Hypermobility

[MissFox]

At 17 wks I started having issues and was told there was NO POSSIBLE WAY it was what I was telling everyone until I brought info on it to the Dr. My baby is 17 months and my body has never gone back to normal. I wish you both luck!! My epidural and spinal didn't work so my csecion was done under general. It is great knowing that they wont work next time though lol

 

[SarahDiener]

Yeah, I think it would be best if I got checked to make sure it will work for me!

 

[Gemini85]

I've got it, and have had SPD since 6 weeks. Getting worse and worse. Driving seems to make it really bad! My doc says it can't effect labour etc?! X

 

[Rowan75]

driving is a nightmare Ive found - Ive been signed off work for a month already as I couldnt drive and work wouldnt let me work from home

 

[Gemini85]

Mine are refusing to let me work from home, but I don't get sick pay so just struggling on for now!!!! X

 

[Rowan75]

aye I dont get sick pay either but my hip has come close to dislocating so many times getting in the car and I can no longer work the pedals so I had to be signed off - I dont get mat pay either so we are Skint!

 

[lyshy]

I am hypermobile pretty much everywhere, nothing pops out of place but i have experienced SO much body joint pain, particuarly in my lower back and pelvic region.

I am now 6 weeks pregnant and so far so good, I am trying not to worry about the actual pregnancy, just hoping i can hold myself in place as i grow. here's hoping!

I am most concerned about having a vaginal birth and the baby passing through my pelvis and then it not going back into place.
It seems most hypermobile mums in this thread have had vaginal births. I am curious as to the upside of considering a csection to avoid my pelvis being possibly screwed for the rest of my life.

My physio that diagnosed me a few years back said if/when i get pregnant i will need to wear a brace to avoid my pubic bones moving too much as they may not come back to where they belong.

Confused.

Oh one tip though. I have found the FELDENKRAIS method incredibly helpful overall for managing hypermobility. I highly suggest it to anyone!!! works wonders and is so non obtrusive.

 

[Eleanor ace]

I am hypermobile pretty much everywhere, nothing pops out of place but i have experienced SO much body joint pain, particuarly in my lower back and pelvic region.

I am now 6 weeks pregnant and so far so good, I am trying not to worry about the actual pregnancy, just hoping i can hold myself in place as i grow. here's hoping!

I am most concerned about having a vaginal birth and the baby passing through my pelvis and then it not going back into place.
It seems most hypermobile mums in this thread have had vaginal births. I am curious as to the upside of considering a csection to avoid my pelvis being possibly screwed for the rest of my life.

My physio that diagnosed me a few years back said if/when i get pregnant i will need to wear a brace to avoid my pubic bones moving too much as they may not come back to where they belong.

Confused.

Oh one tip though. I have found the FELDENKRAIS method incredibly helpful overall for managing hypermobility. I highly suggest it to anyone!!! works wonders and is so non obtrusive.

Try not to worry,as your condition is mild I wouldn't think you'd have too many problems, the body is good at coping! Talk to your midwife about getting referred to a specialist pregnancy physio, they will give you advice on laboring positions, a support brace to wear if you need it and other helpful things! A C-section was never mentioned to me, although I was told that an epidural could be dangerous as you can't feel your legs so they could be moved too much resulting in pelvic/hip dislocation. So hopefully you won't need one.
My joints were actually loads better during pregnancy, I could count on one hand the number of dislocations I had, and I have only suffered occasional dislocations since .

 

[Rowan75]

my spd and hips were dreadful until marthas head engaged and then they imporved - hips arent back to my normal yet

i ended up with epidural and diamorphine as well when they were stitching me bsck together - was fine - bit patchy but they topped me up with a spinal - i was in stirrups too which was ok in terms of dislocation -but to be fair we were losing martha at that point so i coulndt have cared less what they did to me we just needed her out

 

[itsnowmyturn]

I want to thank all of you for this thread, i know it's old but the lack of information out there is unbelievable. I have both eds 3 and fibromyalgia, I also have endometriosis and adenomyosis, all of these can cause problems conceiving, carrying and giving birth. I have searched the internet all day and haven't got much information about how pregnancy can affect these things and vice versa so how can I expect my doctors to no??? It's amazing how much it can affect and be affected.
I have to wait to ttc until a course of medication is finished, i finish it in september and have to wait 12 weeks to try, so december is when i hope to try and then preg early next year. Until then I intend to get as much information as possible and prepare myself for carrying a baby.

Any tips anyone can give me feel free to email me, I would appreciate it

 

[SarahDiener]

Good luck with your TTC! I didnt find that my hypermobilty was a problem in pregnancy

 

[wishingtree]

I want to thank all of you for this thread, i know it's old but the lack of information out there is unbelievable. I have both eds 3 and fibromyalgia, I also have endometriosis and adenomyosis, all of these can cause problems conceiving, carrying and giving birth. I have searched the internet all day and haven't got much information about how pregnancy can affect these things and vice versa so how can I expect my doctors to no??? It's amazing how much it can affect and be affected.
I have to wait to ttc until a course of medication is finished, i finish it in september and have to wait 12 weeks to try, so december is when i hope to try and then preg early next year. Until then I intend to get as much information as possible and prepare myself for carrying a baby.

Any tips anyone can give me feel free to email me, I would appreciate it

Hi I tried sending you a private msg but I dont think you have that enabled on your profile. Send me a msg when you do- I have lots of info!

 

[itsnowmyturn]

[/QUOTE]

Hi I tried sending you a private msg but I dont think you have that enabled on your profile. Send me a msg when you do- I have lots of info![/QUOTE]

How do I do this?

 

[YorkshireGirl]

Hi all...
I have Joint Hypermobility Syndrome, diagnosed nearly a year ago. Since then i have progressivley got worse. I am in constant pain with my lower back, hips, knees, elbows and now my fingers and wrists. I am very limited to what i can do, even just housework such as hoovering and sorting the washing leave me in agony. I have just been back to my doctors this morning to get a second opinion with another doctor as the one who diagnosed me just kept fobbing me off with painkillers of which none work! I am now being referred to a rheumatologist for expert advive beyond a regular gps knowledge as they know very little about the condition. Its very possible that i may have some sort of arthritis on top of my JHS or it could also be Fibromyalgia. Whilst there i also asked her opinion on ttc as me n my partner are in our 2nd month of ttc#4......i have been told that i would find it very painful and would probably need physio aswell as the help of a maternity belt to help bear the weight. Im not sure how to feel about this i was so looking forward to a bfp. If anyone would like to chat to me about this please feel free it would be great to have someone to relate to.
Thanks xx

 

[itsnowmyturn]

Hi all...
I have Joint Hypermobility Syndrome, diagnosed nearly a year ago. Since then i have progressivley got worse. I am in constant pain with my lower back, hips, knees, elbows and now my fingers and wrists. I am very limited to what i can do, even just housework such as hoovering and sorting the washing leave me in agony. I have just been back to my doctors this morning to get a second opinion with another doctor as the one who diagnosed me just kept fobbing me off with painkillers of which none work! I am now being referred to a rheumatologist for expert advive beyond a regular gps knowledge as they know very little about the condition. Its very possible that i may have some sort of arthritis on top of my JHS or it could also be Fibromyalgia. Whilst there i also asked her opinion on ttc as me n my partner are in our 2nd month of ttc#4......i have been told that i would find it very painful and would probably need physio aswell as the help of a maternity belt to help bear the weight. Im not sure how to feel about this i was so looking forward to a bfp. If anyone would like to chat to me about this please feel free it would be great to have someone to relate to.
Thanks xx

I too have fibromyalgia and the information out there for both of these is very limited. I believe the fibro symptoms may get worse during the first trimester, with fibro tiredness is a huge part of it and you normally suffer from one or more sleep disorders, when you dont get enough restorative sleep your body begins to flare up as it then processes pain differently, I have found tiredness to be my biggest battle. The general symptoms of pregnancy i.e. tiredness can exacerbate the fibro massively and many people with fibro and pregnant have to take extra time out for themselves, extra sleep and feet up time. Also exercising in pregnant with fibro is even more important to keep the tendons and ligaments strong but obviously the pregnancy will affect these as well.

If you have problems with your knees and hips I would recommend those shoes with the curved heel, the sketchers ones, I have them and before I got them when my heel hit the floor it sent a jolting pain through my knees with every step, when I got them I found that as soon as my heel touched the floor because of the curved heel it pushed my foot forward into the natural walking curve which has stopped a lot of the knee pain, and in turn stops the hip pain to a great extent.

 

[mamaofthree]

Hi hun,

I have had hypemobility syndrome(Beighton score of 10) all my life, it has caused me many problems such as being born with congenital hip dysplasia which has lead to arthritis. I also have chondromyalcia of my knees, carpel tunnel, spd and sij dysfunction. (General pelvic misalignment)I get a lot of pain which is frustrating however all my babies were born at 37&38weeks. My labours are speedy however ranging from 4hrs to 37minutes. Good luck. xxx

 

[YorkshireGirl]

Hi all...
I have Joint Hypermobility Syndrome, diagnosed nearly a year ago. Since then i have progressivley got worse. I am in constant pain with my lower back, hips, knees, elbows and now my fingers and wrists. I am very limited to what i can do, even just housework such as hoovering and sorting the washing leave me in agony. I have just been back to my doctors this morning to get a second opinion with another doctor as the one who diagnosed me just kept fobbing me off with painkillers of which none work! I am now being referred to a rheumatologist for expert advive beyond a regular gps knowledge as they know very little about the condition. Its very possible that i may have some sort of arthritis on top of my JHS or it could also be Fibromyalgia. Whilst there i also asked her opinion on ttc as me n my partner are in our 2nd month of ttc#4......i have been told that i would find it very painful and would probably need physio aswell as the help of a maternity belt to help bear the weight. Im not sure how to feel about this i was so looking forward to a bfp. If anyone would like to chat to me about this please feel free it would be great to have someone to relate to.
Thanks xx

I too have fibromyalgia and the information out there for both of these is very limited. I believe the fibro symptoms may get worse during the first trimester, with fibro tiredness is a huge part of it and you normally suffer from one or more sleep disorders, when you dont get enough restorative sleep your body begins to flare up as it then processes pain differently, I have found tiredness to be my biggest battle. The general symptoms of pregnancy i.e. tiredness can exacerbate the fibro massively and many people with fibro and pregnant have to take extra time out for themselves, extra sleep and feet up time. Also exercising in pregnant with fibro is even more important to keep the tendons and ligaments strong but obviously the pregnancy will affect these as well.

If you have problems with your knees and hips I would recommend those shoes with the curved heel, the sketchers ones, I have them and before I got them when my heel hit the floor it sent a jolting pain through my knees with every step, when I got them I found that as soon as my heel touched the floor because of the curved heel it pushed my foot forward into the natural walking curve which has stopped a lot of the knee pain, and in turn stops the hip pain to a great extent.

Thanks for the reply sorry for delay havent been on for a bit. I dont really have problems when walking as such apart from that i have noticed the more on my feet i am all day the more my feet ache as though i have had stilletos on all day but i will bear in my mind your advice there thankyou.
Just hope i can get some answers asap.

 

[itsnowmyturn]

Hi all...
I have Joint Hypermobility Syndrome, diagnosed nearly a year ago. Since then i have progressivley got worse. I am in constant pain with my lower back, hips, knees, elbows and now my fingers and wrists. I am very limited to what i can do, even just housework such as hoovering and sorting the washing leave me in agony. I have just been back to my doctors this morning to get a second opinion with another doctor as the one who diagnosed me just kept fobbing me off with painkillers of which none work! I am now being referred to a rheumatologist for expert advive beyond a regular gps knowledge as they know very little about the condition. Its very possible that i may have some sort of arthritis on top of my JHS or it could also be Fibromyalgia. Whilst there i also asked her opinion on ttc as me n my partner are in our 2nd month of ttc#4......i have been told that i would find it very painful and would probably need physio aswell as the help of a maternity belt to help bear the weight. Im not sure how to feel about this i was so looking forward to a bfp. If anyone would like to chat to me about this please feuel free it would be great to have someone to relate to.
Thanks xx

I too have fibromyalgia and the information out there for both of these is very limited. I believe the fibro symptoms may get worse during the first trimester, with fibro tiredness is a huge part of it and you normally suffer from one or more sleep disorders, when you dont get enough restorative sleep your body begins to flare up as it then processes pain differently, I have found tiredness to be my biggest battle. The general symptoms of pregnancy i.e. tiredness can exacerbate the fibro massively and many people with fibro and pregnant have to take extra time out for themselves, extra sleep and feet up time. Also exercising in pregnant with fibro is even more important to keep the tendons and ligaments strong but obviously the pregnancy will affect these as well.

If you have problems with your knees and hips I would recommend those shoes with the curved heel, the sketchers ones, I have them and before I got them when my heel hit the floor it sent a jolting pain through my knees with every step, when I got them I found that as soon as my heel touched the floor because of the curved heel it pushed my foot forward into the natural walking curve which has stopped a lot of the knee pain, and in turn stops the hip pain to a great extent.

Thanks for the reply sorry for delay havent been on for a bit. I dont really have problems when walking as such apart from that i have noticed the more on my feet i am all day the more my feet ache as though i have had stilletos on all day but i will bear in my mind your advice there thankyou.
Just hope i can get some answers asap.

That can happen if ur arches r affected, my archers flatten as I walk, it makes my feet ache n makes me walk more on the inside of my foot, which is what causes my knee n hip pain. My physio said just a good sturdy sole would be good but insoles cud also help