hyperemesis sufferers unite!

[lily2614]

I'm so glad I found this section. I had know idea there were so many people out there like me. I thought I was the only one. I was diagnosed with hyperemesis with my first pregnancy. I was in and out of the hospital during my pregnancy, it didn't hit me till I was around 7 weeks so waiting for it now (haven't quite hit 7 weeks yet)

I had to quit my job with my first pregnancy because it was so bad. My husband was traveling as well so my in-laws had to be the one to take care of me. I finally got some kind of relief around my 20th week. No medications helped me. I was given zofran through my IV when I was in the hospital and it never worked.

Does anyone ever find anything that does work??

 

[Marie81]

I was sick all day everyday with my last two pregnancies starting at wk 5. I couldn't eat or drink or take the medicine I needed for my kidney disease and lost 1.5 stone in weight both times. I ended up in hospital on IV treatment. I lost both pregnancies in the end

I have tried lots of antisickness meds: cyclizine, metoclopramide, ondansetron and found the best one by far to be ondansetron. With this medication I gradually managed to keep some food down and take my meds orally. I was still being sick but not as often.

This time my doctors have said they will put me on steroids from the start which has shown the most positive results with hyperemesis and is completely safe in pregnancy. I am seeing them tomorrow so will see what the plan is, I am about 6wks now.

It's truly horrible being so sick, and why do they call it morning sickness when it lasts all day and night?!!

 

[kirst76]

It's truly horrible being so sick, and why do they call it morning sickness when it lasts all day and night?!!

I've often wondered that myself marie!


ondansetron/zofran was the only thing that helped me lily, hope you can find something that helps this time around!

 

[mom2beagain]

Hi girls. So.... I didn't get to have my surgery. My insurance company doesn't want to cover the Zofran pump, so my high risk DR is making phone calls trying to get it covered. Also... the urologist that okayed my surgery was not here yesterday, and the attending decided that it was not in my best interest or the baby to have the surgery. I am still completely unable to urinate on my own, and have to self catheterize myself every two hours. My DR said I should plan on being here for at least another few days at the least to see if they can get my hyperemesis under control. Darn you hyperemesis. Anyone else absolutely HATE having it?

 

[kirst76]

I really feel for you mom2beagain and it sucks that you didn't get to have the surgery or get the zofran pump.
I hate having hyperemesis but love having babies!
Did you get terribly sick with your first baby?

 

[mom2beagain]

I really feel for you mom2beagain and it sucks that you didn't get to have the surgery or get the zofran pump.
I hate having hyperemesis but love having babies!
Did you get terribly sick with your first baby?

I didn't get sick with my first baby at all. I got home from the hospital last night... pump attached. My OB was finally able to convince my insurance carrier that it was medical necessary. Thank god. Hopefully now that I can keep stuff down my levels will return and my kidneys will fix themselves. I will post a pic in a little of my new best friend. It hurts a bit today... hoping that goes away soon.

 

[jl.]

I really feel for you mom2beagain and it sucks that you didn't get to have the surgery or get the zofran pump.
I hate having hyperemesis but love having babies!
Did you get terribly sick with your first baby?

I didn't get sick with my first baby at all. I got home from the hospital last night... pump attached. My OB was finally able to convince my insurance carrier that it was medical necessary. Thank god. Hopefully now that I can keep stuff down my levels will return and my kidneys will fix themselves. I will post a pic in a little of my new best friend. It hurts a bit today... hoping that goes away soon.

Hope you are okay I'm still struggling on at 36 weeks. Got the consultant on friday, don't know what they are going to say - Hopefully give me a date for induction instead of me continuing on 9 pills everyday just to stop me from being sick. So fed up now. Just wish i could get this baby out of me! This is my first baby and after my experience why hyperemesis I'll never do this again!

 

[mom2beagain]

I really feel for you mom2beagain and it sucks that you didn't get to have the surgery or get the zofran pump.
I hate having hyperemesis but love having babies!
Did you get terribly sick with your first baby?

I didn't get sick with my first baby at all. I got home from the hospital last night... pump attached. My OB was finally able to convince my insurance carrier that it was medical necessary. Thank god. Hopefully now that I can keep stuff down my levels will return and my kidneys will fix themselves. I will post a pic in a little of my new best friend. It hurts a bit today... hoping that goes away soon.

Hope you are okay I'm still struggling on at 36 weeks. Got the consultant on friday, don't know what they are going to say - Hopefully give me a date for induction instead of me continuing on 9 pills everyday just to stop me from being sick. So fed up now. Just wish i could get this baby out of me! This is my first baby and after my experience why hyperemesis I'll never do this again!

I completely understand. I am having a scheduled c-section because of a subchorrionic(?) hemorrhage that hasn't fixed itself. I told my husband I am having my tubes tied while they already have me open. I meet the qualifications now being married and having two children. My son has special needs, and this pregnancy is wrecking my body literally. We wanted this baby so bad, but after this I am done. I don't think my body could handle another pregnancy like this one. I read some posts with women who have had multiple pregnancies each one with hyperemesis, they are my heroes to keep doing it time after time. I couldn't hack it. The pump isn't really working so far. Vomited three times already this morning. The home nurse is coming at one, so I am going to talk to her, because the IV site in my stomach hurts like hell and is beat red. I am hoping it is just from my body adjusting to the IV and the medication being pumped into it 24/7. We shall see.

 

[jl.]

I really feel for you mom2beagain and it sucks that you didn't get to have the surgery or get the zofran pump.
I hate having hyperemesis but love having babies!
Did you get terribly sick with your first baby?

I didn't get sick with my first baby at all. I got home from the hospital last night... pump attached. My OB was finally able to convince my insurance carrier that it was medical necessary. Thank god. Hopefully now that I can keep stuff down my levels will return and my kidneys will fix themselves. I will post a pic in a little of my new best friend. It hurts a bit today... hoping that goes away soon.

Hope you are okay I'm still struggling on at 36 weeks. Got the consultant on friday, don't know what they are going to say - Hopefully give me a date for induction instead of me continuing on 9 pills everyday just to stop me from being sick. So fed up now. Just wish i could get this baby out of me! This is my first baby and after my experience why hyperemesis I'll never do this again!

I completely understand. I am having a scheduled c-section because of a subchorrionic(?) hemorrhage that hasn't fixed itself. I told my husband I am having my tubes tied while they already have me open. I meet the qualifications now being married and having two children. My son has special needs, and this pregnancy is wrecking my body literally. We wanted this baby so bad, but after this I am done. I don't think my body could handle another pregnancy like this one. I read some posts with women who have had multiple pregnancies each one with hyperemesis, they are my heroes to keep doing it time after time. I couldn't hack it. The pump isn't really working so far. Vomited three times already this morning. The home nurse is coming at one, so I am going to talk to her, because the IV site in my stomach hurts like hell and is beat red. I am hoping it is just from my body adjusting to the IV and the medication being pumped into it 24/7. We shall see.

oh god, I hope you are okay. x

 

[mom2beagain]

Alright... well not such good news on the HG front. Home nurse was here at 12:30... by 3pm I was at the DR having the pump removed. My stomach is terribly infected where the insertion site is. So... that was a good idea... apparently it didn't work out for me. BUMMER! So they said if I am not any better by Monday then I have to have a central line installed for feedings and fluids on a daily basis. Not so stoked about that, but whatever it takes to get through this pregnancy. I have since named lo "Parasite". I doooo loooooooooove her unconditionally (yes we found out the gender from a scan... WOOOOOT!) but she is literally sucking the life out of me. Pregnancy... the ULTIMATE diet.

Hope all of you girls are feeling okay today. Got a craving for hot wings... its gonna suck coming back up... but either way I am eating them.

 

[mom2beagain]

Alright... well not such good news on the HG front. Home nurse was here at 12:30... by 3pm I was at the DR having the pump removed. My stomach is terribly infected where the insertion site is. So... that was a good idea... apparently it didn't work out for me. BUMMER! So they said if I am not any better by Monday then I have to have a central line installed for feedings and fluids on a daily basis. Not so stoked about that, but whatever it takes to get through this pregnancy. I have since named lo "Parasite". I doooo loooooooooove her unconditionally (yes we found out the gender from a scan... WOOOOOT!) but she is literally sucking the life out of me. Pregnancy... the ULTIMATE diet.

Hope all of you girls are feeling okay today. Got a craving for hot wings... its gonna suck coming back up... but either way I am eating them.

 

[kirst76]

oh man, mom2beagain, what a ride you've been on over the past few days!

I never got HG with my first either (different dad to my others) but have had it with the 3 subsequent babies. It was worse with my 2 year old and although bad at the start of this pregnancy has settled down so now I only feel nauseated not actually throwing up....I can cope with that!

 

[coxy1978]

Hi mom2beagain,

Sorry to hear how you are suffering at the moment...it sounds like youre having such a bad time.

Im on my fourth pregnancy, and have had HG each time... the 3 previous i had several hospital admissions with IV's, but thank goodness this time round, its been so much better. dont get me wrong - its been bad and not what i would call enjoyable, but its just not been AS bad s the others. There is hope. I suffered my worst in this pregnancy between6-8 weeks, where i felt absolutely like death, and was vommitting my own saliva every 30mins or so. But im now 15 wks and finally been 5 days without my medication. I just seem to have pulled through it somehow. in other pregnancies, i suffered badly up to 26 wks or so.

I feel for you so badly, as i know how awful HG can be - just keep reminding yourself of the reward at the end. i found that was the only way i could carry on.

Im interested to know what your kidney problem is all about tho? I have been suffering with strange right sided pain and experiencing more intense bladder and side pain when i urinate. before the pain started i kept complaining that i felt like i wasnt passing the amount of fluid i was drinking, and the fluid was just building up, then at night, when food began to digest, the water would finally come thro. I couldnt understand why this would be, but seems coincidence then that i ended up with all this crampiness and pain in my bladder and right side. I had a urine sample sent away, as docs tht i had a water infection but it came back neg. At the wkend just gone, the pain was so intense that i ended up in A&E as was 4am. But, they didnt really know what the pain was, but suggested possibility of a tiny kidney stone. The last few days ive been feeling a bit better again, and finally passing urine properly during the day. I had already wondered if my sickness and constant concentrated urine, was causing a prob for my kidneys... or is it the other way round! Or maybe nothing to do with my kidneys at all...but im quire confused what could have caused so much discomfort and crampiness.

xx

 

[PapaStylZ]

Alright... well not such good news on the HG front. Home nurse was here at 12:30... by 3pm I was at the DR having the pump removed. My stomach is terribly infected where the insertion site is. So... that was a good idea... apparently it didn't work out for me. BUMMER! So they said if I am not any better by Monday then I have to have a central line installed for feedings and fluids on a daily basis. Not so stoked about that, but whatever it takes to get through this pregnancy. I have since named lo "Parasite". I doooo loooooooooove her unconditionally (yes we found out the gender from a scan... WOOOOOT!) but she is literally sucking the life out of me. Pregnancy... the ULTIMATE diet.

Hope all of you girls are feeling okay today. Got a craving for hot wings... its gonna suck coming back up... but either way I am eating them.

Wow...you all are amazing for going through these problems...

 

[kirst76]

Coxy, it does sound like a kidney stone to me as well....didn't they do a scan to check?

PapastylZ - we women are amazing creatures and we need to be treasured and looked after!

 

[MarcsMrs]

Oh girls Im so glad I found this thread!

Im 15 weeks & have been suffering with HG since I was 6 week, 2 hospital admissions & lots over a stone & 1/2 in weight! Im so miserable & fed up throwing up I cant keep much down, even water & its really taking its toll on my body! We tried so hard for this baby & now Im just miserable all the time, I feel so bad for moaning too & no-one really understands A friend of mine said to me the other day "its just morning sickness, lots of women have it"......REALLY??? I got so upset I had to get my hubby to ask her to leave my house!

I just want to be able to eat.....my body is crying out for food & theres nothing I can do

 

[jl.]

Seen the consultant today and because of my HG they are bringing me in in two weeks time. The 23rd of december and doing an internal. If my cervix is favourable they are going to give me a date a few days later to come back and be induced as they want to give me "light at the end of the tunnel" and not let me go on to 42 weeks. So i'd be getting induced at 38 weeks. Hope that happens!

 

[kirst76]

marcsmrs - huge hugs.....no one understands unless they or a close friend/family member has been through it. I understand completely and even though your baby is completely loved and wanted it doesn't stop you from feeling like utter crap all the time. Take it easy and come here to bitch and moan anytime!

jl - its great that you finally have light at the end of the tunnel!!! Hope bubs comes sooner rather than later!

 

[stellargaze]

Wow, you ladies really give me strength. I'm finally vomiting less though the nausea just won't go away and I still am not gaining any weight or getting enough food in.

mom2beagain you are amazing as it sounds like you have it so bad right now! I am wishing you all of the best and the strength to persevere so that you can hold your healthy and much loved LO.

I know others have said it, but I feel the same. So glad to be pregnant, but can't do this again. It's my first and I have moments when I feel how much I love my LO and get excited, but a lot of the time it's hard to focus on anything other than how awful I feel.

Wondering if anyone has tips on getting calories in? I'm still not getting enough... people keep telling me to see a nutritionist, but I don't think they understand the probelm isn't knowing what to eat, but actually being able to eat it and keep it down. I know I'm far under recommended calories and protein levels, but I have managed supplements most days this week.

 

[Amelia Pond]

I am 34 weeks and have been so sick since week 5. In and out of hospital, hooked up to IVs and I am still on a cocktail of medications. I can't remember what it is like to feel normal and that my sanity is starting to stretch a little.... I am tired, weak, just wiped out all the time and now I am starting to panic that I am not going to have the strength I need during labour to see it through! Anyone have any experience of this? After hyperemesis did you manage the birth ok?