hyperemesis sufferers unite!

[craftymum]

Might be a good idea to put it in the groups section, we could always ask them to make a sticky thread telling everyone about it so they'd know where to come looking. Haven't picked out any bedding yet but then the room is being used as a dumping grpund at the minute! We have to get Jenna's room done up first and get computer moved in there and take desk away as it's huge. There's just so much to do, it's really stressing me as feels like wer'e getting nowhere fast. Would be better if I wasn't sick cos then I'd be able to do more to help.

 

[craftymum]

Just been throwing up really bad again. Feel like crap. Think I'm just gonna lie down and sleep now.

 

[Sovereign]

I suffered like this all the way through so you all have my sympathy!

 

[craftymum]

Hey, how's everyone today? I feel crap already so not holding out much hope for the day ahead. I took terrible cramps in my tummy last night, they were very low and on the left hand side, almost like bad period pains, really scared me as I thought OMG am I going into premature labour or losing the baby. They settled after 20 minutes though.

I have pains in my ribs and everything, I think I must be really straining my muscles from all the puking.

So fed up with this, please let it stop soon

 

[NIfirsttimer]

morning all... notice how i didnt say good morning lol!

i tried the metclorpromide before bed last night... it worked in that when i was sick this morning there wasnt anything to bring up.. but i was there trying for about half an hr, and had to run 3 times to the bathroom to retch. not sure which is the lesser evil of the 2

the cramps louise.. i had terrible cramps at various stages.... they had me rolling about the bed in tears more than once.. i think we HG ladies maybe get them worse because of the muscle strain of throwing up so much.. they REALLY hurt so you have my full sympathy there hun. you are defo at the worst point now i think... another month or so and i bet you feel a lot better. think i was about 24 weeks when i started being sick a bit less, being able to eat more, and functioning a bit like a normal person does. i know that feels like forever away, but just take it day by day and you will get there eventually.
sending big big (but not too tight) hugs to you hun. xxxxxxxxxxxxxxxxxxxxxxx

 

[Rebaby]

I've had some tight pains too only in the past few days and they've had me a little worried so now i'm wondering if they're muscular from the straining rather than anything more sinister.

I had an awful night friday into early hours of saturday morning, i can't even tell you how bad. I felt like i'd gone to bed drunk and the room was spinning, i was so tired but i couldn't sleep because i knew i needed to throw up. I finally had a nice big vomit at 5am (lovely!) and decided i wouldn't be going to my friend's BBQ after all. Had a bit of a cry and fell asleep.

Then miraculously, yesterday was the best day i've had in weeks- i woke up late morning and felt sooo much better. I made it over to the BBQ and it was so good to get out, having not seen anyone for about 3 months! I had a little bit of salad, and then later when i'd kept that down i cooked a burger for myself inside and then fetched it out to finish off on the BBQ just to get the taste. It took me an age to actually eat it but i did enjoy it. Then half an hour later i got to taste it all over again so i decided not to push my luck and came home.

Started to feel like absolute crap again at 10.30 so took myself off to bed but slept a lot better- i think the day out wore me out! Been feeling rough this morning but i haven't eaten anything yet so not been sick either.

We get the keys to our new place on tuesday but to look at the house you'd have no idea we're moving, the packing is not underway at all. Even during my good moments it all feels like too much! We'll be moving in one carrier bag at a time at this rate!

 

[craftymum]

It's good to know the cramps are normal, I'd been having pains anyway but last night I really thought I was going to start labour or lose the baby and everytime I moved it was so sore too. I got up and had a nice long bath this morning so although I feel like crap, it has helped me relax a bit.
I know what you mean about the dry retching, I honestly think it's worse than being sick as at least when you're sick it gives you a bit of relief all be it short lived but dry retching is so painful too.

It's crap to see that the weather is so good and we're all to sick to enjoy it!
I hope you're right and this does get better for me in a month or so, it's just be nice to get out and see what the world looks like again - as for work, can't see me being able to go back while I'm pregnant, think I'd be better taking my hols like you did and just starting my mat leave early. It's hard enough to work through a normal pregnancy never mind if I was trying to recover from HG too.

Hope the rest of the day brings us all a bit of a break even just for one day.

 

[craftymum]

I've had some tight pains too only in the past few days and they've had me a little worried so now i'm wondering if they're muscular from the straining rather than anything more sinister.

I had an awful night friday into early hours of saturday morning, i can't even tell you how bad. I felt like i'd gone to bed drunk and the room was spinning, i was so tired but i couldn't sleep because i knew i needed to throw up. I finally had a nice big vomit at 5am (lovely!) and decided i wouldn't be going to my friend's BBQ after all. Had a bit of a cry and fell asleep.

Then miraculously, yesterday was the best day i've had in weeks- i woke up late morning and felt sooo much better. I made it over to the BBQ and it was so good to get out, having not seen anyone for about 3 months! I had a little bit of salad, and then later when i'd kept that down i cooked a burger for myself inside and then fetched it out to finish off on the BBQ just to get the taste. It took me an age to actually eat it but i did enjoy it. Then half an hour later i got to taste it all over again so i decided not to push my luck and came home.

Started to feel like absolute crap again at 10.30 so took myself off to bed but slept a lot better- i think the day out wore me out! Been feeling rough this morning but i haven't eaten anything yet so not been sick either.

We get the keys to our new place on tuesday but to look at the house you'd have no idea we're moving, the packing is not underway at all. Even during my good moments it all feels like too much! We'll be moving in one carrier bag at a time at this rate!

Big to you too, I'm sorry you'd such a bad time. I feel so sorry for you dealing with Hg and trying to move house at the same time.
I'm the same though, even if I just have a Docs appointment it really wears me out too and my docs is only a 5 minute drive away. It's so hard when all you want to do is have a normal life and it also makes you really jealous of women who have the perfect pregnancy. it's not fair
At least we all have each other to moan to

 

[NIfirsttimer]

you girls are fab.. i wish id had you two when i was in the throws of it all!

honestly, the cramping is totally normal, in fact i still get it after being sick, and roo is just fine. the dr told me unless theres bleeding, or its literally unbearable, its totally normal, especially low down on either side. hopefully gives u one less thing to worry about!

moving house! wow you are brave! just make sure that you dont overdo it hun, dont be carrying stuff or anything like that!

i think you are right about work louise. if at all possible, just stay off regardless of how sick you are at the time. one thing ive learnt is that even when the sickness dies down, it takes a good while after for the energy etc to return. it takes A LOT out of your body to be so sick for so long, its hard to tell whats 'normal' pregnancy fatigue, and whats a result of being in starvation mode for so long, but im pretty sure im still feeling the effects of it all, over and above 'normal' tiredness. work is the last thing you need to be worrying about. at the end of the day, its clear to anyone that theres no way you could be there right now, so you have nothing to fear or feel guilty about at all.
big hugs xxx

 

[craftymum]

That's good to know that the cramping is normal, it was pretty unbearable last night but it did pass after about half an hour. Probably like you say the strain from throwing up so much makes it worse for us.
Think I just feel bad about work as I know they don't really understand because 3 of them were all pregnant at around the same time and not one of them missed a single day off work and were all fine energy wise, they all worked right up to one or two weeks before their due date, which is great for them but it just means they don't really understand this as I guess I wouldn't have either before I had it, but they can't really argue with a doctors sick line.
At the end of the day it's my health and my baby's health that are the most important things and I'm sure now that they all have their babies they would put them before everything else too, it's really the same thing only we have to think about it more now than most do. I can't wait to start feeling a bit better even just enough to go out for a few hours on a Saturday shopping. After my scan on 2nd June, I might nip in somewhere on the way home to have a look at prams if I'm feeling up to it as that would cheer me up a lot I'm sure.

It's amazing that although there are only less than 2% of women who suffer with this that more is not known about it as 2% is still quite a lot when you take into account how many women get pregnant.
I'm quite lucky now in that 2 nurses in my GP's practice have both suffered HG too as all too often medical staff just brush it under the carpet and tell you it'll pass at 12 weeks, then 16 weeks etc etc and that was in Neely ward where you think they would know a bit more about it. Don't get me wrong although the nurses were really nice I felt like it's not really taken that seriously and I felt a bit neglected compared to the other patients who were in for different things. Maybe that was just me being paranoid, I don't know.

I was sick again after lunch and now I've sent Stephen out to get me some salt and vinegar crisps! The poor man is run ragged because of me, he's spent all morning sanding and cleaning walls to prepare them for painting which means he should be able to start painting them next weekend now, yay! I can't wait as it's really dire staring at grey plaster all day.

 

[Stilletto_Sam]

I know what you mean about the hospital hon. They only time I had any attention was when my drip needed changing or when it was medication time, otherwise I was ignored. I actually overheard the staff talking about me as "the Hyperemesis". Hateful. One would think that there would be some form of counselling or someone even vaguely interested to chat to, but no. Left until my urine was clear then sent home again.

I hope the maternity wing is more use!

to all you ladies today. Louise, I hope the crisps are nice and that they stay down. I had a takeaway curry last night (of all things!) and I enjoyed every bit of it PLUS it stayed down! I'm paying for it today though. I feel rotten but haven't been sick. That's always a bonus I suppose.


XXX

 

[NIfirsttimer]

lol at the curry staying down! its amazing that there seems to be no rhyme or reason to what stays down and what doesnt! i was able to keep random things down too, yet things like bread were straight back again!

neely was exactly the same for me. they kept opening my curtains and it was really annoying me, i was throwing up and retching constantly and i wanted some privacy, on my bay were 2 elderly ladies, one with alzheimers, who kept asking me if the baby was dead (not her fault but REALLY not what i needed to hear!) and a young girl with gynae issues who didnt say much. plus, they tell u to leave ur pee sample in the loo each time, and every time id hunt someone down to tell them it was there, and yet next time i went back it would still be there, usually along with someone elses i took to wandering around with it and handing it to someone. the last time i was in the dr put the drip in a really weird place, so every time my arm was slightly bent, the drip thing would start beeping and back up, they were having to come every flipping 5 mins to reset it, so i just watched to see what they were doing (was just pressing a button like) so i could do it myself. well, i only did it about 3 times before a very scary ward sister came and ate the face off me for it! i was only trying to save them the bother of coming to do it every 5 mins! i started crying and barked at her to move the bloody drip then, which they duely did lol! the food thing cracked me up too. having to lie there throwing up while everyone was eating smelly mince pie and veg... BLEEEUUGHGHGHGHGH. plus, sometimes i got soo hungry and really needed some toast, and it was such an effort to get any, usually involved asking about 5 people about 10 times. then when i asked for toast on the menu card, they would arrive with a full plate of food.. arghghghghhg id forgotten how bad it was!

ive not been too bad today, we went a drive to donaghadee with the dog, had a wee walk on the beach. its pretty much wrecked me but i felt ok while we were out, and even managed a milkshake on the way home! gonna just have a bath & chill tonight. the weather here this week is meant to be fab so im going to make the best of it and do nothing all week! (it will probably rain, and ill have to bloody do housework lol)

 

[craftymum]

wow that's great that curry stayed down, I can't even face hot food, haven't had any since I was 6 weeks. Fed up eating white bread too I normally hate the stuff.
Unfortunately my crisps came straight back up again and I feel awful again.

I hated that in Neely too, I could never find someone to tell them my sample was there and I remember one young nurse yapping at me one night cos I couldn't give her a sample - hello dehydration does not make this easy!! When I eventually did go I told her, then I told another nurse as it still hadn't been collected then in the morning I went to the loo and there it was just sitting there, I told the same nurse again and she just laughed and said we're bad!! They then swapped shifts and it was still there and another nurse was raging as she said that's really dangerous and how mix ups etc happen, I ended up having to write my name on it and there were a couple of student nurses so I just told them from then on as they always went and got them straight away.
The food was awful. I remember asking for toast and she bought me one slice this was at about 5:30 on my first day and I hadn't eaten since 7am that morning so I felt really hungry, a couple of hours later I asked for some more toast the same nurse said 'more!! You'll turn into a loaf at this rate' How one slice of toast made her thin this, I do not know!! They seem to forget that although we are being sick, we still need to eat to feed our babies and to try to ward off the nausea - really stupid when they tell you to eat little and often but then don't provide you with any food apart from ridiculous meals. I found it hard as being a vegetarian anyway the choices weren't exactly great, it was usually salad, omelettes or curry. I usually just asked for toast or for a cheese sandwich.
Hope when I'm in maternity ward I'm not there long enough to have to worry about meals as even if I was feeling great the food choices aren't great I hate hospitals. We have medical insurance through Stephen's work and I have stayed in the Ulster independant after an op before and it was great, I didn't want to go home! Unfortunately they don't cover hyperemesis they only cover certain complications of pregnancy which is rubbish or I'd have been straight up there instead of going to Neely.

 

[Rebaby]

Your hospital experiences sound horrendous I am still able to keep fluids down even if food is a bit of a "no go" so i am hoping i will be able to keep the dehydration at bay and not need an admission.

My GP practice doesn't prescribe anti-emetics in pregnancy so i'm just doing my best to muddle through without medication.

I am doing okay today though, i've had lucozade, a cuppa soup and 2 slices of toast throughout the day and haven't actually vomited once- it's a miracle!

I am feeling pretty rough now though- the evenings always seem to be worse and the later it gets the more sick i feel. I know i should just go to bed early sometimes but OH works until 9pm so i feel bad if i'm already asleep when he gets in and we basically don't get to see each other all day so i normally just try to stay awake at least for a little bit so we can catch up.

 

[craftymum]

how's everyone doing today? I feel really sick today, had a really bad day yesterday, was sick twice in the afternoon and 3 times last night. Have been sick this morning too.
On top of all that I have people making judgements on how sick I am and saying I should basically get up off my a@&e and get out and stop lying around feeling sorry for myself! If only it were that easy....I'd have been cured weeks ago, some people just really p@*s me off!

 

[Stilletto_Sam]

how's everyone doing today? I feel really sick today, had a really bad day yesterday, was sick twice in the afternoon and 3 times last night. Have been sick this morning too.
On top of all that I have people making judgements on how sick I am and saying I should basically get up off my a@&e and get out and stop lying around feeling sorry for myself! If only it were that easy....I'd have been cured weeks ago, some people just really p@*s me off!

What ignorant moron made those comments, Hen?


XXX

 

[craftymum]

My Aunt said it to my Mum, I know I should let it wash over me, but it's hard when you're feeling so crap to think that other people just think you're being lazy. I haven't even seen the woman in about a year. She claims to be a christian too!! Some people are just so ignorant.

 

[Stilletto_Sam]

My Aunt said it to my Mum, I know I should let it wash over me, but it's hard when you're feeling so crap to think that other people just think you're being lazy. I haven't even seen the woman in about a year. She claims to be a christian too!! Some people are just so ignorant.

I hope your Mum put her right in order that she could pray for you!!!!


XXX

 

[Stilletto_Sam]

Girls, what are your thoughts on acupuncture for MS/Hyperemesis?

I know I haven't suffered anywhere as long as you girls, but I am fed up waking every single morning feeling exactly the same way. I managed to throw up straight after breakfast and I have felt terrible so far all day. I'm actually starting to feel depressed and have resorted to just going to bed in order to sleep just to get some temporary relief from the relentless nausea.

I have made an appointment with the new Chinese Medical Centre in Ards. I spoke to Dr Shi and I am seeing her tomorrow. I have never tried complimentary medicine before and I'm a bit sceptical, but at the moment I would give anything a go. I asked about success rate for MS and she said it was about 50/50, so really, I dunno. £30 a pop is a lot for nothing, but on the otherhand....


How is everyone bearing up today?

XXX

 

[Rebaby]

Aww that's awful No one has said anything negative to me so far but a lot of people have rather unhelpfully pointed out that this could last all the way through now...not what you want to hear at all!

I had another terrible night sunday into monday. I managed to wait up for OH sunday night, he walked through the door at 10.30pm and i just literally had chance to give him a quick kiss before i had to sprint up the stairs to the toilet where i spent the next half an hour bringing everything back up that i'd eaten during the day (not much, but i'd had a cuppa soup and toast etc and had been feeling pretty pleased with myself up until then!)

So had a rough night again but then yesterday had an amazing day, a whole 24 hours with no vomiting and we had fajitas for tea and i managed to keep them down!!!!! It was incredible, i kept thinking "any minute now i am going to regret eating these" but i took it slow and it was a huge success. Threw up this morning first thing and we had to go out and collect the keys to the new place. The estate agents kept us waiting for ages to get the paperwork sorted and i kept thinking "if you don't hurry i am going to vomit all over your shiny office!" Luckily i didn't and i'm now safely back at home!

Hope everyone is having an okay day?