_Vicky_
Mum to twins
- Joined
- May 22, 2009
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Hi all,
At 37+4 my boys werent premature but as Fynn had NEC (Necrotising Enterocolitis) link to description here https://www.patient.co.uk/doctor/Necrotising-Enterocolitis-%28NEC%29.htm which is predominantly a condition found in prematiure babies I thought I would post my story here. The reason is that when my son was diagnosed I could find nothing positive on the condition and all I read about was mortality rates - which in the awful dark panicky days made the agnoising wait even worse so I wanted to give someone somewhere soemthing good to read in case you are in my shoes and scared to death at 3am (omg tears still flowing here at the memory and he has been home three weeks lol)
OK (get a grip) Fynn was born on 21st January by forceps he is twin one - he weighed 5lb12oz and all looked fabulous!!!! His little brother was on three hourly obs due to low birthweight so we stayed in hospital a few days. During the first 48 hours Fynn wasnt feeding right and was being sick - a gunky dark sick from nose and mouth. As we were still in hospital he was whipped down to special care and they decided to keep him in - he was put on nil by mouth for 24 hours and then was slowly introduced to food again. Bad news he stopped tolerating his foodn after about 36 hours
The consultant needed to do further investigations and they x-rayed him and told us it was NEC which meant nothing to us. Then I made the biggest mistake in the world and googled it - awful.
To cut a very very very long story short Fynn was taken off food for one week and was maintened on TPN through a long line into his scalp he did fabulously when they reintroduced food and finally came home on 9th Feb (two days after his due date)
He is gaining weight and thriving and just a joy to have - even at 3am when all I want is sleep lol.
I dont know if anyone will find this useful but if anyone wants any more info on our experiences then please pm me
xxxxxxxxxxxxxxxxxxxxxxxxxx
At 37+4 my boys werent premature but as Fynn had NEC (Necrotising Enterocolitis) link to description here https://www.patient.co.uk/doctor/Necrotising-Enterocolitis-%28NEC%29.htm which is predominantly a condition found in prematiure babies I thought I would post my story here. The reason is that when my son was diagnosed I could find nothing positive on the condition and all I read about was mortality rates - which in the awful dark panicky days made the agnoising wait even worse so I wanted to give someone somewhere soemthing good to read in case you are in my shoes and scared to death at 3am (omg tears still flowing here at the memory and he has been home three weeks lol)
OK (get a grip) Fynn was born on 21st January by forceps he is twin one - he weighed 5lb12oz and all looked fabulous!!!! His little brother was on three hourly obs due to low birthweight so we stayed in hospital a few days. During the first 48 hours Fynn wasnt feeding right and was being sick - a gunky dark sick from nose and mouth. As we were still in hospital he was whipped down to special care and they decided to keep him in - he was put on nil by mouth for 24 hours and then was slowly introduced to food again. Bad news he stopped tolerating his foodn after about 36 hours
The consultant needed to do further investigations and they x-rayed him and told us it was NEC which meant nothing to us. Then I made the biggest mistake in the world and googled it - awful. To cut a very very very long story short Fynn was taken off food for one week and was maintened on TPN through a long line into his scalp
he did fabulously when they reintroduced food and finally came home on 9th Feb (two days after his due date)He is gaining weight and thriving and just a joy to have - even at 3am when all I want is sleep lol.
I dont know if anyone will find this useful but if anyone wants any more info on our experiences then please pm me
xxxxxxxxxxxxxxxxxxxxxxxxxx
I talk to you other at multiples too and its nice to hear their story x
