hyperemesis sufferers unite!

[Guppy051708]

Im so glad to have found this group! I was diagnosed with HG last week, but i thought i had it before. I started throwing up at at 9DPOs-no lie. It has been horrid. This is baby #3 (pregnancy #4) and i knew right off it wasn't normal MS. All day and all night nausea and vomiting. Have been in tears a lot. I really dont know how much more of this i can take. I finally got my insurance to cover the zofran (last week, im 9 weeks tomorrow), and thats helped not throwing up but my stomach feels uncomfortable all day and all night and i always feel like im going to throw up. I have to force myself to eat bc even just thinking about food (even foods i usually like) make me want to vomit. Then seeing it on the plate does a number. Ugh. i feel so hopeless, like i will never enjoy food or life again. This thing is controlling my mind and i hate it. I had bad MS with DS2, but it was never beyond normal MS. I just want someone to shoot me out of my misery. I know i must sound crazy but i just cant take it anymore

really sorry to just load this on everyone.

 

[missy1]

Im so glad to have found this group! I was diagnosed with HG last week, but i thought i had it before. I started throwing up at at 9DPOs-no lie. It has been horrid. This is baby #3 (pregnancy #4) and i knew right off it wasn't normal MS. All day and all night nausea and vomiting. Have been in tears a lot. I really dont know how much more of this i can take. I finally got my insurance to cover the zofran (last week, im 9 weeks tomorrow), and thats helped not throwing up but my stomach feels uncomfortable all day and all night and i always feel like im going to throw up. I have to force myself to eat bc even just thinking about food (even foods i usually like) make me want to vomit. Then seeing it on the plate does a number. Ugh. i feel so hopeless, like i will never enjoy food or life again. This thing is controlling my mind and i hate it. I had bad MS with DS2, but it was never beyond normal MS. I just want someone to shoot me out of my misery. I know i must sound crazy but i just cant take it anymore

really sorry to just load this on everyone.

Guppy, you poor thing.
You will get a lot of support from the ladies in this group. I felt better just conversing with them when I was in my darkest days of HG a month or so ago. I'm over the worst of it now at 18 weeks and I was the same with my previous pregnancy. I'm know I'm very lucky that mine tails off at this stage. Some of the girls on here, who I'm sure will introduce themselves, have suffered it all the way through their pregnancy.
It is such a depressing illness, you sound really low right now and I have been there where I spent all day either throwing up or in tears. I found I got very down and that's only natural but you have to keep going and keep telling yourself this isn't forever. I know it probably sounds easy for me to say that now but I tried my best to keep focused on the final result although at times I did find it hard to feel enthusiastic about the baby and I feel guilty about that.
Do you have any family and friends you can talk to? I had my husband and mum who were great especially with taking care of my daughter but I think unless you have been through HG then you can never really understand how awful it is.
Well I hope you will come on here often and draw strength from the other ladies who are going through the same thing.
Thinking of you and hope this doesn't last too long for you xx

 

[Micha2]

Guppy please dont say sorry. Thats exactly what this group is for. Suffering hg is terribly depressing and we need all the help and support we can get during these dark days. How old are your other 2 and do you have anyone that can help with them?
My story is that Im 34 weeks pregnant with third baby (5th pregnancy). Had to use fertility to conceive this one and have had hg with ALL my pregnancies (yep Im insane). Lucky for me it always starts tapering off around the 16 week mark.
I come on here still though to support those still going through it as they were the darkest days of my life. How much zofran are you taking? I was taking 8-12 mg a day in 2-3 doses. It didnt really help with the nausea but did lessen the vomiting. And believe me that makes a difference! Ive been through hg pregnancies with no access to zofran and theres just nothing left in you.
Another thing i found really helpful was before bed take half a unisom (aka restavit) and 25mg vitamin B6 together.
If you feel you are getting dehydrated get to hospital for IV fluids. Hydration is the most important thing.
We are all here for you sister

 

[SarahPip]

How did I not know about this thread?????

Been suffering since 5 and half weeks. Hopefully only 7 more to go

Hope u ladies are feeling ok.

 

[Squishy1982]

Hi to the newbies

Sorry you are all suffering so much. I am 25 weeks with baby number 2 and still suffering, things do feel like they are getting a bit better.
I was admitted to hospital for the first time a few weeks ago for fluids. It was the last thing I wanted but am so glad that I did. If they could hook me up at home I would love it lol.

I will have my baby girl at 38 weeks due to gestational diabetes so just 13 weeks to go. I am hoping that some of those 13 weeks will be sick free as I have only had 1 sick free day since september.

lots of hugs to you all, make the most of any support you have and look after yourselves xxx

 

[mummySS]

Welcome to the new ladies, although i'm sorry that you have to be on this thread! HG is a horrible and misunderstood condition, and can be unbelievably lonely and depressing, so this thread has been such a great support from me. I'm on my 2nd HG pregnancy but i can safely say that at 18 weeks the HG has gone and has been replaced by regular 'morning sickness', which is still not pleasant but is a huge improvement on HG. I hope yours disappears sooner rather than later...

 

[iluvmyfamily]

It's SO nice to see someone actually thought to make a thread about HG sufferers!! This is my 6th pregnancy, I have 4 kids and had one miscarriage, and I have had HG in all of my pregnancies. Right now I'm still early on so I dunno what will be, but HG usually hits me at 6 weeks. In every single one of my pregnancies I've been hospitalized soo many times. First pregnancy I was only 19 and had no clue what it was. My ob gyn at that time had no clue what it was. I remember being 7 weeks pregnant, vomiting nonstop and sitting on my mom's laptop typing in my symptoms when HG popped up. I printed it out and brought it over to my doctor the following day. She was amazed she never heard of it before and even more amazed that I, her SICK patient, diagnosed myself. She put me on Reglan which did nothing for me but give me anxiety attacks. My HG stopped at 16 weeks. I was blah for the rest of the pregnancy but no longer vomiting. I can't count how many times I was hospitalized. I was 114 pre pregnancy, lost 98 lbs! In my second pregnancy, again it started at 6 weeks. I was in and out of the ER for dehydration. I threw up blood and couldn't even stand up. I was put on Zofran. I was sick from 6 weeks until 13 weeks. In my third pregnancy I lost my baby early on so not enough time to truly be sick. Fourth pregnancy, NIGHTMARE. Probably the worst pregnancy I ever had when it came to HG. I was sick from 6 weeks to 10 weeks but within those 4 weeks I was in and out of the ER, one time went in at 8 weeks, didn't come out until 10 weeks. I had lost EVERYTHING, potassium, all my iron so I became severely anemic. A priest was sent to my room because they thought either I Was gonna die or the baby was gonna die. I was faced with a medical abortion and I said no. In that pregnancy I didn't just vomit all day every day but I also had Ptaylism...can't spell it but it's excessive salivation during pregnancy. It didn't go away until 10 weeks. I couldn't stop spitting, even if I wasn't nauseous!! I had issues in that pregnancy even after HG stopped, which honestly it never did as I was on Zofran until 8.5 months pregnant, which was when I went into labor. I had pre term issues with that pregnancy. Then my fifth pregnancy, 6 weeks until 12 weeks. But I was on the Zofran pump. Nurse came to my house to hook me up and check up on me. I was hospitalized 11x in 6 weeks, even WITH the pump still attached to me. It was a nightmare. I had issues with that pregnancy too when it came to pre term. My cervix kept opening and closing on its own. I had anemia, my water broke two times in my 3rd trimester. I went past my DD and I had to be induced, and my son came out sick because I'm RH negative and he was in the NICU for days. He's perfectly fine now thank God!! Anyhow, sorry this is SO long. I'd say my worst two pregnancies were my 1st and 4th. I'm early on in this pregnancy so I dunno what's gonna happen like I said but I pray to God every single day and night that HG skips me!!!

I hear they came out with a new anti nausea drug. I can't remember the name but it starts with a G.

 

[SarahPip]

Wow. U have had some really shitty times. I'm so sorry for u. It's the worst thing I've ever experienced so can't imagine how u feel after multiple pregnancies.
I really hope it stays away. God knows u deserve it.

Thanks for the welcome ladies. Wish I'd have found this thread during my darker days. Since about 30 weeks my hg stopped and I'm more or less just regular morning sickness. Happy with that though! Xxxxxxxxx

 

[missy1]

It's SO nice to see someone actually thought to make a thread about HG sufferers!! This is my 6th pregnancy, I have 4 kids and had one miscarriage, and I have had HG in all of my pregnancies. Right now I'm still early on so I dunno what will be, but HG usually hits me at 6 weeks. In every single one of my pregnancies I've been hospitalized soo many times. First pregnancy I was only 19 and had no clue what it was. My ob gyn at that time had no clue what it was. I remember being 7 weeks pregnant, vomiting nonstop and sitting on my mom's laptop typing in my symptoms when HG popped up. I printed it out and brought it over to my doctor the following day. She was amazed she never heard of it before and even more amazed that I, her SICK patient, diagnosed myself. She put me on Reglan which did nothing for me but give me anxiety attacks. My HG stopped at 16 weeks. I was blah for the rest of the pregnancy but no longer vomiting. I can't count how many times I was hospitalized. I was 114 pre pregnancy, lost 98 lbs! In my second pregnancy, again it started at 6 weeks. I was in and out of the ER for dehydration. I threw up blood and couldn't even stand up. I was put on Zofran. I was sick from 6 weeks until 13 weeks. In my third pregnancy I lost my baby early on so not enough time to truly be sick. Fourth pregnancy, NIGHTMARE. Probably the worst pregnancy I ever had when it came to HG. I was sick from 6 weeks to 10 weeks but within those 4 weeks I was in and out of the ER, one time went in at 8 weeks, didn't come out until 10 weeks. I had lost EVERYTHING, potassium, all my iron so I became severely anemic. A priest was sent to my room because they thought either I Was gonna die or the baby was gonna die. I was faced with a medical abortion and I said no. In that pregnancy I didn't just vomit all day every day but I also had Ptaylism...can't spell it but it's excessive salivation during pregnancy. It didn't go away until 10 weeks. I couldn't stop spitting, even if I wasn't nauseous!! I had issues in that pregnancy even after HG stopped, which honestly it never did as I was on Zofran until 8.5 months pregnant, which was when I went into labor. I had pre term issues with that pregnancy. Then my fifth pregnancy, 6 weeks until 12 weeks. But I was on the Zofran pump. Nurse came to my house to hook me up and check up on me. I was hospitalized 11x in 6 weeks, even WITH the pump still attached to me. It was a nightmare. I had issues with that pregnancy too when it came to pre term. My cervix kept opening and closing on its own. I had anemia, my water broke two times in my 3rd trimester. I went past my DD and I had to be induced, and my son came out sick because I'm RH negative and he was in the NICU for days. He's perfectly fine now thank God!! Anyhow, sorry this is SO long. I'd say my worst two pregnancies were my 1st and 4th. I'm early on in this pregnancy so I dunno what's gonna happen like I said but I pray to God every single day and night that HG skips me!!!

I hear they came out with a new anti nausea drug. I can't remember the name but it starts with a G.

Oh my god! You have been to hell and back.
You are a bigger and braver person than me to have gotten pregnant so many times considering all the complications you've had. I'm done at 2. I'm not strong enough to go through HG again and bless this little child in my belly but god forbid something was to happen to he/she then my daughter would be an only child. I take my hat off to you for going through all that and I hope this pregnancy is not as bad as the others xx

 

[Squishy1982]

Hats off to you for going through it so many times, I always thought I would have 3 kids but after this pregnancy I will be stopping at 2!

 

[cupcake23]

Hello ladies, I'm not pregnant but thinking of ttc #3 however reading the posts on this group this is great contraception!

I had HG in both pregnancies, worse with my last, off work from 5 to 16 weeks due to the non stop N&V plus the lovely gift of Ptyalism, the depression that engulfed me in those weeks were horrific

I didn't use BnB in early pregnancy, this would have been great support.
From 16 weeks I was still vomiting but less than the >20 a day I was experiencing, I had both children at 38 weeks (spontaneous labours) the only relief was the fact that I naturally stopped vomiting a couple of days before labour started.

I'm not sure I have the strength to go through another pregnancy, plus putting my family through the stress of being ill would not be fair. Oh I don't know... Hats off to the ladies with more than 2 kids, I don't know how you've done.

All the best to the ladies still suffering x

 

[missy1]

Cupcake23 chances are you won't get it. None of my friends have had it. Only my aunt had it with her two pregnancies so don't worry or let it put you off. There's probably lots of people wonder why HG sufferers risk getting pregnant again and going through that hell, its hard to understand this illness unless youve been through it, but mother nature has a way of making you forget how bad it was. I had also convinced myself that 'every pregnancy is different' and I wouldn't be unlucky enough to get it again. Little did I know. In my darkest days of HG hell just a few months ago I was beating myself up about getting pregnant again and questioning my sanity. Was it really so important to have another child? But now I'm lucky to be over the worst I feel happy and blessed to be having another baby and to give my daughter a sibling. When she was born and I looked at her beautiful little face for the first time HG felt like a distant memory from another life time.

 

[iluvmyfamily]

Hey girls I have a question. Do any of you girls with HG know your hcg levels? I ask because this is my 6th pregnancy and in all my pregnancies (not counting this one yet) I had severe HG. Hospitalized for weeks on end, vomiting over 40x a day, IVs, lost so much weight and potassium, became anemic, had the Zofran pump in my last pregnancy. I was sooo sick in all of them and although I never knew what my levels were because I never thought to ask and I never had a doctor ever really tell me until now, my levels now at 4w5d is 2,047. She said that's actually very normal for where I am. I read women with HG have levels like 60,000 and more even in the early weeks of pregnancy. I'm just curious what your levels were? Does it sound like I may end up with HG by my levels or maybe this time it's gonna skip me??

 

[iluvmyfamily]

It's SO nice to see someone actually thought to make a thread about HG sufferers!! This is my 6th pregnancy, I have 4 kids and had one miscarriage, and I have had HG in all of my pregnancies. Right now I'm still early on so I dunno what will be, but HG usually hits me at 6 weeks. In every single one of my pregnancies I've been hospitalized soo many times. First pregnancy I was only 19 and had no clue what it was. My ob gyn at that time had no clue what it was. I remember being 7 weeks pregnant, vomiting nonstop and sitting on my mom's laptop typing in my symptoms when HG popped up. I printed it out and brought it over to my doctor the following day. She was amazed she never heard of it before and even more amazed that I, her SICK patient, diagnosed myself. She put me on Reglan which did nothing for me but give me anxiety attacks. My HG stopped at 16 weeks. I was blah for the rest of the pregnancy but no longer vomiting. I can't count how many times I was hospitalized. I was 114 pre pregnancy, lost 98 lbs! In my second pregnancy, again it started at 6 weeks. I was in and out of the ER for dehydration. I threw up blood and couldn't even stand up. I was put on Zofran. I was sick from 6 weeks until 13 weeks. In my third pregnancy I lost my baby early on so not enough time to truly be sick. Fourth pregnancy, NIGHTMARE. Probably the worst pregnancy I ever had when it came to HG. I was sick from 6 weeks to 10 weeks but within those 4 weeks I was in and out of the ER, one time went in at 8 weeks, didn't come out until 10 weeks. I had lost EVERYTHING, potassium, all my iron so I became severely anemic. A priest was sent to my room because they thought either I Was gonna die or the baby was gonna die. I was faced with a medical abortion and I said no. In that pregnancy I didn't just vomit all day every day but I also had Ptaylism...can't spell it but it's excessive salivation during pregnancy. It didn't go away until 10 weeks. I couldn't stop spitting, even if I wasn't nauseous!! I had issues in that pregnancy even after HG stopped, which honestly it never did as I was on Zofran until 8.5 months pregnant, which was when I went into labor. I had pre term issues with that pregnancy. Then my fifth pregnancy, 6 weeks until 12 weeks. But I was on the Zofran pump. Nurse came to my house to hook me up and check up on me. I was hospitalized 11x in 6 weeks, even WITH the pump still attached to me. It was a nightmare. I had issues with that pregnancy too when it came to pre term. My cervix kept opening and closing on its own. I had anemia, my water broke two times in my 3rd trimester. I went past my DD and I had to be induced, and my son came out sick because I'm RH negative and he was in the NICU for days. He's perfectly fine now thank God!! Anyhow, sorry this is SO long. I'd say my worst two pregnancies were my 1st and 4th. I'm early on in this pregnancy so I dunno what's gonna happen like I said but I pray to God every single day and night that HG skips me!!!

I hear they came out with a new anti nausea drug. I can't remember the name but it starts with a G.

Oh my god! You have been to hell and back.
You are a bigger and braver person than me to have gotten pregnant so many times considering all the complications you've had. I'm done at 2. I'm not strong enough to go through HG again and bless this little child in my belly but god forbid something was to happen to he/she then my daughter would be an only child. I take my hat off to you for going through all that and I hope this pregnancy is not as bad as the others xx

Thank you for reading my story and commenting. I still look back and wonder how I made it and how am I pregnant again today but I believe that God makes us forget so we do it over and over again. My mom has gone as far as recording me throwing up in my last pregnancy so that I won't think of having another and while I wasn't thinking about having another 100%, it did cross my mind and I guess that's how I ended up pregnant now. I let DH do it one time inside and boom, here I am lol. I say it's what's mean to be, ya know? But you're strong too! Just going through it ONCE and sticking through it is brave and strong enough!

 

[CarliCareBear]

Reading these stories really is great contraception! My HG was so bad during my pg that my OB advised me never to have children again and adopt. She believes that another pg could kill me because the last one almost did a few times. I never figured out my Hcg but it's easy for me to say it had to be ridiculously high- with my HG not only did I need to throw up constantly I also had this horrible surging infection feeling in my whole body- i'm not sure if any of you have had to withdraw from medication but that's what it felt like- constantly WDing.


I never have believed in abortion but honestly if I got pregnant again I might consider it. Isn't that disgusting? It makes me feel bad but it's the truth.

 

[Micha2]

No CarliCareBear its not disgusting. Some people might think it is but thats because theyve never walked a mile in your shoes. I would never, EVER judge a HG woman for her choice.

Cupcake (i think thats who was considering #3) I have to tell you, I have had HG with all 5 pregnancies and it never gets any easier This is only my 3rd baby though. I had 2 with my first husband then remarried and he didnt have any kids so we wanted #3. Had a bit of a journey but got there in the end with fertility help (so for me, a different dad made no difference to my HG. After my second I also researched HG for years to try and arm myself with the best chance possible of not having as hard a time. I think unless you REALLY want another 1 and are prepared to go through HG again then you shouldn't do it.

To whoever was asking about hcg levels. From what I understand its not that our hcg levels are any higher. Its just the way we react to it. I see it as being 'allergic' to hcg. I really do wonder if they'll ever find a cure or if anyone is even trying to.

As for me, hg well and truly out my system now and just enjoying all the other joys, aches and pains of pregnancy! Not that Im complaining! Anywhere between 3&5 weeks until i get to meet my little one!

 

[HGsurvivor05]

Hi ladies I am glad I have finally found a HG thread.
I suffered with DD from 4wks right up until I gave birth the whole experience was traumatic getting admitted in and out of hospital. I feel I was treated badly and Doctors and midwifes have a lack of Knowledge on the whole illness. They left me far too long without even trying meds and when they did I was too ill to swallow anything. I cried I was exhausted I like many others wanted it to stop. I was then told it was all in my head and psychological and remember midwife talking behind my back to my Mum about how it was all in my head I felt like I should be locked up. I then went onto have a pretty bad labour and needed transfusion.
Anyway my DD is 7 next month and for years I have been mentally and emotionally scarred but this last year my feeling and determination to add to our family has returned, my DD longs for a sibling and we originally always wanted 2 of a family. I was petrified to speak to hubby about it but my friend spotted it when I was holding her baby she told me to talk with hubby and do what we thought was best and so I did and we both decided we are going for it. I have a 6 month plan before we TTC which I know as soon as it hits it will be out the window but in the initial 6 months I have began Milk thistle and B6 vitamins looking at family who will support, looking at my employment and contract in regards to sick leave also making sure these next few months with DD are spent well and that when I do fall she knows what to expect. She understands what we have told her about how I was when were pregnant with her but seeing it for real if it does happen will be a different story. I Im trying to be pro-active I understand there is no way of preventing HG but if I can prepare myself/daughter/family then thats one step further along than I was last time!.
I have appointment with my Nurse in next couple of weeks to review my pill so will discuss plans with her and hope that I can get some kind of health plan put in place this time and get them prepared.
We will be TTC from August so if there are any other ladies WTT would be great to buddy each other when it comes.

And big hugs to all the ladies suffering at the moment. x

 

[CarliCareBear]

Hey HGsurvivor, I would definitely take a look all over helpher.org, there is tons of info that you can bring to your doctor about all kinds of meds and everything- look through it well, maybe look on the forum some to see if you can get any other questions answered and write out some sort of protocol that you expect the docs to use (ex. I will start taking unisom, b6 or zofran at 4 weeks if I have HG symptoms). Hope that helps. You are embarking on an incredibly brave journey... I don't think I can go through it again. In five years... We'll see. Much love to all of you who are suffering so badly. My heart goes out to each and every one of you. When I hold my sweet baby at night, I think of all you girls and send a wish out that you will remember that it really is worth it in the end.

 

[HGsurvivor05]

Thanks for advice, I have found a lovely lady who also stays in Scotland like me and has survived 3 HG pregnancies so she has updated me on whats on the go in Scotland in regards to medication and care she says since having her last child a year ago the staff seem more knowledgeable from when she had her other 2. I am going to prepare my protocol and ask them exactly what there protocol/procedure are for treating and supporting HG sufferers as last time it was new to me and they knew very little about HG. It the most horrendous feeling as you know and like I said before I was never going back but feel the time is now right. Believe me I am petrified more of being hospitalized as don't want to be away from my daughter would accept it if I could deal with it in my own home but as you know when it hits you have no power over your body, hormones or pregnancy. I am preparing for the worst if that is possible LOL x

 

[Squishy1982]

Hi all,

hope you are all well.
Update on me, I am finally turning a corner, still being sick most days (on the 5 days that I haven't been since sept the nausea cripples me) but find that if I can be sick first thing then I don't feel too bad.
I finally feel like I am coming out the other side now xx