IVF Appointment was a *nightmare*

[CurlySue]

And, there I was thinking I was going to come home feeling positive and enlightened. All I feel is incredibly shite.

1) Not only do I have Endo, I have PCOS and have been flagged up as very high risk for OHSS.

2) My blood tests of three weeks ago were 'abnormal' i.e. one of them showed elevated levels and had to be re-done. If they come back STILL elevated I cannot have treatment until more tests are carried out. The one that was elevated was Prolactin and, since my thyroid was fine when tested this could either be due to stress, kidney issues or some other kind of problem. Might even need brain scans, ffs.

3) Regardless of anything, the clinic is closed between the start of May and the start of June, therefore no egg collections can take place during these times

4) I CANNOT GET TIME OFF WORK UNTIL JULY if I do not have treatment this month.

She basically said that it was indeed very unlikely that I would get pregnant naturally "considering all things" (all things that I DIDN'T EVEN KNOW) and that, since I was considered high risk I would need extra testing during treatment and they will ONLY put back one embryo. No more. I will be on a lower dose of drug so therefore I may not respond. I may respond later than expected. All in all, I can expect my treatment cycle to last six or seven days longer than that of a "normal" person (she actually said that, a 'normal' person).

To say that I have never felt lower is an understatement.

This was all supposed to be positive...

 

[FEDup1981]

Im sorry ur appointment wasnt more inspiring. Did you get any positive news at all from it?
I hope you can get started on ur treatment asap. As for work - couldnt you take some sick time? xxx

 

[CurlySue]

The only positive news I got was that the expect me to respond TOO well because of the PCOS and the risk of OHSS and that if i am closely monitored during treatment to prevent the OHSS then I will have a very, very good chance of producing a good quality embryo. The downside, she said, is that I will have to be on a low dose to prevent the OHSS and some women do not respond well to treatment because of it so it's just a case of wait and see.

Honestly, if I had known all this before (why the fuck did they not tell me? I have had all these tests before, I have had a L&D for God's sake) I would not have been so devastated each month I did not get pregnant.

 

[Bexy]

Hey CurlySue, sorry your having such a sh*te time...and how very dare she call other people "normal" and make you feel even worse!!! FX you get some positive news after all this!

 

[tansey]

Sorry about such a bad appointment!
How dare they class you not 'normal' - I think I would have lost the plot after hearing that phrase after all the other news!

 

[pixielou]

Hi Curlysue sorry that your feeling bad at the moment. Why didn't they pick up on this sooner? You must be feeling very frustrated especially since you have a window of time to do it and getting time off work etc is so difficult to arrange.

Really hope that it can all get sorted out quicker for you and that they get to the bottom of what's going on!

 

[Vanessa1004]

I'm sorry it went so terribly--what a horrible thing to say! Don't people have any tact?

 

[HAYS]

dont no what to say chick, understandably your feeling like shite at the mo,!!!

Im surprised they didnt pick up on it sooner, sound like a bunch of gimps!

 

[Brambletess]

So sorry you are finding out these things now. I know how horrible it feels when you realise all those months of feeling wrteched when witch arrived could have been avoided if you had found out sooner. Part of the blow is looking back at yourself during that time, knowing how sad you felt.

Sounds like they are doing everything to make the treatment safe for you. I am sure lots of people have a complicated treatment strategy, every case is different. I don't know why she made 'the normal' people comment. None of us are 'normal' anyway - what is 'normal', so very insensitive. I know it seems like you have a lot of things going on but lots of people have more than one issue causing infertility. It just means you need more careful monitoring. Hey at least they are worried about you over responding and not about you not responding.

If you get used to the idea mentally treatment is starting beginning of June with egg retrieval in July, it gives them time to address the hormone issues. Also with only just finding this stuff out, you need time to digest that and get stress and life balance back. I know I couldn't have gone straight into treatment after finding out my diagnosis. I needed at least a month to get used to it and to feel strong. Keep us posted x

 

[Puddleduck]

God hun what a dreadful time at that appointment. Understandable you are feeling very low right now. What a cow that woman, I bet you felt like slapping her .... I think I would have had to have been restrained

BIG

 

[CurlySue]

It does hurt, Brambletess, because I expected to go there today and come out feeling positive. I came out feeling like I had not only wasted the past God knows how many months but that I will probably end up wasting the next couple of months too because of stupid work commitments, the fact that the hospital is closed (wtf?) and the fact that I have no idea whether or not I will be able to have treatment before MORE tests are done.

I am sick. To death. Of tests.

I want things yesterday. I am more than ready to get things started. This waiting around and postponing of things is making my stress levels even higher. I just don't know why all of this stuff has to happen to us?

I said it again last night. "Things can't get any worse." Why do I even tempt fate like that? Things are SO much worse than I was led to believe. Feel like just giving up now.

 

[CurlySue]

God hun what a dreadful time at that appointment. Understandable you are feeling very low right now. What a cow that woman, I bet you felt like slapping her .... I think I would have had to have been restrained

BIG

At that point I no longer knew what to say. She also said "And, you are relatively slim, so..."

I'm a size eight for God's sake. Relatively? Fucking bitch.

 

[CareBear]

So sorry this didn't give you the news you wanted and you're finding out stuff that you should have been told before. Big

 

[Mrs R]

Aww CurlySue, u poor thing. I don't even know what to say coz nothing can make u feel better when u get bad news after hyping yourself up. Sometimes the impatience and frustration can just get too much.

The only thing I can suggest is shutting ur curtains, renting half the DVD shop, buying 3 tonnes of chocolate and 40 gallons of wine and stuffing ur 'relatively slim ' little size 8 self into an oblivion! (WTF, size 8 relatively slim? She would not be impressed with me then!)

Big hugs

 

[Trying4ever]

God hun what a dreadful time at that appointment. Understandable you are feeling very low right now. What a cow that woman, I bet you felt like slapping her .... I think I would have had to have been restrained

BIG

At that point I no longer knew what to say. She also said "And, you are relatively slim, so..."

I'm a size eight for God's sake. Relatively? Fucking bitch.

Hey you might be fine on clomid.....I'm not sure if I got your whole story but I have been told I have PCOS and I'm size 8 too with no other symptoms so I really dont get it...in fact I have seen a very big cyst though a number of times on my right ovary on the TVS but I still got 100mg clomid and the cyst just grew a few more mm and I had another follicle growing ...the others were just loads of cysts ...or follicles...not sure. I didnt OHSS but then again everyones body is different. But when I go to my 2nd clomid scan I will def check on that cyst...I wouldnt want it to burst and have to have my ovary removed!!

 

[miel]

i am so sorry sweetie ...

 

[Millnsy]

BIg hugs Curley Sue... As you know I've been watching your story and I really feel for you... Not much more to say except I hope things start to look better for you soon. xxx

 

[CurlySue]

God hun what a dreadful time at that appointment. Understandable you are feeling very low right now. What a cow that woman, I bet you felt like slapping her .... I think I would have had to have been restrained

BIG

At that point I no longer knew what to say. She also said "And, you are relatively slim, so..."

I'm a size eight for God's sake. Relatively? Fucking bitch.

Hey you might be fine on clomid.....I'm not sure if I got your whole story but I have been told I have PCOS and I'm size 8 too with no other symptoms so I really dont get it...in fact I have seen a very big cyst though a number of times on my right ovary on the TVS but I still got 100mg clomid and the cyst just grew a few more mm and I had another follicle growing ...the others were just loads of cysts ...or follicles...not sure. I didnt OHSS but then again everyones body is different. But when I go to my 2nd clomid scan I will def check on that cyst...I wouldnt want it to burst and have to have my ovary removed!!

Clomid did bugger all for me. Absolutely nothing. But it did give me blinding headaches and white flashes in front of my eyes and severe paranoia. Oh, and didn't work. They don't do IVF without you first trying Clomid...

 

[CurlySue]

Aww CurlySue, u poor thing. I don't even know what to say coz nothing can make u feel better when u get bad news after hyping yourself up. Sometimes the impatience and frustration can just get too much.

The only thing I can suggest is shutting ur curtains, renting half the DVD shop, buying 3 tonnes of chocolate and 40 gallons of wine and stuffing ur 'relatively slim ' little size 8 self into an oblivion! (WTF, size 8 relatively slim? She would not be impressed with me then!)

Big hugs

I am just so confused. Why is she telling me these things when I have never been told them before? I am not sure who was wrong but I have seen so many different people during all of this that ONE of them must be right. They each contradict each other. Not ONCE has anyone mentioned PCOS. In fact, someone told me I DIDN'T have it, so why do I all of a sudden have it?

I just bought myself some Chocolate Malted Milks. I am going to eat the whole packet whilst re-watching the match. I am so, so, so confused...

 

[chefamy1122]

I am so sorry you had such an awful experience