Its undecided if it is para myotonia or neuro myotonia, although the most recent result suggest neuro myotonia, he currently has what a dr would deem 'early symptoms' but they are progressing quickly, its an inhereditory condition, I only have mild symptoms, my brother severe symptoms, my little sister has bad symptoms and my mother on parr with my sister - however no one in the family developed symptoms until their early 20s, for me was even later, but Joshua is 8 and his symptoms are almost on parr with my sisters... he has pains in his lower limbs often cant weight bare, but he in the last few months has started with pins and needles in his hands/wrist and more recently keeps losing sensations in his hands and drops things or gets pain if using his hands too long. All his symptoms are dramatically worsened by the cold, and its been medically proven that the cold exagerates the symptoms, so my Dr hopes that with her support we'll get a better heated house, I can not begin to explain how cold this house gets, Single glazed windows, only have 2 fitted heaters in the house which are economy 7 storage heaters so I cant control the heat in the evenings to make it warmer for him. Plus he has nocturnal enuresis, so the wetness in a cold room against his legs = pain and nooo sleep for either of us! He's really good though he just gets on with it, we were told we would get benefits for him but I never claimed them because Im too proud I guess, now they arent available because the government are clamping dfown, but I wont turn down the opportunity to move that will directly benefit both the boys, because its very likely George will develop the same eventually, Joshua was under 2yrs when his symptoms started