would get pregnant again, I just hope if i do I wont spent the whole time in the house either in bed or with my head down a loo choking.
 
metclorpromide works by emptying your stomach of food quickly, so if you are worst on an empty tum as i was then its not going to help at all :-(
ugh i too hated the 'oh its just morning sickness' comments. i WISHED and prayed to only have normal morning sickness!!!
fatigue is big part of it hun, work isnt going to help at all, its the last place u need to be right now so if there is ANY way of making ends meet then its worth it

have u tried mashed potato? that sometimes stayed down for me if i ate it a spoonful every 30mins or so...

I didn't know it worked by emptying your stomach quickly, your a fountain of knowledge on this thanks lol! I phoned the gp and I'm to make an appointment tomorrow she says there's one more tablet I can try before its injections. Has anyone else had injections?

I know your right I really can't be at work right now, I just worry about my Dh working himself to hard, he's such a darling he wouldn't complain in the slightest. I'm also worried about people assuming I'm lazy because its just " morning sickness" :(

I'll try the mash potato thanks, Dh will have to make it when he gets home, I can't even go into the kitchen without being sick so all my "food" lol is on the coffee table :(

Tell me it gets better lol xxx
 
I was so sick when i was pregnant, more than twice a day and fouldnt eat right at all. I was sick up to the labour. Docs wouldnt give me anything, they kept saying it would go away by week this and that and it never did. I was chucking so much I lost teeth. At the end I was getting up in the night at the exact same time to throw up! very weird that was. 4am on the dot. It was always after my breakfast not before. So I had to change what i ate so as it wouldnt hurt on the way back up. all these poeple where coming up and giving things to try, old wives tales most of them as i threw them all up to. Poeple where saying I wasnt normal . Even my other half said once I was making myself sick! said i would do damage to my baby being sick, which is untrue! I was voilenty throwing up, most the time I didnt get to the loo. It was horrible. i lost weight at the start )put it all on and more now though)/
Absolulty nothing that wasnt medical helped :( not with me. I didnt even get any medical things I was just told to drink loads.


Knocked my fear of vomitting out of me anyway. I know I couldnt be more sick in throwing up than I was then so nothing is as bad. I would get pregnant again, I just hope if i do I wont spent the whole time in the house either in bed or with my head down a loo choking.

Thats terrible dragonfly!!! You poor thing. If you do get pregnant again please change doctors theres no need for you not to have any help you poor thing. :hugs:xxx
 
I tried Zofran for a couple of days and it didn't work out that well for me even though it sounds like it's the preferred drug. It's about $300 for the brand name drug but if you have good insurance, it could be worth it.

Instead, I take a Reglan tablet in the morning and fall back asleep for a couple of hours. Six hours later and every six hours thereafter, I use a Phenergen suppository. It has cut down on the vomitting but it hasn't completely eliminated it.

Q: How will you know if you need fluids?

I needed them twice and I feel like I could use some more but that means that I have to go all the way to the Emergency Room. Can we use those at-home tests for Ketones that people use on the Atkins diet?
 
I tried Zofran for a couple of days and it didn't work out that well for me even though it sounds like it's the preferred drug. It's about $300 for the brand name drug but if you have good insurance, it could be worth it.

Instead, I take a Reglan tablet in the morning and fall back asleep for a couple of hours. Six hours later and every six hours thereafter, I use a Phenergen suppository. It has cut down on the vomitting but it hasn't completely eliminated it.

Q: How will you know if you need fluids?

I needed them twice and I feel like I could use some more but that means that I have to go all the way to the Emergency Room. Can we use those at-home tests for Ketones that people use on the Atkins diet?

You can test for your own ketones but if you feel really awful you're best going to hospital. I knew I needed fluids because I was fainting, couldn't stand up and was almost seeing things

I'm worst in the mornings too which is why no tablets work for me xx
 
I know when I'm needing fluids because I start feeling really faint/dizzy. My doctor has advised whenever I do feel faint it's best to go to the hospital to get checked.

I've been signed off again today. I was off work from 6 weeks until just after 16 weeks. I was initially back on reduced hours which gradually increased until full time again but I just feel awful. I kept just leaving early and it wasn't helping. I've had another really bad day today so my doctor has signed me off again. :(
 
:hugs: to all the new girls. Sorry to have to find you here IYKWIM. Hoping for better days ahead for you all. Hope this thread is of use to you and that you find the moral support you need through these difficult days.


:flower:


XXX
 
i've just come out of hisptal with this :-( been suffering from 6 weeks to now!!! its nasty! and my thorat is soooo sore from being sick. also i work in call centre so thats not good either!! xxxxx
 
never ignore the signs of dehydration girls. i made the mistake of doing this at about 16 weeks because i REALLY didnt want to go back into hosp, and i ended up in a right state, deleriois, hallucinating, talking jibberish.. thats when its dangerous, it took bags and bags and bags of fluids and vits & potassium to put me right that time.
the main thigs to look out for are..
* dark urine / inability to pee
* chills / fever
* extreme thirst
* headache
* cramps
* blurred vision
*fainting / feeling faint / dizzy / head rushes

any of those and u need to see your dr / hosp right away!

i never had the injections, my gp said they didnt offer them for Hg, although i would gladly have taken them if id had half a chance! the zofran i got via IV each time i was in hosp, other than that it was just pills, its probably cyclazine your dr will try next, it worked best for me, although when you do have to throw them up they are VILE!

chins up girls, there IS an end, & for some it comes sooner than others, just keep fighting and fighting and dont give in to it, and you will get there!!! (and i GUARANTEE it will be worth it even tho i know now it feels like it wont!)
xxxx
 
Got back from the drs she made me an emergency appt, and she prescribed me prochlorperazine ( stemtil) so will start those today and fingers crossed they help.

I was sick in the drs surgery :( not fun. I couldn't do a wee sample either because I'm not drinking enough. I've to go back next week to see how these tablets go :) xxx
 
hope the stematil works for you hun... it made me very drowsy but in a way thts good cos it gets you a few hours sleep!
keep us posted xx

oh meant to add... some GP;s will prescribe ketostix so that you can monitor your keytones at home, that way you can keep a daily eye on how dehydrated you are x
 
hope the stematil works for you hun... it made me very drowsy but in a way thts good cos it gets you a few hours sleep!
keep us posted xx

oh meant to add... some GP;s will prescribe ketostix so that you can monitor your keytones at home, that way you can keep a daily eye on how dehydrated you are x

Thanks :) The drowsyness doesnt sound too bad lol. I've got some really bad chest/back pain and sleeping is agony at the mo so anything that helps would be great! I will ask about the ketostix, I actually think my mum might have some ( shes a nurse) I will ask her to.
xxx
 
isnt the public throwing up the worst...
i toow as sick at the dr's loads... and in the shop across from my house lol. and in the big giant marble reception at the hospital...and in the street loads, people esp love to stare at that one!
 
I hate the public throwing up. I even hate being sick in the toilets at work. At least being signed off I can stay in the house and be sick in my own toilet.

Kitty - I hope the stemetil helps you. :hugs:

NIfirsttimer - thank you for all your positive posts! It does make a difference knowing that there is an end to it.. eventually! xx
 
awhh thanks hun.. i remember how miserable it feels so if i can help you girls i will try!!
and trust me.. i wasnt always this positive lol!
 

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