IVF/FET in Aug'13' - Aug'14' buddies wanted!!*13 BFP's!!**Updates on first page**

I am sorry M, K, I want to give you a hug if I can. But you have the rights to be angry, I feel often the case especially when living with 3 step-kids, the fertility issue strikes much harder I hate myself so much some times. However I firmly believe that it will be my turn, our turn, soon!

I just got the report today, out of 11 fertilised, only 4 made to freeze, 3 Day-5 and 1 Day-6 Blasts, the grading is one 4AA, and three 4BB. I am waiting for my FET after the new year, or in Feb. Though a little bit disappointed because of the number, I pray that my strong snowbabies wait for their mummy with patience.
 
Megan am sorry , in England it take 6 weeks too fet a follow up

On your list I only agree with the one about the hcg infusion it's true it's still experimental

Pgd and immune issues and nk cells are important too know !!

Also chagrin from pio to supp won't help either !

I would suggest going too another clinic hunnie :)

My 1st 2 failed were at one clinic I changed for the 3rd they did stuff differently even down to transfer they were so gentle ! I wud get looking

Sorry ur going through this agin x

You're right hon, HCG infusion is experimental. Also agreed it hasn't been used as much as other procedures to assist with implantation. But when 5 cycles have failed via a conservative approach, its time to explore other avenues isn't it?

Think about this.... IVF by itself isn't 100% perfect either, is it? It succeeds sometimes, and doesn't at others. It's not an exact science either. Yes, its known to work, but so is HCG infusion.

I know you mean well, hon, and I'm just upset about losing one insurance covered attempt after another, without the RE being concerned about identifying the problem.

I was okay with them not doing HCG infusion, but when it added up to them shooting down everything I suggested... it made me wonder if its sound judgment on their part, or just a bull-headed resistance to listening to my concerns.

Going to the next cycle blindly, without identifying the problem or doing anything to improve chances of success is a question of integrity, as far as I'm concerned. It appears they just want to make money out of one insurance covered cycle after another, without doing anything to contribute to its success in the next attempt.

I've scheduled a preliminary consultation with RMA NJ for Dec 18th. I'm also requesting all my patient records from IVF NJ to send them to RMA for review before we meet them.

Hopefully, we can transfer our remaining 3 embies to RMA NJ and do the second FET through them in Jan 2014.
 
Luciola, hon, from what I've heard, 4 frosties out of 11 fertilised is VERY GOOD!

Jan/Feb FET? Maybe we will be cycle buddies next year!
 
hopefully you will get answers have you had full immune work done its about 13 vials of blood you will remeber if you have coz it makes you feel faint and minging lol

was you on blood thinners this cycle ?

my docter put me on blood thinners as my cycles hadnt worked and it was perfect

although this 3rd go i just took asprin

hope your next fet works xx
 
No hon, they didn't do any immune work on me. Neither was I on any blood thinners. Just a big fat waste of time, effort, money, and emotional investment in the results.
 
Megan Scott- I know how you feel. I did 3 ivfs with the same place. I must have been blind. I did no further testing each time my IVF failed. No suggestion of it. No immune testing. As I stated, I emailed Dr. Sher and he said I probably have an immune issue effecting implantation. My doctor just kept saying its egg quality, but I can't believe that one didn't stick.. nothing..

What was aggravating. I asked for my meds today. They called and said that it would cost me $10.0p0. I said please send the records and I will send the check. I received a call back saying they can't mail the medical records until they receive payment. After 3 ivf's you think they would waive the crummy $10 bucks! I emailed my Dr. and he agreed with me and said he would take care of it.

So I'm seeing the new doctor tomorrow morning for initial blood work. Here we go again. I have to do this stuff all over. Fun.. fun .... fun. I have scheduled appointments will all sorts of doctors that are known for various specialties. Hopefully, I can get to the bottom of my problem

Luciola- Sounds like you have a successful batch there.

Sunshine- Congrats on the beta! Very exciting.

Adroplet- I hope to be cycling with you too... Where are you in your plans?
 
Samsfan I called Dr. Geoffrey Sher's office today, but he consults in Las Vegas, and the two doctors that do consultations in Manhattan don't have a consultation appointment available before February!!!

This is the clinic located at 425 Fifth Ave., 3rd Floor (5th Ave. & 38th St.) New York, NY, 10016.

If you could share Dr. Sher's email, perhaps I could consult over email and might find it worthwhile waiting to consult with his panel of doctors rather than go to someone else!! Thanks!!
 
Megan- I made an appointment with Dr. Torriello's office in February. I heard he is great and part of the Sher Clinic. I know Dr. Sher is in Las Vegas. He does Skype consults. I'm not going to Las Vegas and I heard terrible reviews about his office, but he does consider immunological issues. My acupuncturist told me today that Dr. T does not screen for immune issues. I'm keeping the appointment because it's covered by my insurance, but I did make an appointment with Dr. Braverman. He used to be with the Sher Clinic and only focuses on immune issues. He has an office in Manhattan. I am seeing him January 21st in Woodbury. The only issue with him is he is not covered by insurance. He is out of network. They are going to call me next week and let me know what the cost will be for the immune testing. I am told he is the best at immune issues, but not as great with IVF. So I should check him out for identifying any immune issues preventing implantation.

I know I sound all over the place, but I am seeing Dr. Palter at Gold Coast tomorrow in the meantime. I think he may consider immune issues. I know he screens for NK cells and genetic issues and I'm hoping he is going to give me some answers. If he does, I will cancel my other appointments. I also have an appointment Jan 30th with Dr. Spandorfer at Cornell. I hear he is excellent also. I just don't want to wait between cycles and want to be prepared for my plan. I already spent almost a year at one place and I need to explore and exhaust all my options.
 
Samsfan, its not all over the place, in fact I'm impressed!

Consulting Dr. Braverman is certainly doable for me as it close to home.

Dr. Steven Palter is about a 37 miles drive, and I'm only concerned about going there for testing and bloodwork, etc. that could be difficult...

Cornell is not too far, Just 8 miles away, but their website says nothing about autoimmune testing, do you know if they do that?

FWIW, I will schedule an appointment with Dr. Braverman and Cornell anyway. One good thing I liked about Cornell is that they do PGS too, and their testing services are not limited to PGD.

I don't know if Dr. Eric Forman of RMA NJ does testing for autoimmune disorders either, but I chose him because I read he's achieved his fellowship via embryology experience in the lab and I found that encouraging.

Perhaps, like you, I could have my autoimmune condition diagnosed by Dr. Braverman and if thats not a factor, I choose the most convenient clinic... else I have to choose someone who is willing to include management & treatment of whatever autoimmune condition I'm diagnosed with... does that make sense?
 
preventing implantation.

I know I sound all over the place, but I am seeing Dr. Palter at Gold Coast tomorrow in the meantime. I think he may consider immune issues. I know he screens for NK cells and genetic issues and I'm hoping he is going to give me some answers. If he does, I will cancel my other appointments. I also have an appointment Jan 30th with Dr. Spandorfer at Cornell. I hear he is excellent also. I just don't want to wait between cycles and want to be prepared for my plan. I already spent almost a year at one place and I need to explore and exhaust all my options.

Gold Coast as in Australia??:haha:
 
Megan-

Dr. Spandorfer at Cornell does not do immune testing. However, they are on my list because they come recommended by someone that was successful. Also an OBGYN suggested them. I am told they have good protocols and they have mass numbers as far as treatment. Although, their rating is lower than the top #25, I am told that its caused due to their mass numbers in treatment. They are supposedly the best. However, I did notice that NJ RMA has better numbers. You should compare the two. The only doctor that does immune testing in my local area are Dr. Braverman and maybe Dr. T. I have to ask them. Dr. Braverman used to be partners with the Sher Clinic and he broke away. My advice with Dr. Braverman is to ask for the immune testing. However, I'm weary, because I understand it is very expensive and he is out of network. So I figuring his cost.

Dr. Palter came recommended by 2 people. One of my friends went to him when they had failed 3 times with someone else. Dr. Palter discovered that they had a genetic mutation between the two of them and that is why they couldn't conceive. He does in depth genetic testing, PDG and all sorts of other stuff. He is a scientist and has a state of the art lab. He is in the top 25, but he treat very little. Since I have an appointment with him, I'm going to try him.

I even called Colorado, but I am told that the reason that their success rates are so high is because they require you to go through 3 ivfs... 5 day blasts and pdg testing. I am told it is a long time consuming process and that is why their success rates are so high. So I may just skip them.
 
Gold Coast as in the North Shore of Long Island:wacko:

preventing implantation.

I know I sound all over the place, but I am seeing Dr. Palter at Gold Coast tomorrow in the meantime. I think he may consider immune issues. I know he screens for NK cells and genetic issues and I'm hoping he is going to give me some answers. If he does, I will cancel my other appointments. I also have an appointment Jan 30th with Dr. Spandorfer at Cornell. I hear he is excellent also. I just don't want to wait between cycles and want to be prepared for my plan. I already spent almost a year at one place and I need to explore and exhaust all my options.

Gold Coast as in Australia??:haha:
 
Heya everyone :) Ive missed u all :hugs:

Ive been off grid for awhile, lurking in the background so to speak. I want my next ivf cycle to start so badly! I get my meds on mon and call the clinic on the 10th to get my start date so will feel more real then.

Been to see family for a few days so that has got my mind off things with the exception of all the pregnant women i keep seeing that is :dohh: seems like its the season to be heavily pregnant - hoping that if it is the 'season' then i'll be lucky on my next cycle :haha: fxd!!

How is everyone doing?

Sorry ive not been up to much conversation or updating the front page ( will have to update that soon think i have like 80 pages to read through :dohh:) xxx
 
Thank you for your kind words, ladies.

I've accepted the fact that it didn't work, but I am raving mad at IVF NJ for not listening to me when I asked them to make sure everything was okay. I asked them :

A) About being tested for NK cells and whether that would interfere with implantation?
Answer - No, its not proven.
B) About PGS to make sure there were chromosomal abnormalities in the embryos, preventing them from attaching?
Answer - No, we don't do PGS, we only do PGD, which you don't need as neither of you are genetic carriers.
C) About HCG infusion at the time of transfer?
Answer - No, why add something else to the uterus that might prevent the embryos from attaching? Its still experimental and not advisable.
D) Endometriosis
Answer - No you don't have it
E) Testing for autoimmune disorders?
Answer - Not required, no evident symptoms.
F) Second lining check before embryo transfer in the FET cycle?
Answer - No, we only do one check before you start the progesterone. After that, we don't do lining checks.
G) Whether there were any other tests that might determine WHAT was causing the infertility? I have a family history of infertility, and in both cases, there were REASONS ; Blocked fallopian tubes in one case, and Hypothyroidism in the second case. What's my villain?

Today I called IVF NJ to schedule an appointment for follow up, and they want my husband to take a day off from work because the doctor isn't available during the holidays. He wants to celebrate thanksgiving, and its p*****g me off that after so many cycle failures, he would refuse to accommodate us outside his holiday schedule.

For what it's worth, I know that during the consult, he's going to blame me in some way as the reason why it didn't work, my eggs weren't good, I did something wrong, or whatever, but its not his fault.

I know its not an exact science, it takes time etc. but when you have good embryos, and in his own words, a "perfect uterus" why haven't either of the embies attaches, three times round???

When you know you tried something and failed, you don't live with the regret. Right now, I'm living in the what ifs of all the possible things that could have been done differently, and I ASKED him to do those and he shot me down.

I'm sorry for raving and ranting here, I wanted to put this up on the forum for anyone who ever considers IVF NJ, so that they know what they're getting into.

I'm in the process of scheduling a consultation with RMA NJ, and will see about switching my remaining three embies over to them.

Im so sorry Megan - this process takes so much time, energy, advocacy, etc. It is so hard when things don't go as expected. You asked some hard, insightful questions. Good luck as you regroup and take some time to take care of yourself and DH. Henna
 
Thank you for your kind words, ladies.

I've accepted the fact that it didn't work, but I am raving mad at IVF NJ for not listening to me when I asked them to make sure everything was okay. I asked them :

A) About being tested for NK cells and whether that would interfere with implantation?
Answer - No, its not proven.
B) About PGS to make sure there were chromosomal abnormalities in the embryos, preventing them from attaching?
Answer - No, we don't do PGS, we only do PGD, which you don't need as neither of you are genetic carriers.
C) About HCG infusion at the time of transfer?
Answer - No, why add something else to the uterus that might prevent the embryos from attaching? Its still experimental and not advisable.
D) Endometriosis
Answer - No you don't have it
E) Testing for autoimmune disorders?
Answer - Not required, no evident symptoms.
F) Second lining check before embryo transfer in the FET cycle?
Answer - No, we only do one check before you start the progesterone. After that, we don't do lining checks.
G) Whether there were any other tests that might determine WHAT was causing the infertility? I have a family history of infertility, and in both cases, there were REASONS ; Blocked fallopian tubes in one case, and Hypothyroidism in the second case. What's my villain?

Today I called IVF NJ to schedule an appointment for follow up, and they want my husband to take a day off from work because the doctor isn't available during the holidays. He wants to celebrate thanksgiving, and its p*****g me off that after so many cycle failures, he would refuse to accommodate us outside his holiday schedule.

For what it's worth, I know that during the consult, he's going to blame me in some way as the reason why it didn't work, my eggs weren't good, I did something wrong, or whatever, but its not his fault.

I know its not an exact science, it takes time etc. but when you have good embryos, and in his own words, a "perfect uterus" why haven't either of the embies attaches, three times round???

When you know you tried something and failed, you don't live with the regret. Right now, I'm living in the what ifs of all the possible things that could have been done differently, and I ASKED him to do those and he shot me down.

I'm sorry for raving and ranting here, I wanted to put this up on the forum for anyone who ever considers IVF NJ, so that they know what they're getting into.

I'm in the process of scheduling a consultation with RMA NJ, and will see about switching my remaining three embies over to them.

BTW - we did PGD and I did not have any genetic carrier issues (I tested completely free of all). We did PGD b/c we had already been through the pain of a mC once, and we did not want to mess around. Time will tell if that was helpful or not. My doc recommended b/c of our age and to increase the efficacy of IVF. We paid 5K for it, and hopefully it will work.

xo Henna
 
Sorry to post this amidst all the BFNs but I did want to share my beta today. It was 4517. I am scheduled for my first u/s next wed, dec 4. :happydance:

WTG Sunshine!! We have to post all :happy dance: of our trials and successes. Welcome news!
 
Happy Thanksgiving to all you ladies. I am going to remember how thankful I am for all of you in this group. Best of luck to us all in the coming season. xo Henna
 
Thank you Henna.

Samsfan, that's a lot of very useful info, thank you so much!!

I called SIRM this morning and took the Feb 18 appointment she offered me. I also asked her whether Dr. Tortoriello tests for autoimmune conditions and she said yes he does. That settles it for me, because then I don't have to pay Dr. Braverman who is out of network and will end up being very expensive.

Also spoke to someone who works at IVF NJ, she's become a friend over the last year we've been going there... And she said that if I wasn't happy with Dr. Jurema, then I would NOT be happy with the care at RMA NJ because they have a lot more patients and a lot less personalization. Also, they do not test for autoimmune conditions.

She highly recommended IRMS NJ who have offices all across Northern NJ, one of them at Hackensack is just a 20 minute drive away, and Dr. Hughes is apparently highly recommended. She said there would be a lot more diagnostic testing there, and lot more personalization to my situation. I'm going to cancel my appointment with RMA NJ and set up the IRMS appointment. Between IRMS and SIRM, I will decide which facility I feel more comfortable with, and transfer my remaining three embies there for the next FET.

Sunshine I'm having a problem viewing PMs with both my phone and my computer, I keep getting notified but the message isn't opening up. Just wanted to keep you posted so that it didn't seem like I wasn't responding. You're a great help and I'm trying to fix the problem with my computer.
 

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