Information about funding for IUI on NHS?? Help Pls!!

[g_and_t]

Hi there,

I hope someone can help.... I am so frustrated with all of this.

I'll try keep it short - DB and I have been trying for over 2 years now and NTNP for about 8 months before that, never had a BFP. I'll be 37 this year and DB 43.

For the last year things with the NHS were going great. I was sent for all the usual tests, DB had his SA done and all was good... I was sent for HSG, Lap, Hysteroscopy etc. All just came back clear.

about 6 months back when I saw the consultant, I had just finished a round of clomid and she said that another thing I could try was the lap. she said options after that included assisted conception and that I was lucky because I fell within Surrey and they offer 3 IUI's and then 1 fresh and one frozen IVF. I was thrilled but we agreed that it was probably best to get the lap out the way first, then they would discuss those results with me and if all clear i'd go on the waiting list.

had my lap in december. all good no issues. so i went yesterday for my review thinking it was the day id go on the wait list for IUI... and she said i dont qualify as I dont fall within the right borough!! i just stared at her.... she said kingston doesnt offer IUI and that id have to send away to see if they will grant me funding for 1 round of IVF but thats all i'd get and only in about a years time... what the hell??

I def didnt dream her saying that i'd get 3 IUI's... she even told me the wait list was 4 months roughly... i dont know what else to say. shocked, hurt, heartbroken and down right miserable right now.

we cant afford private IUI fees. i've been clinging to this hope all along and now i am faced with yet another year at least of waiting, and even then it doesnt always work first time.

So I want to know if anyone has had something similar and if you live in the kingston/surrey areas, can you tell me what funding you have been offered?

I intedn on writing to the clinic about this as its completely crushed me. i dont know how she can a) make a mistake like that or b) mess with peoples feelings..... my life has revolved around this for so long.... tests, ops, pain, heartache and now just sent on our way saying sorry if you were misinformed.

hope someone can shed some light about funding cos the nhs website is a waste of time...

thanks ladies xxx

 

[aimze]

Hi hun...try an contact your local PCT....

We had all the tests done an went straight into iui...

Definately take it further hun!

x

 

[g_and_t]

Hi hun...try an contact your local PCT....

We had all the tests done an went straight into iui...

Definately take it further hun!

x

thanks!!! which PCT were you with if you dont mind me asking??

xx

 

[aimze]

Im in the east midlands...as far as im aware were 3 iui an 1 ivf, not sure about frozen.

the only contact with my pct was filling forms out to say we have no children an never been convicted of any child offences!!!!!!!!!

x

 

[g_and_t]

Im in the east midlands...as far as im aware were 3 iui an 1 ivf, not sure about frozen.

the only contact with my pct was filling forms out to say we have no children an never been convicted of any child offences!!!!!!!!!

x

Thanks.... I see you had your IUI today!! fingers crossed for you hun... looks like youve had quite a journey and fair share of sad times too... loads of baby dust....

may I ask how long it took to get referred? I read somewhere today that even if I moved to another borough they may make us wait 12 months before being able to receive funding for IUI or IVF? I dont know how true that is....?

DB and I were potentially going to move closer to my mom when our lease expires and now think we def will, and ensure we find a PCT that offers treatment. Do you think they would just transfer my notes over?? Id hate to have to start from scratch again!!

xxx

 

[aimze]

there hasnt really been a wait for anything (apart frm a bfp!)

june 2011 approached dr as no joy ttc (i fibbed and said had been longer than 9months)

june 2011 tests for sperm/hormone levels

Aug 2011 more tests to confirm tests

Oct 2011 refereed to fertility specialist

Jan 2012 first apt and repeat of tests

Once all clear with HSG had first iui in May 2012.

I really hope this gets sorted for you. the postcode lottery is so cruel

Thank you for your kind words too...Our journey has been nothing but complecated and dissapointing but i feel 2013 is our year.

I also think our struggle an loss has made our relationship more solid so i see some positives!

x

 

[g_and_t]

there hasnt really been a wait for anything (apart frm a bfp!)

june 2011 approached dr as no joy ttc (i fibbed and said had been longer than 9months)

june 2011 tests for sperm/hormone levels

Aug 2011 more tests to confirm tests

Oct 2011 refereed to fertility specialist

Jan 2012 first apt and repeat of tests

Once all clear with HSG had first iui in May 2012.

I really hope this gets sorted for you. the postcode lottery is so cruel

Thank you for your kind words too...Our journey has been nothing but complecated and dissapointing but i feel 2013 is our year.

I also think our struggle an loss has made our relationship more solid so i see some positives!

x

Oh the tests def make us stronger!!! a bit bitchy and tearful at times but we bounce back hey!!

good luck hun i really hope this is the year for both of us xxx

p.s. do let me know how you get on with this IUI... will be holding thumbs for you xxx