Scottish Sam
Mummy to Rebecca Rose
- Joined
- Apr 1, 2008
- Messages
- 289
- Reaction score
- 0
Hi
not really sure if i should post here
I am mummy to Rebecca who was diagnosed with persistant cloaca, small hole in her heart, abnormal looking spinal cord and small issues with her kidneys( thought one was split when she was born)
https://en.wikipedia.org/wiki/Persistent_cloaca
basically she only has one opening when she should have 3. she has a stoma at the moment but is due to have a big op on the 22nd may to create an opening for her bum and girly parts then a couple of months after that she will get the stoma reversed and have her first dirty nappy
so far they are not concerned with her heart as long as the hole remains small and we got great news yesterday about her kidneys, they seem to be working the way they should and both are whole!!
so no idea what the future holds in terms of developmet due to the spinal cord thing, just really scared she wont be able to walk but have been told ther is no reason for that to be the case
sorry! just realised i have rambled on a bit!!!!!!
not really sure if i should post here
I am mummy to Rebecca who was diagnosed with persistant cloaca, small hole in her heart, abnormal looking spinal cord and small issues with her kidneys( thought one was split when she was born)
https://en.wikipedia.org/wiki/Persistent_cloaca
basically she only has one opening when she should have 3. she has a stoma at the moment but is due to have a big op on the 22nd may to create an opening for her bum and girly parts then a couple of months after that she will get the stoma reversed and have her first dirty nappy
so far they are not concerned with her heart as long as the hole remains small and we got great news yesterday about her kidneys, they seem to be working the way they should and both are whole!!
so no idea what the future holds in terms of developmet due to the spinal cord thing, just really scared she wont be able to walk but have been told ther is no reason for that to be the case
sorry! just realised i have rambled on a bit!!!!!!