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IVF and eggsharing

Beckic

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Hello

A little while ago Aflight posted about a clinic that offers free IVF in return for egg donation. Anyway - I gave them a ring today (AF turned up this morning so no xmas BFP for me and I needed to do something proactive to cheer myself up) and i chatted to one of the nurses there. So i thought i would post what they told me for 1. others who might want to consider it and 2. for the views from those currently going through IVF....

So basically how it works is that you have to pay for the initial consultation where they discuss whether you are eligible for the egg sharing programme and to give you more info on it. This costs £225 (or £125 if I attend their open day in January).
You then have to have blood work done (day 2 /3 test, infection screening and genetic screening) i have already had the day 2 /3 and they said that you can usually get the infectious diseases screening on the NHS. However the NHS dont like doing the genetic screening - so if they do it for you privately it will cost £550. (have left a message with my dr asking whether I could get this done on the NHS).

AFter this - providing you are ok - you then get matched to a recipient - they said that there is no waiting list as they have alot more recipients than donors. then you have to get into the same cycle as your recipient - which can take up to three months - and then together the two of you start the medication.

At the egg collection stage you have to produce at least 8 eggs.
if you dont the ivf is either abandoned OR you can pay £4000 and keep all the eggs for yourself and can carry on with the IVF.
If you do - they are shared with the recipient 50:50 - ie 4 each if you produce 8. This is apparently done on an equal basis - so the recipient does not get the four best ones.

You also need to pay the HEFA fee of £104.

If the first cycle fails you only ever need to pay the HEFA fee each next cycle that you share your eggs - you dont need the blood work done again.

It does sound quite promising - but I obv have loads of questions and was hoping some of the IVF girls could help me:

1. is it normal to produce at least 8 eggs?
2. of the 8 how many on average are good?
3. does my OH have to have some bloodwork done as well - as obv. this would increase the cost (aside from the SA's he has had on the NHS).
4. does anyone think this is a stupid idea and I should just wait for the NHS free round?

I basically have unexplained infertiltiy - all tests have come back great but no BFP after 2.5 years - but I have to wait another 6 months before I can even go on the NHS IVF waiting list - so am so desperate to just do something proactive - but cant justify paying the £4500.
I dont have a moral problem with the egg donation - but I am just worried about getting my hopes up and then not producing enough eggs and having to abandon the treatment.

Any thoughts girls'?

Bx x x x :hugs::hugs:
 
I am still considering this. It would be our second try making the free go the third and last. In fact I was in touch with a clinic in India hoping to get this done there but that fell off as they think I made too few eggs in the first try - I had 11 retrieved and of those, 8 were mature ánd good-.

To answer your questions as best I can:
1. there is no such thing as "normal" it all depends on many factors such as chiefly your age, your FSH and the treatment you get. -i.e. the lower the age the higher the probability the FSH is low indicating a good ovarian reserve and the higher the dose of meds the higher the probability to get many eggs, yet the worse the risk for OHSS (ovarian hyper stimulation syndrome)
2. many clinics never tell you how many are "good" as that is one loose definition. They will tell you how many are mature and you'll know how many fertilized but that is all.
3. yes, basic blood work, blood type, HIV, hepatitis and so on.
4. I don't personally but then again I'm mad and impatient myself so no help there :)
 
Good for you for calling. I'm still dealing with gynea's cock up at the moment as i already have 8 eggs! I wish i could share them right now as it seems such a waste!
I hope you get your answers soon x
 
Good for you for calling. I'm still dealing with gynea's cock up at the moment as i already have 8 eggs! I wish i could share them right now as it seems such a waste!
I hope you get your answers soon x

So sorry that things still crap for you hun - crossing fingers it all gets sorted.

Bx x xx :hug::hug:
 
I'm in the states and if this IUI doesn't work out, I will be doing a split cycle IVF. I will go on a donor profile and wait until someone wants my little eggies. I will then go through the same thing as IVF but give half my eggs to a recipient. It cuts the price of my in vitro in half, saving me around $7000.
 
Hey B

So any idea how long the wait will be for you on the NHS?

I know when we first found out, i wanted to pay as i was impatient but now i'm kinda just chilling with it and i guess by next August (hopefully) we'll have had our 1st cycle - also apparently the rules may be changing in April so that each PCT gets 3 goes of IVF rather than 1 which would be good??

I think if the free cycle doesn't work and we have to pay for ICSI which is 4.5k - i may consider egg sharing and also by then i would know how well my body responded to drugs.

If you are having ICSI then there is a 70% success rate of fertilisation, it just goes down when they implant it and i know it's 30% for my age group??

xx
 
Hi Rachelle

I cant go on the NHS waiting list till June as I have to wait till we have been TTC for three years as we are unexplained. Then god only knows how long the wait is for the IVF. I am under west herts pct and from the research I have done so far it looks like it is a 6 to 9 month waiting list. so i guess at best we would be starting our free IVF jan 2010. the new guidelines that come in in april dont have to be adopted as far as I can tell and west herts have said they dont have any plans to offer three as yet. so really - i just dont want to wait around for another year to put al my eggs in one free basket! i think that would only heap the pressure on.

Because we dont need ICSI it will cost us less than a grand for IVF if we do egg sharing and they said that I will be able to have my first round around March / april time. going into the new year I just feel so much better knowing it could be a matter of months rather than having to get through the next year. If it doesnt work out in april as long as I responded well to the drugs and was able to produce enough eggs I can keep on donating them and trying again for only the HEFA levy of £104 - i could therefore prob get another two in before I get to my free NHS go - and i reckon if that doesnt work then we call it quits and go down the adoption route.

i am just tired of waiting around hun - I need to keep pushing and moving along otherwise I think I might go mad!!

the clinic said that for my age group it should be approx nearly 50% success - but if i go in for a consultation they will be abel to tell more from my test results etc..

I haven't discussed any of this with DH at the mo - but am planning on hitting him with it tonight to see how he feels about it. I could be setting myself up for severe disappointment!!

Hope you are doing ok hun?

bx x :hugs:
 
I'm in the states and if this IUI doesn't work out, I will be doing a split cycle IVF. I will go on a donor profile and wait until someone wants my little eggies. I will then go through the same thing as IVF but give half my eggs to a recipient. It cuts the price of my in vitro in half, saving me around $7000.

really hope the IVF works and you dont have to go down this route hunni.
Keep us posted.
:hugs::hugs:
Bx x
 
You are all lucky to be in a place that pays for it (or most of it). Meds included I'm looking at $15000 per cycle. That's why I am going to do egg sharing. I can't afford $15000!! I can't even afford half of that! Praise God for loans.......

FX I don't have to do IVF.

Swim sperm, swim! Implant egg, implant!!!
 
Thank you for starting this post Beckic, I am about the same stage as you. We've been trying for just over 2 years now and have unexplained infertility (mild endo and irregular periods when I don't ovulate every month but apart from that no real issues). AF arrived today for the first time after my lap. I was so positive after the lap but the pain is as bad as it was before the lap and I won't get my xmas bfp. HAve been considering the egg sharing as well and to me it seems like a no brainer. MY only concern is the fact that you and the recipient could have babies exactly the same time in the same geographical area and they could end up at school together or something and I can't get my head around a little genetic bit of me wandering around the place. What do you think about that?
 
Sorry the witch got you Millnsey - I had my lap back in September and I was so sure it would do the trick and was then gutted when she came. Hope you are doing ok?

I know what you mean about a little you wandering around - but I kinda feel that it isnt really my child - its not like i had a child and gave it up for adoption so if that child wants to meet me when it is 18 then I wouldn't mind cos I wouldn't have anything to feel guilty about.
I feel like my eggs are something that die each month and let me down - they arent my future children. my baby is the one that I make with my DH (even if it is in a petrie dish!!)

So I think I am ok with it? also the women getting my eggs will be going private at a harley street clinic in london - so I imagine she will live somewhere posh in chelsea and my poor future IVF kids growing up in good old watford will have no chance of going to the same school!!!:rofl:

Bx x x:hugs:
 
Hi Bx

Feel like shite if I'm honest but thanks for asking! PEople on here kept saying that the first AF after they have cleared up the Endo is like a dream but I'm in just as much main as usual. OH is out on his Xmas do so I'm drowning my sorrows!

I know what you mean about the recipients child not being anything to do with you and I'm totally down with that, I wouldn't have any issues with that. I suppose its the whole fact that 2 people who are genetically siblings could meet up in the future. I think I;m maybe thinking too much about it and the chances are pretty slim! I'll keep an eye on your journey and wish you all the luck in the world for 2009!

M x
 
sorry you feel crap Millnsey - and hope you havent now got a hangover to boot!!

Well - i went for it - and booked the first consultation appt re egg sharing.

I'm trying to not think about the scary hollywood blockbuster where my genetic children meet up in the future and whilst initially hate each other for their scarily similar appearance eventually become best friends and hatch a plan to swap lives - I cant wait!!!!!

Appt next wednesday - as in NEXT WEEK - isnt private wonderful!!!!!

Soooooo excited - IVF and BFP here i come - look out 2009 cos I'm ready for ya........

bx x x:happydance::happydance::happydance::happydance:
 
Hi Bx .. Wow I cant believe your've got an appointment so quick, let us now how you get on.

I've often wondered about this, but never quite had the bottle to go for it.
I think what scares me is if I dont get pregnant and the recipient does !! I'd be mortified ... Do they even keep you updated on the outcome of the recipient ?

Would knowing the outcome make it worse than not knowing the outcome .... Boggles my little head. :shrug:

Good luck though .. you deserve this and fx for 2009. :hugs:

Sarah xxx
 
Hi Beckic

I'm going to be stalking now to see how you get on. That's so exciting - good luck on Weds and make sure you report back!

Millnsy xx
 
What are you expected to find out on Wed? Just a regular consultation for asessment and info or are you meant to think about maybe using this particular private clinic for a cycle? Are we not free-go-waiting-buddies anymore?!? :sad2:
 
What are you expected to find out on Wed? Just a regular consultation for asessment and info or are you meant to think about maybe using this particular private clinic for a cycle? Are we not free-go-waiting-buddies anymore?!? :sad2:

Oh no - dont leave me:cry:

On wednesday we will talk through the process and go through the test results I had on the NHS to get an idea of whether we would be successful /ideal candidates for the egg sharing and IVF. I then have to pay a small fortune to get genetic blood tests done.

so really its nothing definite - cos I might decide its not for me - or even after paying for the bloods they might find I am not a suitable donor. so its nothing set in stone - and I certainly havent given up on my free NHS go - but cos I am waiting-for-the-free-go-wait (cos I have to wait for 6 months to get on the NHS waiting list) I just need to be doing something positive to get me through it.

We can be waiting for IVF-either-by-egg sharing-or-free-buddies???? :hugs:
Bx x x
 

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