PAL after Recurrent Losses - come join us!

[jkb11]

I apologize I did a Google search and was directed to the very first page and read the 1st post only then posted. I did not realize there was a loss.

Kelly I'm sorry for your loss.

 

[dairymomma]

Jkb-don't give up hope yet. I'm currently 6 weeks and my FRER lines stayed in the firmly faint/no change category from 12 dpo to about 16dpo. I wasn't testing every day and always used fmu so there should have been change but there wasn't so I was mini-freaking. Then my bloodwork came back and my hCG at 18dpo (or was it 16 dpo? Can't remember) was 126. Two days later, I used another FRER and found my lines had darkened considerably and my hCG had almost tripled to 330! It's important to remember that the amount of hCG in your urine can vary incredibly from the amount in your blood and test line darkness is no way to gauge whether or not the pregnancy is continued. Especially in these early days. I'd step away from the pee sticks and as hard as it is, wait to see what your blood tests show.

Kelly-I'm so sorry for your loss and I hope that your DH changes his mind later. I second getting tests done anyway because it might help give closure to know what happened.

AFM-PARLanoia is hitting me a bit. Not sure why as nothing scary is really happening but I'm getting that 'oh dear' feeling. Makes me mad because I felt SO confident just a few days ago. Seems like I did this with LO though too so I was kinda expecting it. And it feels like I've got a sandbag in my uterus but not painful. Just heavy. Going to see how the weekend goes and if I'm still having this jittery feeling, I'll call the dr on monday and see if he can get me in asap for an ultrasound just to ease my mind. I don't *think* this heaviness is worrisome (probably just things growing) and I don't feel like it's totally causing my PARLanoia but it's sure not helping iykwim. Ugh.

 

[petitpas]

PARLanoia Sorry, I know it means something scary but I love the word in itself!
We all go through it and hopefully this will pass soon go get that scan and say hi to your bubba!

Kelly, I'd have the pregnancy tested just in case. It makes no difference to your care right now but if your situation did change in the future then the information would be there if you needed it. It would mean a letter in the post, though, which also confirms the gender. That can be a very emotional moment

Hello jkb,
Were your four losses consecutive? As in, you didn't have a healthy pregnancy in between?
Then I will be honest, the likelihood of it being a genetic problem each time is quite low. Still, ivf does seem to work for some women. Perhaps due to the increased control of the cycle. Are you on any medication now? Progesterone? Aspirin?
Extra vitamin D and omega 3 (not cod liver oil) are supposed to be helpful.
Did you have any recurrent miscarriage testing in the past?
It is worth asking about prednisolone but not all doctors are happy to prescribe it as it is still not quite proven as a treatment (there are studies being carried out, though, it's just a relatively new subject).
Good luck and keeping my fingers crossed for you!

AFM, not long to go until Tuesday. I'm not ready yet!

 

[floridamomma]

I'm sorry for your loss Kelly. Testing is a good idea. Just in case there is something that can be done. My husband and I both said that we don't want anymore after five miscarriages but my heart wouldnt allow me not to at least investigate just for myself. A lot of time after testing they're more willing to try different things. I know this doesn't help right now to ease the pain but maybe in the future it'll give you guys a standing ground to start from should he change his mind.

 

[floridamomma]

Jkb I have had five miscarriages not have been tested for genetic issues but the Doctors doubt that's what it is. I've had pretty much all tests except nk cells. My doctor is just trying steroids. At this point that's the plan of action. Like Petipas vitamins and baby aspirin are good. I take a prenatal, b12, vitamin d, a total of 2mg of folic acid, omega 3, baby aspirin and 10mg daily of prednisone. At ovulation I'll add lovenox. And stop baby aspirin. Similar regimens have worked for other ladies.

 

[DSemcho]

Kelly I'm sorry for your loss. I suffered through 6 losses before this one has decided to stick so don't give up!

Good morning ladies,

Kelly, I can't even put into words how sorry I am for you. Like wookie asked, if you don't mind sharing. How come this is your last time trying?

DSemcho, your husband sounds like a wonderful man. I'm lucky mine is as well. I can't believe your sister gained 80lbs while pregnant!!! I've been having weird dreams too. Had one about last night about my husband being dressed in a Santa outfit and he sent me a video text on his phone of him showing...ya know...his goods and so I rushed to the room he was in which was like in a hotel, but didn't look like a hotel and he was drinking whiskey which he NEVER drinks and he was absolutely wasted. He wanted to BD, but I told him we had decided to wait until after I see my doctor on the 26th to make sure it's ok with my mc history and he got reallly upset. There was a lot more weird stuff in the dream, but that was the main part. I think it's because we haven't had sex since I found out 3 weeks ago just out of fear of causing something to happen. So I think I want that time with him and I'm sure he does too, so it makes me dream about it because I feel bad. But yeah, talk about REALLY weird dreams!!!

Yeah she used 'the baby needs it' as an excuse to eat value meals from like McDonalds and Taco Bell and all that all the time. Omg me and DH haven't this year at all and as of now baby is fine! I have sex/trying to get sex dreams about him a lot now :/

 

[Squig34]

No squig what is this and who does it

It's basically literally where they 'scratch' your womb lining. By causing a wound, it creates an inflammatory response & changes the womb environment. It's done to help promote implantation - I'm afraid I can't remember the exact gestation of all your losses but I think they were early, right? Like mine, which were all between 5-8 weeks & this points to a potential implantation problem. I think your RM consultant or a gynae consultant can do it - I actually got it because I got a biopsy at Prof Quenby's Coventry clinic to test for NK cells (I didn't have elevated levels & a scratch is the same as a biopsy just without the testing). It is painful but quick & I believe it's the main factor for me in having this pregnancy stick after 5 losses. I have the feeling someone else said that the NHS will only do it if you're under 40, but since there is a cost at the Coventry clinic, I don't think there's an age limit (not certain).

Welcome jkb, sorry to hear of your losses & good luck for this pregnancy -I hope your lines get darker. Are you testing with FRERs or just Internet cheapie sticks? FRERs will likely get you better lines.

 

[DSemcho]

Going to the gym for the first time since my BFP. I was an avid weightlifter (not the bulky girl kind) mand stopped until a safe point. I think 11 weeks is safe enough as long as I do 10-15lb Dumbbells.

 

[Hope39]

So sorry Kel xx pm on fb if you need a chat xx

 

[jkb11]

Thanks ladies, for the encouraging words.
I have been using frers. This am was a little darker but still not near as dark as the control line. I'm currently 8dp6dt.
As far as medicine- I am taking Estrada 2x daily, vivelle patch, PIO injection nightly, I am also on labetalol (for high blood pressure), and metformin (for pcos, not diabetic). I can't takeaspirin as it effects the labetalol.
All of my losses were consecutive, I do have a son from my same husband that is 10 years old. We had no problems with his conception or pregnancy.
They haven't tested any of the miscarriages I have had, they all were around 5weeks.
I have always felt guilty, like my pcos is causing it but my RE just ensures that's not it and that ladies with pcos have healty pregnancys all the time. Which is why she was convinced it was a genetic issue but it wasn't. I just feel like something's being overlooked.

 

[petitpas]

Squig, I have read positive things about the scratch

Jkb, even though many women with pcos have healthy babies, many also don't. So it is good that you are being treated for it.
What is estrada?
PIO sounds painful but progesterone is routinely given and can really help, especially with early losses.
Is this your first pregnancy with all these meds? Fingers crossed this is it!

 

[jkb11]

Squig, I have read positive things about the scratch

Jkb, even though many women with pcos have healthy babies, many also don't. So it is good that you are being treated for it.
What is estrada?
PIO sounds painful but progesterone is routinely given and can really help, especially with early losses.
Is this your first pregnancy with all these meds? Fingers crossed this is it!

Sorry I was autocorrected! It's estrace. Yes, first one with the estrace, vivelle patch, and PIO injections. I did the crinone vaginal suppositories with previous losses. The injections really aren't too bad I was expecting much worse.

 

[dairymomma]

Petit-PARLanoia...It's the only way to describe it, eh?

AFM-today is better. Not so jittery. We'll see how it goes though and I'll make a decision monday. I wouldn't be getting the ultrasound until later in the week due to how far along I am and my schedule anyway so I'm up in the air on it but it would be nice to get confirmation that baby is in there and all is okay.

 

[dancareoi]

Squig, I too had scratch at prof quenby's clinic whilst testing for uNK cells.

However, I was slightly different, I'd already got 3 kids (mmc before 3rd) then a loss in jan 12 at 13-14 weeks gestation And another loss at 9 weeks.

I was under prof q clinic before second loss and she suggested scratch and uNK test(which was negative )

I was also prescribed progesterone from OV. First month of trying after scratch (age 41) I got BFP and my rainbow is now 16 months old (progesterone up until week 28 and daily injections of clexane from 7-28 weeks)

In conjunction with this I was also seeing an acupuncturist from just before I got pg up until 36 weeks!

This combination got my rainbow.

 

[Squig34]

That's interesting Dancareoi - I've heard good reports from others too about acupuncture helping in pregnancy. My NK cells test was negative too, I was so sure that was going to be the problem but it seems I must just have had a hostile womb environment. Why did you have to take the progesterone & Clexane so long? Mine was only til 13 weeks.

 

[DSemcho]

Hey ladies.

Ultrasound in 12.5 hours. I'm scared because I've been getting pains off and on all day.

 

[wookie130]

Good luck, Desmcho!

 

[dairymomma]

DSemcho-good luck. Ultrasounds can be nerve-wracking but hopefully it puts your mind at ease.

AFM-didn't call the dr. I'm mostly okay about things now (PARLanoia has ebbed) and part of me is scared of the ultrasound too. It's the same reason why I can't bring myself to do another hpt-I'm too scared of what the results could be. If the lines are faint, I know it could be the hook effect but it'd just cue up a panic attack and the thought of an early ultrasound does pretty much the same thing. So I'm holding out for my appt unless something happens before.

I will admit that the next two weeks can't go by fast enough though...

 

[Radiance]

Well ladies! I got the SURPRISE of my life today! I've been feeling off for a few weeks. I've been nausea AND sick this all week, at all hours. So I tested, expecting nothing. POSITIVE! I took a test January 6th that looked negative but at lighting looked extremely faint. I assumed it was the indentation of the test. Base on that test and today's test I'm estimating I'm about 5-5.5 weeks. So we got pregnant right after having Elena. I started the baby aspirin for the first time ever tonight and calling my high risk tomorrow to get progesterone. I've tried neither during first trimester so hoping those do the trick!

Lucky #9... please!!

 

[DSemcho]

Dairy - what is the hook effect?

Radiance - that is awesome! Congrats!

AFM - one of the girls in my group had a loss yesterday at 11+3 but said the baby was at almost 8 weeks. It makes me scared because she was a couple of days ahead of me, but since I saw my baby last week at 10+3 that should mean everything should be fine right? Makes me even more scared... 3 more hours.