Numb....lost....I can't lose my baby :'(

Again, thank you SO much to everyone for all of the kind words....very heartwarming :hugs:

So....my doctor called with the first of my results back (not from the amnio yet, but from my bloodwork) it was negative for Downs, and for any Trisomy condition. The bloodwork is positive for Neural Tube Defects. We don't know any more details until the amnio results come in. My mind is racing with what that means :wacko: I NEED those results....I feel like I am losing my mind.... :cry:
 
I am so sorry. I can't imagine how hard this must be for you and your family. If it is a neural tube defect do they think it is something they can repair in-utero? Again I'm so sorry and pray your family can find peace somewhere in all this and that you get answers quickly.
 
My thoughts & prayers are with you during what must be the hardest wait of your life, please let us know how you go, we are all hoping for the best for you xxx
 
Oh hun, I was in a similar situation 6 months ago. I am holding my perfectly healthy baby as I type this. None of my doctors ever thought things would turn out this way but they did.

Tests are just tests and doctors are just doctors. No one and nothing can tell you with certainty what is happening with your baby. Ultrasounds and blood tests are all just clues. Even amnio isn't 100% (I know an instance where it was wrong). I declined amnio despite having a growth restricted baby with 2 soft markers for down syndrome plus a positive blood screen. I was told if it was not down syndrome then it was certainly another syndrome because it just was not possible that my baby was normal. She is. I was told to prepare for a higher risk of stillbirth, I was offered termination. My baby is fine.

Have faith in your baby, have faith in God (if you believe). Miracles do happen. I pray your baby is a miracle too.
 
It bought tears to my eyes. I am truly sorry and hope everything does work out. May god give u strength during this time. Remember you will always be a mother
 
You don't have to do anything. Even if something is wrong you can still continue with the pregnancy.

i agree can u not ask them if u can carry on maybe ur little ones a fighter and let nature take its course ie if u mis carry then thts ment be or if u deliver early then baby will be in good hands an if survives.it sounds like u want give bubba a chance but its a hard one as statistics arent good etc but maybe bubbas a fighter. ask yourself could u love an raise a baby tht has probs all its life or would you rather let it rip and try for a healthier preg. plus u/s can get it wrong ie mis things. so i could give birth to a disfigured etc baby as u cant see everything on u/s.i have a son an he has skin tag on ear which is common an harmless but u/s nvr showd this.

i hope u find nwses ur looking for it cant be an easy situation to be in
best wishes too u it will be a difficult an long 2 week wait for u jst try an rest and not stress yourself i no its easy said than done as i have 11mnth son an am 34+2 wks preg with second
 
I am so sorry for what you are going through and having to wait for results. My thoughts are with you and I hope everything is ok with your baby. :hugs:
 
I went for my ultrasound on Tuesday, I am 17 weeks. What was supposed to be a happy, exciting moment turned horrible in about 10 seconds after they started looking. They found a fluid sac from baby's head to his/her bum, a sac around by the neck, and a sack in his/her tummy, all full of fluid. There was a good strong heartbeat. Right away I was told that it is very obvious Chromosomal abnormalities. I went to my doctor right away, and she looked at the report and said it is not good....IF baby were to go to term...he/she would have no quality of life whatsoever. Don't get me wrong, she said this in a very sympathetic way, not harsh like I made it sound. She then sent me immediately to a specialist. The specialist said the same thing. I got an amnio done....and it is 2 weeks or so until I get results. I will be almost 20 weeks once the results come in. So, I was told that there is a chance I will miscarry, and if not....we have to discuss the options. That makes me sick to my stomach to hear....I know exactly what they mean....terminate my pregnancy. I feel numb....I feel like my whole world has just been taken away from me, crushed after a 2 minute ultrasound. The thought of "terminating" is horrifying to me....he/she still has a heartbeat....and is still MY baby. I guess the amnio will make everything more clear....but as of right now....I am already grieving....I don't know how else to take all of this.

I had so much support here after my first loss...I was just hoping for someone who has heard of this before, or has experienced it.

Thank you
Im so sorry sweetie, I went through the same thing, At me scan I was told baby had lots of fluid, Fetal hydrops and a massive cystic hygroma 10.6mm (nuchal measurement). It shattered my world, I dd have a feeling things were not right and I had also bled a wee bit at 8 weeks. I was told there wasnt much hope. I had a trip to Thailand planned the next day, We ewere told I could miscarry, In hindsight I should never have gone because if I had gone into labour over there it would have been terrifying. I got home after 3 weeks and had my specialist appointment and had a scan before the amnio, Baby had already gone, It was a blessing really because I never wanted to have to make that awful decision, I was give a tablet to soften the cervix and two days later I was induced. My wee darling Ricky (who we later found out was actually a girl!) was born on sept 1st this year. After an autopsy they found she Edwards syndrome, I was given a 1:1200 odds of having that after the combined screening at 12 weeks, We were that 1. I am happy to say I am 5.2 weeks pregnant again but I am so so scared, I send you all my love and hope you have a great support system. It is a life changing experience. I recommend taking lots of photos of your little one if you have to end the pregnancy or they pass away. I have my beautiful album to look back on when I am feeling brave. She should be kicking away in my belly now and it is so hard but you will get through this like I did. If you ever need to talk I am here xxxxxx
 
I just wanted to give a breif update.

We have got some news. First of all...it's a girl :cloud9:

We got the amnio results back, and also went for another ultrasound. She is not going to make it :cry: :cry: :cry: Too much against her. My poor girl has three major issues.... severe Turners syndrome, a massive cystic hygroma, and fetal hydrops around every organ. Her little heart will not be able to keep up.

I don't have much more to say right now....but I just wanted to let you wonderful ladies know where things stand.

:hugs:
 
So sad and sorry to read about your little girl. :hugs:
 
I am so so sorry, I am here if you ever need to talk xxxx I know how you are feeling and sometimes it helps to have someone who knows what you are going through x
 
Sending you lots of prayers your way, I'm so sorry xx
 
So sorry. This is so sad. Sending you strenght for the coming months. There are forums on here for loss that you may find some comfort in.
 
I'm so, so sorry to hear this. Please know that I will keep you in my thoughts.:hugs:
 

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